Ibrance (Palbociclib)
Comments
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I have taken omeprazole on and off for years for gastritis. It's the only thing that works for me. One difference with me is that I take the 10 mg dose. The OTC Prilosec is 20 mg. My gastroenterologist prescribes the 10 mg dose for me. It sounds like your GP prescribes it (cheaper that way) but probably the 20 mg dose. Would he be willing to let you take 10 mg? If it works so well, why go off it? I took it for over a year straight and the doctor didn't complain. Maybe he should be paying more attention. But, hey, won't we be going to doctors at Walmart pretty soon?
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Thanks Jaycee. I know I can get it over the counter but I am trying not to. I will ask her. I know that going off the omeprazole means a sudden increase in acid, but I am miserable. I was doing so well!
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time-for-a-cureThank you for taking time to reply. I did hear that there are some on the IBRANCE study that are six years out. You were blessed that you were able to have that node removed. Fingers crossed and prayers for you too.
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IntoLight I have had bad reflux from IBRANCE that was getting worse and was on Pepcid. Had a endoscopy and findings were inflammation and gastroenterologist prescribed sucralfate. Haven't really get started on it. My MO had prescribed the Pepcid but gastro guy said it would't be effective but can't recall why. Hope you get relief. Blessings and prayers.
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Dorimak, yeah, Pepcid doesn't work at all (which is what she prescribed). Sounds like what I am going through. Going to spend 3 days away with my DH. Then I will contact my MO and see what can be done. I can't live like this!
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Has anyone had a slight elevation of their alkaline phosphatase since being on Ibrance? Ihave been on Ibrance for 2.5 years and have been doing well. However, since December my alkaline phosphate has been slightly elevated for last couple of blood test. My MO said it could be from the Ibrance and she is not worried. It seems strange that after 2.5 years the Ibrance would now send it out of range. Has anyone else had this experience? Level was 110 in December and 114 in March.
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Hi, I don’t respond much but read a lot and have learned so much. I had very bad acid reflux and was put on Dexilant 60 mg daily. It’s the best. I don’t have to worry about reflux anymore. See if you can try it.
Suzy
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Intolight, I'm so sorry to hear of your problems. I took Prilosec when I started to have heartburn, etc while taking Letrozole in 2013. After reading online warnings about taking drugs like Prilosec long term, I decided to try something different. My friend went to a holistic doctor who recommended she try a gluten-free diet plus natural yogurt so I did the same with great results (also eventually quit the Letrozole). Since I've been on Arimidex, I developed a Hiatal Hernia with terrible heartburn...the whole shebang and need to go back to that diet. Tums helped for a long time and now I use Pepcid with good results but I've gone back to eating wheat and stopped the yogurt. Things are definitely better with 75mg Ibrance though! I will pray that you find something to make you more comfortable.
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IntoLight....I also have indigestion and gastritis from Ibrance and I take Lanzopram. I'm not sure whether this is the marketing name or generic name. Somac is also good and I'm not sure, once again, about the name. Just in case it helps you, I also follow a gluten free diet. From trial and error, I've discovered that my gastritis clears up on the GF diet but Ibrance definitely causes me to hiccup and have indigestion.
KattySmith....I'm sorry that Ibrance has passed its use by date for you. I hope you'll keep us up to date when you start your new dance, as PatGMcR calls it so eloquently.
Thanks lakewoman for your encouragement for my writing. I've now published fourteen blog posts, two of which are only housekeeping. It seems to be quite well received, having had 2,600 hits so far - a lot more than I expected. I've delved very deeply into quite personal details about my cancer story because I think, if I'm going to write about it to give an insider's view, I should do it properly. I've been able to keep it anonymous though.
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I am also having heartburn from the Ibrance that comes and goes depending on what I eat. But it appears that Pantoprazole has some long term effect on me, because if I take it for 1-2 days, I do not have the problems for about 1 week. So I do not take it continuously. I do not like to take it anyways, because I gives me the impression not to be able to digest food properly.
Additionally, please pay attention to the fact that Omeprazole/Pantoprazole does influence the resorption of Ibrance. It should not be taken at the same time but rather 12 hours apart.
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Into light - i have been on Omeprazole for several years due to a hiatal hernia and reflux. My PMD wanted me to get off of it, I tried several times without luck - I would just be miserable with heartburn etc. I now find that if I take 10 mg in the morning (half of an OTC dose) and then 20 mg famitodine at night, I do well. If I try to get rid of that 1/2 an Omeprazole, it jdoes not work. Just another idea. Hope you find what works for you.
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For those on Ibrance.. I just started cycle 18 Letrozole/Ibrance 100. Still doing okay (have to watch those low platelets thou). Don't know if it is the Ibrance or letrozole that is doing the job, but as long as something is working..I'm good!
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Having a CT of chest, ab and pelvis today. Hoping to hear the the cancer has not invaded organs and that the blood clots in my lungs have resolved. It would be nice to get off the blood thinner if safe to to do so. There’s been a lingering pain where the liver is which seems to resolve diet. Bone scan is next week. I pray for lazy cancer cells who can’t figure out a way around this t
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Wow, thank you all for answering me as I knew you would. You rock! You are never alone on this thread!
