Afinitor/Aromasin

rstogether

hi @norah2024

I’m so sorry you are going thru this. I went off the affinator a few times for various reasons, and didn’t see any changes in markers or disease progression. I hope this is the same for you.

How frustrating not to be able to find the dose you need. I was on the 10mg the whole year I was taking it.

Good luck - hope those liver enzymes snap back.

Rebecca

norah2024

@marcials1

You’re always incredibly helpful with your information and encouragement.
I felt much more at ease when you told me that your oncologist says that stopping for this period doesn’t have an effect.
I’ve coordinated with some friends to bring the medication, hopefully this Sunday or Monday.
I hope everything goes smoothly.
As for my own oncologist, it’s hard to reach him he rarely answers my calls, and the nurse doesn’t convey the information to him in the way I need.

I don’t have any health insurance, so I cover all the expenses myself after my husband’s retirement.
Sometimes I get the medication from neighboring countries because it’s much cheaper, so whenever the doctor changes the dose or the medication, I face difficulties getting it on time.

I hope your root canal procedure goes smoothly. I’ve had this done before, and it does take some time and patience, but the outcome is usually good.

During my visit on Tuesday, I had a long discussion and some debate with the doctor. He clarified a few things for me regarding the current treatment and the available options at this time. I’ll try to write about this in detail another time when I have the chance.

I’m also currently looking into other people’s experiences with online medical consultations.

You can referto my thread:

https://community.breastcancer.org/en/discussion/887954/online-medical-consultations-has-anyone-tried-them

Thank you for always replying to my messages 🙏🏻🤗I truly feel reassured every time I receive an email saying that you’ve responded.🧡

norah2024

@rstogether

Thank you Rebecca, for your reply. I truly appreciate it.

I also hope that my liver enzymes go down again so I can return to the higher dose, because I don’t know what the next step would be if the liver enzymes continue to rise.

I had been feeling reassured since I haven’t experienced significant side effects so far, and because the tumour markers which had kept rising when I was previously on Kisqali , finally started to go down.

However, the elevation in liver enzymes has been quite troubling for me, and changing the dose or the medication itself is always anxiety provoking until things stabilize and I get used to the treatment each time.

I had imagined that I would stay on this medication for a longer period.

🧡🤗

seeq

@norah2024 can you call you call your pharmacy? Even the specialty pharmacy should have a pharmacist you can talk to and ask if you can cut the 10mg pills in half, or not. In the mean time, I'm hoping the little 5mg buggers come out of hiding

norah2024

@seeq

I don’t know whether cutting the 10 mg pill in half is correct or not, because I have read a lot online saying that it should not be split, as this may reduce the effectiveness of the medication or cause side effects due to splitting it.

I also forgot to ask the hospital pharmacy about this during my visit to my doctor last Tuesday.

I have coordinated with some friends in a neighboring country, and they will send me the required dose next week, and I hope it won’t be delayed any longer than that.