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new and future flat sister, with questions

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  • SC60
    SC60 Member Posts: 403
    edited March 2014

    Hello Wonderful Ladies, 

    GB-We too are melting in Southern VA!   I hope you are not flooding!  We had a flood here due to a hurricane.  It destroyed the town!  School was shut down and was used as a shelter since it was on high ground!  I will definitely add your "melting issue" to my list of requests!

    Bobo- I pray you are doing well today!  Gentle {{{{}}}} to you.

    Zills- thank you for the amazing card.  You were only one who could bring a smile to my face!  My husband looked a bit concerned until I told him it was from you. Lol. Getting your ears pierced?  I did mine at 13 - literally, I pierced my own ears with a heavy duty needle and ice.  It took hours and the ice did nothing ! As you probably guessed, I was not allowed to have pierced ears so doing it myself was a necessity.  I put cheap earrings in and tried to hide them with my hair.  Naturally my parents were on to me at supper the next day!  Not too happy, but my dad brought home four pairs of good earrings the next day!  I guess you could say I was "Daddy's Girl".  Lol

    PRB- sorry you missed the field trip, but so happy for your day of relaxation!  Aren't days like that wonderful!  So sorry about the stock.  We have lost thousands, but we are slowly gaining.  It is legal gambling!  And I hate to lose at anything -especially money.  I wonder what would happen if the Plummer flashed you back.  Scary thoughts, shudder, shudder!  Bobbing for boobies just might be an image that will stay with me the rest of my life.  Lol you are one funny lady!

    Wren- glad your plumbing problem is a thing of the past! Waiting anxiously to hear about Goldie!  We rescue Great Danes and I know how attached we become!  We have been foster failures several times!  Hopefully things will work out for the best for her!  Possibly with you?

    Welcome jsjherman!  I am so glad you came to join this group of wonderful women!  I think I know you with the husband everyone wants steal.  Too bad you can't rent him out- you could be rich! Lol. Seriously I think I read your posts on Bobo's other topic.  Am I correct?  

    Welcome Vintage!  I see that you are from NH.  I spent  a great deal of time up there throughout the years.  Loved it so much my first husband and I tried to find jobs there- during our honeymoon! (No need to explain the divorce now, is there?). Seriously it is very beautiful there!  Glad you joined us.  These are the most fabulous ladies!  Good luck with the surgeon today!

    Otceb-how are you doing?  I hope your mom's visit will help make your week easier.  Gentle {{{}}}'s to you now and during treatment!  

    Gramwe-how is that beautiful cherub? I know you must be enjoying every precious moment ! Congratulations to you, your daughter, and the rest of the family!

    Nd- have you all started warming up just a bit?  I can't imagine how much of a psycho I would become if I had an extra long winter.  All I can say is God Bless you!  

    Viv- how are things going?  Is recovery going as you thought it would? Gentle {{{}}}'s  for you!

    M-you are a rock!  Bang yourself up and brushing it off the next day.  So glad you are feeling better!  Sorry the weather is growing cooler.  Seems like yesterday you were in the middle of summer.  Now you seem to have ups and downs.  We had 75 degrees Farenheit one day and 20 degrees Farenheit with several inches of snow the next day!  It is screwy.  We rarely get snow in March.  We do, however, get 50 degree drops in temperature-no matter what season it is!  I hope you are doing well and get the chance to take the kayak out before it gets too cold on the water!

    Hi to anyone I have rudely forgotten.  I really need to make a graph so I can take notes!  

    I know I haven't posted lately, but I just couldn't bring myself to write (I did read daily.).  I was boring myself with what I had to say, never a good sign!  I have also been exhausted-mentally and physically.  I did see the cardiologist and had way too many tests!  My heart is perfect!  I do not have Afib, nor any blockages and my "rate" is 60 or above.  Nothing stopping this girl from.....chemo.  Don't know if I start tomorrow or next week.  So Red Devil here I come.  I have made numerous jokes about March Madness being about what type of hair I will have after it comes back in, been joking about all of it. Honestly, I am getting tired of being brave.  I am annoyed every time my DH's family says how hard this is for him (he does nothing to help me in any way, takes my pain meds,  and won't go into therapy).  I feel so guilty that I was so ignorant about breast cancer when my Mom had it, so sorry I didn't do more for her during the 8 months she lived after her MX. I am angry at my BS for telling me I didn't qualify for BRAC testing or genetic counseling!  That was a lie!  I am so hurt by my DS's lack of communication with me and my DD's thinking I am still the "Bank-O-Mama".  I am just so over cancer!  I need to be back at work, making my own money, and choices.  Iam not cancer, it doesn't define me!  

