Lumpectomy Lounge....let's talk!
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Sandy, better raccoons than skunks. A neighbor 2 doors down had a skunk get in their basement and let loose. It was a rental. The owner spent a fortune getting rid of the smell. Next door neighbor had raccoons climbing up the corner of their house into the eaves (2nd floor). My dog went crazy. Left all the wildlife behind when I left Michigan. Thank heavens.
HUGS!
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Thanks Peggy and Caligirl.. still day at a time, just went down and raised his oxy... praying he gets through tonight.. kinda makes you feel like you are 'on call' but he's in the Lord's hands and best place to be..
The only wild life adventure we had was a swarm of bees in the tree between us and our neighbor and the houses were fairly close on that side.. had to call someone to come get them and when they got there, they had just swarmed down the block to another tree.. we had a couple of squirrels, they would go up our front tree, across the roof to the tree in back and down to collect apricot pits, then run along side the house to the front to bury them... our cat went crazy trying to follow them inside by the windows...
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Judy, I'm sorry about your brother. It's a crummy place to be...waiting. Your mention of the apricot pits reminded me of the black walnut tree in our neighbor's yard. It spread over our house and come August it sounded like we were being bombarded - and we were from the walnuts. Rather startling in the middle of the night. The squirrels loved them. Us not so much.
Thinking of you tonight.
HUGS!
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Thinking of you, Judy. I am sorry you are in the watchful waiting mode with your dear brother. My brother, sister and I flew out to say goodbye to our oldest sister in 2012. She passed away the next morning. BIL threw a hasty funeral together since we were there.
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Positive...you've only recently had surgery. I know it took me about 4 months for things to get back to "a new normal". I thought I would never stop thinking about BC...now I can't believe I actually had it and what I went through seems more like a dream.
Hang in there. (((hugs)))
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Thanks all for your thoughts on a cancerversary!!! I have decided to use my surgery date. Sandy, you made me laugh with the raccoons!!!
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Well, right now I have nothing to laugh about—not raccoons, but one little rubber gasket at the bolt at the bottom of the toilet tank upstairs leaked and (see story in the Drinking thread) has left me with a partly demolished kitchen, nearly-unusable master bath, roaring fans & dehumidifiers upstairs & down (nonstop till at least Friday) and no appetite.
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Sandy, how discouraging. I'm so sorry. Not a fun time ahead getting it all fixed. You'll get through it but I absolutely know you'll never want to do it again!
HUGS!
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New here, and not real sure how this all works. I feel lost and alone the more I read and research.
Dr. has recommended radiation after my lumpectomy 12/13, my gut tells me it will cause more damage than good to my already bad lungs. I have had an infection in my breast since the surgery that they can't seem to get rid of, had fluid drained yesterday which left a huge dent which may or may not go away.
I see everyone has their diagnosis and treatments after their post but I do not know how to do that.
I have Invasive ductal Carcinoma, 9mm with negative margins,stage 1A, grade 2, necrosis absent, lymps negative, Estrogen and Progesterone positive, her2 negative.
They have not checked for cancer anywhere else in my body. I'm wondering what other test people have gotten after their diagnosis? My original DR had scheduled a PET scan and CT scan, but I found out that insurance would not cover unless I was at a center for cancer excellence so I changed DR and new DR said doing that is like chasing the gold at the end of a rainbow.
I'm having a really hard time finding any information on breast cancer and those that choose not to have radiation.
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Dimples, Welcome. You've come to the right place to find information. All you do is write and we answer. But you're right, putting all your information here is vital to us. You do that by going to your Profile, putting in all the information you have (and you have a lot) and then you make each and every item PUBLIC via Settings. It's a convoluted system. Make sure you let us know where you live.
You don't really need another test for cancer in other parts of your body. Your lymph nodes were negative and that's the biggest indicator. Nearly all of us who have lumpectomies have radiation. Have you actually talked to the radiation oncologist (RO)? I think you would be wise to consult with him before making a decision on whether to proceed with radiation treatments. Radiation today is very targeted and they are careful to protect the heart and lungs.
You might consider getting Dr Susan Love's Breast Book for a comprehensive look at breast cancer and all the treatments available. It's excellent.
Others here have had stubborn infections and will answer your questions on that. I hope it clears up soon.
Keep asking away!
HUGS!
