CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
Comments
-
Chi- this reminded me of you today- thought you would appreciate since it's still probably fresh in your mind.
0 -
Tomboy and DecisionFreak, as I was falling asleep last night I couldn't remember if I had washed my hair when I took a shower or not! That started me back awake for awhile. Then when I got up this morning, I took another shower and washed it again, or maybe for the first time. We will never know. It is funny isn't it?
But not as funny as my brother running me out to his place again today to take a "sample" to his doctor, which turned out to be used toilet paper the doctor didn't even ask for. After dropping it in the trash can at the clinic, I just started laughing hysterically alone in the elevator . . . I know it was only a minute, but it felt like hours. How do you tell your husband waiting in the car the reason we are late to meet the plumber at our house is because your brother misunderstands his doctor?!
That lady was not developmentally disabled, but she does take medication for bipolar condition I think, and I think she drinks on top of the medicine and that combination is definitely not good. She doesn't understand why the whole building avoids her. We all just do the best we can.
6 of 20 DONE -- 30% -- and after tomorrow I get a long weekend!
0 -
okay, crazies, I filled out paperwork this afternoon and got my mother to sign it allowing our congresswoman's constituent services representative the right to speak with Medicare about the denied medical bed claims.
I wrote a two-page narrative outlining how how the events unfolded. I provided medical claim numbers. I gave the medical equipment supply company a call today and offered them the chance to withdraw fraudulent paperwork that said we called them and requested they come get the bed. We did not call them. They did not return my call, so I threw them under the bus in the report that my Congresswoman will send to the Medicare liaison. I said in the report my brother had no legal standing to sign the paperwork from the medical supply company, that my mother had no guardianship, and that she had not signed away her rights to deal with Medicare claims or to relinquish durable medical equipment. The medical supply company doesn't know know that my Congresswoman has an email from me that predates the seizure of the bed and makes it very clear that we needed and wanted the bed. Thank goodness that I blabbed to the Congresswoman and have a legal document to counter the fraudulent one presented to the family.
I ended with several paragraphs elaborating on how Medicare had violated my mother's patient's rights and pointing out that in rejecting the claim for the medical bed that Medicare had thus endangered the health and safety of an 85 year old woman with end stage breast cancer based on a a technical problem in the doctor's orders. The auditors flagged two words "semi-electric" that provided the basis for Medicare to reject the claim
I was a royal bitch today, ducky! I feel great!
While I was on a roll, I called the oncology group for my mother. I discovered her MO is back on the job on a limited basis. I DEMANDED that my mother be returned to the care of her oncologist. I threatened to blow fire out of my nose and burn up the oncologist who took over my mother's care. I said the oncologist that treats my mother now looks at her paperwork, never speaks to my mother, and walks out of room. I made it clear that I would be very unpleasant if the doctor does not release my mother to original oncologist.
I was a BIG NASTY bitch today. I feel my depression floating away.
0 -
That will teach them Decision Freak!! : )
0 -
DF................Damn I am so proud of you.................what a fantastic job.................come on girlfriend........get on the "BITCH BOAT" and let's take a sail............damn I love people who don't take shit from anyone..................especially ones who thi'nk they are superior to their patients, and all they are is at the top of the "Asshole tree".
0 -
ducky, love the poster. I wish I had a T-shirt with the text and the photo. I would wear it to the meeting with the clinical care coordinator during my pre-op education session the day before my surgery. As you may remember, she asked me at the end of our conversation, "What do you want from us?" I think this witch may be jealous and was trying to discourage me from returning to the clinic just because I am a threat to her. I said, "Nothing. I will be there for my surgery at the end of January." Now, I have to make sure she doesn't get under my skin. I need a plan.
0 -
Hey your doing just fine........you can handle her...............
0 -
Found one tee shirt with the wolves text and graphic. Wish it was long sleeved. Anybody want to do a tee shirt design? "Throw me to the wolves, and I'll return leading the pack."
May be I should do an original theme hellcat tee shirt. Hmmm..I have to come up with the right words.
