CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Shorfi, hate that watchful waiting stuff.....it is like when will the other shoe drop?
course then again, I read a lot of the new research and so much refers to the over treatment of early stage bc as in just what I had and I went the full drill. wonder what I would do now if it occurred based on my knowledge? my bs said if it ever came back in that boobie (and I did have one scare) that ended up as fat necrosis. My bs said at the time if it came back after we hit it with the kitchen sink it would be mastectomy time. not sure really but did spend time wrapping my mind around that. my boobs are a ddd so it would be very clear if one was gone.
restless night as I kept thinking about my back issue. Should I get the spinal shots or hold off? yesterday a pal asked me to go shopping at IKEA but I said no as I knew that that store would be torture on my back walking and I only just feel better after walking the art galleries last weekend. Thinking that a talk with my PCD next month is in order, she gives me good advise and has known me way long. Saw a man in the gym yesterday who was heading to the pool and had a smile on his face. I have seen him many times with a look of pain on his face and know he has done shots in the past (no help) and that he is now looking at back surgery. But he most have been advised to use the pool as he is new to the pool. He said he had grown to love the pool. Big decisions
OK, I do need to try the cecina and also to send to my newly veggie sister and my vegan niece also.
Sandy, hoping your pal improves, mano but it makes me think of my pal McGee who is currently waiting on her hip surgery. She is the one who just recovered from the lung surgery and wants to play tennis again, hear that they will rehab here in the hospital according to my other pal. Gotta call to check
and I do love the brussel sprouts club! guess I should learn to repurpose my trash
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Thanks everyone for being so understanding of "quieter" CTers and thanks to the regulars for keeping it going and maintaining the fabric.
Shorfi- in your pocket today- hope the annoying lump is unchanged and that they will agree to yank it out- watch and wait is just not worth the stress in my opinion and they'd probably still have a special look at it as long as it's there.
Sula- I saw that Her2 study and thought, shit. My tumor was never tested for anything beyond ER, PR, and HER2, and it's too late now -- The study also didn't mention if the hormone receptors influenced the outcome nor if anyone had tried Perjeta (prob not). Here's hoping this sample is a fluke and everyone who received Herceptin benefits.
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Will someone help me with this................why are all the news stations calling this freak who orchestrated the horror in Paris a "Mastermind".................he is a friggin, asshole, who has the mind of a murderer, and embraces and teaches other assholes how to be killing machines.......using their own bodies to do it..............
Why glorify this freak......what they should show is his body riddled with hundreds of bullet holes, and his entire body spread all over the walls and floors of the place where they caught him.............I am so tired of these ingrates being called.......Head of, and Mastermind, and Leaders...........they are Killers................stop showing their smiling faces, and their horrific messages to the world, and show them for what they deserve.....
Their bodies laying bullet ridden and dead...........Sorry ladies.......this has really gotten to me......
Also....maybe the U.S should stop saying "not in our country".....they have already proven they can do this to "our country".......on 911......and stop showing and telling all the secrets of how we intend to stop them................Just F/N do it.............
'
These freaks have no regard for human life......not even their own......so don't tell me they "can't do it"........I remember JOhn Kennedy when asked "why do you walk into a crowed of people and get so close to them"................his answer............."if they are hell bent on killing me.....and care nothing about themselves they will shoot me from anywhere knowing they too will die in the end because they have no regard for their own life or mine"........
Enough already.........Just do what you have to do to stop this horror, and stop sharing your secrets with the entire world............
Sorry ladies........again......I am tired of the idiocy...........0 -
I'm good...there has been no change. So I have graduated to having my next US in one year. My breast doc said on the report it only measures 5mm and is so tiny, that if it were his wife he would not do a thing. He explained all the trauma that has been done on the breasts this is to be expected. He does not want to do anything. I'm good with that, He did say if it truly bothered me and if it made me crazy, he would do it. It is fat necrosis and he said it could keep happening. He said he appreciated my stress factor, but felt it is nothing to worry about. I trust him.................
