Team ILC Warriors
Comments
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"It's kind of a delicate balance and can be very hard to know where the "line" between vigilance and obsession lies."
Ain't that the truth. It is something that is still a work in progress for me, to find where that line is.
I am glad you are almost done with the fills. That is something I don't think I could deal with.
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I know. Not sure if I will ever find that damned line!
I do accept that my ability to make all the right choices is somewhat hampered by my desire to live a full and enjoyable life.
As a coach, I tell my athletes to follow an 80/20 rule; make good choices 80% of the time, but don't sweat the other 20%. Now I am trying to follow my own advice.
As far as the fills, I have to keep reminding myself that I volunteered for this. Trying to keep my eyes on the prize.0 -
Yes, you did volunteer, lol. Best wishes for splendid results.
The advice you give your athletes is good advice. I will keep it in mind. I do find that being 100% virtuous all the time is simply not realistic, and even if you succeeded it would be rather dreary. Besides, "virtuous" in this context is not always easy to define, since nobody seems completely sure what we should and shouldn't eat, for example.
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Love that 80/20 advice Kestrelgurl! I'll remember that!
Claire, (from the North Country!)
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Momine, I love that you used both virtuous and dreary so well in the same sentence! Well, done!
And, for what it's worth, I'm pretty sure I don't want to spend my days being either.
Claire, you will "win" the weather wars in a couple months, but it sure is nice down south right now.0 -
Congrats Kestrelgurl on having only 1 more fill! I hope the pain is lessening for you. Summer is coming and you will be a buxom beauty!
My BS told me that its not that ILC reoccurs more often, its sadly that its not detected until its large or too late. I hate to think that but It is a reality for many of us. I feel like my chances of living another 44 years is good but my chances in 44 years that I will live this hell again are a reality. The fear is always going to be there and I know I have to be vigilant. I just hope the choices made now I dont live to regret in the future should it rear is cold heartless head again. But on the otherside, none of us may ever go through this again.. I like to think that this happened for a reason..maybe to help someone else? If thats the case I can accept that.
Where is spring?? Not here in Northern Ohio, still snowing
Making me a bit cranky....0 -
Buxom? Me? LOL! But thanks for the positive thoughts.
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bux·om
/ˈbʌk
səm/ Show Spelled [buhk-suhm] Show IPA adjective1.(of a woman) full-bosomed.2.(of a woman) healthy, plump, cheerful, and lively.LOL.. I had to go look up the definition to be sure I didnt insult you... I know you are healthy, cheerful and lively and with your 25ccs full-bosomed (odd word I havent heard in years) .. take out the plump, I know your athletic..0 -
I don't insult that easily, Lemon.
Full-bosomed. That made me laugh.
G'night, all.0 -
Kestrelgurl, I like your profile pic. I usually view this site on my iPhone, so it's pretty small. I think I just figured out that it's an underwater shot of you swimming (butterfly maybe?) ... Am I right?
I also like Claire in AZ's pic ... The yoga pose silhouette against the desert mountains is very cool!
Someday I'll add a pic, but it will have to be cool. ;-)0 -
Went to the orthopedist today, which was quite entertaining. Being a slender Dane going to Greek docs is often entertaining. My back is terrible, bad scoliosis, a slipped disk, osteopenia, yadda-yadda, so I thought I would go discuss with a specialist to see how I manage all this going forward. So I had two orthopedists who both examined me, looked at my MRI etc, and declared me "perfect." They were amazed by my strength and flexibility as well as by my slenderness. They kept expressing the wish that all their patients would take such good care of themselves. So that is at least some good health news and made me laugh besides.
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Lemon - can you please say some more about what your Onc said? I am really in touch with fear and terror of recurrence at the moment, not helped by looking myself up on lifemath which shows I may never need a pension!!! I can tell myself all sorts of things about not believing statistics etc etc but the terror remains, especially as the original cancer was invasive and locally advanced.....I don´t get that hung up on the nodes though as I do believe they are supposed to trap rogue cells so they worked....
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Good morning, fellow Lobulites! (Gosh....I hope no one is offended by that!) It's a beautiful day in the desert!
Momine, congrats on astounding your American physicians! I like to think of myself as the healthiest sick person I know. But I do envy your flexibility. :-)
Gemini, my avatar is actually pic of me in the pool at the end of a huge slip'n slide. Nothing as impressive as butterfly, but way more fun.
It appears that my pec muscles have finally decided to submit to the TE's and I can breathe again! Dang, that was rough. I think I need to find a new avatar.....thinking someone in a hard coconut bra perhaps? ;-)
Riding my cruiser bike to work today.....that means it's already a good day.0 -
Kestrel, just to clarify, these were Greek docs. Greek ladies, for the most part, are not fond of exercise and the obesity rate down here rivals the American one. So my idea of acceptable weight and general physical condition is radically different from the norm around here.
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Good morning ILC gals, (but I do like kestralgurl's Lobulites..how about Lobulitas? Kind of like "Lolitas", yes?
Gemini, my husband took that photo the day of my very last Taxol treatment last year (this month!). I got in the habit of hiking after every Taxol tx, and at the end I felt very empowered, hence the triangle pose!
Lovely day in the mountains of Ariz. 67 degrees and spring break is coming, meaning I still have to work, but don't have to go in to the classroom to teach. Plans to hike and read as well as visit my naturopathic oncologist with specific questions for him on Monday next. I'll post what he tells me about ILC, if I find anything of value...
Have a great day Lobulitas!