0 -
My brother came down on me mercilessly for a long time about my bitch tactics.
This morning he said, "I wish I had the money to hire you to work for my PAC. You get things done."
0 -
Wow, DecisionFreak!! I want you in my corner! That was AWESOME~!
0 -
DF- well done today! Proud of you!
(Speaking of proud, where is PTS/Iris?)
DF- check out cafepress. It's really easy to design a custom tee on their site in any type sleeve, collar, color, etc and you could search for a good wolf image online. Put text in front, back, pocket, any font. No minimums. You can have one made only if you wish. Though I was thinking, I might could use some sartorial weaponry like that on a bad day too!
Love the quote! quite good imagery. We are your pack! And many of us short on estrogen, making us extra nasty!
You go girl!!
0 -
Ducky- sorry I didn't realize it was your quote! Why am I not surprised?
YOU GO YOU SHE WOLF!!!! (And that bad ass horse you're riding in on!) baaaahaahaha
0 -
Rainy in Ohio. There goes my excuse I need to take the dog for a walk to get away from my relatives. PRAY for a break in the rain. Just one hour of no rain....pleeeease
0 -
Jack..................LOL..........it's a lot of years of "people's shit"........I had a tough Mother, and I picked it all up from her........she was a bear........she use to call it "the school of hard knocks"........learned from the best...hah
0 -
mustlovepoodles, I spent about 18 years working in the D.C. area. I was for most of that time a Washington Spin Doctor.
I'm in your corner anytime you or other crazies need me. I was a top tier professional writer and p.r. pro. It was sheer will and grit that helped me stick out my time in D.C.
I am always willing to help any crazy free of charge in tweaking or editing an important letter or document. Just send me a PM. I can't work for money.
Ha! Try to intimidate me? I love it! I get energized.
0 -
your a Beast as my Grandson would say......LO
0 -
DecisionFreak -- wow!! I am so amazed and delighted. So often I hear people who have been victimized and they just never get anywhere and I sometimes feel exhausted thinking you can't fight City Hall. But sounds like you doggone did!
Addendum: I don't suppose you could help me get a guardian for my brother? My mom died three years ago and he has psychosis and Down's Syndrome, thinks he's James Bond, IQ right on the border 69. ... Today he had me deliver a wad of used toilet paper to his doctor -- that the doctor didn't ask for. Someone needs to at least go in with him to the doctor, but he doesn't want me there. If I don't get him a public guardian, I will probably end up divorced because my husband has just had it with me putting out the fires every other day. Speaking of which, I guess he pulled the fire alarm in the middle of the night because the smell of the new carpeting he thought was a fire. He sent a threatening letter to the owner of his building and gave his antipsychotics to the woman downstairs. Oh boy!
I've just gone around in circles, no one will take the situation seriously. Kitsap Mental Health thinks his behavior may be "inappropriate" but not dangerous. His doctor yesterday said he couldn't help me. Adult Protective Services won't call me back. The legal clinic at the homeless shelter thinks I should pay the thousands of dollars to get this done myself. Boy I miss my mom.
0 -
eggroll, I give credit to my parents who paid for my undergraduate degree, held my hand through a demanding Master's degree in English, and encouraged me to go for it to start and finish one of the most rigorous Master's of Fine Arts programs in Creative Writing in the U.S. These same parents bankrolled me to get an apartment and start on a career in the Washington, D.C. area. I held my own, but my parents were always there to help me through the dark times. I had a spectacular education that gave me an edge in life. It took 13 years, and I could not have gotten through it without my parents. I was mostly poor during those years, but I was very resourceful.
So, my mother looks like a spoiled little doll these days. My brother and I spoil her as much as possible. She sent me to a private school when I was little. It was run by a strict Prussian woman who ruled the school with an iron fist. Funny that I turned into an artist coming from such a strict childhood. My mother gave me what I needed for my creative imagination to thrive, and it was only a matter of time before people in D.C. recognized that my creative talents were valuable.