    Thanks "all yawls" for listening to my rant today, S

  • ldesim
    ldesim Member Posts: 1,193
    edited March 2014

    omg... I am 4+ pages behind :(   So much crap going on.. sorry I have been neglectful!!

    Knowing I won't catch up, I searched for Granwe and found out it is not Granwe but Gramwe lol and also found out..... CONGRATS!!!!!!!  Emory Elisa is beautiful!! (of course we knew she would be!) So so so happy!

    So many  issues going on around me (thankfully not me this time).. i feel like I'm being pulled in a million directions and just running on a hamster wheel lol.  Everybody and I mean everybody in my office has contracted some type of virus which thankfully has not hit me yet (knocking on wood as I type this), which results in about 1/3 of the office being out for multiple days. I don't know what it is, but some of the ppl affected had the flu shot.  This means the other 2/3rd of us have to chip in and pick up the slack... it makes me almost want to be one of the sick ones (kidding!).

    My mother has been in and out of the hospital with heart issues that just came out of the blue.  She goes Friday for further and final testing.  My nephew was in a nasty car accident and has also been in and out of Dr's office and had surgery on his shoulder.... my SIL had emergency surgery on her abdomen where they discovered a large mass which does not appear to be anything serious... her brother has been diagnosed with lymphoma...  on top of all, we took the cats to the vet last night and Harley  has a heart murmur (3 or 4 out of 6) which  is going to cost like $400.00 just to have a test done to see what the problem is.... 

    There's other crap, but I am starting to depress myself lol

    Anyhow just wanted to drop in and tell you all I am still alive :)

    I am going to read back some and see what else I've missed.

    *hugs* 

  • ndgirl
    ndgirl Member Posts: 950
    edited March 2014

    Hi Sgc. nice to hear from you again, you can rant anytime and for as long as you want! that is what we are here for!! Thanks for asking about our weather up north!! Damn would you believe another storm today.. temps warmed up, snowed a little and of course the wind is blowing like crazy, so the roads are slick and later tonite it is supposed to rain/sleet, just hope we dont lost our electricity. Glad you heart is good to go!! Good luck with the chemo... be thinking of you. YES you will not let cancer define you. I think we all get tired of being brave at times, as one lady said on one of the boards... she just wants to worry about trivial things.. so agree. Sorry about your DH family, they need to take another look at the situation.

    Wondering about Bobo.. how is she??

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    Morning everyone!

    No news of our Bobo I hope all is well.

    You girls have been busy since I went to bed!

    ldesim, I am so sorry you have had so much going on, but so glad you haven't had the virus! I chant to myself "I will not be sick!" when I am around others who are, I don't know it that is what protects me, but I'm sticking with it.

    Isn't that baby divine? I can just imagine how happy Gramwe is, what a gift that little girl is.

    It is Thursday again, so I will do my visit to the Opp Shop this morning and catch up with the ladies. I have another Pink Ladies meeting tomorrow, I can''t believe time flies so fast. 

    Hi ndgirl, I am with you, SGC has been missed! and ranting is definitely allowed here, we have all done it. I'll be thinking of you having the chemo too. Let us know how you're doing. Sorry about the family issues, that must hurt.

    I am fine again now, thank you! Our erratic weather is going to be interesting, it is cool and grey again today, looks like rain. I do hope I can get the Kayak into the water before it gets too cold. I have started back doing my usual carer duties for Colin, so that takes precedence over my Kayak. We had the carers doing extra shifts to fill in what I usually do. I just have to pace myself now with the heavy aspects of the work to make sure I don't cause any small injury, but it really feels like it is well healed now.

    ndgirl, I was so moved by that statement by DP, it really hit home. I have my fingers crossed that you don't lose your power and that the weather improves for you. M x Posting!

