CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
I had my rads around Thanksgivng and remember other folks stressing about if we needed to do it on the Fri after Turkey Day, dimbo here came on it for the rad but I remember another woman absolutely refusing as she planned on a vacation. Wonder how she came out in the end but sort of think all worked out for her, I also remember the center mushing us all up the last week as snow storm was predicted and they wanted to get us all in for treatment before the storm, Course the storm pitered out and ended up as just cold wet rain.
Oh well, now I know I never gave me team any gifts at the end but actually thinking about a gift for my physical therapy team. Not sure what but thinking on it.
Dancing, I am a woose at that and not sure anyone in my family is any good
Back from gym, we had a holiday luncheon today, seems like many dif groups today were doing a luncheon
I saw one of the guys at the gym who has the same back thing as me and last time I saw him he was headed to an orthopedic surgeon to talk back surgery. I was anxious to see him and find out the result. Seems the surgeon talked him into trying physical therapy and he is now hooked on swimming and the surgeon is telling him no surgery for now! wow as most surgeons only want to do the cutting. I like his doc! may need to get his name.
0 -
Proud..........I use to go 9am in the morning......so on my last day I bought my techs in a hoagie tray for lunch, and 2 boxes of donuts (Krisypy Kreme) for breakfast and morning break..............we had a great relationship, and they made each day easy for me........especially my adorable "Mark, with the beautiful blue eyes"...........and when we were done, and I came out from getting dressed.......the entire staff was in the waiting area with horns, hats, clappers, and cheering as I "Rang the Bell"........I cried they cried, and my kids cried.....my kids all took the day off and surprised me by being there.......great memories...I have it on video...........no bad memories thank God
0 -
Hey there Crazies....
Gaia,
I meant to say last night how delicious all your food looks, you even made eye look up recipes form one broth. I've never had it as before all this stuff I was eating a vegan diet but since U've added a small amount of meat and dairy to my diet during chemo maybe I ought to give it a try. Any recipes you particularly recommend???
Ducky,
Omg!! American Bandstand!? Every day whenI would come home from elementary school my mom would be watching that, All the "Big Kids" on the show looked so glamorous and talented. I can't believe I was probably watching you!!!! Wow, no wonder you are a dancer... And still dancing! My mom danced all the way til she died in her 90s...so did my dad. As for dancing use it or lose it I guess and I never had it. Would really love to hear what went on there and how you guys got on the show.
Jack,
I have been making no knead bread for about 6 yrs now. I used to bake replaces s week for a friend who was having treatment for thyroid cancer at UCSF and do I cooked for him for several months since he was already a vegetarian but had to move to a vegan diet since he was not supposed to have any iodine in his food. I have a recipe on my blog but I used a clay baking cloche that Paula Wolfert gave me
The cloche allows one to get that big rise
Since it's baking under a lid.
0 -
Jjust popping on to say Hi.. Gosh we are getting into December and I'm starting to feel "the pressure ".. We are hosting Christmas Day, and will have 20 odd people.. Then Dec 27 th is Hubby's Dads 80 th.. and we will have at least 30 here for that.!!! So I'm trying to buy, think ahead and plan for both occasions.. In the mean time I have quite a bit of baby sitting booked in.. and Hubby's parents are coming for lunch Sunday.. Up until being diagnosed I thrived on organizing these things.. not so much any more.:-(
Love to all x
0 -
Good Morning Beautiful Crazies!!
April, Welcome to our Crazy Town thread.
I'm glad you finally came over!! All Crazy Town residents receive a Crazy Town Kit consisting of a flashlight, magnifying glass, mirror and coconut oil. Please use these items wisely. The pneumatic tube is now being installed in your residence. We have some wonderful chefs here that share their food through the pneumatic tubes. All lovely women here....you will love them all. I bought some kind of food snack for both the infusion nurses and the rad techs. For the life of me, I can't remember what I brought....donuts??? I'm not sure, but I do know it was well appreciated. I do remember bringing Christmas cookies to my BS's office. I had my surgery in Dec and my follow up right before Christmas.