Many of you say I am a good daughter. At the end of her life, after she gave me whatever I needed to live my dreams, Anne (Ani) deserves a good daughter. I am not perfect, nobody is, but I have been at my post nearly around the clock with my mother since her mets diagnosis to help her as I have the energy. My brother indulges Anne in her whims, and he is mostly tender and gentle with her.
0 -
So does anyone know if you get to smoke pot at some point for breast cancer?
I am not a smoker. Never had anything stronger than a cigarette when I was 16, then after seeing both my aunt and grandma die from smoking related cancers...swore I would never. Now here's the twist: we just voted down Legalization of Marijuana in Ohio a few weeks ago (they had all kinds of tie ins, both medical and recreational, only allowed to be grown by some big corporations blah blah)...so I vote no on it....they assured us it should be back on the ballot next year. Well, now a month later I am in progress of a nice cancer stage promotion (should know if I go from 1 - by by - all the way to 3 or 4 in two weeks after all my scans are done, I really know how to ring in the new year) I'm wondering what kind of a fool I look like now? I lost 20lbs on chemo last time (hell on 40 yr old skin, the elasticity is just plain gone along with my boobs). I will mind loosing my hair again (though this rat shit brown grey orangish crap that grew back was no reflection of my previous thick blonde locks before) I won't mind fitting into my size 4 and 6 jeans that I do believe I kept. Problem is when you get really low and catch a glimpse of your skinny body bald head I'm thinking a buzz and a snack may come in handy....ah crap and my wig is blonde, I've since gone brownish red so I get to switch back or dye it to continue my subterfuge as a survivor...
0 -
I live in Oregon and personal use is legal now. I can't smoke due to previous serious lung issues, but my MO authorized use of it as a tincture. Very easy to make at home. Cold process instruction videos are on YouTube aplenty.
Tinctures can be blended with different carriers to make a topical application which can relieve pain with no psychoactive effects. If you want it for nausea, other types of pain or sleep/anxiety etc issues, you can put a few drops in a drink like maybe hot chocolate. It's got a strong not so pleasant taste.
The trick is to go slow and be aware that when you smoke, it hits your system almost immediately and wears off pretty fast. Taken internally, either as a tincture or eating, like brownies, it takes much much longer to take effect and lasts much longer.
I like making my own from grass grown organically. Even in medical mj facilities, there are some ingredients, usually preservatives, that I don't want to consume. Above and beyond my desire to avoid pesticides. You have to know somebody who knows somebody. This can take some time for obvious reasons. I hope this info helps
0 -
7: you totally get to do pot for breast cancer. I mean, totally. I didn't need to, thank dog--go figure, I've never done any form of the stuff in my life--but I am so on board with it being a godsend for cancer patients. Appetite enhancement, check. Anxiety relief, check. Nausea alleviation, check.
That said, I'm with Katy in that the different forms affect us in different ways. She's right that smoking's quick in/quick out, while eating's a slower form.
0 -
Oh man, 7- I'm so so sorry for the crap you are dealing with again! As far as smoking dope- everything Katy said. My MO was all for it after I asked about it, but couldn't prescribe it because they get federal funding. I smoked all thru chemo and ingested it too. It saved me from being too sick to function soooooo many times! Worked better than zofran for nausea, and better than ativan for anxiety. Plus...possible anti cancer benifits...
0 -
7of9, you don't need to smoke it to get the benefits. I've found mj to be very beneficial for anxiety (for me, better than Ativan: MO gave me a rx for Ativan and I've used exactly one pill, which I found to be more psychoactive in an unpleasant way than marijuana), and also for helping my appetite during chemo. (I didn't have much nausea during chemo, thanks probably to the very good nausea drugs MO gave me, but those were only for three days post chemo, and I always had a bit of the marijuana on day four. I am sure it helped too).
