CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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I so wish I lived close enough to go for lunch with you all.. :-(
Penny.. I had my gallbladder out.. key hole surgery.. In hindsight I think I'd had gallstones for a long time.. Best thing I ever did.! I don't know why we even have a gall-bladder.. it just causes trouble :-( Try not to worry.. ( Hugs )
Sandy...yep.. There definitely should be a limit.. . I think one cancer is MORE than enough.!! 😱
Charles.. Glad to see you found us herei in Crazy Town :-)
Twinnie..I'm.coming with you on this trip.!! Save my spot in the back seat..!! Have a wonderful time :-)
Love to all..
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Beppy have a WONDERFUL trip!! I am beyond excited for you. Sandy, wow, glad they caught it early. Pennysgal, sorry you need more surgery! I will be in your pocket. Another crazy work day and dashing home to meet a new home care nurse for my boy. (I should say young man, he is 18 this month!!)
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well, I have been a lurker for awhile, and I haven't found a thread I felt comfortable posting on until this one! 😂 I was in crazy town before my diagnosis...so nothing new for me. I totally thought my finger nail was going to fall off and was turning green..i know that happens with taxol...totally forgot I let my 10 y/o daughter try a new Polish color on it. 😮 Oops. Not a major issue, but stil freaked me out a little
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Molly, hope the visit with the new home nurse went well. Is Wyatt feeling better? ((((hugs))) Glad you got to hang with the SoCal girls. They really are the best.
Hugs to you Pennsygal as well!
So good to see you, Cubbie...
Thanks all for the on-going good thoughts...my sister's recovery is pretty much a case of two steps forward, one steps back...likely to be a long haul, but it appears she will get all well, and today was a two steps forward day.....heading back over there for the weekend to spend more time hanging out with her...
Finally last but never least: BON VOYAGE Slow!!! Have a WONDERFUL TRIP!!!
Octogirl
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Have a wonderful trip Slow!
hugs,
Di
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kwil- congratulations on your first post and WELCOME to Crazytown! Glad you came out of the shadows to join us!
Pennsy- ugh. Another surgery. I had my gallbladder out about a year before this dx. Like the others say, it's not the worst sx out there, but piled on top of the chit sandwich already on your plate, it can be overwhelming. Hugs to you. And pCking an overnight pocket bag for next Friday.
Octo-so glad to hear your sis is on a positive trajectory. It's so great you are able to spend so much time with her. I'm sure it's helping both of you. Hugs to you too.
And in just a few hours, BON VOYAGE BEPPY!!! Yay!!!! Looking forward to your updates, impressions, and happy memories you will be making!
🙋💁🙋🙋🙋💁🙋to all crazies out there, quiet ones, recovering ones, sad ones, anybody in the tree house or the cellar. 💗🙏🏻💗
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Welcome Kiwi,
Let's sit down and have a spot of tea
-Truthfully I don't know what TEA means as far as population. But that is probably not what I meant!!! LOL
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Damn it...typed a long post and lost it.
*sigh* figures
I tend to ramble anyway, so I guess it was for the best.
It's doctor visit time and I see MO monday...I have felt a new lump under my left arm and I'm worrying. Yes worrying...as usual...wory, worry, worry. I also have this extra nipple there that wasn't removed in my MX and I'm worrying over that now too. It has breast tissue for sure because it would become engorged while breastfeeding.
Why didn't BS remove this?? I honestly didn't even think about it during the surgery process, but should't she have seen it?
Anyway, this shit just never ends. Some days are getting easier and better though, so that is one thing.
((Hugs))
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tang, in your pocket for your MO visit--hope the armpit lump is just from a cold or low-grade infection somewhere (heck, I used to get enlarged axillary and submaxillary nodes when I had a zit or was getting my period).
I constantly lose long posts--either when the website hangs or my browser quite (and I forget to copy what I’d written to a sticky note just in case); or my cat Happy insists on climbing onto my chest as I try to type, either causing me to hit the Delete key inadvertently, or more often he steps on the trackpad--which highlights everything, and whatever key I hit next makes the highlighted stuff disappear. Most annoying is when the discussion board software sloooooows down, and each...character...and...keystroke...appears...one...per...second, and edits-on-the-fly either insert entire sentences where they make no sense or erase entire phrases. This happens on both my computer and my iPad!
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Welcome to Crazy Town, Kwil and Tang.
Kwil, Your story made me chuckle. I think we all can relate!
Tang, Nice to see you. This is the only thread I try to keep up on anymore. I hate it when the computer eats my post! I hate waiting for anything... let alone MO appointments.
Slow, Wishing you a wonderful travel adventure!
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Have a wonderful trip, Beppy!
Hi to all and welcome to those who're new. Just back from MO's office, Monday's PET scan was clear, so I'm free to go back to obsessing about random twinges with no basis in reality. (Looking at you, thumbs!) PET: sounds so cute and cuddly. Not.
Waving at everyone while drinking tea on a beautiful spring day....
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Hey guys!!
You know, I wonder if should ask for PET, I never had one after tx. I had one shortly after dx though...hmmm.
Glad your PET was clear though
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Happy Dance for you Rain!!!