Octo, Oh boy you and I sound so much alike. I have zero patience for waiting. Totally opposite of my DH who has so much patience for everything. His patience can be annoying at times!! haha As you can see from my signature line, I had to wait a long time in between surgery and rads. Almost 12 weeks!! I found another lump after surgery and they had to set up a core biopsy. I was totally freaking out thinking I did chemo for nothing!! I was such a wreck about the timing because the chemo barely had any effect on my HER2 tumor. Talk about CRAZY TOWN. Then I got cleared again for radiation and I found ANOTHER lump. They just did an US on that one and decided not to biopsy. I was totally over the bend by that time. That's right around the time I met Ducky and Tomboy. Add all of that with some really bad things going on at BCO at the time....I really thought I would have a nervous breakdown. I'm not sure what I would have done without Tomboy and Ducky. Soon, like me, you'll be looking back at this time and you'll be so grateful that's it's behind you!! Hang in there sister!!! We will ALL see you through!!! Remember.....SLOW DEEP BREATHS!!! ((((((octo)))))))
Katy, You are quiet. I worry about you when you go quiet. If you're feeling down, please, please lean on your sisters. We all love you. If you're out having fun, just ignore this post to you!!
Same for you Shorfi. You've also been quiet. Are you doing ok???
Lucy, I had a dream about me, my DH, Tomboy and her Boymanfriend coming to Australia to visit you and your DH. I'm sure we didn't fly because I wouldn't have been so relaxed. haha....I remember I was very excited to use all the new words you taught me. I kept hearing an alarm going off and I remember wondering if you had earthquake warnings in Australia. I woke up and it was someone's car alarm going off. I tried to go back to sleep and pick up the dream....didn't happen.
Iris, That was the longest my hair had ever been. I was getting ready to have it cut right before my diagnosis. I thought maybe I was getting too old to keep it that long. My mom used to say that as you get older you should keep it short. haha Contratulations on doing the treadmill!! I'm doing a very happy dance for you!!
'
Rain, 40% done!!! Wooooohooooooo!! Thank you for the kind words.
Eggroll, My DD lives in Irvine and it has changed so much from the days when I used to work there in the 80's. It's a beautiful place to live but way over my budget!! Being the bubble head I am, I forgot to send you a PM. I will go buy the magnets on eBay as soon as I'm finished with this post. I can't wait to get them!!
Sula, Glad you checked in! Thanks for sharing the pictures....you're looking good! It sounds like you had great success. We all knew you would.
I'm glad to hear you set that reporter straight.Ducky, With the lack of weddings in my family, I may just have to crash one of yours!! haha I remember your stories about your hunky rad guy!! haha
Tomboy, HI ツ!!
DH is home today. Not feeling too well. He was feeling a bit punky yesterday (sore throat) and then he was stuck in that traffic nightmare on the 15 fwy. What would normally take him 45 minutes, took him almost 6 hours to get home. It was awful.
Guess I should try and get something done around here. I did a good portion of my Christmas shopping on cyber Monday. Now all the packages are arriving. I would be so happy never to set foot in a store again. I wish my DH and DD felt the same way!! I LOVE online shopping!!
Love and hugs to all!! I'm not sure what happened to our official hugger (M0mmy), so I will give you all a very big group hug!!
M0mmy....hope all is well with you. We miss you!!
0 -
Slow..We posted at the same time!! HaHa.. I'd so love for you and Tomboy and Hubby's to come !! Well.. not flying is no excuse.. You all must jump on a cruise boat and come 😃
0 -
Sul..........maybe I can dance, but HOney......you can cook............hugs.
Yes Slow......LOL......could have been my grandson....will never forget thinking he was just a person to take me to the Rad area.....when he kept coming with me I thought "OH BOY".......this is not looking good........and when he said at the Rad table.....Ok you can take your robe of I near shit and turned and say "Ok honey, if you can handle it so can I"..........LOL.....loved that boy.....and he was such a gentleman......along with 3 other ladies we laughed our way through Rads..........
Lord they just said on TV.....another shooting in Ca.......how horrible........they are saying 3 shooters in Army gear.........many shot........WTH.......San Bernadino saying 20 shot..............they just confirmed 12 dead...............0 -
Beppy- what a good antenna you have. Yes I'm a bit down. Better today than Monday. Yesterday had an MO appt but I guess I got the time wrong so they drew labs and I'm going back tomorrow. While I was waiting I looked at my 3 post chemo labs. My liver enzymes doubled in six weeks after starting Tamoxifen, I'm not sure if that is the cause. I always worry about my liver. Tomorrow I'll know more.