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Hi Dimple-
Welcome to BCO; we know it can be scary and confusing, but you're in the right place for support. PontiacPeggy has some good info there, if you need any assistance on editing your profile, please don't hesitate to reach out to us via private message.
Again, welcome!
The Mods
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Hi Dimple welcome i have idc and post lumpy. Now going tru 4/33 radiation treatments. Come join us on the radiation board. Lots of caring and understaning ladies on both boards. I have thanked my lucky star i met all of them since this has been scaryb for m.
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Welcome, Dimple. With Stage IA with clean margins, negative nodes and no necrosis, the only scans you’ll get will be a baseline bone density scan (if you haven’t already had one) since you’ll likely be on an aromatase inhibitor that can weaken bones (and maybe not even that if you’ll be taking tamoxifen instead), and your periodic followup mammograms. The only time they do CT or PET scans is if you start having symptoms suspicious for metastases…and tiny node-negative, ER/PR+/HER2- tumors are highly unlikely to spread for a very long time, if ever.
I had radiation, and the only problem I had was that the seroma (like an internal blister) that formed in my tumor cavity got enlarged with some fibrosis (skin hardening) over it. And the seroma is shrrinking. Both my “girls” are still about the same size when stuffed into a bra or swimsuit, though different shapes: my bc breast is rounder & perkier, while the other one is floppier than a basset hound’s ear.
I think what I’m going through with this emergency home repair is stressing me out more than my cancer did!
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dimple...Welcome....hope you are getting answers from us that are helpful
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Hi I am new so still trying to get used to all the abbreviations. I am Stage 2,2 Grade 3 hormone receptive. I had a lumpectomy and removal of the whole 14 lymph glands. There was a 3mm cancer in only one node. My main and immediate concern is pain management. 2 panadol and 2 nurofen every 6 hours or less do nothing to kill the tenderness, pain, pulling and stinging from the elbow upwards and in the armpit and nipple. The physio is not happy with my progress in regards to the set exercises as I am still in too much pain to do them effectively! Has anyone else had similar pain issues? Does an arnica rub massaged gently on the tender areas help? I will be doing 5 months chemo soon and then radiation therapy. Thank you for sharing. XOX 😚
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My brother passed about 11pm last night... Thanks for letting me share..
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So sorry to hear of your loss and grief. Thoughts prayers for comfort and strength going your way. GB XOX
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Judy, sending you comforting thoughts and prayers. I'm so sorry.
HUGS!
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Peppy123, I'm sorry no one has answered your questions. I didn't have issues like you did so I can't offer any advice except talk to your surgeon! You should not be in pain this long after your Lx. And please please please fill out your profile and make every single item PUBLIC via Settings. It gives us important information to help us answer your questions. We can't remember everyone's details so that helps since it shows up after every post.
How many of your nodes tested positive? 14 nodes removed are a lot. Are you ER+/PR+/Her2-? Sending healing thoughts your way.
HUGS!
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Judy....so sorry for your loss...thoughts and prayers for you & your family! May your brother rest in peace
Peppy123... Welcome ..very sorry for the pain you are having. I would call your surgeon for sure. I did not have such discomfort. I was on 1 Tylenol and 1 ibuprofen for pain management which I thought was ubsurd but it worked.
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So sorry for your loss Judy.
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Judy...so sorry for the loss of your brother. Prayers for you and your family.
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I'm sorry for your loss, Judy. It's never a good day to lose a sibling.
Just to update things down my way...I am with my mother, who is still hospitalized with severe kidney failure. They just put in a stent this morning to see if they can relieve the pressure on her kidney. We should know something in a few days. She is still having periods of confusion and has generally poor concentration. Yesterday it took over 45 min for her to sign two checks so my sister could deposit them. And she's had to make some decisions regarding code status and advance directives, which took about 2 hours. Now the doctors are talking about dialysis, which I am totally against for her, so she's worried about that. She doesn't know anything about dialysis so she's going to have to rely on me. I can tell you this--dialysis will not save her life and very well may kill her. Dialysis is very grueling, even on a younger person.
Arrgh. My sister and I went through all Mother's multiple mountains of papers last night. She is past due on many bills, including $5,900 past-due on rent. There are at least 8 unopened bills, going back to this summer. My dear sister has swooped in with her own check book to get rent, utilities, wifi, house taxes, and car insurance up to date today. We are trying to figure out where her money is--she has multiple checking and savings accounts, only two of which has a sister as a co-signer. We really need to get these accounts consolidated. (she is not paying her rent, taxes, wifi or phone bill, so where is all her money gone? She has over $160,000 in savings, so why are her bills not being paid.)
