CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Chi.. I want to second Kate's " Bon yoyage " 😃
Katy.. How are you??
Slow.. Thinking of you and Hubby 😞
Octo..Doing the happy dance for the stubble :-) I can remember reading once that our tastes change because we get new taste buds every 5 years or so.. and medications and hormones can effect our tastes too
PTS.. Wish I had someone to clean my house too!
Cubby.. Interesting question about the bacon !
Decision.. Chocolate IS the food of the gods.I couldn't agree more :-)
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Cubbie, nope, the pharm near me is open and since I am a regular, they figured out my dumb stuff and got it already. It is singular and I take it at night so would be very unpleasant without it tonight
I started with a cleaning person during my treatment, I only call her about one a month or two and she gets the stuff I seem to miss. Think she feels bad for me as she is now trained as a nurse and I am just a source of a few extra bucks. Have to say with my back issues, she is a life saver
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Hmm....Just read my emails.. and there's one saying online Boxing Day sales start today.!! What a commercial world we live in :-(
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hi crazies,
So many wonderful posts. Thank you for your kind words and thoughts regarding my dog Emma. She has rallied and is hanging on! I have a good friend spending surgery day and night at my house to take care of her. I have been floored by the kindness and generosity of friends leading up to my surgery. I look forward to being able to pay it forward. Now just getting organized and trying to stay busy to keep my mind off of surgery on Wednesday. The week has arrived.
Slow loved the pic re friends. So true!
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Hi Crazies--
So much going on!
Poppy, 4 Xmas trees sounds excellent, even to this cranky, over-radiated Jew. Your house must look amazing.
What else looks amazing? Lucy's DH's cupcakes! I think he's been the subject before--but what a keeper!
Proud, glad for your clean house. Smart idea. So so so very smart.
Cubbie, I know what you mean about being uncomfortable at parties but loving to run them for others. Yet another permutation of Introverts R Us. You know?
NotAgain: you know we will all be with you for your surgery. (Hope it's a big OR.)
Tomboy, good job figuring out what was going on with your friend in PA.
Beppy, hope you and DH are on the mend.
Rose, glad the troll is soon to be gone.
As others have mentioned, chocolate IS a food group. Endorphins. Matter. For what it's worth, my sweet tooth went mostly away during chemo. I craved salt. I could tell the chemo really was exiting my body when I started wanting sweets again. I think it's partly the need to build ourselves up again. I've been craving protein during rads and also did so during chemo. And since sweets--at least on a biological level--promise a quick way to do so, I think the cravings might come from that direction. I am not a medical professional, so take this with a grain of salt (preferably on a bowl of chips with guacamole).
Busy weekend, last night a neighborhood party. I love these yearly parties with people we don't see all that often, especially the ones with kids, who somehow shoot up from year to year. Fun! And many latkes were involved.
Octo, inspired by your minestrone as well as 5 winter squash from the CSA, I made roasted squash soup and no-knead bread. The soup was a huge production involving a roast chicken (last Sunday), stock from the carcass (yesterday), and two hours roasting the squash and assorted other root vegetables and onions for two hours (this morning). Then scooped out the squash flesh (messy) and add to stock along with the other vegetables. Then roasted the seeds with curry powder. Pureed the soup. Serving it with the seeds and greek yogurt.
Also did three loads of laundry. Enough for one day! Plan to spend the evening on the couch. I love not being radiated--perhaps I've mentioned that before?
Love to all crazies, noisy and quiet.
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Dear overadiated Jew! Hahaahahaaa!!! It was SlowDeep who did the amazing detective work, and i think she deserves several of those cupcakes if Lucy is sharing!
Poppy, Ow. Just Ow. I am so sorry about your bottom, but so happy for you for your son. Could it possibly be that since your son vacated his position as a pain in the butt, that ....??? No, I know that his problem was more than that, and I really am happy for you all about that.
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http://www.curetoday.com/community/mike-verano/201...
