Ibrance (Palbociclib)
Comments
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@brutersmom I don't think I've seen that on my scans. It sounds kinds of concerning. Hope it turns out to be something that is easily treatable. Keep us posted!
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I've had "actelectasis" show on my scans a couple of times, but then it goes away. My understanding is that it's sort of a "mini" not real important "partially collapsed lung" situation. I don't know if some people just develop it off and on or what, but it can be relatively minor from what I know. I think I too have seen it when I've had some sort of minor cough develop. I think deep breathing can help it go away, and that sometimes it develops because of shallow breathing which can happen just from sitting at the computer, etc. I'm no expert at all of course, but this is what I've gathered over time in my own situation. I've never had my onc be concerned about it, and then it usually doesn't show again a scan or two later - then a year later some will show again.
Just editing, as I'm wondering if since it's spring, maybe pollen can get in the lungs and cause some relatively minor problems.
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Yes, I've had this on my scans too, "minimal" actelectasis, and nobody has every blinked an eye at it.
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I seem to remember that I had some show on a scan I had in the ER 2-3 years ago and at that time they told me it was from "hyperventilating", i.e. shallow breathing, and again said it could come from stress/anxiety, sitting at the computer, etc. I think things like minor coughs, colds, allergies, and then more seriously perhaps, asthma can cause it. Like Tougholdcrow says though, no doctor has ever shown any concern or mentioned it in my case, even though the radiologists point it out on scans.
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My oncologist retired and I saw a new oncologist today. I really liked her and I hope she sticks around. We did a 6 months plan. She stopped a zometa because the recent studies do not show a benifit of more then once a year at this time. We reviewed plans going forward. She ordered a Guardant360 for a baseline. I was diagnosed over 2 years ago and never had one. She also felt that since my scans show NED it might be a good indicator to see if cancer is hiding any where that scan could miss. We also talked about why I was 2 weeks on 2 weeks off Ibrance. There were 2 reason. She wants to try 5 days on 2 days off. One because my oncologist at my original facility said that was my only option because I kept getting sinus infections due to low neutrophils and second because when I suggested 5 on 2 off no one of my ever heard of it. I think there was also some concern that I had my knee replacement in January 2024 and they wanted to keep my neutrophils above 1.0 as much as they could. It was interesting to hear the differences. She does not like the 2 week break and feels that I should have more success this way. I feel like my mind is in overload. She was also more blunt in talking about the future. Not pessimistic but honest. I have found some Drs. don't want to treat me because I have cancer and others seem to avoid the hard talk. She was very upfront which I appreciate.
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