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Jensgotthis, Good luck with your scans today. Sometimes clots in the lungs take several months to resolve. Has your doctor given you an estimate of how long you will remain on the blood thinner? My DH hated them when he was on them, so I know how anxious you are to stop taking them. Do you know when you will get the results of the CT scans? Will you wait and get them after the bone scan? I hope the results are all good.
Hugs and prayers from, Lynne
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HI Jaycee ! Thanks for responding. Well, I do feel bad for my husband too, but its a huge struggle for him at his age too (luckily !! hahah) - I've tried a bunch of magic goops, I figure if I can get myself interested it would help both of us. Don't kill me but, pornography kind of works. :-D (in secret !!!)
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Jen, good luck with your scans! Fingers crossed for lazy, stupid cancer and for resolved lung clots.
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Mica prayers for you and your onc tomorrow..Peaceful sleep tonite.
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Jaycee, Amarantha, and all, I read an article that men whose wives can't accommodate sex actually miss the intimacy as much as the act. As low as my libido is, I try to cuddle, hug, and touch as much as possible, along with the manual alternates. But bottom line, this is me time now, so I'm done with any guilt over it.
Singlemom, haven't had any issues with alkaline phosphates, but take comfort that your MO isn't worried and keep an eye on it.
jensgotthis, sending you waves of comfort as you await your results.
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Lynne, there was mention of 6 months as a deciding point for whether I’d stay on the blood thinner or not. After the first three months, there was improvement. We don’t know what’s causing them although it’s likely medicine related (I blame Lupron and of course cancer). I’ll be curious to see how this turns out.
I’m hoping for results on Wednesday but if they don’t post to MyChart then I’ll pop into the office Friday morning to request a print out. I’m not a very patient waiter when it comesto test results.
Bone scan is next Tuesday so I’ll make an appointment after that so we can discuss the meds.
Thanks for the good wishes. Man I’m glad I don’t have to drink that barium stuff for another three months.
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Off to the dentist today, then dermatologist Friday to have a spot looked at on my face that is changing! If it’s not one thing, it’s another!!! Ugh!!
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Amarantha and Jaylea, thanks for the suggestions. With both, though (porn and cuddling, etc), I hate to get him "in the mood" and then not be able to follow through. He seems like he'd rather not get started at all and then be disappointed in the end. Maybe I'm wrong. I haven't asked recently. I guess I need to. Why is that so hard?
Good luck, Jen and Gracie.
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Good afternoon,
Medi port placement tomorrow. Thanks for the advice. I will be asleep.
Tanya
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Tumor Marker experts
I recently had them done and don't understand the numbers. i googled it but would appreciate any assistance.
This is what I see on my chart.
*** Tumor Markers ** CEA 20396 2.2 ng/mL
CA2729 178426 26.0 units/mL
Tanya
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Tanya, I think those TMs are great and are both within normal range. Do you know what they were in the past? I think that the 20396 and 178426 are simply codes and that your values are 2.2 for CEA and 26.0 for CA 27.29. WOOHOO! On the other hand, my CA 27.29 climbed to 400 this month. BOOOOO!
Hugs and prayers from, Lynne
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14 years ago my onc told me not to worry about them they’re not reliable.
I still have a cancer lesion in my hip 3.3 cm so I expect to see something.
I hope the numbers mean nothing for you. I read something online about the numbers being influenced by hormones from meat we eat.
I pray yours mean absolutely nothing!
Thank you for the info
Tanya
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This may be TMI, but I just wanted to say thank you, on behalf of my husband (though he'll never know
) - because of what some of you have said, we had a little "afternoon delight", for the first time in MONTHS. Uncomfortable at first, but then it was fine, and now he's walking around with a bounce in his step, and a grin on his face. Seriously, I think it was easy to justify focusing on myself (who could blame me?), and also easy to forget that he's going through this, too. But I do want to emphasize that it wasn't painful for me, just uncomfortable. I think that makes a difference...
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I think TMI works at times!! Been on ibrance and letrozole a week..Been about 6 weeks since I was diagnosed Mets..A couple days after that we were very intimate and yes I responded. Then tests and more tests and biopsies and emotional adjustment. Today I wasn't responsive ..Was I dumb not to have my usual bottle of beer or glass of wine..Thought alcohol was out..BUT???? help????
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Hi everyone, just looking to vent! I just finished my 1 week off of my 2nd cycle of Ibrance and once again blood work is low, neutrophils are super low
, so I have to have it repeated next Thursday, so distressing! My report says my red cell distribution width is high - sheesh, I wish I could balance this better 
Just wanted to 'de-stress'...0 -
Janky, It took many months for my blood counts to rebound quickly enough to start back on Ibrance after just one week off. I know how frustrating that can be. Don't dispair. What you are experiencing is very common. My RDW has always been high while on Ibrance. My MO is not concerned about it. I am 21 months into the Ibrance ride, and I have come to expect and accept the weird blood counts. I have never had any significant problems, and I feel great, so I am nice and calm. I hope your results are within acceptable limits next week.
Hugs and prayers from, Lynne
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