CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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...A natural response, like you said, rwiley. It's good you came here to talk about it, and I do hope it helps. Talk therapy is a great thing, especially with ones who understand. I believe your anxiety, like mine, is a "situational" anxiety, instead of a "clinical" one. Pull up a chair and grab a plate, and come talk with us, it will really help.
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Smurf.. Unbelievable..!! 😞 It's so wrong.. the police must of been on their coffee and doughnut break.. and just couldn't be bothered..
DF... Yay.. Great news.!! When do you have the op.?
Slow.. I love your train set !!! I wouldn't be able to put it away with the other decorations though.. It would have to have pride of place all year.!
Katy.. Lifting you up in thought and prayer for great results!! Onwards and upwards girl.. But I know how awful the wait is :-(
Chi.. I have enjoyed everyone of your photos :-)
Ducky.. Love you.. You always say what the rest of us are thinking about things.. Your family are so lucky to have you.
Have to run.. Back later to write to everyone. Been do busy hosting Christmas, then Hubby's Dad's 80th , now off on a 45 minute trip to babysit while my DIL has an ultrasound for a bad UTI
Love to all xx
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Smurfette- Welcome! Somehow I missed you before.
QMC- yes hopefully labs and scan results will all be ready for a big reveal Monday. And a new plan.
Even though I was nervous, getting out if the house with a purpose did me some good, crazy-wise, and I took Jack and we took a short was before the rain started again. For the moment, I am feeling a bit better.
Thanks to all of you for always lifting me up. Especially today. And to Beppy, my text buddy today. It does help!
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Katy: waiting with you now--it's that wait, at various points, that was most crazymaking for me. You'll let us know how things go on Monday?
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Also waiting with you Katy.....hope the weekend is peaceful in the meantime.
HUGS! xoxox
Octogirl
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Katy, hugs coming from the “middle coast." Hoping results will be favorable and that you can ride out the coming week on an even keel!
Was nervous that I hadn't received a shipment confirmation e-mail from the Canadian pharmacy filling my Femara 'scrip, so I called. Turns out the bank issuing my credit card flagged the purchase as fraudulent (because it was online and international) and declined it. So I used an e-check from my other bank account, and hope that doesn't trigger other fraud alerts. Because it's being sourced by Novartis' UK plant, it could take 10-28 days to arrive--so it's a good thing my local indie pharmacy ordered me a month's worth of Teva letrozole just in case, so I can start therapy when I'm supposed to. (It was supposed to get to the drugstore yesterday, but the weather has screwed up all sorts of deliveries). Of course, OptumRx (United’s mail-order domestic pharmacy) is willing to sell it to me immediately--for $2,400 plus express shipping. Uh, no thanks.
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Katy - thinking of you.
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Katy, thinking of you.
Decision, the reduction sounds like a good solution for you.
Ramona, welcome to the Crazies and CrazyTown! I wonder if you are more anxious because you are at the one year anniversay of the completion of your chemotherapy and (close to the anniversary of) your radiation?
Smurfette, that's ridiculous that they won't at least take a report.
Sorry I have not been around more lately, everyone. First I was involved in Christmas events nearly every day, and I have not been doing well since Christmas happened. I have been down in the basement, as Ducky would say. I was actually looking forward to Christmas, but then I woke up Christmas Eve with this head cold, and it messed everything up. I couldn't cook at Christmas (nobody wanted my germs) and we ended up wrapping things up early because I was so tired and some of the family members needed to travel. I feel like I don't have anything to look forward to anymore now that Christmas is over.
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So is IDC still 95% ER+ recurrence still a good thing? Tamoxifin didn't seem to keep it away, my Onc seems to think this is good news. Now we find out if it's anywhere else (scans Thursday) other than nodes in armpit. He's thinking radiation, out with the ovaries to be damn sure I'm in Menopause (sp?) and not this limbo b.s. (I'm 44) and then AI city for me....
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katy, it is your turn for a time of peace and new beginnings. Little Sister, know how many here hold you in their hearts. I genuinely hope that all goes well and that you can move forward with a plan that is safe and comfortable for you.