  • grammaB
    grammaB Member Posts: 1,118
    edited March 2014

    Still gray and drizzly here, but so far the melt is slow and no flooding at this point.  The creek is up but not nearly where it was when we flooded last month.  So far so good.

    Tomorrow will be interesting with the site down.  I hope there are no huge issues with upgrades once up and running again.  It is my morning routine to check in here and read too.  Will miss it.

    Wren, I'm glad to hear you have lots of input into the adoption.  Goldie is going to have a wonderful forever home.

    Ariom, you really have me thinking about my Amoena Contact foobs.  I may just not even try them then I can sell them on eBay as new and unused.  They sound like a whole lot more trouble than I want to deal with just to have bumps on my chest again. 

    Welcome Vintage Gal!! I think you will be surprised at how quickly you bounce back from the BMX.  It is important to go slow but you won't be out of action for as long as you think.  Sounds like you have your helpers all lined up and ready to go.  Ask any questions you may have, we have all been there, done that so can help.  Glad you joined us!!

    PRB, glad you got your plumbing issues fixed.  I too hope we hear something from bobo or DLLP before the site goes down.  Maybe we have, I haven't gone to the next page yet... 

    posting so it doesn't disappear, then on to the next page!

    Hugs

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    PRB, bloody roots in the pipes, I had that happen at one of my houses and it was an awful mess to fix. I hate the germy thought of it too. I am a disinfectant nut too!

    The "Foob master!" I love that! Hahahah It's just my obsession with anything new, I have to find out all I can. I am just impatient, that's why I was desperate to try out new foobs and bras. I just wanted to get on with it and get back to as normal as possible.  

    Hi Vintage and Welcome to the group. I am a Uni, like Wren and my Husband has no issue with my being half flat either. 

    It sounds like you have it all set up well for your recovery with plenty of help. You'll do fine! I wish you all the very best and we will be here if you need any support or if you have any questions.

    I have to run, but will be back...M x

  • grammaB
    grammaB Member Posts: 1,118
    edited March 2014

    Nope, no word of bobo, I was hoping.....

    (((sgc))) Good to see you again.You have been missed.  So sorry things are so tough with your family.  That really sux!  You most assuredly do not deserve that sort of treatment from them on top of all the bc carp! Shame on all of them.  

    We are under a flood advisory for small streams and low lying land (my lot), but so far nothing serious.  I am just hoping it stays that way!!

    ldesim, good to see you!! You have been missed too! Yikes, I think I'd be wearing a mask at work if it is that bad!  You sure don't need to catch anything from anyone!!

    Oh my gosh, so sorry for all the problems your family is having.  Sending prayers for you and all of them.

    Ariom, hope you found a treasure or two at the Opp Shop.  I hope you will get at least one chance to get the kayak this season, but if not it will be waiting for you next Summer!!

    Hugs for everyone and special gentle ones for {{{{bobo}}}}!!

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited March 2014

    Sorry DLLP texted me while I was picking up the kids, then dinner and potty time. 

    Bobo is home. Was in recovery by 9:30. Lots of pain. Didn't cry. May or may not hear anything tomorrow. Not sure if MD is around or not. 

    Will keep you posted if I hear anything. 

  • ndgirl
    ndgirl Member Posts: 950
    edited March 2014

    Thanks Zills, I hate to hear the pain part, but glad it is over and she is home.Bobo deserves a break from all this drama, hope she handles the meds ok as that can be an issue too.  Worst time for the site to be down when one of our sista's is in need, oh we'll we will manage.  Soft gentle loving (((hugs))) to you Bobo.

  • grammaB
    grammaB Member Posts: 1,118
    edited March 2014

    Thanks Zills!  So glad to hear bobo is home, not so happy about the pain part. Hope the pain meds work for her. 

    Lots of love and gentle hugs for you {{{bobo}}}!