Claire
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Lobulitas! :-D Love it!
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Lobulitas, lol, yes a little like Lolitas, although that is pervy
but also like mammasitas, which my Mexican guys used to call me when they were being cheeky.0 -
Love the lobulita name!!
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Cool name. Nice to hear about the warm weather, too. Here in Israel we are having a heat wave. Weather here is similar to that of southern california, 60's to low 70's in March. Tomorrow is supposed to be 95 deg! They actually cancelled the Tel Aviv marathon which was supposed to be tomorrow, rescheduled for next Friday. Then Sunday the temp is supposed to drop 30 deg. Go figure. I'll be inside cooking all day anyway, tomorrow. Kids all home. Coming home from college, as third son is scheduled to start his military service on Monday. Lots going on!
Re lobular, I want to tell you the first words from my breast surgeon upon hearing of my dx. 'Oh, lobular, slower growing. That's good news." I have the attitude (perhaps incorrectly, but I'm holding on to it anyway:) that we are all being watched extra closely (mammogram/MRI every six mos, alternating) and that if anything is starting to grow, it will be found early. Also, Femara was just shown to be extra good for Lobular, study from last December, I think. Re mets, I have learned not to go down that worry road, as you can drive yourself insane. Assuming we do all that we can medically, then live a healthy lifestyle, there is nothing more we can do. It either will or won't happen, and waiting and worrying won't do anything but spoil this time. I am terrified to fly (though I do, no other way to visit my family in the US - too far to swim) but I have come to think of recurrence in a parallel way. The plane will either crash or it won't. I'm wearing my seatbelt and hope the pilot is awake; the rest is out of my hands. Same thing w bc. Letting go of the feeling that this is within my control is quite liberating and I try to focus on living well, enjoying my family, life, now. Easier said than done, especially in the early days, but as a cancer survivor friend of mine says, 'What you worry about is not what's going to happen,' She's a 20 yr survivor of lymphoma. I listen to her.
Happy weekend to all lobulitas,
Shari
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Lobulitas....LOL
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Hello Team ILC. I just found you and like to be one of the Lobulitas. As a matter of fact just added this tread to my favorites.
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Welcome, Antonia! Happy to have you join us.
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Shari, it was over 90 here today......and I think it was snowing last week. Crazy weather!
I like your approach and appreciate hearing from a Lobulita with a few years under her belt. Thank you!
Came home from my part-time to learn that my husband was laid off today. He had 22 years with a major phone company and was less than a year from full retirement benefits. Since he carried our insurance, I have to admit I am more than a little freaked out. Holding it together for him, but worried.
And it was such a good day.....0 -
Kestregurl, Im so sorry. Thats awful news. How can they do that to him?
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kestrelgurl, I know exactly how you feel. Same thing happened to me and now, after ending 18 months of COBRA, I am without insurance until August, when I turn 65. holding my fingers crossed and hoping for the best.
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I love the lobulitas! Its perfect for us.
Kestregurl thats horrible news, I am sorry. Could it be a temporary lay off? Very scary, this economy just keeps getting worse.Lily- I called my MO today and let him know the back Dr now wants a lumbur puncture. He wants to see the report and the MRI is on a disc he said he would have a onco radiologist take a look at it. I asked him what the chances were for mets to the spine with a 2 mm tumor, no invasion and clear nodes? He stopped me and reminded me nodes were clear but there were those dang isolated tumor cells (2) near the nodes, but still said chances are extremely slim and it would be very rare. I have to take report and disc to him tomorrow when I go for rads trial run. Today my back doesnt hurt at all. My understanding is bone mets hurt constantly. Have you heard different? I also dont see many that have a DX and have a mets DX within months. I have seen some DX immediately with mets but seems many it is years later. I didnt mean to scare you or anyone else. I am scared but statistically it doesnt fit. Lily I know you couldnt do chemo due to health concerns, did they give you a PET scan? Does the femara make you ache or cause pain like I hear the tamoxifen does? Its a cruel part of this to give us a pill to cause pain when they say let us know if you have pain lasting longer than 2 weeks.
BTW- I asked MO for Xanax today and he told me to ask my primary care physician which I dont have. My BS gave me 15 on Jan 7th. over 2 months ago, not like I abused them. I take a half when I need it and now Im cut off. Seems not so nice to do at this time going though so much.
I am envious of all the slender lobulitas! I gained about 20 lbs over the past 2 years, I stopped my daily walks and just got lazy. I need to begin again and take off this extra padding making more estrogen. Any tips to get back at it? Rads starts Monday morning thought that might be a good time do take action and enpower myself.
much love to you all xo
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What a great name - Lobulitas :-) I love it.
Ketstrelgurl, what terrible news for you both, just when you don't need it. Sending ((((hugs)))) from Down Under.
Lemon, I'm sending you calming thoughts, we live in constant fear, but usually it is not warranted.
Trishxoxo
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Antonia, Welcome!
Shari, we are having weird weather too across the pond from you (Greece).
Kestrel, that is terrible. Yikes!
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Lobulitas .. love it!. Kestrel sorry to hear about your husband.. wow pretty dirty thing to do by the company. I would talk to lawyer because surely they have to be able to justify why given he was there for so long. Trying to save money no doubt.
Lemon hang in there, its hard but you seem strong, its hard we want docs to be thorough but they scare the heck out of us when they are !
Im so jealous of you Momine.. you live in Greece.. sigh.. mail me some warmth and sun please....please
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Rdrunner (my all time favorite cartoon, btw), here you go:
My neighborhood:
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