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7of9, to me it means you have more options available to you. Ooph and AI sounds like the right move. In your pocket for Thursday.
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7, studies have shown that for postmenopausal women with ER+ cancers, AIs work better than Tamoxifen. Apparently, shutting down the estrogen factory is more effective than blocking the tumors’ receptors.
Just took delivery of my last Christmas present: a black leather hooded car coat with down fill and faux-fur hood. Nice and warm--a good bridge between the fall jackets or light “stuffer puffer” porta-coat (the one I packed in my suitcase and whipped out at O’Hare baggage claim to brave the taxi line...the nonexistent taxi line...) and the big shearling coat that I save for blizzards and subzero cold.
Now our travelogue resumes. On to the island of Sardinia, which is the second largest island in Italy but probably the least publicized. It’s also the second largest island in the entire Mediterranean (bigger than Cyprus). Sardinia is closer to Africa (Tunisia) and to the French Riviera than it is to the Italian mainland. At various times it was controlled by Rome, Carthage, the Byzantine empire, Pisa, and Aragon/Catalunya. It even has its own language--not merely a dialect of Italian. (Italian is still the official language, though). We’re going to its capital, Cagliari.
This is the back side of Cagliari’s main landmark, the Elephant Tower. It dates back to the 13th century--first as a fortress and later as a prison:
Gate to the entrance of the Historical Quarter of Cagliari:
Passageway to the Elephant Tower:
View from hilltop piazza, Cagliari. Old Town looks out over the new city, to the Gulf of Cagliari (also called the Bay of Angels):
How’d you like a pied a terre in this building?
Municipal building, Cagliari:
Detail of the balcony. The four flags are, left to right, Sardinia, Italy, the E.U. and Cagliari.
Looking out to the mountain called Selle di Diavolo (“Devil’s Saddle”):
In Italy, Christmas trees are relatively rare. The most common Christmas decoration is the “Natale,” or creche. You saw an elaborate one earlier in Naples. This one goes to the other extreme, to better represent the barebones manger. The figures are galvanized sheet metal. (Off to the right, the blonde in the black jacket is my doppelganger among the passengers):
Looking up to the campanile, facade of Cathedral of St. Anne (weird camera angles due to blazing morning sun):
Byzantine-infulenced mosaic over entrance:
Apse, looking toward the altar:
A closer view:
Paintings on ceiling:
Marble carving over one of the side chapel:
Tour of the side chapels:
We’re down in the crypts now:
Those crypts were starting to creep me out. Here’s another creche. Note the gifts, lower right. Which one’s the myrrh?:
Detail, behind altar:
Time to go back outside.....tomorrow. (Using up way too much bandwidth here). Buona sera!
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Ciambelle...doughnuts? I don't remember that in the gospels.
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I am hungry now. Junk food will kill me. Junk food will kill me. I have lost 36 pounds. I have 41 pounds left to lose. Maybe the breast reduction surgery will lift 5 to 10 pounds off my chest. I am a 40DD. Does anyone have a clue about how much breast tissue by weight will get thrown into the incinerator on January 26? I'm taking bets. Winner will receive a big gift package, all my old large bras!
I heard tonight that the breast surgeon that came up with the idea of breast reduction surgery spoke with my surgeon today. These two surgeons know and respect each other. My surgeon is totally on board with the breast reduction surgery. I am thrilled to my toes.Did I say that this surgery may reduce or maybe eliminate my chronic back and neck pain and improve my functionality?
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Decision Freak you are so excited you make me smile. This is obviously the best decision for you! Hope it goes well
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Just a tiny bit excited, yes. It does sound like the perfect decision, though no idea how much, by weight, the surgeon will actually take.
(...now I'm kinda curious about my reduction...
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Thank you ChiSandy, for momentarily satisfying the traveller in me before I have to hunker down and get a bit of work done today....(now that the Grandkids are gone...how could I miss them so much already?)
Hugs to all;
Octogirl
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Naw, I am not excited. I am thrilled down to the tips of my toes. My surgeon will essentially come close to doing a double mastectomy with nipple sparing but we will leave enough tissue for a pair of pretty little breasts. That is what I want, and that is plenty. The mammograms will be able to pick up invasive breast cancer if it does occur much more easily than now. My comfort level is high. The radiation idea has distressed me from the start.
