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FEC-D regime

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Comments

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    Hi all!

    Here is my update;

    Met with my onc today. He is switching me from taxotere to taxol and I will have infusions for the next 6 weeks. No more neulasta. I will continue the herceptin on a 3 week cycle for 1 year

    So hopefully my SEs will be minimal - this is what my onc expects. Minimal pain and tummy issues

    I love him. He is so easy to talk to but it's funny how one can interpret things. He mentioned that he wants to get me through treatment with minimal SEs so that I can move on for months and years

    I walked out telling my hubby that this means I don't have a long life expectancy. Hubby said that's not how he heard it given past things that my onc had said which included my onc previously saying that I have a good prognosis based on my type of cancer

    Funny how we interpret things

    So hopefully things will be better after tomorrow's infusion. Now instead of 2 more rounds and being done with chemo by mid august, I have 6 more rounds and will be done with chemo the week before Labor Day. I'm cool with that as long as I have a less SEs

    I also got Tylenol 3 to take instead of percs just incase

    Amazon ur hair looks awesome!  Hopefully that's what I'll have by December!  I read that tamoxifen can cause hair thinning but I sure hope not!!  I miss my hair!!!!

    I'll be the chair tomorrow at 10 and let you all know how it goes

  • yensmiles
    yensmiles Member Posts: 211
    edited July 2014

    Hi everyone!

    It's lovely to see those happy shots Ang! :) and like Amazon, i try buying the most natural products possible and scrutinize food labels! less so for cleansing agents (shampoos/shower gels) and cautious when it comes to body lotions or whatever that stays. Have yet to make a switch to safer detergents and floor cleaners, though i remember, once while the floor was being cleaned and i was in the same room, i sneezed repeatedly and my nose started leaking, and everytime i came downstairs to where the detergent was used, i sneezed again!!! That was during one of my weaker moments, so definitely would be getting safer products in future. How did the dr's visit go? Weekly confirmed?

    Amazon, the curly hair is beautiful! :) Everything okay with the ECG? Do you also have to do chest xrays to check the lungs? Any idea how the rads has affected it besides the physical symptoms of tightness and pain? and haha, this might sound a bit silly, but does icing it help? to put out those fiery feeling!!! so glad to know you've visited malaysia before. It'd have changed since your last visit.. more highways, bigger malls, new transportation systems (light rails), and of course our now famous Petronas Twin Towers landmark and also new airport. I live in part of Greater Kuala Lumpur, in Petaling Jaya (PJ), 20mins drive from the city centre, though where i am is pretty much the buzz area of PJ, as i live a stone's throw from One Utama (one of the most popular malls around). Good thing about being in the city is everything is easily available, terrible thing is the absence of fresh air and large open spaces! Thankfully, there's a piece of green lung near where i live, a hill, which takes about an hour to walk up and down! Shall be doing that once my hair grows as beautifully as yours and i can go out without a wig!!! :)

    Lolis, my back hurt too (on first chemo cycle from taxotere), even though i hardly sat then! hope work takes the pain away and you'd be even better tomorrow. thanks for asking about the cracks, it's getting better..and my sister is a gem, she prepares veggies and even chop garlic and pack it all in the fridge to minimise my contact with water. and yeah, it is rather bothersome to have the haze, and it stays for a few months! :( Now i have muscle aches, from following the youtube video exercises for just two days!!! LOL! feels alive to know the muscles are working! :)

    Have a good day everyone!

  • Lolis
    Lolis Member Posts: 294
    edited July 2014

    Ang, good luck today!!!

    Amazon, hope your chest feels better! Did the doctor explain how much the lungs where affected? 

    Yensmiles, sisters are the best aren't they!!!

    Today, I woke up feeling good. Just a minor backache. The period is supposed to show up at the end of the week but not sure if it will. So I am assuming the pains and aches are over. My mouth still feels horrible. I am doing the baking soda rinses as the salt and water wasn't soothing it as much.  

    I am so jealous of all of you working out. I can't find it in me to start working out at least until my PICC is out. I ordered a spinning bike so will use that when it comes in as I can't jog anymore, (it's weird with one breast). 

    Wish you all a great hump day!!! 

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    ang: Good luck today!!! Will be thinking of you and praying for minimal SE this time!

    Lolis: My hair feels wooly, but it is soft to touch. My hair used to be curly ( pls, see pic below), but now it seems even curlier.