Octogirl
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rainny, woot woot!! Tanga, why not ask for a PET scan. It must be better than worrying. Welcome kwil. I love the nail story!!
Proud mom day. My oldest graduated from college today cum laude with a BS Electrical Engineering. It's been a long road so I am thrilled.
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Hooray for clear scans!!!
Had SO much fun playing at Gordy’s improv club--full house, attentive and responsive audience. And the actors were a hoot (I deliberately fed them songs they could richly mine for sketch ideas). Weather held up too. Hadn’t eaten since breakfast, but didn’t want to cheat on my diet (everyone was going out for pizza & burgers). So I Uber-ed it home and put together a tapas platter with a little sherry and Rioja. My parotid glands are only beginning to calm down. (I keep forgetting that they don’t take kindly to alcohol or even acidic juices on a somewhat empty stomach).
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Well, I went and did it: finished booking our Italy trip for next month, all except for museum tickets and transit passes (we decided not to eat anywhere that would require reservations--trying to keep it authentically local): int'l flights (Premium Economy), flights bet/ Rome & Pisa (regular Economy--for only an hour it wasn't worth paying nearly twice as much, especially with the same free baggage allowance); rental car from Pisa (the only automatic available with A/C--a must for Italy in July--and room for our bags was a Fiat 500L--and we were able to apply Hertz Rewards points); and our stays at the Hilton Airport Rome (got a 30% HHonors discount on the first leg and applied HHonors points to our last two nights). We really like that hotel, because we can walk there from the terminal, we get to stay on the Exec. floor with free breakfasts and all-day drink access, and it has a free hourly shuttle that takes us to and picks us up from the bus stop at the base of Capitoline Hill across from the Jewish Ghetto.
Of course, I'm whistling in the dark here, because a week from this Tues. I have my followup mammo and appt. with the BS' NP. But if we wait any longer, we'd have ended up with just the villa condo in Tuscany with no way to get there.
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ChiSandy: you will travel to the villa in Italy. And what's more, you will produce a more verbose travelogue than Our Beppy.
Let it be a challenge to both of you ladies.
Because you will live. We will all live to the extent that it is granted us. And we will love all that.
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I had my dance recital Fri and Say night. I wanted to do ballet but it ended up being more modern dance. Oh well...it was fun anyway. I haven't danced on stage since I was 7 years old.
Crossing that off my bucket list
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Congrats, Bekah! I can only commit attempted dancing.
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Well here I am in Crazy Town. Diagnosed Thursday night, met with breast surgeon on Friday to discuss what to expect going forward. MRI slated for Monday afternoon and she's pushing for insurance approval on PET as well before we hit the oncologist. Fear and panic on defcon5. I've been told in a private FB group for bc peeps that I should be able to get an Ativan at MRI- and if I do, I'm thinking it's a safe bet it will be the most calm I've been since the diagnostic mammo/ultrasound where the radiologist came in to tell me it was highly suspicious for malignancy just a week ago or so - I can't even pinpoint the day. Everything has been a surreal blur since then.
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The refrain "Jokers to the left of me . . ." is running around in my head.
My 58-year-old neighbor thinks she is in high school or something. So she is on a lot of back pain medicine. She went to Arizona for some special surgery. Told they couldn't do it. I just knew there would be hell to pay when she got back. BEFORE she even got on the plane home, she sent a flaming text to my husband. . . but you need a little background.
We have renters far behind on their rent. Her boyfriend is a tree guy and offered to do some treework in exchange for some of the rent they owed. I figured, heck yeah, get something out of them instead of nothing. So we've had these trees in front of our house we've been talking about topping or whatever for 11 years... it's blocking our beautiful water view of Case Inlet. Over the years, I know we've mentioned this many times to the neighbors how nice it will be to do something about the trees. Earlier this year, the bossy neighbor was basically ordering my husband to get the ivy off the trees because she went to a home show and learned it is invasive. Then a Madrona fell down and she demanded that get picked up right away. She's told us to pull up volunteer tree seedlings that might block her view... on and on, she's just the most difficult person you can imagine. SO, the tree guy comes out and she happens to be out of town still for the surgery trip that didn't work out. HER bulkhead goes across our property by about 15 feet. So the tree is behind their bulkhead but in front of our house. Her daughter takes a picture of the tree down and texts it to her mom in Arizona...
OMG "How dare you cut that tree down while I am out of town. That was the only tree we had for shade." On and on and on, she threated to call the county, told us we can't walk on her property anymore to get on our beach (never mind she has to walk on OUR property to get to HER beach... and she's screwed stuff into our beach and used it like her own as well)... she never picks up the phone... now they are home and she's sent me another flaming message. "It will be a cold day in hell before we trim back our Walnut tree like you've been complaining all the time." WTH? I have literally said and done absolutely nothing to deserve the abuse...
I was so distraught this morning, but a good sermon at church really helped me let things go. Ironically I see she is illegally selling clams out of her house again, one of the other neighbors turned her in for that before. So she's a piece of work... someday it will be funny. Funny because she assumes we were doing this behind her back, that she would tell us to take the ivy off the tree but then when we cut it down she tries to say it might be her tree... whatever. So far our other neighbor is letting us walk down his property to get to our beach, as we have been doing for 11 years... we always say thank you. The timing could be better as this new medicine I'm on exemstaine...oh man it does make the hot flashes and the moodiness go crazy!