My dear Crazies- a short article that resonated with me today. Anybody who had chemo will understand this
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Hey, crazies, I have felt like CRAP today. Fourth day off T and third day off antidepressants. The house is always messy but today it looks like a BIG WILD disaster. I am running a low grade fever of 99.2 and I have mild pain in pelvic area. Hope GYN doctor didn't dig too deep during the office biopsy or leave me with an infection in my uterus. Yes, I claim the right to be as obsessive and crazy as everybody here. I made hot chocolate and felt a little better. Then, I started to sweat. I guess it was a hot flash. octo, the fact that I felt better than before after drinking the hot chocolate proves that chocolate is actually medicine! The best thing that happened today is that a fairly famous person wrote and asked for permission to publish on a Web site something I wrote. I have an advanced degree in Creative Writing, but most of my creative work is unpublished and in boxes or lost because I have better things to do than deal with pinhead editors of literary magazines. I am not trying to get tenure. I wrote back, sure, fine, publish it. I have to work on the licensing agreement and it will be very liberal as I would like this literary work circulated widely as long as it is attributed to me and not altered. I have to set up a URL to host the writing. I had a songwriter and singer ask for permission to alter my original material for a song once but that did not sit too well with me. crazies, I have not sought literary fame though I had steller credentials, but I would love to be widely read. My brother saw reference to a book I co-wrote on Twitter in Russian recently. It was a commercial book, no big deal, once sold with an exercise tape produced by a famous, airhead actress. Somebody made money from my writing but that person was the publisher, not me. He admitted he made big bucks from my writing. Life sucks sometimes, but then again, I think the publisher is a pig who took more than his share, and I can look at myself in the mirror and feel that I did not exploit poor starving artists.So, that is my treatise for today. Not all literary editors are pinheads. Most publishers, however, will take a writer's work and then run over the writer with a truck. Publishers are full of it.
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Katy... Beautiful and so true
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Katy, that does resonate, even in the midst of all my whining....I don't think 'why me' as much as I fret endlessly about whether cancer defines me...then I feel better when I think of all of you. Cancer may not define me but it has certainly caused me to go in some interesting directions. 'Interesting': how is that for a euphemism? LOL
however, tonight I took a break from that type of thinking to light the candles for the last night of Hanukkah...With each candle I said a little prayer for my friends and sisters here in CT, and for all of us, to keep us in the light. I am not ordinarily much of one for prayer, but as I said the Hanukkah prayers I sent out one for all of us: I pray for spring to come again to banish winter and that next year will be one for celebration for all of us. Here's to finding the joy.
Xoxoxo
Octogirl
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Beautiful article, Katy. Thanks!!!
Tomboy, thanks for setting me straight!
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katy, thank you for sharing that beautiful article. I see some of CH in my mother's eyes.
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Tomboy, your post made me laugh out loud. I am having my second fuckkity hot flash tonight, and things were feeling sort of hot and awful until I read what you wrote. Poor Poppy, she announced the good news about her son and now she has to cope with a psychoanalytic interpretation of why she got shingles on her backside. Did I get my facts right? Poppy, one of my doctors told me NOT to have the shingles shot. He said it was too new and to let my neighbors suffer the side effects until the shot has proven safe and effective. I am sure it is bewildering to come down no pun intended with shingles during the holiday season. I know there is nothing we can do but console you. Maybe you need some chocolate. I bet octo would bake you some brownies. I think most people who get shingles have it one time if that helps. Just think, you are getting something unpleasant out of the way so you can enjoy your family and your life. I hope you are on the mend soon.
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Rainny, aside from being introverted, I think I also get a bit bored at parties. I like to be doing something, and I like to be involved in whatever is going on. I'm still a pesky little kid at heart.
Lucy, I found an article that says that bacon does release endorphins. Explains so much!
NotAgain, in your pocket for your surgery Wednesday.
Katy, thanks for the link to that article. Interestingly, I've heard a man who had heart surgery express similar thoughts about the effects of his condition on his outlook on life and the way he looks at others around him.
Decision, I would give your GYN a call in the morning if you are still running a low grade fever. The publishing offer sounds interesting, I agree that you should keep it on your terms.
Octo, I'm honored that you said a prayer for us when lighting the candles.
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crazies, it is nearly midnight and I keep having hot flashes. Gasp, I turned the air conditioning lower than 71. I can't sleep. I think I forgot the gabapentin tonight. I have mild discomfort in my pelvic area. That has been going on for hours. I keep thinking may be the GYN doctor dug too deep when he did the office biopsy. Or, maybe I have a blood clot. I guess I am having an anxiety attack. I just took an anti anxiety pill. I wonder if the pelvic stuff is from the Tamoxifen.