    My grandfather's last name was: Kraus which apparently means curlyhead in German. Hence the curls! Lol

    As you noted correctly, PFC stands for post final chemo and PFR: post final radiation. It took me a while to figure out and get used to the 'local jargon'.

    My chest is feeling slightly better, but it is still pretty sore to touch and it hurts more when I am moving around. The doctor wasn't quite sure what it was, as this type of reaction is rare. One RO that I saw while my regular RO was on vacation thought it to be trachiatis caused by rads and exasperated by recent bronchial infection plus seasonal allergies. I think it is a bundle for sure.  

    Yens: I have been eating papaya as per your advice. :) I also added to my list of anti- inflammatory foods local and seasonal cherries. And yes, I have been icing the area because it feels hot to touch. 

    I do remember the haze, that you are talking about and it must be hard to breath the air at times. We have some hazy- smoggy days here in Toronto as well, but they come and go thought out the summer. This summer has been fairly less hot so far, hence fewer smoggy days.

    ****

    I have not been able to exercise at all lately, because of my condition. I find it very frustrating that I can't even go for a walk with my son as my energy level is close to nothing and struggling just to keep my eyes open.

    For the mastectomy ladies:

    How did the mastectomy effect you?

    Here is a pic of my curls BEFORE chemo. 

    image

  • yensmiles
    yensmiles Member Posts: 211
    edited July 2014

    Hey Amazon, i like your current curls!!! :) it's got a very chic look to it! :) would love to see how it goes when it gets back to the original lenght! and glad you're taking cherries and papaya. Cherries are great anti-inflammatory.. i wish we get them here.. okay, we do have them now.. the imported ones.. though nothing is as good as fresh and local! :) it's awful to be one having "rare" or "unusual" side effects especially when the time frame for it to disappear isn't clear. and hey (just popped into my mind right now), if you can get fresh coconuts (really in the nuts and not processed) -they are fabulous!! fabulous in many ways for the antiseptic properties, loads of minerals, the protein and oil in the fresh, the "blood plasma" like juice.. great "cooling" effects and might be another thing to tame the radiation effects. Gosh, i hope i'm not overloading you with suggestions because you're already doing so much and know heaps on this. And admittedly i do sometimes find over-helpful people annoying.. so lol, hope i'm not being one right now! just wish i can help in some way!

    Yay Lolis! good to hear you're feeling good! :) did you have your period regularly since chemo? I've had mine twice.. the second time being rather scant.. 

     Today i didn't really work out.. muscle ache.. though decided i need to rid some toxins and did a light 10min youtube exercise just before bed.. which might explain why i'm still writing at 1am!!!! i am too alert!! i know this might not seem terrible for some, but i don't understand why i am mentally so alert.. i can sleep at night.. with multiple getting up to the toilet.. and haven't been napping..yet.. sigh.. i only hope that when the time comes for me to grow my hair, i can sleep exceedingly well as my hair grows real slow normally and then really quickly when i sleep as if i'm in a coma!!!

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    yens: I'm quite sure that my hair grows especially when I am asleep, because my hair always looks different in the morning. Lol

    And I need to get some of those fresh coconuts to help with my recovery. 

    Just like Hippoctates, who is considered the father of western medicine, I too believe that food is medicine. We are what we eat, after all.

  • Gonein40
    Gonein40 Member Posts: 76
    edited July 2014

    hey ladies. It's been awhile since I've been on here. I've pulled a real bonner today. I missed my onc apt. Omg I can't believe I've done that but if you'd seen my sched for drs apts n scans you'd understand it's not me.  I've just about had my limit of apts. how does one deal with so many and try to live your life. 

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    debbi: It's good to hear from you again! You were missed! :)

    Are you done with your treatment?

    As far as keeping myself organized, I use my iphone calendar for all my appointments with the 1 day alert option, otherwise I would probably miss half of them!

  • yensmiles
    yensmiles Member Posts: 211
    edited July 2014

    hi Gonein40, haha, was going to say what Amazon said, use alert on phone. I do the same and i only have chemo + breast surgeon appointments to handle.. and sometimes still feel anxious that i will miss something..  am attributing it to chemobrain! hope a reschedule is soon.

    Amazon, sounds like you're blessed with really fast growing hair! :) Here's to speedy recovery for everyone! *toast* (with glass full of coconut juice).

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    hi all!