  • tb90
    tb90 Member Posts: 296
    edited March 2014

    GrammaB:  I just purchased those foobs and they also have a cover that you can wear against your skin and not use the contact feature.  That would make them less of a hassle.  If that would make any difference for you.  So far all I have done is play with mine (they feel so cool) as I cannot wear it until I heal after rads are done.  I received this very strict "talking to" about how important it is to wear a prosthetic every day or else the muscles in my chest wall will deteriorate.  Any one else hear about or experience this?? I love going flat.  DH finally told the teens at our cooking class (I was missing or late for a few due to rads) about my mx.  They were so darn cute, all trying to catch a look without being too obvious.  I thought that was incredibly sweet as I really expected some gross comments.  One young man became quite upset and DH had to assure him that I was just fine.  I was very touched by their reactions. And these are the at risk youth who are supposedly so difficult.

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited March 2014

    Huh? Who gave you this "talking to"?  That's a new one to me. 

  • SC60
    SC60 Member Posts: 403
    edited March 2014

    Thanks Zills!  Bobo has been through so much!  Sending gentle {{{{{}}}}'s to you both, S

  • ndgirl
    ndgirl Member Posts: 950
    edited March 2014

    TB, wow never heard that before,  cant really see how that would make a difference.

    What a nice story of your young people, sounds like they think very highly of you. Keep up the good work.

  • tb90
    tb90 Member Posts: 296
    edited March 2014

    Spookie:  It was the physiotherapist and she explained that is why in Canada they make the prosthesis covered by health care.  She stated that so many women were experiencing difficulties, thus the prosthesis became "medically necessary" and not simply cosmetic.  I am going to look further into this, but I know her well and have respected her work for years.  She works with post mx patients as well as sports injuries.  But this is the first I have heard of this as well.

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    TB! I could be wrong, but I think the "Talk" is perpetuated by the ones with a vested interest in making money from the sale of Prosthesis. I got the talk about how I will ruin my back by not wearing a Prosthesis all the time. I don't believe it, and I wear a lightweight most of the time, rather than the Silicone, which is only half the weight of the breast that was removed anyway. I haven't had any deterioration, in fact I have actually built up the muscle in my chest with exercise. I think you just go with what you feel is right for you.

    What a lovely reaction from your students, people can be so nice!

    Zills, thank you for the update! Shit, I was hoping this would be an easy op for Bobo, not another painful one. She has had such a shitty experience. M x

  • otceb
    otceb Member Posts: 129
    edited March 2014

    Hi everyone!  I was told this too, about the importance of wearing prosthesis, and real ones (that have weight), but I think it was the girl at the bra store that said this. I remember mentioning this to my PT and she said that's bulls*. So that girl had no clue, and I'm continuing with the little cushion foobs until for some reason, I want to use the $800 foobs! Anyway, I'm SURE there's no physical issue with going flat or with whatever padding we want.

    I'm relieved to hear that bobo is home, surgery is done, yeah! I hope that by now, they have figured out what pain meds she tolerates and that she won't have to worry about those this time. {{{hugs}}} Take care bobo!

    Hi jsj! Welcome to this thread! These ladies are amazing and so nice! They have kept me sane, informed, entertained, reassured, etc., throughout my bmx and now chemo! Glad you have a steal-worthy DH!

    Hi Vintage and welcome! As the others have mentioned, it's useful to look at the links for prepping for surgery, also to have an idea of what to expect.  I'm glad you have good support from your family, it definitely helps. For me, the bmx was much easier than I had anticipated, you have meds to keep the pain under control, you just have to deal with annoying drains, then it's the gradual road to gaining back your range of motion.  Good luck!  Congratulations on being done with chemo, you must be so glad it's over. I think the eventual (when, oh when?) arrival of spring will be so uplifting for all of us, recovering, recovered or whatever!

    gB, at least no shoveling these days! I hope you're not affected by the floods in your area.

    sgc, I'm so happy to hear from you!  You seem at peace with the thought of going through chemo again, I hope it is easier for you this time. I am so sorry about DH, his family, your kids... you definitely don't need this, ever and especially not now. I hope you find support and comfort elsewhere. Yes, get this stupid treatment out of the way so that you can be back to work and living the life you want! Good luck if you start tomorrow, in your pocket.