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Pepper43, you can do this! Be careful with the Ativan... but it does help get those emotions under control. Take yourself out for something fun if you can... Distract yourself from the helpless feeling. I see you already have some of the difficult news, so one thing I will say, please make sure you have the very best team possible, not just people you like or people who are convenient. Take good care of you!
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I agree with eggroll, docs are easy to give avian and stuff, only take what you can handle
I chose to do a massage, facial, mani type stuff to chill out
Of course I did not have the,ct folks then
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eggroll, get a copy of your deed and survey. The survey will tell you on whose property the tree lies (if wholly on yours, you have the right to cut it back or down to your heart’s content, including any branches that may extend over the property line; any part of it that encroaches over the property line is your neighbor’s responsibility if she wants any of it cut back--some but not all jurisdictions allow reimbursement or sharing of the trimming costs). If the tree is on her property but encroaches over the property line, you have the right to cut it back to the property line (and again, some ordinances may allow you to demand full or half reimbursement). If the trunk & roots straddle the line, time to call a lawyer and perhaps order a re-survey. You have no obligation to remove any other vegetation that lies wholly within your property, invasive or not. (If, like ivy, kudzu, violets or lily-of-the-valley, any of it crops up on your neighbor’s side it’s her prerogative to dig that part of it up and get rid of it at her expense--unless there’s a municipal ordinance specific to preventing spread of invasive flora). As to the deed, it will tell you who--if either of you--has an easement across the other’s property to access the beach.
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Wow eggroll! What a nut case! Sounds like she spends waaay to much time under her walnut tree! I agree with Sandy, read your deed and make everything legal. If it were me (forgive me Lord) but I'd turn her in again for illegally selling clams! There's only so much "turning the other cheek" that I can handle with some people!
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I have a weird question all - after so many reconstructions and revisions, I don't have, much breast left. Is there any other way to see things other than a mammogram? I really don't want these sore babies smashed!
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Pepper43: welcome to CrazyTown indeed! Yes, the early days of diagnosis/setting up treatment plan(s) are the absolute worst, with followup tests being a close second. A real close second. Take what tranquilizers and other drugs you need, when you need them, though I'd second the suggestion to come up with a long term plan for dealing with stress to augment/complement any medical assistance. What might that be? I don't rightly know, as I don't know you yet (though I hope to do so!) Where do you live? What do you like to do? What social assistance do you have?
Eggroll: What ChiSandy said. Well, what most everybody else said too.
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for stress, i do massage, facials and mani pedis
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Great video!
Iris, I get manis every two weeks and mani-pedis every four. I find the pedis stressful because I have horrible, congenital ingrown toenails and it hurts like a MF to get the barbs dug out and trimmed. (Tried the stuff-cotton-under-and-let-the-nail grow-out-over treatment, with the nail trimmed straight across. but the nail bed on the side grows in curled. Even had the surgery to trim the sides of nail bed, which despite lidocaine--the shots were as painful as the injections into my areola--was incredibly painful....and the beds grew back curled). I have to take a Norco before each pedi unless I'm driving myself there. The mani part's not too bad, except for arguing with the manicurist (who owns the salon) that she absolutely cannot cut anything on my right hand--“don't blame me if your gels lift," she warns. But they lift on the left hand too, despite trimming cuticles. I've taught her to massage my right and and forearm strictly upward toward my armpit. And there's always a cup of hot ginger-peach green tea awaiting me (and a dish of cookies or candies I have to ignore). I pay an arm and a leg, but can you imagine having to explain LE to a shopping mall nail mill tech who barely speaks English and whom you probably won’t get the next time?
Can start getting facials again now that the biopsy scar on my temple is healing. But massages--even LE ones--still have to wait till the back-biopsy sutures are out and the derm gives the okay to stretch the underlying muscles. This having to corral someone every day to properly change the bandage (and a Tegaderm at over a buck per) is getting pretty old. I have to catch Bob late at night before he gets too sleepy--and internists aren't exactly great at first aid, since they have nurses for that. He couldn't get the Tegaderm to completely cover the pad last night after my shower, and part of the pad is exposed to air, so I have to march over to the Immediate Care Center to get their nurse to do it right (it's BYO Tegaderm) so I can shower and wash my hair tonight. Thursday cannot come too soon--hope my derm doesn't still make me wear a bandage that needs changing daily.
This intermittent trigger thumb is driving me nuts. Had to cancel a hand-surgeon appt. last Thurs. because there was no way I could make it down to Oak Lawn in time...and he works only Tues. & Thurs. (which are absolutely full for me, what with voice lessons and other doctor & dental appts.). The orthopod my LE doc recommended still isn't returning my calls. And now I'm getting another charming AI side effect--occasional sudden sharp pangs in my ankles when I bear weight that make me think I've sprained them---it's all I can do not to panic and fall.
At least I'm losing weight.
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