I can't sleep. I talked for a while to my mother Anne (Ani) tonight. Sometime last year she got a UTI but we didn't know it. She got paranoid and thought people were pumping music into the house with secret messages for her. She went to the hospital and ended up in the mental ward. Her sister, 83 years old, check.ed her in but kept me in the dark about what was going on. We didn't know it, but the second day Anne was there a case manager filed involuntary commitment papers for my mother. Anne's sister told my brother she was coming to the house to clean out Anne's closet, take all her clothes, her jewelry, and her guitar. My brother and I called the Sheriff who said maybe my aunt was getting power of attorney. My brother and I scrambled and called the lawyer who did the power of attorney paperwork for my mother. My brother had power of attorney given to him by my mother years ago. My aunt, Anne's sister, had told me on the phone that Anne required 24 hour skilled nursing care. She asked me sarcastically if I was a skilled nurse. She told my brother she was going to the bank and take my name off of Anne's bank account. I manage my mother's money with her knowledge of what I am doing. Aunt did not know Anne had to go to the bank with me to get my name off the account. The last straw was when my mother's brother bellow:ed to me on the phone that Anne was never coming home again. My brother and I figured out something was coming down and we started trying to get in touch with the case worker. We never did talk to the case worker who filed those commitment papers. We did however somehow talk with someone who worked in the mental ward who was surprised to find out Anne had children who wanted her to come home. Apparently, the staff was very excited when they heard about us. By the grace of God, the hospital staff contacted my brother and told him about the move to involuntarily commit my mother. We still didn't know that my mother had sepsis from the UTI, was being treated, and was recovering. Aunt and Uncle neglected this critical piece of information. My brother asked if the commitment petition could be dropped. The staff arranged for us to attend the commitment hearing presided over by the probate judge. We showed up, and the hospital doctor backpedaled like crazy. He said Annei would be better off with het children than in a mental hospital. The hospital hid the case worker who mysteriously was not at the hearing. We brought my mother home that day. Aunt and Uncle, Anne's brother and sister, disowned me and my brother. I was glad to be rid of them. Three days later, when my mother complained of back pain, my brother and I took Anne to the ER at a different hospital. The doctor took a few X-rays and told my mother, my brother, and me that the breast cancer had metastasized into her Anne's bones and liver. I called my Aunt and Uncle and told them we would privately handle this development as a family. My mother had a big bloated waist when she was at the mental ward. The doctor gave her a diuretic and told her she was in great health. The bloated waist was acites from her liver trying to deal with the cancer.
Anne does not need 24 hour skilled nursing care. A home health nurse comes by once or twice a week to check on her. The diagnosis of Mets was made last March. After Herceptin and Tamoxifen didn't stop the cancer, the oncologist put Anne on Kadcyla. She has an abdominal scan in a week. We are holding our breath. Anne bounced back quickly from chemo last week. Her eyes are bright. Her vitals are great! We are hoping to have our mother with us for a while longer.
Our state does not commit people for life. Anne would be dead and gone if we had not discovered the secret plan to put my mother away. Motive? I think my mother's brother in law bribed the case worker to file those papers quickly. My mother's sister wanted out of the way to drain her bank account. Without a lawyer, I cannot prove my suspicions. My Aunt tried to turn my brother against me. I figure she and my mother's vicious, evil brother in law are getting old. They planned to turn my brother into a house slave, appropriate money he will get from my mother, get him on disability, and take that money too. Aunt hates me because her hubby has a fixation on my breasts. Uncle hates me because he was a miserable failure, and I had a loving family that helped me to accomplish my goals in life.
It is Christmas and my mother is still alive. We have so much for which to be grateful.
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Good morning...was unable to get MRI on Friday. The wait was 3-4 hours and there was no way I could wait that long. I rescheduled it for Thursday.
Arrangements are still being made for my BIL. His children are just beside themselves. Today, hopefully we will know when he will have his memorial service.
Getting ready for work and will chat later.
Tom...I live in Philly and I'm near Folcroft
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Was able to get my MRI this morning after speaking with the administrator of our department. NO METS!!!! Yay for arthritis and a lot of degenerative changes. The doc that I work for read the scan and said he would discuss with me further...but his exact words were "You are fine"!!!!!!
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Shorfi, celebrate with some good old fudge ice cream tonight!
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Shorfi- so relieved and happy for you! Yay for arthritis! 😍
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Katy...it seems like I can breathe again. I tell ya...this back and leg pain is horrific. But guess what...I can live with it. So happy for the stenosis and arthritis. Had no idea arthritis could be so bad...so bad it makes me cry. But the crazy part of me is happy to have it and not that other "beast".