    TB, glad your students reacted well. It's funny how most of us have an initial reaction of wanting to keep this private, but when we start sharing, we often find support and, unfortunately, many people who have (or whose families have) been through it.

    Hi M! When you say your weather will get too cold for kayak, what do you mean? How cold will Paynesville get during your winter? I do hope you get to try your kayak before then, I guess in a few weeks you will feel good enough to go for a short & slow ride? Enjoy your trip to the Opp shop!

    PRB, great that your plumbing issues are fixed and you too have a good plumber.

    Idesim, so good to hear from you! Sorry you are so swamped at work, and yes, touch wood that you have not been affected by all those viruses. I was thinking about you the other day, as one of the few city dwellers here, did you take the subway during chemo? I have been avoiding it, especially to go to work during rush hour, thinking that I'm avoiding germs. But with the Neulasta shot I get after every round (did you get this?), the Onc does not expect my WBC to go down, so not sure if I'm being too careful. I drive to work the few days I go, it's fine, it just means I have to pay parking.

  • spookiesmom
    spookiesmom Member Posts: 8,178
    edited March 2014

    I'm not sure, but I think in the States they are required to be covered too  I'm pretty sure Medicare does too. I chose to stay flat, have not checked into any of the insurance carp. Should I want a foob, the Foob Master would be able to help me I'm sure!

  • otceb
    otceb Member Posts: 129
    edited March 2014

    Hey TB, I just saw your post. Funny how even among PTs, there's disagreement. I think if you're relatively healthy and in shape, with no major back problems, this whole thing is a non-issue.

  • jsjherman
    jsjherman Member Posts: 142
    edited March 2014

    Thank you ladies for the warm welcome. I am glad to hear bobo is ok. I have been worried about her. It is ironic that I have only known some of you ladies about a month, yet it seems like forever and you mean the world to me.  I did get good news today... my high risk nurse called and my MRI came back ok. It o ly showed the one b9 invader they found in Januuary. So, off to have the lumpectomy/ biopsy next week. Don't really understand that as I have already had a needle biopsy on it. But I guess it is better to be safe than sorry...  For some reason tonight I had a total meltdown and went into mega bitch mode and then when my DH called me on it and said he knew by now something was bothering me, I just broke down sobbing. I felt guilty because my MRI was good and the lady in my office is struggling through her 5th round of chemo. I was worried because no one had heard from bobo, I was just a wreck. I am sad because we leave tomorrow for my son's last high school robotics competition but happy at the same time to get away for a bit and have some fun with our Geek Squad.. I am truly a jumbled mess. I think it has something to do with a lack of sleep from having nightmares every other night. I wake up and can't go back to sleep for the longest time. I feel like I am riding this awful roller coaster and just wish it would slow down.  

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    Hi there, I am back, but have to head out again shortly.I don't know where the day has gone.

    Otceb, it gets down to about 2c in Winter, we are about an hour from the snow fields, but we don't get snow here, We do get freezing winds. Where we live we just have some dunes that divide us and our salty lakes from the ocean that goes straight to Tasmania which is the roughest sea called Bass Straight, it is where all the yachtsmen get into trouble in the Sydney to Hobart Yacht Race. When the storms come in over those dunes it is way too rough and way too cold to put the kayak in the water. On the other hand, it can get to the low to mid 40's celcius in the Summer.

    I went the other way and couldn't help myself from blabbing about my Dx. I think it was a way of acceptance for me. I'm not sure, but I found myself talking to all sorts of people about it. It was ridiculous!

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    jsj, I am so thrilled for you that you got a good report Yaaaaay!

    But I am so sorry you had a meltdown, it's so easy to do. The lady I visit every Thursday morning is stage lV ovarian cancer, and she just blows me away every time I see her. When I moved here, and was waiting to have my surgery she took me under her wing and was genuinely worried for me even though she is going through constant treatment. There was no one more thrilled than she was when I got my final Pathology report.