    As for me my onc changed me from taxotere to taxol which I will have infused for the next 5 weeks. This means that I'll finish chemo the wed before Labor Day weekend instead of mid august

    Yesterday I had my first taxol with my 2nd herceptin which stays on the 3 week schedule. In between herceptin and taxol I get Zantac, Benadryl and a steroid. I was so zonked!!  Came home and slept for 3 hours!!

    So far so good but no poop today so I took my meds to try and stay ahead of the game

    I also got Tylenol 3 in prep for any pain because I hated the percs

    I have been told by my onc, nurse and pharmacist that this should be much easier on me.

    I no longer need the neulasta shot so am hoping for the best

    No exercise today but will do so tomorrow!

    Tomorrow night we are going to try and have a band rehearsal. Can't wait!

    Wishing a good evening to all!!

    image

  • Gonein40
    Gonein40 Member Posts: 76
    edited July 2014

    looking good FB. Good luck with your band "regrouping"...............amazon and yensmiles. I do not use my iPhone enough to do this as I can not use it at work n well I frankly just plain forgot to write it down. My own fault. Just overwhelmed by other things going on as well.   They still have their "clutches" on me. Sorry amazon. Yes I am done my treatments and have begun my tamoxifen   So far so good......only hot flashes all day/nite. It's a constant  don't know when or where I'm going to have one lol.  

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    hi all

    I am soooooo tired! Hard to sleep. Get hot then I'm cold then I'm hot!! Today woke up tired. Forced myself to run some errands now I might just lie down for a bit. I have band practice tonight so need some energy!

    I'm also so tired of others telling me what to do or sometimes what they think. Examples;

    - there's a cure for cancer you know. The corporations don't share because of the $ involved

    - don't eat that. It's bad for you

    - don't drink that. It's bad for you

    Ugh! I'm eating the burger if I want to or the salami sandwich or the chips. I haven't had soda in weeks so I might have that too. Arrrrrgh!!!!

    Okay. It's out of my system now. I think I better go lie down for a bit! Ha ha

    Atleast nfl training camps are open!! FINALLY!!!!!!!

    One final thing: I am very proud to share that my acdc trib band BARE RUMP and my classic rock band - name to be determined - will be performing at the relay for life on Friday sept 12 in Georgetown Ontario. I am so thrilled! I'm also organizing two benefits in oct and nov. Looks like one will be in mississauga and the other in Brampton

    If anyone would like to attend please let me know. I'll share all details

    Woo hoo!!

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    ang: My hot flashes/ night sweats were much worse during chemo than now on Tamoxifen. 

    Yay for starting up your band again and planning concerts. 

    Please, keep us posted about the events.

  • yensmiles
    yensmiles Member Posts: 211
    edited July 2014

    hi ladies! how's everyone's weekend been

    Glad to hear you're having a fabulous time Footballnut! :) way to go for having your own band! and haha, feel free to rant.. i've felt the same at some points.. 

    Gonein, hope those hot flashes that come and go also makes your face nice, glowing and rosy as compensation for it! :)

    It's a Monday for me here and looking forward to Wednesday to see the cardiologist.. (public holiday Mon&Tues because of the muslim holidays) had another episode of not feeling too well yesterday.. felt a sharp pain in the chest, bp dropped below 100/60, and left arm and later left leg felt numb... and the arm remained numb for hours despite light exercises to increase blood flow.. it was only after about 3-4 hours when the blood pressure picked up that i felt better and the arm felt better too.. will go to thoroughly check whether i've actually had heart attack e[pisodes just for peace of mind and to know whether it's truly safe for me to continue herceptin. 

    Today also decided to be "adventurous" with my food - forgot to make bread yesterday and didn't have any store bought ones left at home, so this morning, my sister went to buy Roti Canai & Dhal (indian bread and lentils) for me. It's a rare "outside food" indulgence for me, since i'm still very cautious about what i eat in case it affects my immune system.

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    good morning all

    Happy Monday!!  Yesterday we confirmed Saturday oct 25 at PK creek in mississauga for a cancer benefit. We will also do another in fri nov 21 at all stars in Brampton. So including the relay for life in fri sept 12 we have 3 functions. Woo hoo! I'll share more details as they become available

    I must say that taxol has been much better for me!  I've had some fatigue and continue to flirt with constipation. I'm taking the meds prescribed to be by my doc and I'm going but stool is still fairly hard resulting in some bleeding

    To be honest I'm supposed to take 2 tablespoons a day but had started by taking a teaspoon once a day. I guess that I'll take the suggested dose

    Yesterday I reactivated my membership at the gym and worked out for an hour. Hslf an hour on the elliptical and 30 min of weights. Felt awesome!