How are you feeling today Katy? A wee bit better I hope
Proud...I am celebrating with chocolate ice cream with bananas on top...yum yum.
Now if only my husband would answer his phone so I can tell him the good news. I need to cry it out with him.....
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Hooray Shorfi!
I cancelled my tattoos. Should have kept the Luna moth appt in February. My swelling is "mild," according to the LE supervisor, and I shouldn't be aggravating it. I am such a wishy washy person. Wonder if it is related to all the times I read and re-read, Mrs. Wishy Washy stories to the youngsters at school.
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Oh Crazies....I'm so very far behind. I'm so sorry. My DH is home sick today and I'm still fighting yucky too. I was feeling a bit better, but now feeling lousy again.
Octo, According to my spreadsheet you start your rads today??? If so, you know we are ALL in your pocket driving you cray cray!! Squeeze when you need us!!
For Poppy and Octo:
Poppy, Good lucky tomorrow at your MO appointment!!! We will all be in your pocket as well!! Doing the happy dance for you on your mammo results!!!
I apologize again for being so behind. I will read throughout the day and catch up with you all. Please know I think about you all everyday!! You are all so wonderful. Such a wonderful group of caring women we have here in Crazy Town.
Love you all!! -Beppy
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Yay Shorfi and happy dance for sure!!! Who knew arthritis could be such good news!!! Glad you are celebrating with chocolate!
Beppy: rads got postponed until tomorrow....a bit crazy waiting but should all be fine.
HUGS!
Octogirl
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Shorfi!!! I just saw your news. So awesome!! Doing a happy dance for you!!!!
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Hello
Gentle Ladies of Crazy Town, I haven’t written any messages on the board for
quite some time but have dropped in every now and then to see how y’all are doing.Last
we spoke I was waiting on a Liver CT due to elevated liver enzymes (which I
have a history of, prior to BC diagnosis but without any definitive diagnosis
or long term issues that were related to liver); of course was very nervous
about chance of spread to liver and/or any other areas. I had a major plumbing failure at my house
that required full repair of main plumbing line and left
us in a hotel for 7 days/nights, there was a fender bender from October that
required a week without a car for repairs and various other challenges in
October and November that just escalated the anxiety from 0 to 60 in no
time. For the most part I felt that the
test was an over-reaction to mild elevations in liver enzymes given my personal
history but Onc. really only had history since BC diagnosis and PC had history
going back to electronic records. I
however, have history dating back 9 years because I’m OCD like that J. I agreed to take
the CT because the BC diagnosis may have a relation to the uptake in enzymes
and I didn’t want to ignore it either. I
pulled myself together with the best intentions and expecting the best
possible outcome and trying to keep anxiety and fears at bay which you all know
is darn near impossible. Had the CT last
week and got results today: fatty liver – ICK.
I am thrilled that it wasn’t more serious but am angry at myself for not
controlling my diet better. Weight loss
has been elusive since tamoxifen and AI.
For now I am enjoying the good news but will soon be off to research an
eating plan to eliminate bad fats and sugar from my diet. If any of you have any weight loss success
stories I would love to hear them. In
the meantime, I wish you all health and peace and healing and as much enjoyment
of the holiday season as you can get.Pennsygal - I had the same thing; what appeared to be a hard thread left over from stitch removal of port. It was clear but I could see and feel it and it eventually came out on it's own.
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Sorry ladies.......Slow told me I must have fallen off of the Crazytown Merry Go Round......and I did.....I'm back........Phew.....so much has happened..........hugs.........
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ducky, glad to hear from you
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MEG- this guy has lots of YouTube videos on fatty liver and weight loss. I have had a history of elevated liver enzymes too, but mine seem to come mostly from medication that my liver doesn't seem to tolerate. Last year I eliminated all meds one by one while drinking the juice of a lemon every morning. My enzymes went from 5 X high normal to normal. I stopped doing this during the summer and started taking Tamoxifen and they exploded once again..hope this helps
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Good to see you Ducky!
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Shorfi, that's great news. I've never been so excited for someone to have arthritis!
Robin, that's a bummer about that tattoos. Can you do them later after the LE is better?
MEG, I'm glad to hear your CT revealed something that can be addressed with diet.
Ducky, LOL at your milk carton! Good to see you back.
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