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Stage 2 Sisters Club

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  • jo6359
    jo6359 Member Posts: 1,993
    edited April 2019
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    haliday- it's never easy making decisions. It isn't always black-and-white. Good luck on your future treatment.

  • Haliday
    Haliday Member Posts: 28
    edited April 2019
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    Unless the side effects become an obstacle, going with Radiation and Arimidex. . .thanks, all.

  • momand2kids
    momand2kids Member Posts: 118
    edited April 2019
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    Hi

    it has been a while--just stopping in to say hello and update-- I just was dx with a small melanoma on my arm-- re-excision today--- slow growing--doc said on Friday- you have nothing to worry about, this will be fine. When I complained to my dermatologist about now having cancer 3 x (bc, thryoid and this) he said "someone is looking out for you".. and while I know he is right-these have all been early and very treatable, it is maddening--I am at the derm 2x per year and have been for 20 years--- this did not look even like a mole!!!!

    Anyway, I am grateful for all I learned during the bc process- came in handy here-- did not freak out-just started to look for solutions. Overally I am in great health and things are great--- so this is another of those bumps in the road we are all so familiar with. Hope you are all well and living well!!!


  • ruthbru
    ruthbru Member Posts: 47,223
    edited April 2019
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    Well, that is no fun, mom!

    I'm good

    I didn't a lot of traveling this winter, which was fun, and it was good to not be here because the weather was awful (and not so great yet, the northern part of the state got more snow yesterday!). Now that I'm home, I've been doing some subbing, playing with my new grand-puppy, trying to get some projects done around the house, and get some summer plans finalized. I have my annual check-in with the oncologist next Thursday. If all goes well, I can check that off my worry list for awhile.

    Happy May!


  • momand2kids
    momand2kids Member Posts: 118
    edited April 2019
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    Ruth

    did you retire? so right about the weather...true this is no fun but as my dermatologist pointed out "someone must be looking out for you" we keep finding things early and small...I used to think I wouldn't mind hyper surveillance, but now I am not so sure--- next up is endocrinology for the thyroid, then a colonoscopy then oncology---sigh... I am ever so grateful for the access to care... but some days.....


    Glad to hear you are well...


  • ruthbru
    ruthbru Member Posts: 47,223
    edited April 2019
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    I retired in 2013, but still substitute at my old school (so could still be working every day if I wanted to). So I am more like semi-retired, or 2/3rds retired.

  • InnaB2018
    InnaB2018 Member Posts: 766
    edited May 2019
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    Mom, I’ve been diagnosed with an early stage melanoma 2 months before being diagnosed with breast cancer. It sucks. But we can beat it!

  • MexicoHeather
    MexicoHeather Member Posts: 147
    edited July 2019
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    My 3D Mammogram was today. This is Year 2 since the end of treatment.They had to squish me a second time, but I am all clean and got a BI-RADS 2 rating. I was calm during the whole thing, but felt rather annoyed when it was all over. Anger? Sadness? I guess you never know what you're going to feel. I will take the good news, though.Happy

  • garnersuz77
    garnersuz77 Member Posts: 36
    edited July 2019
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    Congrats MexicoHeather! It’s so hard to always have this in the back (or front) of our minds, especially during imaging and MO check-ins.So happy it was good news :-)

    Have any of you been offered Zometa not for current osteopenia but for protection against bone mets risk?

  • legomaster225
    legomaster225 Member Posts: 356
    edited July 2019
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    I had my first dose (annual) of Reclast in January but my bone density showed osteoporosis and osteopenia. My MO did say that it has shown in some studies to offer mild protection from bone Mets. I’ll take any potential benefit I can get, especially since I need it anyway.

  • bravepoint
    bravepoint Member Posts: 232
    edited July 2019
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    Garbersuze77 - I go for Zometa infusions every 6 months. I've got 2 more left as my MO wants me to have them for 3 years PFC.

  • libby2002
    libby2002 Member Posts: 10
    edited July 2019
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    I've been diagnosed 2b. 3cm tumour. 1.8cm node.

    Er+ Pr+ her2-.

    It's been the lowest point in my life. Anyone survive similar?

    Libby

  • hikinglady
    hikinglady Member Posts: 625
    edited July 2019
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    libby2002 So sorry you're in a club you didn't want to join. This whole community is chock full of good news, good outcomes, longterm survival, successful treatments, complete cures, and many people who've been through what you're going through, and DID come out the other side okay, and HAVE lived a long time and have put this behind them and are moving on in life. You're in the worst time of worry. But, there's a lot of research and hope and treatment options, and tons of support right here. We all empathize with how you're feeling.

    Do you have any other TX going on, like chemo, or planned surgery? If so, can you add that to your Dx info on your signature, and also have your settings be Public for that?

    Is your DX that's posted a biopsy pre-surgery one, or a surgical pathology biopsy?

    ER+ is a good thing. That means there's that tool for treatment.

    Keep us posted about what your MO is explaining and guiding and proposing for your TX decisions.

    Sending you warm wishes.

  • ruthbru
    ruthbru Member Posts: 47,223
    edited July 2019
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    Many, many, many people (in fact most people) with that diagnosis not only survive but go on the live long, happy, cancer-free lives. The beginning is the worst part; once you get a treatment plan it place, you set your mind on getting through it and then on to the rest of your life. Sending you a hug!!!

  • Haliday
    Haliday Member Posts: 28
    edited July 2019
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    libby2002. I am 6 months down the road from where you are. Similar stats. And feeling back to myself after lumpectomy of 2.6 tumor, (cancer in lymph nodes too), followed by radiation. Now on Arimidex for two weeks. Take it slow. One step at a time. (I still went on a month-long cruise to Australia the same day I got my final diagnosis—really!)I will now live to age 83 instead of 89 if the statisticians are right! This is a great site to share and learn. Live your life. Live your life.

