CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

1420421423425426533

Comments

  • Molly50
    Molly50 Member Posts: 3,008
    edited August 2017

    Octo, I am frustrated for you!!! Grrr... I hate incompetence. I am still feeling really lousy. I wonder if it is the exemestane. I saw the NP at the ENT office. He had a hearing test done, checked my ears thoroughly and had me show him my balance issues. He said my ear drum looks really normal, my hearing is perfect and the only thing he could find was my ear drums were very dry with barely any wax. He gave me a rx for ear drops to use for 3 days, has me using sudafed for a week and Afrin for 4 days to see if my Eustachian tubes are giving me problems. He also sent off a referral for an MRI. If all comes back normal then he wants to send me to vestibular PT. He said is SOUNDS like it might be vestibular problems. To eliminate the meds I am calling MO to inform him I am taking a break from exemestane. I can barely walk without walking into walls, tripping up stairs etc.

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2017

    Molly, I hope you start to feel better soon! I wouldn't be surprised if it does turn out to be the exemestane: seems like docs just don't want to admit the serious QOL issues with AIs....

    Well, payroll finally got back to me after hubby called HR, said they had fixed the problem way back when, blamed the insurance company, then insurance company says it is fixed, but I pointed out that my birthdate is still wrong on portal when we go in. Insurance company then says it fixed it a second time, but still not right in portal. However, this am it appears to be correct. Yay! We will see what happens when knee doc resubmits paperwork...sigh.

    It is hot outside and I am having a sort of lazy day...

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    octowell it all sounds good, sure hope all is well

    Well today ,was a chemo day. I have been going to a new as in less than a yearbranch of sloan kettering, like it but they are always running behind. Nurse today said thanks for your patience. Turns out they are running 400% over the estimates of numbers of patients. They are trying to staff up quickly but it sure shows the need in my area. I have spoken to many folks who transfered from nyc and the north jersey location after this opened up.

    Good news is she is scheduling a scan in next couple weeks to see how this med is doing.

    You,know i will be nervous that day


  • coffeelatte
    coffeelatte Member Posts: 109
    edited August 2017

    In your pocket Iris. You got this!

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2017

    in your pocket for the scan, Iris!!!

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    Hope you’ll be wearing the pants with the big pockets, Iris!

    Molly, sounds like it could be a form of Meniere’s, but PT, hydration and a low-sodium diet can help.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    chemo well and actualy thinking of hitting the gym

    Well it will be a pet scan , gonna have a busy week as it is the 13th......also fu appt wth mo on 15th to hear results, i also have a visit to my primary doc on the 12th, yikes too much

    Yup, need pants with deep pockets

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2017

    (((Iris)))) I hope you do get a chance to do something nice for yourself like hitting the gym!

    I can relate to the issue of too many appointments, and I think that PTSD must be rearing its ugly head for me...I am feeling increasingly anxious and little things set me off. Yesterday I got a letter from ortho doc with a list of all the appointments and tests needed before the knee replacement, and dates/schedule for everything....I feel like my reaction should have been 'oh good: we are underway' but instead I couldn't get to sleep, worrying that the pre-op tests might turn up some OTHER problem...Plus I have been having back spasms off and on, plus my knee pain, and am not feeling very chipper. I really need to get this knee replacement done as QOL is not good when I can't walk and am in pain...I feel like maybe I waited too long, but that damned bc got in the way....

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    back from short visit to gym and had chance to see some of my weekend pals. I feel lucky, my chemo is only an hour but a pal at gym is getting preped for a stem cell transplant, his Chemo yesterday was 10 hours! Yikes, but he felt good enough to hit the gym.??...........clearly i do have some wackie pals




    .

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2017

    image ewest great grandchildren.genevieve 3 months...and Kieraan 3 weeks planning how to get in trouble.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    well the 3 week ld has already dumped a sock!

  • JAN69
    JAN69 Member Posts: 731
    edited August 2017

    Ducky, Absolutely beautiful babies!

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2017

    Octo: my PTSD sends your PTSD its deepest sympathies and support. Let me know if I need to send out for support from the (military) veterans at my community college.

    DuckyB: moar bebe pictures....they're definitely plotting mischief.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    Beside myself with worry. Gordy hasn't been home since early Friday evening. Stayed up till almost 5 am. Last I heard from him was a FB post and a text late this afternoon saying he was hanging out in Oak Park. But here it is past 4:30am and his bed still hasn't been slept in, he's not texting me back and his phone goes straight to voicemail. His battery is probably dead, so I can't get in touch with him. I don't have names or contacts for his friends from improv, so I have no idea whom to call or whose FB or Twitter feeds to check in case they've tagged him. His last Tweet was five days ago. I know he's a grown man, but he lives with us and he'll always be my baby. No idea what to do, and neither does Bob.