    Don't give yourself a hard time, there is so much turmoil with all this stuff, sometimes a meltdown is just the right release, so you can go on and do the other stuff. Enjoy your getaway, try to just live in the moment and have some fun. We will be here if you need us. M x

  • jsjherman
    jsjherman Member Posts: 142
    edited March 2014

    Thanks Ariom, I do feel better other than the "hangover headache" that goes with a melt down. I am up getting our boy off on his last school trip... sad and excited at the same time. He has worked so hard to get where he is. Already accepted to the University and ready to start the next phase of his life. I hate that this has all happened his Senior year. I hate that I may have passed the BRCA1 gene down to him, but it is what it is and I firmly believe that I have been chosen for this journey for a purpose.

    Bobo is in my thoughts right now and am sending up prayers of love and healing for her.

    On the subject of the foobs? A dear friend made my uni mom a "knitted knocker" a few weeks ago. Out of all the prosthesis that she has worn over the years (31) this is her favorite. It is light yet weighted (with fishing weights) and can be thrown in the washer. As I have made my decision to stay flat, she is making me a pair. She actually emailed me this week and said she had been playing with my boobies as she wanted them to be perfect LOL.

  • Ariom
    Ariom Member Posts: 4,027
    edited March 2014

    Hi jsj, I am glad you're feeling a bit better. There is a lot going on, I wish your son all the best for the adventure that he is about to undertake, going to University. 

    I have heard the Knitted Knockers are excellent, some of the girls here have them, our Bobo made them, don't ask me when she ever got the time, she's amazing.

    I love that your Mother is making them for you!

    I was hoping there may have been some word from Bobo, but since there's nothing, I sure hope she is sleeping. I'm off to bed now myself...Take care M x

  • VintageGal1111
    VintageGal1111 Member Posts: 126
    edited March 2014

    Good Morning

     thank you all for your welcomes and replies.

    Another chilly one here, below 0 F. I wear knitted hats in the house all the time over my bald head but going outside is still so cold on my neck & ears. I never realized how much hair insulates us!

    A week from now I will be headed to the hospital for surgery! I sure don't want to wish precious days away but I do wish it were already March 13!

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,122
    edited March 2014

    Haven't heard from bobo yet this am. May be too early. 

    Idesim. I've heard chemo patients have wonderful immunity after it's over for a couple of years.  Doesn't mean you shouldn't be careful. 

    I was a germophobe during treatment and it paid off with two little germ magnets in my house:)

    JS. I picked a fight with DH before every treatment. It's normal even if it's benign. You thought of the worst case and need to release that tension. I find these finger holds to be helpful to combat fear, worry, sadness and anger. 

    http://m.youtube.com/watch?feature=share&list=PL3R...

    Off to collect numbers for taxes. Hope chemo brain doesn't strike. Hope everyone makes it they today with no withdrawals:)

  • bobogirl
    bobogirl Member Posts: 2,083
    edited March 2014

    I am okay.  Home yesterday.  Woke up in a lot of pain.  Was told by my nurse that the PS said to her, This is a painful surgery.  Give her whatever pain meds she needs.  Those are not encouraging words.

    Welcome new ones!  M, hope your leg feels better now.  Miss you guys.  And I really miss idesim.

  • ndgirl
    ndgirl Member Posts: 950
    edited March 2014

    Hi, Bobo, so good to see you posting here,  Sorry about the pain, are the meds taking care of it? Wishing  you lots of rest and comfort! easy does it.  Hugs and love. Thanks for posting.

  • SC60
    SC60 Member Posts: 403
    edited March 2014

    Good Evening All,

    So glad to hear that you are home Bobo!  I hope the pain is not as bad as they made it sound!

    Zills I will commence finger holding  immediately!  After seeing the MO today I am rather anxious, nervous, and downright scared of The Red Devil.  I am starting on Tuesday, have the Neulasta shot Wednesday, rest for the next week, then start again the following week.  He informed me that this was a tough chemo.  Now my head is spinning as to how to prepare for this.  Any suggestions?

    I hope everyone is as well as possible today!  S

  • grammaB
    grammaB Member Posts: 1,118
    edited March 2014

    Hi bobo, glad to see you posting.  Are you able to tolerate the pain meds?  I hope you find relief from the pain very soon.  Now is your time to rest, relax, and heal. Sending love and healing energy your way. (((hugs)))