My mantra is demand your doctors tell you all the treatment options. If they won't, then ask anyone who you can find for help.
Do not sleep walk through treatment. The surgeon that came up with this brilliant idea is the best known breast surgeon in America. I will make good with her one day and have already offered to do some pro bono writing and editing work. I have to send her a real letter or a card of thanks.
I have come to the conclusion that "Help!"is a far stronger word than I thought. If you are getting attacked on the street or in your home, though, yell "Fire." People are more likely to come to your rescue.
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Finally some sun!!! This made me smile.
Take that!
Mom, she swatted me!
Oh never mind. Let's go to the beach!
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katy, sweet moments. Please keep us in loop.
ChiSandy, what an incredible group of photos. Maybe one day after my surgery, I whiill have the strength to travel to Italy.
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Amish hats in the radiation waiting room. I saw an late middle age Amish lady last week with her husband; she must have been back again today for simulation or imaging for planning. I can't imagine going through BC without access to information - which I'm assuming is limited in her case. I've been wondering about how women in local Amish communities get mammograms, check ups, etc.
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Hi, ladies -
I have my first post-treatment mammo and US tomorrow. My anxiety is through the roof right now. Would appreciate any prayers and positive thoughts you could send my way!
Thanks and Happy New Year!
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ReadytoRock: my prayers are yours. Of course.
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Ready.......prayers to you...............are you "new" to us.........your name is not familiar.......if you are welcome, so glad you stopped by...........
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I will be praying for you tonight, and I will keep you in my thoughts. Please tell us how it goes.
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duckyb1 - I'm new to this thread - and don't post much, but I visit the discussion boards daily.
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Ready- welcome and you will have lots of positive psychic energy on board with you tomorrow. Hugs and peace to you tonight.
At the beach:
and a still. It was so peaceful
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Love the beach shot, Katy! So rejuvenating. heading to the ocean myself tomorrow afternoon (Monterey)....just a quick weekend trip, but it will be special because my dive buddies, my son and GF, and one of my sisters will be there....
Today was rad#11 of 16. Hard to believe only five left. Today went fine. Yesterday I had a bit of an anxiety attack while on the table, but it didn't repeat itself today..no idea what that was all about: I was about half way through and thought 'something doesn't feel right'. Managed to refrain from jumping off the table in the middle though...
Will be a busy, fun few days but will try and check in, and will keep you all in my thoughts!
xoxo
Octogirl
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DO NOT SLEEP WALK THROUGH TREATMENT!!!! YES YES and a SIDE of YES DF. and yay for breast reduction as an outcome for you. Does seem as though it will cover several bases. I'm glad for you.
Just starting to sift through the mass of posts I have either missed or skimmed through.
Thinking of each of you as I read.
Seeing an RO for a consult tomorrow. Had another brief talk with MO last night. I know it sounds odd and probably a professionally unsound thing to do, but he blurted out that he wanted me to know that he did not feel or worry that the pain I am experiencing is related to progression. He just simply said it to me.
Now I'm deciding if I wait for him to get the certificate to get me a MMJ card or if I go to this gyno I know who is already set up for evaluating people.
My parents, who split up 25 years ago, but are like tom and jerry, came in for a visit today. They crack me up. I hate them 'seeing me' in this way. Their wild, vivacious, supple and strong and able bodied girl, somewhat fractured at the moment. It's humbling. and I'm angry. And got on with it. we had a nice lunch and then walked a bit and then came back to my place and I 'put them to work' lol. They love it and after a glass or so of wine I was fine to be the the 'princess'. I know it sounds weird , but that's my weird right now. I wish I took a video of them trying to figure out my vacuum cleaner and then mothership on the step stool replacing my shower liner while Dad was deep cleaning the dryer. Yes this happened. and yup this is all shit that I would never bat an eye at doing and this is just how far down I feel. Yuck. But I will prevail. I know it. Sorry to ramble.
New Years eve..... what do you all have planned?
I'm going to skim back and say a more informed hello.
hugs to all of you
xox
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(((🐙))) 💗🐙
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