  • Molly50
    Molly50 Member Posts: 3,008
    edited August 2017

    ((((Sandy)))) I will pray for Gordy right now. Hugs. My 32 year old baby lives with me. I would be the same way.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    Still no sign--his phone is surely dead by now. But no suspicious activity on his debit cards...but if he's not even spending money I'm even more worried.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    oh sandy, i can only imagine how worried you are, keep cool and positive that he will e in touch soon

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2017

    Sandy: fretting along with you and the rest of CrazyTown.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    He left his inhalers and meds home too.

  • Molly50
    Molly50 Member Posts: 3,008
    edited August 2017

    ((((Sandy))))

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    He finally texted back that he has his inhalers and is fine. Thank heavens

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    well good that he is fine. Nervous mom but hope you can relax a bit now

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    When I was his age, I'd already been married 12 years and living 800 miles from my folks. I didn't phone home every day, but my Mom knew how to reach me (even in the pre-cellphone days, via landline & answering machine). It's the inability to reach him that drove me nuts. We bought him his first cell when he was 15 and stayed out all night at a party that turned out to be in Naperbrook, 50 miles away--when he called to ask us to pick him up at Union Station because all he had left was change for the phone call (not even CTA fare). I was mad as hell at him, then dragged him to Best Buy. "Let me get this straight," he said. "I broke the rules and you're punishing me by buying me a phone? Cool!"

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2017

    Sandy ..thank goodness Gordy has contacted you ..!!! of course you worried ..we all worry over things like that ..

    Ducky ..gorgeous babies !!! HaHa ..Yes they are planning what naughty things they will get up to in a year's time once they're both mobile !!😉

    Iris ..HaHa ..yes the babys lost a sock 😉..very observant ..obviously it doesn't matter what country babies are from , they always loose a sock :-)

    Octo ..oh ..I totally understand ..last year when I had my hysterectomy I was freaking out ..even though I was only having it because of prolapse I, was POSITVE they would find something in the lead up work , or in pathology afterwards !! I was fine , and you will be too ..this crappy BC plays with our minds , and my mind was never right even before it 😱

    Molly ..hope you feel better soon ..I'm always thinking of you and your family ..

    Hugs to all xx

    Edited for spelling mistakes ..I'm sure there's more didn't find though :-)

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2017

    Sandy: phew. Just the text is a relief, I'm sure.

    Octo: what's up with you? holding pattern over the weekend?

  • Molly50
    Molly50 Member Posts: 3,008
    edited August 2017

    Sandy, so happy to hear you heard from Gordy. I have my adult kids trained to text me. We never stop worrying. Duckyb, you have the most beautiful babies in your family! The dizziness is worse. It's driving me crazy but I have to live my life so I just don't stop. I am afraid of falling though. Hugs everyone. Hi Jan! Lucy, how's DGS? Here is some food porn. I am learning to bake from scratch.

    imageimagetop one is banana walnut cake. The other one is vanilla poppy seed cake with vanilla ganache.

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2017

    Not a banana fan, Molly, but oh, that vanilla cake! Pure food porn. Good on ya!

    Gordy got home about 10:30 tonight—carrying his messenger bag--and admitted he'd spent the weekend with…his new girlfriend! (High fives all around—halle-freakin’-lu-ya). They’ve been dating a few weeks, but he hadn't told us because he didn’t want to jinx it. And he didn’t want me to start dreaming of weddings and grandkids. She lives in the neighborhood—but they visited Oak Park because they both love Prairie architecture and Hemingway (visited both the Frank Lloyd Wright and Hemingway museums).

    Only downside is that she’s from Houston and understandably worried sick about her relatives—some of whom she can’t reach.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2017

    Glad you heard form your son Sandy....yes they will always be our babies.they hurt ....we hurt.....

    Molly those cakes look good...I'm not. banana fan either, but damn I'ld give it a try....LOL...hope Wyatt is ok...hugs

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2017

    sandy, huge sigh of relief, hmmmm, so he thinks if he told you about new girl you would start planning the wedding? You must have some rep!

    Well back from some gym time so relax!

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2017

    Iris ..HaHa ..too funny ☺