CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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my grandson was in Waterford....and my grandaughter-in-law....literally spent a fortune......cheaper there, but she is a crystal freak...so she killed it.....that is what I give to them every xmas....waterford......and then apologize to my grandson since its not really a guy thing....but he says it is......caue it makes his wife happy..LO
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Very nice!!!
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Honest, I have never had a desire to travel out of the country......my grandkids love it.
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arancini, limoncello...yep, you all are talking my language! Yes, Cubbie and QMC and Sandy and all, I also want to go there to eat! Think of the great dinner we could have together!
Mommy, I hear you about the chemo and hair worry. Losing my hair was the worst part of chemo for me, especially if you like where it is now. Still in your pocket! Can hubby go with you tomorrow to ask questions if it all starts to feel like too much? (and regardless, we are of course in your pocket). xox.
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well i love arnencini and lemoncello, heavenly
Well treatment #2 is done, tired of course. I tried to find out how many rounds i will,have but the docs answer not good. My reg onco is out so this was a sub. He basically said i would be doing chemo forever!
But my pal,who went with me said more than liikely the frequncy would change, sure hoping on that as no hair forever is creepy, do not have a well shaped head
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Wish he could Octo, but he's gotta work. His new boss is a pill and a half, so he doesn't want to rock the boat about taking too much time off right now. About the hair, I am trying to get it to grow back to my waistline where it was in high school. I really loved it at that length.
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M0mmy, good luck with your appointment today.... we'll all be in your pocket so make sure it's big enough! 😍🙏
Italy? Count me in!
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In your pocket, M0mmy! And in yours, too, 7of 9!
I have my MO appointment today, following up on my ultrasound from the other week. We'll see if he concurs with my surgeon.
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Pockets are big enough and if I need more room, you all can jump in my purs
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THANKS pocket patrolers and sniper commandos....you helped. Clear neck and Chest CAT scan!!! This is 18 mmonths out after axillary recurrence 10/14 nodes. Party in Cleveland town this weekend.
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Woot! That is fantastic news, 7of9. Definitely party time!
My MO appointment went well. He says I have some fat necrosis, which answered a question I've wondered about - is it possible to get fat necrosis with a mastectomy if you don't have reconstruction? He said that anytime you cut through tissue, it can happen.
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great news today
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Woot woot, 7of9!! Mommy, are you getting your biopsy results today or do you know if it is still ER negative? Radiation might be an option. Italy sound great and I love the movie Under the Tuscan Sun!
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Love the pictures!
Cubbie, Who knew we could be so happy to have dead fat?!
7of9, Fantastic news!
Mommy, (((Hug))) I'm right handed and my cancer was on the same side. I did okay with surgery and rads, too. I hope you get answers tomorrow. Maybe record the appointment on your phone so you don't forget anything? Go in with a written list of questions? I'll be in your pocket.
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Cubbie, hooray for fat necrosis! Yeah, I just said that lol.
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Well I got a bit od optimistic news. MO wants me to have a PET Scan to see if the growth is localized or spreading. If it is localized I may be doing just radiation. Might be having to do chemo for a few weeks but with the Herceptin and Perjeta. They might even take the chemo option out of it and keep the targeted therapy. Bad news is they want to put the port back in because of my being a hard stick.
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Bummer about being re-ported, M0mmy—crossing fingers that the growth is localized and you can skip the chemo, just get the targeted stuff.
Yay for clear scans, 7! Woo-hoo for fat necrosis, Cubbie!
I too am a rightie and had my cancer in the right breast.
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Now it's down to waiting for insurance to approve all the pre-treatment testing and then get the testing scheduled and done before we move on to the next phase which is the treatments.
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Anyone find it hard to move into celebration mode when you do get good news? (Oh boy, I don't have cancer anymore...or at least its too tiny and or not where they are looking anyhow! Whoopie) Oh boy, no chemo now means hair for Christmas. I just came down off 2 attivan and, Zometa drugs, and a Vicodin...went and worked in the yard for 5 hours past dark moving rocks and big shrubs I've wanted to move for 3 years....what the hell...is the matter with me? Oh yea, I'll be here anther few years or so - so on with some projects. Will ride it while it lasts I guess....this disease makes me dumb sometimes.
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Mommy: sending you some of my NED vibes that you don't need chemo. But yeah, somehow "We think you're improving, but we want to do further testing." isn't precisely the thing to send us into a happy dance.....
7of9: yay for productive sublimation? I got an A in accounting (we'll see about the computer courses), you clear honking-huge rocks out of your garden, but it's the same damn rabbit hole. And yes: I can't bring myself to celebrate wholly either. Hair for Christmas won't wash. Getting out of a pap smear and colonoscopy testing because I'd trigger straight off the table and run screaming down the hallway in my stark naked nothing at all if the doctor even touched me won't wash either.
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QMC, yay for the A! (Effin’ A)! I’ve been sublimating about having to sit here, fulminating and catastrophizing over my anemia until I can get a camera shoved down my gullet Aug. 3 (pleeeease have them knock me out first!) to find out what’s bleeding, where it is and what to do about it. It’s the first time I’m hoping a test actually shows something, because if it comes out negative there could be darker and more worrisome places for my already errant mind to wander.