We found the durable power of attorney last night, but alas, it doesn't give us the right to take over the finances. I've decided that we'll give it another week to see how things go with Mother, then we need to get a competency hearing and go for conservancy or guardianship. I'm dreading it. She can keep it together for the length of a conversation, so her doctors aren't seeing the confusion. When we sought guardianship of our son nobody contested it because he is severely mentally handicapped and not competent to make decisions. and STILL it took 2 months. However, my mom is a walkie talkie and she's going to fight it tooth and nail.
Sandy, maybe you can shed some light on this.
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Poodles, you sure have a tough road ahead getting ahold of your mother's finances. Get started now. I'm sure Sandy will be able to guide you. That's so scary. Maybe you can slip some new check signature cards putting your sister or you or both on her accounts and have her sign them. Not totally above board I suppose but it could help. I hope your mother is feeling better soon. Good luck handling all this.
HUGS!
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Yeah, she's probably too with-it for us to sneak something like that by her. She's going to have a fit when she finds out that we went through her papers.And she's going to be upset and embarrassed when she finds out that Dsis paid her bills. But it had to be done. Thank God we found them--the taxes were due 12/31, ATT was due to be shut off tomorrow, and her storage facility is past due. The one bright spot so far is that her car insurance is up to date.
My sisters and I are in agreemet that Mother cannot go back to her apt. She can not take care of herself, even with the help of a CNA coming in a few days a week. She's going to need to go to rehab for sure, and I believe she'll go to skilled nursing/long-term care after that. She has been in acute kidney failure 3 times since Aug and this time it's permanent/chronic kidney failure. I don't believe she can recover to the degree it would take for her to maintain her own apt. She's talking about letting her animals go, a lot. She has told 2 sisters that she feels like she will die. In my vast experience as an RN of 39 years, this one thing I know: When a patient tells you they feel like they are dying, listen to them. Patients know these things. Even young children who have not been told they are dying, often figure it out. I don't believe Mother is actively dying today, but I don't think she can live with extremely low kidney function for long.
Last night, I sent a message to all the kids and grandkids bringing them up to speed on the situation and telling them that they may want to think about coming to see her in the next 2-3 weeks. Well, apparently, I scared a bunch of them so I had to make calls and tell them that she's not dying RIGHT NOW. But, you know, these adult grandchildren don't have any experience with this kind of thing. They figure, Granny's sick, but she'll be okay, and I'll go down there when the semester ends in May, or when my tax returns comes, or when Mardi Gras starts, etc. I just wanted to jack them up a bit to face the reality of this situation.
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Poodles, does your mother have a will? Tough sh*t to your mother on complaining about you going through her papers. If the bills had been paid then there wouldn't have been a problem. I hope you can find homes for her pets. I agree with you about the talk about dying. The grandkids are clueless and that's understandable. I'm glad you were able to help them understand what is going on. Keep fighting to have her stay in a care setting rather than going home. Loads of hugs! You need them.
HUGS!
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Hi Peppy: I had a lumpy and 1 node removed and the node removal hurt more than the lumpy. I took asprin and miaderm L topically which helped. I still have pain occasionally under my arm but now since I started rads, i am having issues with swelling and psoriasis flare ups also some rib pain and pulling sensations. All manageable so far with miaderm L and tylenol. The gals here and on the radiology board are all so helpful - good advise and good insight. Hang in there, it will work out for you.
IHGJ, so sorry to read about your loss, my thoughts are with you
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Thankfully, my mother does have a will that is fairly up-to-date. However, she has not fully executed her husband's will from 2002 and that thing is a mess. I won't go into all of it, but we are going to have a hell of a time getting it all straightened out. And we've been to the attorney once already to try to figure the will out and we STILL don't fully understand what it says. Time to pony up another $300 and see another attorney.
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Poodles, looks like attorneys are going to be your best friends. Definitely worth it. Hope you find one that you like and trust. How disgusting that your mother's husband's will hasn't been fully executed.
HUGS!
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Judy, I'm very sad to hear about your brother. May he rest in peace.
Colonoscopy for me tomorrow! The clear liquid diet for today really sux. Oh well, there are worse things, right ladies?
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