Lucy- that sounds like a lot of fun but a lot of work! We may need to send a few side dishes through the tube. Love the idea if a Crazytown cruise. Wouldn't THAT be something?
Octo- so sorry about the delay. Hope you are hanging in there.
I'm now 2 weeks to my cancerversary and I feel the gloom. My first cataract surgery is on the anniversary of my BMX. The second is Jan 15. I guess I'm coming to the realization that I'm not going to be able to pack cancer up like my Christmas ornaments at the end of 2015 and acquire some selective amnesia.
Speaking of Christmas, I also realized that if I got a tree I wouldn't be able to see it to enjoy it. Even with corrective lenses the 42" tv is blurry at 4 feet. A tree would be a mass of blurry lights. That is, I'd get a couple of days to enjoy it IF I patched the other eye after the first surgery. I am starting to think I'm just going to pass on the whole thing. Sounds like a lot of work for a frustrating return this year. In fact, everything seems like that
0 -
Sula- amazing pics as usual! Paula Wolfert! How special. I've seen those clay cloches referred to in many recipes. I wonder if I gave to travel to Marrakesh to get one!
Ducky- thanks for the heads up. This is just awful.
0 -
God help all the people........pray for them.......the suspects have not been caught they think it could be as many as 3 shooters..............possibly 12 dead..................horrible, just horrible..........
0 -
I'm in So.Cal., so yeah, watching news on the shootings. So sad.
Lots of craziness in the world. Lots of good and bad. We see it on a local level, just looking at health issues that seem so random and so devastating. It's too bad that others have to deal with human-caused devastation, since the other stuff is hard enough.
Supposedly the shooting is at a center that helps developmentally disabled people! ??? I guess if people can get shot at the movies or concert, it can happen anywhere.
0 -
Sula, the other night I saw a special on one of the PBS stations about Pepins 80 birthday celebration.
I kept watching to see if you were in any of the shots~~did I miss you as if you were in it, you bet I will be watching for the next run of that~
0 -
Jackie...........been very blue myself the past 2 days........I am not fond of this time of the year.....I just said that to my daughter...........my husband loved the xmas season........he died 24 years ago, and was diagnosed on xmas day with Pancreatic cancer....lived 2 12/ years.......so bad memories of this time of the year...........
I had xmas music on the other day because you are flooded iwth it, and I had to turn it off...........How do I listen to I"ll Be Home For Christmas"..........when I know he won't be...........would rather sleep through the entire thing........
Take care sweetie........praying for ;you........
0 -
Ducky.. How awful.!! What has happened to.the world.. I hate listening to the news these days :-(
Katy.. Sorry you have been feeling down. It will be so good to have your ops over and done with.. but the timing of them isn't great.
Sula.. Great photos !
April.. Hi.. Yes it seems no where is safe anymore :-(
0 -
Ducky- so sorry you are blue too. I would want to sleep right through December too. I often feel at this time of year that I get "emotionally hijacked". I'll be minding my own business somewhere and some Christmas song will come on and before I really register what's going on, tears are running down my face.
April- welcome and so sorry you are close to what's going on. I was born at Hoag Hospital and your posts have brought back some memories!
0 -
Just warm hugs for everyone dealing with the holiday blues, the mass shooting blues, and whatever else. These few weeks after Thanksgiving can be tough: so much awareness of what the holidays should--or so we tell ourselves--look like, and it's so easy to compare our own situation in a negative way (sez the Jew married to the observant Christian). I have been observing how Crazy Town really is, in the best possible way, Supportive Town. Thank you so much, Beppy, for creating the warm and wonderful space. Without it this BC journey would have been far lonelier.
Randomly... Heading out in the rain to a meeting. Will somebody please tell me why this school board committee I'm on, which has had three meetings, seems to meet ONLY when it is raining heavily?
44% of rads done. 1" of hair. My version of Bridget Jones's Diary--for those who remember that cheesy but delightful book.