Proud...I think IMHO that the spinal shots would probably work for you. Just something to think about. My patches are not doing a thing. I look at it this way, at least I don't have cancer AGAIN, and perhaps I will just deal with being limited in my mobility.
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shorfi, thanks for your opinion on the spine shots, I just spoke to woman who works at my association office and her sister has had success with them so gonna move forward, maybe even call the spine doc today if I get the nerve up.
Question is this something that I could have done and drive home by myself? or do I need to take someone? hate asking folks but maybe I should?
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Hi Ladies.. Just a quick fly bye to say Hi.. We have been looking after Poppy, our 3 year old grand daughter who has had a nasty vomiting wog the last couple of days...
Then yesterday I jointed the breast group and went out on the Dragon Boat.. Have any of you tried it? It is so hard trying to keep the paddle at the right angle, keeping in time with everyone else etc etc.. I felt so unco-ordinated.. which I am. The ladies were lovely though.. I don't know whether to keep going, or not.??
Love to all
Xxoo
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Proud...They always required that I have someone to drive me home. And they will tell you that it will feel worse before you feel better. It takes about 2 weeks before you feel real relief. Hope that helps
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thanks shorfi, good info so when I set up my apt will keep in mind, need to talk to one of my pals, forget who did my driving on the last thing~~
so worse before better, have seen things on facebook like that but well, I need to just try stuff!
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If you try it, Iris, I really hope it helps you sooner rather than later. My pain management doctor wants to give me a shot under my shoulder blade that is supposed to relieve the breast pain I have had since my surgery. I am a little scared, i admit it! I know the shots I had in my arimidex trigger thumb hurt like the mo-fu !! Twice! And that's what I have heard, too, that you feel worse before you feel better. What scared me is the day he told me that is what he would like to try, on the news that night, they had a segment on 'pain shots', where some of the people claimed worse pain ever since they did the shots, and that the FDA is looking into them. So I am leery. And he also wants to give me a shot in the back of my head, for my everyday unceasing headaches. Brought to me by my good friend tamoxifen, I know this, because when they've let me stop for a few weeks, it does take it's time, but goes away.
Ducy, Rage on!! But I have never heard the word mastermind in a good connotation, like, say, "Beppy was the mastermind behind the wonderful picnic"... Mastermind seems like its only used when something truly evil is done. Those people don't care a bit.
Shorfi, i am glad it turned out well for you. I have a so- called area of fat necrosis they are watching, we will see. my next mammo and us, is on dec 8th. Coming right up!
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Oh, yeah, Lucy, I love 'Wog" !! Can a wog be used in any other way? A curious term, but I smiled when I saw it, cause a friend of mine long ago, used to call someone a wog. I still don't know what a wog is.
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well it sounds like a bottle of something stronger than my wine will be needed the night before the shots~~~have never done them, never really thought of them and I am creeped out by the possibility of an allergic reaction although, we did a test a few months ago of the med he wants to use, it was only a skin test but I passed~~
Ducky, I so remember that my mom loved Longwood Gardens and always made a yearly trip there. Now if my back gets better and I can handle the car for a drive, we should attempt a get together
ok tonight is sprouts and chicken, in some way
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You can ask to have twilight sedation and you won't feel a thing.
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shorfi, sounds like good advise, will get my mind in gear to talk to one of my pals tomorrow about a driver so I can figure out when for this thing but not sure about before Christmas or not
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Good day my Crazies!
My friend left a little while ago. We had a nice visit. We went for a walk up in the woods then she made a nice fire while I cooked. She loved it and I did too. Had a nice glass of wine or two (suck it cancer!) and we watched a movie. Good, simple, times.
Raining cats and dogs all day so nobody going anywhere today. But she wasn't out of the house ten minutes before I went to go pet my Brussels stalk. Think there's at least 3 more meals on that thing before it gets repurposed as a personal protection device. So I tried Chiristine's (Gaia) recipe. Plus I added a bit of bacon just to thumb (or should I say middle finger?) whatever at cancer a second time.