  • MexicoHeather
    MexicoHeather Member Posts: 147
    edited July 2019
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    Libby2002: Hi, yes, we're here. I'm not saying it's big fun, but I am two years post treatment and I can now worry about other stuff. It's like you ultimately relax and trust God. Every woman is different, every case is different.

  • InnaB2018
    InnaB2018 Member Posts: 766
    edited July 2019
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    Me! Now on my second year of survival. You can do it! And we are here to support you.

  • libby2002
    libby2002 Member Posts: 10
    edited July 2019
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    hi - just chemo so far. Neoadjunctive.

    The stats of the tumour and nodes I've added are presurgery

    Libby

  • legomaster225
    legomaster225 Member Posts: 356
    edited July 2019
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    Hi Libby. Our stats are pretty similar. I did the neoadjuvent chemo as well. It was very effective and there were “very few scattered viable cells" noted in the post surgical pathology. That is one good thing about having chemo first- you know for sure if it's effective. I'm doing well 2 years out. It's not fun but you will get through active treatment. Heart

  • lezza13
    lezza13 Member Posts: 579
    edited July 2019
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    Just noticed this Club after all this time. I wanted all of you in this club to know I am now a 7 year survivor this July. Hang in there! All of you can do this and we are all here to support each other!

  • ruthbru
    ruthbru Member Posts: 47,223
    edited July 2019
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    Yea, Lezza!

  • Wildcolonialgirl
    Wildcolonialgirl Member Posts: 119
    edited August 2019
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    Libby, I had a very similar diagnosis, and am now over a year and a half since being diagnosed, and yesterday marked the one year end of treatment (mastectomy, chemo and rads). The resources and community here are amazing, and i encourage you to use it, because we all lived and are living what you are experiencing, and we "get" the good days, the bad days, and the in betweens. Listen to the positive women here, because they are inspiring. Oddly, this morning I was out for a long walk, and was thinking that while the experience was so scary and terrible and challenging, it was in many ways like God had pushed my reset button. Prior to diagnosis I had become so obsessed and driven and angry in my business that i was ignoring all the things in my life for which I should be grateful. But at the time I didn't see myself that way at all. Today i take time to be grateful every day, to enjoy my family, to love them back, to notice my neighbor's beautiful garden, and to be kinder to those around including total strangers, as well as myself. We all arrive here as one person, i think we all end up different. What that different ultimately means is up to us. If i had one more thing to offer it would be to surround yourself with positive people, and don't feel at all guilty about closing off anyone - family or friends -who is negative or leads you to believe that you can't get through all the surgery and treatment, and live a long and wonderful life. Because you can, and the ladies here are shining examples of that. They inspired me, and continue to do so. The road curves, the journey is not easy, but the opportunity for the future and joy is there.

  • lezza13
    lezza13 Member Posts: 579
    edited August 2019
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    Hi ruthbru! Thank you for saying that!

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019
    edited August 2019
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    Hello stage 2 sisters!

    I am writing in for a dear friend. She was dx'ed with stage 2 IDC and went through RADS and double BMX. She is now in the ER for two days and counting in San Francisco far away from her home in Portland, because her breast became swollen and painful and bright red.

    The docs have told her it is a "life-threatening infection" and "going to take a long time to heal because radiation damages the breast tissue so there is a decreased blood flow to the area" and that "the antibiotics are not getting to the breast."

    I am writing for her to gather as much information as possible. Please feel free to PM me too. I am worried about her. So far I have just now asked her to please contact her MO in Portland and get them on board. She really doesn't know how to play this game and didn't believe me that her MO would be able to receive emergency messages like this one. She is calling as I type this thank goodness.

    Thank you so much in advance for all your help and input. love to all!!!

    Philly

  • hikinglady
    hikinglady Member Posts: 625
    edited August 2019
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    LoveFromPhilly So great that your friend has you as her health advocate during this horrible emergency. I can completely accept this diagnosis as being very valid. Radiation does harm blood supply, so of course, battling this infection will be a really huge challenge. It does sound very serious, and as though the next step is to get consults from several directions: infection management specialists, surgeon, etc. to find out what the treatment options are for turning this around.

  • Shelligirl
    Shelligirl Member Posts: 61
    edited August 2019
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    Sharon, thanks. I am interested in this as well.

  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,019
    edited August 2019
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    thank you hikinglady! I see you’re a portlander too! Maybe you know my friend?

    I’m doing what I can do from the other side of the country. I feel sadly that she is all alone in the ER right now and doesn’t really understand what is happening and there are so many different docs coming in and out

    She’s tried to reach her MO at Compass Oncology but got voicemail :( I hope someone calls her back.


  • Shelligirl
    Shelligirl Member Posts: 61
    edited August 2019
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    Miss and Sharon, thanks. I am interested in this as well.

    Ruthbru, what you say is true, but even though the numbers are only true for a large group, I want to know. Knowing the odds is important when you are being asked to raise your hand for more treatment.

  • cowgirl13
    cowgirl13 Member Posts: 781
    edited August 2019
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    Love from Philly, I live in San Francisco although I won't be home until Monday. If you give me her info I will reach out to her. I'll pm you.

  • MexicoHeather
    MexicoHeather Member Posts: 147
    edited October 2019
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    2020 Retreat LPHOH

    Hi. Retreat opportunities for Little Pink Houses of Hope are listed for 2020 on the link above. If you are currently in treatment or have recently finished, take a look. It's is focused around a free, week-long retreat for you and your family. 🤩🤗I have volunteered with them for two years and they are fantastic people.