    This wed is my 2nd of 6 taxol infusions. Hopefully side effects will continue to be minimal. 

    I hope that all are doing well and have an excellent monday!!

    Happy

  • Gonein40
    Gonein40 Member Posts: 76
    edited July 2014

    football glad you are doing better with your treatments and yah to doing a benefit concert with your band members.  Yensmiles. I do normally have rosy cheeks. Lol. I hope your situation turns around quickly for you. Hugs 

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    Good morning

    I will be more than happy to keep all posted on fundraisers and would also be more than happy to help any of you organizing anything at anytime!

    Tomorrow is round 2 of 6 taxols then done chemo. Can't wait!!!!!!

    Today it is my bday. 51. Hubby and I said that we will celebrate once the chemo is over although I did say that of allow him to take me out to dinner this weekend when we see howie mandel at casino rama Hoping for major laughs!!

    :-)

    Got to the gym again yesterday. Will try again today. I think that it's helping with fatigue

    Have a great day all!

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    ang: Happy birthday!!! A nice dinner sounds great. I hope you continue to have minimal SE with taxol. It already sounds like it's more manageable for you. 

    I am impressed that you have the energy to work out because I don't have the energy to stay awake sometimes. Lol

    Yens: Gee that incident with numbness sounds very scary. I hope that your Dr will be able to figure out what's going on. 

    Yay, for getting adventurous with your food. BTW, I added fresh coconut to my menu and I love it!

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    hi all

    Got through round 2 of 6 of taxo. I call it round 5.1. My onc nurse told me that my side effects should remain as is throughout the duration of treatment. I hope so! I got colace and will start taking tonight for a few days

    I bought a generic brand the other day because they did not have colace and saw that there are 2 types of parabens in there! Good grief! You can't avoid the stuff!

    I'm paranoid about the skin creme and body washes that I use but it's in everything!!!

    After chemo I came home and slept for 3 hours. Same as last time! Prior to chemo they give me steroids, Benadryl and something else - I forget. It's the Benadryl that knocks me out. Felt like I was in space!!

    No gym today!!  Lol. Just sleeeeep. Since I slept so much today I suspect that I'll be wired tonight. Lol. Woo hoo!!

    I hope that everyone had a good day!

    image

  • Lolis
    Lolis Member Posts: 294
    edited July 2014

    Happy belated birthday Ang!!! Wish you minimal side effects.

    Yensmiles - I had two periods since chemo started and I had some bleeding between the two periods. No period for me this round, I think chemo it's the culprit. I am breaking out again after some time of clear skin. 

    I hope your doctor gave you some good news regarding the issue you were experiencing and hopefully it's nothing serious.

    Amazon how are you doing? Anymore Vit. C IV? 

    What did you mean with your question about the mastectomy and the effect? 

    Gonein40 - how are you?

    I keep having watery eyes and the right eye lid is a bit swollen and I feel a contracting sensation (kind of spams). Thinking to go to an optometrist to check it out. 

    Hope you have a good rest of the week!!!

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    good morning all!

    Thank you lolis!!

    After a night of minimal sleep I'm up and ready to face the day. So far I've had increased dry mouth after this infusion. Hopefully other side effects will remain minimal

    Going to try and hit the gym today

    Hope that all have a great day!

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited July 2014

    I had a MRI of the liver and kidneys yesterday. I was lying in the machine for good 45 min and was getting antsy. I had to do special type of breathing: take a deep breath then holding it for about 20-30 seconds then relax and breath out as the machine was taking images when I was NOT breathing.

    My RO ordered this because I had some areas that needed further investigation after my abdominal US showed a hemagioma on the liver and something else on one kidney.  

    I had to have am IV for that because they inject a contrast into the bloodstream. I found out that the contrast is in fact a heavy metal which apparently doesn't stick around your system for more than a day.

    I had the IV C infusion (#3) the same day. This one had 25g of vit C. The ND first put the IV in my hand, but because I experienced pain in the injection site I asked him to do the elbow vein and that was fine. So I was poked 3 times yesterday. Yikes!

    I always feel a bit lightheaded the IVC, but I feel it ultimately gives me more energy. 