0 -
Watching MSNBC right now--the San Berdoo PD can’t say yet whether it’s a terrorist incident or if it was religiously/ideologically motivated regardless of affiliation of the shooters. The building is a mental health tx and counseling facility--who would target THAT?? Now I hear there’s an unrelated shooting in Pasadena. I can’t believe the NRA and their loyal legislators would be against mental patients being allowed to purchase firearms--DS & I are both recovering clinical-depression patients, and I would be perfectly fine with not being able to own a gun because of that.
Sula, that bread looks LUSCIOUS!! Driving me even crazier now that sugar & starch are once again off-limits to me. (legumes ok maybe once a week, so maybe tomorrow night I’ll do daal and saag paneer).
Getting ready to Uber it down to the Loop to see “Beautiful” tonight. DH is driving from work, and we want to minimize parking fees. (Parking down there is costlier than Uber or even regular cab fare). Might catch late dinner at Petterino’s if it’s still open. Still full from the classic French herb & gruyère omelette (with my weekly bacon) I had for brunch.
0 -
Katy, (((((((((((hugs)))))))). You are never alone here in Crazy Town. Your crazies are always here to steer you into the light. Please don't ever hesitate to share with us. Getting those feeling out can be cathartic. I get so much comfort from all of YOU. Holidays can be a difficult time. Sorry to hear about the elevated liver enzymes. We will be in your pocket tomorrow. Give us a squeeze when you need us!! I wish we could pack up cancer like our ornaments. I wish we could throw it from a twelve story building, or better yet, burn the sucker beyond recognition!! Maybe we can all get a Skype call together sometime soon. Something to bring us all together and chase the blues away.
Lucy, That would be so much fun to have a Crazy Town cruise to Australia!!
Ducky, I did see the shooting on TV. It's been on all morning. It took place at the Inland Regional Center which is a state run facility for individuals with developmental disabilities. Truly awful. They are showing a special report now with a black SUV all shot up. Looks like someone in the road has been shot. They aren't sure if it's related but there are cops everywhere.
Big hugs to you too (((((hugs))))). I'm so glad we all have each other through the difficult, lonely times.
Rain, I'm glad you're a part of us here. There wouldn't be a Crazy Town without all of YOU. Each one of you make Crazy Town the supportive place it's become. I'm so grateful for ALL of you! Bridget Jones Diary is/was cheesy...but I loved it!! haha
Sula, I think we cross posted. That bread looks amazing. This is the only place we can gain weight through pictures. haha I see your bread and Katy's bread and it makes me want my OWN bread!!
0 -
Yes, thank goodness for all the comfy food photos! I can feel myself gaining calories just looking! Good bread and dinners, vacations and cruises, friendly and comforting folks... Good stuff!
0 -
I cannot even imagine why anyone would target a regional center... my brother has Down's Syndrome, and we grew up in California, so I am very familiar with what they do.
On the breast cancer side of things, I had a dream that I was in one of those Star Trek shuttles, that type of a craft, with the front all glass and we were hovering/flying over a community, a few hundred feet off the ground, and then it lost power and we nose dived, and I was flattened on the front windshield watching the ground zooming up to meet us. The most amazing part is that I was able to calm myself and I was thinking in that slowness of time that happens when you think you are about to die that I wasn't in any pain and I would not be in any pain, that the end would come quick. Since I am afraid of heights, this calmness was really wonderful, I was so relieved that I wasn't afraid. And then we crashed into a swimming pool and everyone one was completely uninjured. Made me feel like everything is going to be ok, and gave me quite a confidence boost today.
Which was just in time for my radiation "simulation" appointment . . . I now have five small but permanent tattoos, that last one hurt like a sonofagun! Bled a lot, too. No way would I ever get a full tattoo by choice! They also poked and painted on my sides where I am extremely ticklish. At times I kicked and got some terse reminders to hold still. Then they put me on my back and arranged me in what felt like a zigzag position. When I asked them why, they said I wasn't zig zagged, I was perfectly straight. That's my scoliosis I guess, I feel twisted up when they straighten me out! Then they take all these pictures while I'm lying in these compromised ways, and the silliest part was that they had the sound effect turned on so you could hear every shot they snapped. Made me want to call out, "Maybe it's Mabelline!" I'm assured they won't end up on the Internet, only in my file. After they were all done surprising me with all of this, they gave me a "Frequently Asked Questions" sheet that explained after the fact all these things they did. Seems like I should have gotten that first? Now I wait another week or so for radiation to start. Took a neighbor in for her radiation treatment and tomorrow we are going to a nutrition class. I do have an addiction to sugar and my husband loves to bring me treats...