But as I said, no need to smoke. I just take a tiny bit of a bud (and by tiny I mean a bit about the tenth of the length of my pinkie fingernail (and I have small hands), put it under my tongue, suck on it for a bit, and then chew and swallow. It is enough to help with all of the above, but not enough to really zonk me out (this is high quality stuff). The one time I over did it and got stoned wasn't as much fun as I thought it should be, but it wasn't the end of the world either :-) By the way, I don't bother with medical mj: here in California where it is so widely available and barely illegal, getting a prescription didn't seem worth the trouble. I was gifted from a (trusted) recreational stash, and at the rate I use it, it will probably last me what I hope will be a nice long lifetime. I don't use it often, but there have been a few times when it has really, really helped.
Hugs;
Octogirl
0 -
Here in IL, cancer is one of the diseases for which medical marijuana is legal. The hitch is that one’s doctor must certify that not only does the patient have one of the conditions in question but also that marijuana is superior to other drugs in relieving particular symptoms. MJ has long been used to increase appetite in either patients receiving chemo or who have become cachectic as a result of unchecked mets. In the eyes of many doctots, anti-estrogen drugs' & radiation’s SE’s may not rise to the level of nausea, intractable bone or brain mets pain traditionally associated with the usefulness of MJ. (Especially if a patient on AIs, even if in severe joint or muscle pain, also happens to be overweight or obese, because MJ increases appetite and patients on AIs usually have dramatically impaired metabolism--the combo of slow metabolism and “the munchies” is a guarantee of considerable weight gain, and MOs insist that excessive weight can lead to recurrences, and are reluctant to prescribe anything that will accelerate AI-caused weight gain.
0 -
Boy, am I jealous. I live in a law and order state and we can't take a piss without LE knowing about it. I don't have the stomach to do pot with severe jail sentences where I live. It would help with fibro pain. Smoking it is a risk factor for gum disease too.I had a doc who gave me a prescription for THC, the active ingredient in marijuana years ago. I never filled the script.
I abide by the letter of the law these days. No illegal drugs. I don't stockpile prescription drugs either. Some people have gotten in trouble in this state for stockpiling.
I have some great memories of a special gift for work done decades ago. I am so frigging straight now. Nobody can arrest me for having a wild mind.
0 -
ChiSandy, thanks for the very informative post. I guess I am fortunate that the doctors decided against AI drugs. I have lost 35 pounds with 45 to go. If I took AI drugs, I could join the circus as the fat lady given metabolic impairment on those drugs. No AI drugs in my future.
0 -
I'm taking Femara and losing weight but don't think the two are related. More likely three surgeries in two months.
0 -
Good evening beloved Crazies.....I am tired in the evenings, perhaps from rads, but feeling good otherwise. Tonight I am hanging with my son and hubby and just enjoying a quiet evening.
Trying to stay in the now, and so far, I seem to be doing better than I was in that respect. Every day, a bit more healed. Hoping that feeling lasts. Took a break from cooking and we still ate very well on leftovers from several nights of elaborate family dinners, but I did make a pumpkin pie for DS since that is his favorite.
I think of all of you every day. xoxox to all
Octogirl
0 -
Finished wrapping the presents. Of course I am coming down with a head cold just in time for Christmas after not getting anything all fall. I guess the good news is that I probably won't have to cook Christmas dinner since no one will want me sniffling all over it.
Hope things are going smoothly for the holiday prep for everyone.
7of9, please let us know when you find out your results.
0 -
I’m getting a cold too, Cubbie--this morning my voice was a bit phlegm-dampened and around 5-ish I began feeling a scratchy rawness at the back of my throat, thanks to postnasal drip. I’m hoping that it’s mold allergy from all the rain and wet leaves here in Chicago, but it’s likelier something I caught on my flights (or likelier, standing in those long Immigration. Customs, and TSA lines yesterday). I always catch something after a flight, thanks to all those people in close proximity in an unventilated space (unlike the L, which always has a window at least partly open) for hours at a stretch. On the ship, there were hand sanitizers everywhere (w/UV lights and gel sprays), enforced by crew members, so nobody got norovirus.
0