    Otherwise, I am still having problems with horse and sore throat, foreign object feeling as I swallow and pain and tenderness of the chest. My skin feels a LOT warmer than the non-radiated one, so I am quite sure there is some internal inflammation going on.

    ang: Goog to see your smile again! You are moving along your treatment very well. I am so happy for you that the SE are minimal and that you have the energy to hit the gym. How did you celebrate your Bday? 

    Speaking of Benadryl, I used to take it sometimes during the Docetaxel CT to reduce swelling, but also to help me sleep at night.

    I agree with you that finding body care products without the paragons and other carnocigens is a challenge. I usually get my supplies in a local health food store that carries natural products.

    Yens: How did your appointment go with the cardiologist? How are you feeling? When is your next CT? What's the weather like now in your part of the world?

    Lolis: It's good to hear from you again! I found that while on the D, I had issues with watery eyes as well plus I experienced a lot of muscle twitching. After all Docetaxel is neurotoxic and damages the nerves. The good news is that the twitchiness and watery eyes do go away in time.

    Re period: I only got my period once since finishing chemo. It was 6 weeks PFC and lasted 2 days, mostly cramping and a little bit of spotting. 

    As far as the question about mastectomy effects, I mean how have you adjusted to not having a breast emotionally and physically. 

    I still feel like I am struggling sometimes emotionally, especially when I have to look at my now disfigured chest which is a constant reminder of the horrible disease I have been dealing with. 

    When I looked at some pics of myself from last year, it all of a sudden felt a century ago. All of the physical and emotional pain that I suffered stood like a wall between now and then.

  • footballnut
    footballnut Member Posts: 449
    edited July 2014

    amazon do let us know about your test results. If you ever need a ride or anything just let me know

    Went to the gym again today. 1/2 hour cardio on the stepper and then weights. Felt great. Now that I'm sitting around I feel the fatigue creeping in. No time for that!

    This round of taxol seems to be bringing dry mouth with it   I'm drinking water like it's going out of style!!

    Lolis After my first round of taxotere my eyes were so watery and my nose ran all the time. I also developed very hard chunks of dried blood in my nose. This seems to be improving now that I'm ion taxol. I'm glad that ure not experiencing the horrid pain that I had!!

    Didn't do anything for my birthday because I told my hubby that I want to celebrate once chemo us over. I told him not to get me anything including a cake but he still got me a few small snoopy figurines - I love snoopy - and a captain America figure - my hero!!

    Then I started crabbing about no cake and as I bitched he gave me a package of smarties with a candle in it!!

    What would I do without him?

    We are going to see howie mandel at casino rama this weekend with friends so we can have a mini celebration!

    image

  • Gonein40
    Gonein40 Member Posts: 76
    edited August 2014

    Lolis I'm doing good. I was having muscle pain that was unexplainable but that seems to be lessoning each day.  I've been on tamoxifen for over a mnth now and things are good. Hot flashes seem to come n go when they want. Go figure. I have a scan booked for the 14th of August as they aren't sure what is going on with another scan they did in April. More tests more drs apts. frankly does it ever end !!!   

  • yensmiles
    yensmiles Member Posts: 211
    edited August 2014

    hey football nut, you always have such a gorgeous smile! looking at how radiant you look, makes me feel better! :) and hmmm.. i love this product LUSH.. and no idea where you stay in canada, but it is available in canada.. it should be safe! https://www.lush.ca/ and HAPPY HAppY HAPpY BirHTDAY!!! 

    Gonein, i'm sure things will ease up.. (okay, the dunno when is frustrating).. 

    today i went to see my breast surgeon and came back very happy.. she wants to see me in 6 months time.. and no sooner.. today's visit is 3 months post-surgery and i think it's to make sure i'm doing chemo because i was so hesitant about it the last time i saw her.  Also detected new lump in left breast.. that or it's an old lump undetected.. did the ultrasound while at the hospital, it's small, looks benign.. and the "looks benign" is keeping me happy now..and will do another scan in 6 months. Also scanned my pelvis area while i'm there, as just before my chemo, i did a scan as my menstruation was just havoc.. think bleeding for an entire month (profusely most of those days) from shortly after detection of tumour to weeks after surgery.. there was a cyst then, suspected benign and related to my monthly cycle, and the radiologist asked to follow up ... I'm glad i did! :)

    omigoodness Amazon :( don't like the part about the liver and kidney. what will be the next steps? would milk thistle and dandelion be of any help to the liver? Glad that the IVC is giving you more energy! :) 