Ativan, huh? My shrink has me take Xanax instead because of its shorter half-life. But I think I wouldn’t mind putting up with a little morning benzo hangover…
Champagne is helping right now—Bob got a part-time gig as a primary-care doc for a prepaid-medical-benefits union agency on the Near West Side (near Restaurant Row). Good money, short hours, closer to home. And he can once again make his office overhead without forgoing his monthly draw (and his partner her bonus—she’s taking extra ER call).
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Everyone agreed I was doing spectacular and then this happened. Hopefully it is short lived and over relatively soon.
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well yesterday was recovery day after chemo on wed. So today is a better day. Seems the full gym now knows about my new cancer shit. Was sort of trying to keep it quiet but not working. I got call from a gym pal last night but when she tried to talk to me, i sort of broke down in tears. I had not taken the Xanax or the antidepressant the docs had given me so now i sort of learned my lesson. Feeling better now but took meds. May try to call back my friend.
Rainy day, did some errands to drug store but no other plans
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7of9, I totally feel the same way you do. I just find it hard to relax in any way.
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As if I am not stressed enough, my mom is starting her garbage again, thinking she is a cancer know-it-all! She is listening too much to a neighbor that had the same cancer telling her that my doctors don't know what they are doing and that what they did for hers, they need to do for mine! Plus she is starting with the crap of "Get a Second Opinion" which translates to "Your doctors are incompetent and you need to see my doctors up here so I can poke my nose into your care". She doesn't believe me that if I go out of network, I pay for most of it out of pocket, not going to do that.
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Mommy, that 'you need a second opinion' stuff is so aggravating! No one gets to tell me what to do with my body. Not even hubby, even though he does have the job of listening if I need to bounce options off of him.
Shortly after I was diagnosed a relative who lives in the big City three hours to the west of me (on a good traffic day) starting telling me that docs in my rural area were not to be trusted and I should come to the City for treatment. I felt like responding by saying that sure, I would, if he would be willing to come pick me up and drive me there and back again and pay for the hotel and other expenses if/when I needed to spend the night....that might have shut him up, but I bit my tongue and eventually he stopped saying it when I didn't respond. Hope your Mom will do the same. Oh, and I call bs to those folks who say that it is just how some people show they care: I think it is actually a way for them to control their own anxiety that it could happen to them. After all, we all know Cancer is contagious, right?
7of9: I know what you mean. I just try to stay busy and forget it for a while, but easier said than done. And Queen, I've been trying to figure out how to get out of the colonoscopy my doc keeps insisting I need to do. Thanks for the idea! I am not above a bit of drama know and then...(just kidding. well, not really...)
Octogirl
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The only one that gets any input into my care besides me or my doctors is my hubby. He likes my doctors and trusts their knowledge, as they have been treating me since the start of this. He's not willing to change anything since it may do me more harm than good. Plus he's the only one I authorize the doctors to give any information to. If I am not able to let my family know what is going on with me, he does it. My stepdad will ask questions so he can understand what is going on, but he never tries to be pushy about my care. My other family members say trust the doctors, they are the experts
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Just popping in to say Hi ..
Mommy ..and rightly so ..all medical decisions are totally up to you and hubby to make ..
Iris ..of course your feeling overwhelmed..I'm sure your gym friend fully understands ..
7of9 ..yep ..this stinky disease certainly does my head in ...my tests are mid August ..and I'm already stressing ..especially seeing I had to have a biopsy after my last mammogram last year ...
Octo ..don't worry too much about the colonoscopy ..even though drinking that STUFF beforehand is hideous 😵 At the hospital I have it done at they bring me in a plate of sandwiches , a youghurt , a chocolate bar and a glass of juice into the recovery room afterwards ..it's sort of like going out to lunch !!! .HaHa ..just wish they'd swap the juice for a wine 😃
Hugs to all xx
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Okay, I'm just here to complain. I'm trying to plan and make reservations for our upcoming vacation but my DH hasn't been available for a solid week. He's been working (even at night), or working on Boy Scout stuff. I'm getting so frustrated. Grrrrr! Tomorrow night he has a work appt. Wednesday he's in San Diego.... to look at a Corvette he's thinking of getting. He leaves for summer camp with the boy scouts this weekend.... so I won't see him before I leave with the other two boys on our trip. Normally, I would just plan away, but chemo brain has left me confused. I'm know for not always making sense now, so I want him to look things over. Primarily to check and make sure I'm not making the wrong reservations. We're traveling all over Utah, into Idaho, Wyoming, Colorado, and Arizona before returning home. I want to make sure I'm allowing enough driving and sightseeing time between the reservations I'm making.
There! I feel so much better venting here than to my DH!
We both thank you!
Sending Love!
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I hear you, Poppy. Bob & I have a 3-day weekend and we wanna get the hell outta Dodge (as different from Chicago as practical) before his colleague (the guy who does his interventional procedures and who covers for Bob when he’s away) goes to Europe for three weeks. We have decided on Toronto, flying Porter Air out of Midway into Billy Bishop airport, because there’s not enough time to drive. For the past three nights I’ve tried to pin him down on booking flights and the hotel (any Hilton property in Toronto)—we will live out of carryons, take public transit and not rent a car. (We’d drive to Midway & park Fri. morning and return early Mon. morning, with Bob going to work and me taking CTA home).
I wish he could take enough time off for a good cross-country driving trip (he’s never seen the Rockies), but we’d both rather take that European cruise (Barcelona-Stockholm) next spring and he can only take off one major block of time every year or two.
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