Here it is, "Gogo's sweet potato and sprouts"
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hmmmm Jack, do like the way your mind works! I just inhaled (well it was me so I could~~) my evening of BS on the side of my chicken. Only thing is that I used a prepared salsa from Stoneham farms or such that was sundried tomatoes and olives.....hmmm. good but unfortunately the salsa is no longer on the list!
but maybe I can fake it when I run out, sundried tomato pesto and then toss in some olives!
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Tomboy, have you considered having tendon release surgery on the trigger thumb? I had the shots twice (second one was to tide me over so I could do a tour for a couple of weeks before surgery). The lidocaine is a heck of a lot less painful when it’s not mixed with cortisone, and you just get IV Versed or Valium on top of that. I was awake the whole time and didn’t feel a thing. The success rate is better than cataract surgery and just a bit less than tooth extraction!
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Tomboy.....so disgusting........Mastermind means people of extreme intellect..........most of the Mastermind meanings are g;ood..........there are evil, but the greater % are doing good.........
So sad to glorify their evil and give them any recognition at all............but it sells newspapers and makes rati;ngs.........
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Hi Chi. It's not bothering me hardly at all, since I went back on tamoxifen. It was the a.i.s that did it to me. He did say that he would only go up to three shots, maybe four, and then told me we would talk about the release surgery. I am very reluctant, because no matter what I do, I have a pretty severe case of lymphedema on that side, and I don't think I would really consider surgery on that side unless it was an emergency. I had the first shot without anything but the freeze can, it still was an unholy hurt, matched by the one WITH lidocaine and the freeze can. Not fond of those shots. I realize how important your hands are for your work, and am happy for you that it worked out! Me, I muddle through, or wait it out, but I'm not performing in front of people! Art is done behind the scenes, and no one sees my conniption fits and starts! Also, I have been building up the strength in my hands by some of the work I do, it seems to help. I always had really strong hands, i bet you do too.
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Ducky,
You are so right. Mastermind is poorly applied, a real comic book term. Lex Luthor he's not, from what I've read of this guy he couldn't mastermind his way out of a damp paper bag. Ducky if you like turnips I've got a whole mess of them coming up...though nothing is happening with my Brussels sprouts and "something" "someone" has eaten all my peas! Perhaps a possum "mastermind"?
Tom,
So sorry you're having those issues, especially since you're an artist. I'm so sorry I'm not living in LA anymore cause if I were still there I'm sure we could get up to a lot of mischief. Hopefully next time we're down on business...
Jack,
Your fire looks wonderful and I envy all the cats and dogs raining down. Your sprouts look good too. Still waiting for something to happen with mine!
Octo,
Send me a private message here if you feel like it... Maybe grab a cuppa at the Basque?
Right now I'm curled up on the couch in the family room covered in my chemo electric lap robe. I think I'm getting a cold , have a mild sore throat and I have my herceptin tomorrow. The movies they send us for awards voting have been arriving from LA... We have to sign for them personally for security reasons so it becomes a thing of waiting around for some guy to show up with a clipboard.
Waving to Shorfi, Proud, Gaia, Cubbie, Mom, Lucy, Chi, Rainn, Rose, Marie, and of course our founder Slow. Have a peaceful night everyone
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Hi all:
Just sent you a pm, Sula. But don't get sick! you don't need that now! Feel better soon!
More later, it's been a long day and I am about to put dinner on the table. Yay for feeling up to cooking! (not that it is anything exciting: just a little penne in a cream sauce (fuck cancer) with some fresh veggies. It certainly looks pretty...
xox
Octogirl
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You too, Miz Sula! Curl up hard! And I would love to meet you for a coffee when you are in town. You could meet my sweet and gentle man, and see why I stay home a lot! My neighbor gets some of the screeners, and I usually get to see a couple of them, but I haven't seen any yet! I guess she gets them by paying SAG dues.
Ducky, tho, I was watching tv when I found out about it, I jumped up and was screaming at the tv, and my man came running. I guess I was cussing. A lot. and tears of frustration, just awful. It kills me, it just takes seconds of your life to change your life...SO...MUCH...WORSE... when somebody decides for ya
Peace to all, thank you for making me smile or think or feel, throughout the day , I love you for that.