    Lolis, me too.. had my period on the first two chemo cycles..came third cycle.. nothing..  :( am a bit disappointed honestly..because even though i'm approaching 40, i still do want the option of getting pregnant one day in my early 40s. My uterus all seems nice (no shrinking etc) during the ultrasound i did today, but that is no indicator of fertility.. :( am just glad next week will be my fourth and last chemo.. 

    and i am also really happy that i didn't have a heart attack.. most likely heartburn (even though i've never had that before), according to the cardiologist i saw. and since he's a professor, i feel assured when he ruled it out.  He was also really sweet and made sure i understood what he was saying.. such a gem! explaining differences and similarities of heartburn and heart attack..even demonstrating to me how it'd feel if it's a heart attack by applying pressure on my chest.. and corrected my assumption on why my blood pressure goes down when my heart rate goes up after the initial days of low hear rate.. i assumed wrongly..he explained: it is chemo effects.. and it's  my heart rate goes up when my blood pressure goes down to compensate and try to raise it!! i'm sticking to him as cardiologist even though he's in a different hospital from my oncologist.

    and i also feel really pleased with myself today.. i drove! in fact, i drove to the cardiologist on Wednesday, and today, I drove to my breast surgeon! :) haha, it might seem like something small.. but i have been under self-imposed house arrest for a long time. and since i do feel healthy and normal during this third cycle, didn't seem right to ask my sister who has to work full-time to ferry me around.

    and i'm also getting more bold with my food.. had CHOCOLATES! hahahahahaha! it makes me feel a bit cheeky..well, since i don't feel like i'm being burnt from the inside out since the first chemo session, just had to cut myself some slack..  

    looking forward to hearing more about how everyone's doing... 

  • footballnut
    footballnut Member Posts: 449
    edited August 2014

    good morning all!

    Up early this morning. Had sugar - yes sugar - frosted flakes for breakfast. I would say that my taste buds are at 80% so it tasted quite good!!  Mmmmmm

    Plan on going to gym this morning then probably come home and have a nap!!  Lol

    Going up to orillia this weekend to see howie mandel. Hoping for big laffs!

    Next tues I have bloodwork then wed round 3/6 taxol. I was told that it will be nuts next week because of the long weekend and short work week!  Ugh! 

    I wonder what next steps will be once chemo is done. I will continue herceptin every 3 weeks for a year and suspect tamoxifen will start in late sept/ early oct but what else will happen?  I was told that once chemo ends so will bloodwork unless ordered by my onc

    I don't discuss next steps with my onc until the step approaches - one stage at a time

    I am starting to be of the opinion that the birth control pill contributed to my bc. I was on ortho 777 for close to - yikes - 25 years!  If that was the culprit hopefully being off it will improve my chances of beating this thing

    Who knows. Millions of women take it. I am slowly being able to move forward and just focus on life which feels good. The gym helps with this a lot. It feels like a bit if my regular life has returned!!!

    Have a wonderful day and weekend all!!!!

  • Lolis
    Lolis Member Posts: 294
    edited August 2014

    Hi All,

    Amazon- fingers crossed the liver issue is of no harm. How many IV C are you doing? 

    Yensmiles - glad it was not a heart attack. And dark chocolate it's good for you. I eat 85% cocoa dark chocolate and I googled which ones are the best and if I find the link I will post it. I love lindt and I eat their 85% dark choco, god its so yummy!!

    Ang - I guess we will never know what brought our cancer cells to activate. In my situation I think it was stress.

    Gonein40- hope the scans come back clear. Don't think the appointments will ever end for us :) 

    That's a good point that you brought up Amazon. I didn't think that the eye issue was related to Taxorete.

    I think I spoke too early. I got my period today. It makes me happy as I am assuming my ovaries are not being totally killed by chemo. 

    I had a rough week emotionally. I have been thinking about next year and the baby plans and I was thinking to go the surrogacy way. It is so expensive and on top of everything we have to apply to the court to change the birth certificate to have the child registered as being ours. Apparently it doesn't matter that it would our genetically but since I won't be giving birth to them my sister would be registered as the mother. I got so upset and sad that it is going to be so hard to have a kid and got mad at my body that decided to give me cancer before I had a kid. I have been looking for studies that show if pregnancy would increase the chance of recurrence for ER+ (mine is 95% +). So I cried non-stop on Wednesday as I was desperate. My MO didn't pronounced when I asked her if I should get pregnant 2yrs after diagnosis. She said that she has had patients who got off tamoxifen to get pregnant. My husband doesn't want me to get pregnant if it would increase the risk of it coming back and I don't want if there is a risk but if it is safe I sure would want to do it. 

