Request a Free MBC Guide about Treatments, SEs, and more..."
If you are newly diagnosed with MBC, facing a treatment change, or contending with difficult side effects, then you may want to look at "The Insider's Guide to Metastatic Breast Cancer," which provides science-based information about approved and emerging therapies, cutting edge research, symptom mitigation, and more. It is the only comprehensive, up-to-date, patient-oriented MBC book on the market today (the last similar publication was in 1998).
Learn more about "The Insider's Guide to Metastatic Breast Cancer" at: https://www.insidersguidembc.com/ You can order the paperback or eBook on Amazon, or download a complimentary .pdf via the ORDER page.
The Guide contains information that many patients may not be aware of, such as:
- Hormone Receptor (HR) positive, HER2 negative premenopausal patients are now eligible to take a combination of Kisqali (Ribociclib) which is a CDK4/6 inhibitor, along with an Aromatase Inhibitor (AI) as initial endocrine-based therapy.
- BRCA positive, HER2 negative MBC patients have the option of taking the FDA-approved PARP inhibitors Olaparib or Talazoparib for their disease.
- Heavily pre-treated HER2+ MBC patients may be interested to hear that a Phase 3 study called "SOPHIA" showed that the experimental drug Margetuximab in combination with chemotherapy reduced the risk of disease progression or death by 24% compared with patients taking Herceptin and chemotherapy.
- Patients experiencing fatigue, anxiety, joint pain, and/or other quality of life issues can significantly be helped by acupuncture treatments based upon the results of scientific studies.
- If Xeloda or 5-FU have been prescribed as treatment, patients may first want to speak with their medical teams about getting tested for specific mutations in the DPD (dihydropyrimidine dehydrogenase) gene that could cause a severely toxic or potentially life-threatening reaction.Approximately 3% to 5% of the population has some degree of DPD deficiency that can put them at risk when taking these drugs.
Readers' Comments:
"Thank you very much for the document! I can't stop reading it! So much valuable information in one place."
"It is a totally comprehensive collection of every and all things pertinent to MBC. It is informative and professionally done.My profession was in nursing and I have to say I am very impressed."
"I'm newly diagnosed with MBC, and your Guide has saved me a tremendous amount of research time.What a gift to have this resource during such a confusing and difficult time."
With good wishes!
Comments
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WOW Bestbird, that's awesome! I was one of the first who received your document. I refer to it every time I have a question (which happens often!) Your document is precious to me. I cannot thank you enough for all the hard work you put into this and to share all this knowledge with us. YOU are precious.Again, thank you. Linda
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That's amazing! I would love to read it! I will be sending you an email!
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Well, well done! You are amazing!
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Thank you! The tally now stands at 521!
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Thank you Anne,
I really appreciated getting your copy the last time you sent it. You have a world of information.
Terri
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Thank you Anne!
Just received a copy, already feel in a position of being well informed. Thank you again for your tremendous generosity!
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Linda, Terri and Xavo, I am so happy to hear that the document is helpful! Hopefully it will be pivotal in enabling patients to discuss multiple options with our medical teams with a considerable degree of confidence! If we succeed in that objective, then we have done ourselves a tremendous service!
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As many others have said, thank you! I have referred to your document several times since receiving it, and as a result talked to my doctor about getting more information about the ER status of the tumor that was removed from my hip. He had the tissue restained, which showed a 3% ER positive result. The original pathology report had simply stated ER negative. When you have triple negative, even a weak positive result is a good thing.
I appreciate your time and diligence in sharing information through your document and posts. Thank you for all your hard work.
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Thank you so much for my copy. Very informative and I've learnt so much from reading it, I'm positive it will help me choose future treatments xx
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It's a great resource. Thanks so much for creating it and then being willing to distribute it so readily!
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BionicBunny, it is wonderful to hear that as a result of reading the Guide you had your tumor re-tested for hormonal sensitivity, and that it came back positive! And as you mentioned, with TNBC, even a weak positive result is a good thing which should enable you to see whether hormonal therapy may work well for you, which I hope it does!
nickiemc and azul, it's great to hear that you're finding the document helpful!
As of today, June 14, a total of 556 copies of the Guide have been sent, and I'm looking forward to fulfilling many more requests!
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I wanted to also thank you so much for the copy. It's such a comprehensive resource and so up-to-date. I'm currently on Ibrance and you already have it included. I feel armed and ready to have meaningful discussions with my treatment team.
Joanne
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Just sent an email requesting mine. Looking forward to reading it
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Joanne, I'm delighted to hear that as a result of reading the MBC Guide, you feel more empowered to engage in treatment related discussions with your medical team!
And as of today, July 6. I've just fulfilled the 620th request for the booklet!
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Thanks for my copy, Bestbird!!! Very informative. So glad you're sharing all your work with us all!
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Surfdreams, I am glad you are finding the Guide informative!
As of today I've sent nearly 650 copies!
I've been wondering whether the title of this post should be changed to something similar to "Request A Free MBC Therapies Guide!" or something similar so that it is more descriptive. Any feedback would be appreciated!
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I just sent you a request.
You have been such a great support to me and so many. Feel blessed to have you on our side. Hope you are doing well.0 -
I too just sent a request. Can't wait to get it.
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All requests to date for the MBC Guide have been fulfilled, and I hope there will be many more to come. The more that patients are aware of their options, the more comfortable and empowered they'll feel when discussing them with their medical teams!
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thank best bird !
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Hi Best Bird,
I live in SLC, also. I would love a copy of your guide. I am going to Huntsman Cancer Hospital, seeing Dr. Saundra Buys for treatment. Have a colonoscopy next week after my latest cat scan showed some abnormalities in my colon.
Thanks,
Judi
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Hi Judi! I'd be happy to send you a copy of the Guide! I just sent you a PM with the instructions pasted.
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Hi
I see you on Stage IV thread all the time. Even though I'm 6 years out, my friend was just diagnosed with Stage IV and I would like to give her your guide.
Thanks,
Linda
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Thank you Best Bird. Your guide was not only helpful to me; it was helpful to my family. You are a great asset to the MBC community!
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Linda, I am sorry to hear about your friend and would be glad to forward her the Guide. Since I'm a layperson, I'm asking that people who want a copy of the Guide agree to the terms at the top of this page and request the document from me directly as follows:
1) Email the request to bestbird@hotmail.com
2) In the Subject Line, type in the words: MBC Document Request Terms Accepted by <the recipient's email address>This also helps me keep track of the number of copies sent, as the more copies sent, the more likely I'll be to find an online "home" for it on a mbc website!
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mikarae, It's great to hear that you and your family found the MBC Guide helpful! Thank you for letting me know.
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Just a quick reminder that I will be out of town with no Internet access for quite a while, so anyone wishing to request my free MBC Guide is welcome to do so up until Nov.7. Otherwise, requests will be filled around Xmas!
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wow! You rock !!!!!!
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Hope you're having a marvelous time :-)
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Thank you, I am going to my email to send my request, I look forward to reading it, thank you so much, it is very hard getting information about MBC.
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