Thanks to everyone for their support of my magnets. I put two envelopes in the mail today and another goes out tomorrow and it just tickled me pink. You're the bestest!0 -
I am deep in the heart of Crazy Town tonight. I noticed what I think is a swollen lymph node under my jaw. it's one of those things where I dont know if it's always been that way, and I just noticed it? I'm trying to remember if it was there before. If I didnt have cancer, I wouldnt even think about it. It could be because I've had a lot of acne problems since stopping the orthotricyclen I've always used for my complexion. I've had a swollen node in this area before with bug bites.
I will catch up with everyone a little later.
0 -
Eggroll: aren't dreams a funny thing now? I still vividly remember mine just before I started rads--on a cruise ship targeted by Somali pirates. No idea where that came from, but our subconscious doesn't come with a road map.
Having an anti-crazy day tomorrow: day trip to Chicago for an opera (The Merry Widow). Then seven days later, cosmetic surgery. Thank dog, mild cosmetic surgery as such things go, since most of my factory-installed equipment is intact. But surgery.
0 -
Cubbie.. Sending ( ( hugs)) . lymph nodes do go up and down.. But I know how something like that sends us straight to Crazy Town :-(
Queen.. Enjoy The Merry Widow ... I love live shows!
0 -
I have been so depressed.! Went to head to the shops and realised my hand-bag was missing.. Hubby and I searched high and low for over an hour.. rang the last shop I went to a couple of days ago.. but it hasn't been handed in there.. So have finally given up hope.. Cancelled my bank and credit cards.. Will wait another couple of days before ordering a new drivers liscence.. just in case in turns up.. I was about to have a nervous breakdown.. But am trying to thing "Whatever " instead.. Whatever, Whatever, Whatever!!!
0 -
Oh Lucy...........sor sorry..........have done that more then one time..........hopefully other then bank and credit cards nothing of sentimental value was in it , or a lot of money......plus I carry Vera Bradley, Coach, Stone Mountain, and just the handbag alone are worth a lot of money.............keep us in the loop as to finding it......
0 -
God Gracious Crazies
This is such a LUSCIOUS thread- food, Music, literature, worldly BEING. Being. What an assemblage of women. In the shower tonight i even had a thought of a virtual 'bachelorette" party. I know a bunch of you ladies have been curious about the Westerly venue. I still LOve but they want to put on the market- so it's crap shoot in confidence to plan a wedding.... So, holding the door open but have another site to visit in two weeks.... so much more to share, but don't want to bore.
Sula taking meat into my own hands, as I started to eat it again, has been very empowering. That said I do believe it's important to be scrupulous in procuring the meat from good sources. MEaning for me I eat meat freely when I know how it's been sourced. If I don't know the source I won't go there. re the broth- the gelatin is the prize. So that does require the more hard core bones like beef knuckles and neck and marrow ( if you are doing beef). Like wise if you are doing chicken, adding feet provide the requisite gelatin content. The gelatin is the prize. generally the proportion of bone to meat to water is: 5lbs: 2lbs: 7 Quarts. add your aromatics, and herbs and simmer for 12-24 plus hours. The meat part gets picked out and used for soups or a stew... Ok that is so general. I will write something better
I'm typing kind of crazy right now because a LOT of energy is coursing through. Feel so much life reading about all of your lives here and know I have a lot of life too. But been feeling sad that once the C hit everyone seems doomed to fear the end.... I don't know what I'd be feeling if I was just done at IIIA which was my original 'stage' would I be having the doom hovering? I don't know. I'm definitely rambling and KNOW I am typing like a crazy person- spitting stuff out.