    Yensmiles - are you thinking to get pregnant after the treatments? What does your MO think? 

    I won't see my MO next week as she is away but I will ask her when I see her for my last round. 

    In terms of mastectomy, I do get sad when I look at my wedding pictures from last year. I never had any complaints about my breasts and now that I have to stuff my bra it feels weird. I am okay for most part but I do feel sad and disappointed when I have to wear a dress and can't because of the dent in my chest. My hubby has been a gem and still calls me beautiful even though I have a boob, no hair and look like a total mess. On the other hand I am proud of my scar and even think sometimes that I don't want to go thru recon but I guess recon would make things a bit more less complicated. 

    Hope everyone has a great weekend!!!

  • yensmiles
    yensmiles Member Posts: 211
    edited August 2014

    Lolis, *hugs* am so happy that you've such a wonderful husband going through this with you and a beautiful sister who's willing to be a surrogate mum to your babies, and that your period is here. it does sound like a rough week emotionally when it comes to such issues. I don't have a life partner with whom i want to have a kid/s with right now, so i never really asked in detail, though the oncologists did offer me the "egg extraction process" prior to chemo, and also mentioned that people who want to get pregnant can just stop taking tamoxifen.. and also i think there's a 6 months or 1 year buffer before one can get pregnant.. to make sure the chemo has cleared the body.

    Can you get those erm.. i forgot what it's called.. the special bras? that might make it easier.. no more stuffing! :) right now, i dread people popping by unannounced (usually neighbours) and sometimes the postman/courier service.. and feel a tad stress having to quickly put on a wig and bra!!!! I decided to ignore a neighbour last night.. and pretend i'm not home! she tends to overstay and lol, i wasn't up to entertaining her!

    Yay to the gym, footballnut, and have much laughter with your weekend plans! :)

  • Amazonwarrior
    Amazonwarrior Member Posts: 140
    edited August 2014

    It is a civic holiday here in Canada. My hubby and my son left this morning for more than a 2 week road trip to see my hubby's side of family. 

    I am having an emotional crisis as I was never ALONE for such a long period of time.

    I am in a strange mood: I feel lightheaded and crying, but I can't. I can't seem to do anything at the moment. I can't seem to decide what would make me feel better:  Bath? Food? Sleep? Garden? TV? Internet?

    None of these things offer the satisfaction that I need and I am starting to feel misty.

    I could never even imagine how connected is my mind to my physical self and vice versa. 

    I feel that I am mixed up emotionally and physically. I feel scared of the way I am feeling. I want to be stronger. I don't like when I get like this.

    Lolis/ yen: I feel for you in regards trying to get pregnant after all this. It seems from your posts that you are both younger (<40?).  I relate to this because I was trying to get pregnant for about 10 years after getting married. 

    We ended up going with the fertility treatment route due to my hubby's issues. 

    However, I believe that the many years of fertility treatment spelled bc for me. :(

    Plus the stress added later on, because my son is autistic and deals with many social and communication challenges. 

    Gonein: Waiting for tests can be stressful. I hope that your dr can figure out what's causing the pain. 

    I wish they would figure out what 's causing all the lightheadedness in my case. BTW, I haven't heard back about my MRI or ECG yet. 

    I am hoping to do about 8 cycles of IVC. 

    All: I hope you had a good long weekend.

  • footballnut
    footballnut Member Posts: 449
    edited August 2014

    Amazon what a beautiful picture!!  Such a beautiful family. If you need a friend call me and I'll be there. Don't be down!

    Monday early evening and I have increased aches but not bad enough for a Tylenol. I was so tired today but went to the gym. Did the stepper for 1/2 and hour and some weights

    Tomorrow is bloodwork and wed is round 3 of 6 taxols

    I notice that my aches are increasing and I think that I have a small hemmeroid!!  Ugh!!  Taxol seems to be going after my tummy. Thankfully not as badly as taxotere as I am mostly dealing with hard stool so take colace. 

    Fun fun!  Can't wait until this over!!