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Well here is one for you ....actrually 2 for you...talk about life changing....
My Grandson in Chicago who is suppose to come home on MOnday to be in his sister's wedding the day after Thanksgiving took a trip to a Target in Wisconsin (where a girl he is seeing lives)...........he was walking through the parking lot headed to the front entrance when he saw a car approaching......he thought......:gee that guy is driving pretty fast and doesn't look like he is going to stop............well he said it, and then saw it....................the guy was not going to stop..........he was headed straight for Patrick.....as he hit Patrick, he jumped up on the ;hood of the car to keep from getting the full impact.......................
He hit the hood, and rolled off onto the asphalt parking lot hitting his head on the ground..........the guy put his car in reverse, and sped out of the parking lot......people rushed to help Patrick, but no ne could get the license number, but they called 911 immediately........cops and an ambulance came and took Pat to the hospital.............he had a bad concusssion, dislocated his shoulder which has had 2 surgeries alrady for a football injury, and his knees were pretty banged up.................thank God the camera's on top of Target got the entire incident along with the license number of the car.......cops found it with the keys in it parked....and called Pat yesterday to tell him they got the guy.........hospital did a CT scan of his head....he could have been killed.......thank heaven's he had the sense to jump on the hood and not fall udner the car......cops said according to the survallence camera he was doing about 25 MPH.....when he hit him.......
Then my son called tonighty to tell me that Phil another grandson(most of you know Phil, well Beppy does)..was driving with his girlfriend to dinner........a young kid ran a stop sign, hit the car on the driver's side door.............his girlfriend was hurt, and Phil got a concussion with a huge knot on his head......and hurt his "shoulder that also had 2 surgeries from a football injury in college"...................
You never know what your going to face when you wake up in the morning........Phew.......like I need this.l............
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This is Patrick...........
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This is Phil........
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OMG, Ducky! So Patrick and Phil are going to be OK? How about Phil's girlfriend? I was just thinking tonight how it's amazing that I never got into an accident in all the years I spent on the road for my previous job. So many careless people out there.
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Crazies
Just wanted to say a gentle good evening to all! Thinking of you and reading everyday, but just feeling 'tongue tied' with regard to posting. I am still firmly planted with all of you here, in the best of ways, just a little 'quieter' for the moment.
hugs to each of you and I'm sure my stories and specific shout outs will resume soon.
Good Night fair ladies
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I could not have said it better than you, Gaia. Thinking of you all constantly but a little overwhelmed with rads and lymphedema treatment. And work. And having to be in Manhattan for large chunks of the day.
Waving back at you Sula--hope you feel better.
Octo, hooray for cooking! Not to mention tasting what you eat.
Proud, hoping you're painfree.
Katy, you get the medal of the week administered by the Brussels Sprouts Federation. Ooh, that looks yummy!
Good night to all!
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Ducky, glad Patrick & Phil will be okay--and hope the a-hole who hit Patrick is heavily insured.
It looks like the end may be near for my friend. Doctors did an assessment; and though her femur needs to be set surgically (they can’t do it externally, alas), they said she probably wouldn’t make it through surgery and even if she did, she’d be intubated indefinitely, possibly permanently. So they’ve got the morphine drip going as strong as possible w/o suppressing her respirations, and will be admitting her to hospice as soon as Saturday morning where she will be getting only palliative care. I will head down to NWM after tomorrow’s rad session and RO appt.--it may be to say goodbye (w/o actually saying it). Her son says she’s incoherent, furious (who wouldn’t be after all she’s been through and facing such a bleak and short future?) and might not even recognize me. Her husband wants to sue, but her son--knowing her usual insistence on doing things herself and ignoring authority--is inclined to believe the nurses’ assertions that she refused to wait for them to help her out of bed to the bathroom. (She wasn’t considered dangerous enough to have been in restraints).
So a few prayers would be gratefully appreciated.
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Oh, Sandy, I'm so sorry. I really hoped they'd find a way to do the surgery. What a tragic ending to this situation.
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Chi, so sorry...........
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