Ducky I love to dance- can SO relate to your family- my family on both sides dance up a storm everywhere. It's been one of the hardest things the last few months that my hips have been hurting and I haven't done my normal daily dance. Cut to tonight and I put some music on, turned up the volume a bit and started to move.....felt so good. tears flowing to just get connected again to me... then text from my beloved that neighbor complained about volume of music- at 8PM WTF. it TRULY wasn't even that loud. Feel SO F'ing mad- UGH
Sorry ladies this is a messy rant
i am thinking of all of you... just so pissed off right now. Want to scream. We all need room to process this crap through not bottle it up
0 -
Gaia: we love, we live, we eat, we dance...we cry, we hug....we live!
0 -
Thanks QMC I am still fuming
I don't want to bottle up any more. it's funny because Ive been wanting to start to practice with my voice again an now feel slapped.
anyway it's a moment I am screaming here about and thank you all for being here; listening or not
0 -
Gaia, Messy rants are the backbone of Crazy Town. You're safe here. Let it out sweet sister.
0 -
hey there crazies,
Lucy ,
So sorry about your purse. Hope you get it back. I had a wallet taken from my purse eons ago I cancelled everything and then a year later I got a Manila envelope from the PO containing my wallet. It seems the thief took them obey then just dropped the wallet in a mailbox where it was sent to the deadliest terrorist office and then forwarded it to me I suppose when they yearly went through all the stuff dropped in random mailboxes. I don't know how it works over there but that's my story.
Gaia,
Thanks for the bone broth tips. I really only added meat. Into my diet for chemo as I was told to. I eat a tiny amount of some protein every day but sometimes being around the raw stuff kind of makes me not want it. All the meat we do buy is pastured and locally sourced.. A perk of being in Sonoma. I await any other tips you might give me. I got an email from my friend Evelyn ( 10 yrs stage IV Her2+) she's having some stuff zapped which is why we've been missing each other at herceptin. She was in the other day and found out I'd been looking for her.... So she's still out there alive and kicking. Maybe I'll see her next week.
Cubbie,
Oh the lumps and bumps!!! Yes, every time I feel anything strange I always say "is it cancer?" I drive myself nuts....I think we all do. I once had a head/ brain MRI back in the trip neg days because I insisted on this lump I felt near the back of my head. Of course my mo scheduled it and it turned out I was just a bone head. Literally. It was me and the way my head is. Was I embarrassed? No.
Jack,
Hope you're feeling a bit better soon. It's great we all have each other's backs here... And there is always someone around. That is the miracle of social media!! I was wondering if you ever tried one of those SAD lights. My mother used to use one and several bi polar friends of mine use them for winter depression issues. I'm a freak who likes stuff dark and gloomy but most people don't. I'm with Slow, a Skype or a google hangout for CT would be fun. Glad you liked the bread...Paula is a good friend and neighbor of mine here in Sonoma. She's been dealing with Alzheimer's for the last couple of years. She's become a major advocate for herself and other patients and is involved with groups the same way we are here at BCO.
Queen,
Have fun at the opera. I've never seen the Merry Widow but it should be super lush!!!
Chi,
Sounds like a fun evening. I just added the Uber app to my iPhone though I've yet to use it. Many friends of mine Uber all the time for airports and business stuff.. I'm still an Uber virgin. A friend of mine is at the Grand Prix in Abu Dabhi right now ( probably spelled that wrong) anyway he sent me a message last night that he was Uber Choppering to an event. I couldn't believe it but it's true. There are Uber choppers... Where the hell they get these private parties with helicopters God knows!
Rainn,
I know it always seems that meetings happen when the weather sucks. Stay warm and dry if you can! We're supposed to have another storm up here tomorrow so we'll take any rain we can get!
Proud,
The party we were at was in SF but I don't know about any cameras as I usually try to avoid them.
Octo,
How are you? Really enjoyed our visit and if any of you other crazies come rolling through Wine Country give me a holler.
Tom, and Slow,
How are you getting on?
I was doing some recipe testing again tonight and made a castagnaccio which is a Tuscan chestnut flour cake with orange, raisins, pine nuts and rosemary. It's vegan, usually the raisins are soaked in rum or vin santo before putting them in the cake but I don't drink so I used unsweetened dark cherry juice...either way this is usually served with wine or coffee
So..... I will be meandering around tonight poking into places on the site. Trying not to make myself to anxious
0
