CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Happy anniversary and Congratulations on getting through your colonoscopy, Di. I don't look forward to repeating that procedure. I was sick the entire day from the anesthesia. Wyatt's in status again. I am so discouraged. DGS had a good first day of school.
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Happy Anniversary!!!
Well no treatment for two weeks. Oncologist took me off the Taxol because of all the trouble I had with it. Will only be doing Hercptin and Perjeta now and it's every 3 weeks for a year.
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Molly, prayers that Wyatt’s seizures abate. (I assume that by “in status” you meant status epilepticus).
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I put axillary recurrence in search and here I am. I do recognize a couple of names. Short story is LE end of April on a flight en route to Nepal. Led my san song trek. Once home saw (all booked appts pre trip) Physio, RMT, MO, PS. Had signs of nerve damage along with LE but seems it was a red herring. Had capsulectomies and clean-ups from Dec. redo of reconstructions as seemed not to be working. MRI ordered along with LE doctor. Ultrasound ordered pre MRI and showed nothing. Loss of hand strength along with worsening tingling, burning and numbness right hand along with intense pain from scapula through axilla to hand. 3 weeks ago under forearm swollen and numb. MRI brachial plexus July 31 showed enhancing tissue. Chest CT August 2 showed lump. Ultrasound guided core biopsy today and probable axillary recurrence.
Waiting for results which I should get Monday or Tuesday. Less crazy town now biopsy done!
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Marianne ..Welcome to Crazy Town..Glad the biopsy is over , and hoping for good results for you !
Cubbie ..glad you made it through your tests !!
Iris ..thinking of you !
Ducky ..how's the new grand-baby going ?
Lori ..your DGS sounds very cute ..and excited !!
Octo ..sorry you're having such pain getting around. .I feel guilty ..making you go on that hike on that goat track while you were here ! I hope it didn't make things worse ..Bring on November , and your operation ..you'll be a new woman after that ..no stopping you ...Haha ..there's no stopping you now even 😃
Molly ..your DGS is just gorgeous !!! What a handsome little fellow he is ..I think he'd make a perfect husband for one of my three 5 year old grandaughters 😃. Thinking of you , and our lovely Wyatt ..and hope he is feeling better .
Di ..Happy Anniversary ...and glad the colonoscopy is over !!!!
Mommy ..two weeks off treatment sounds great ..enjoy your time .
Rainny ...it's feels strange when our kids first fly the coup ...but really nothing changes ..and you feel just as close ..especially these days , with it being so easy to send a text whenever you feel like making contact ...
Sandy ..yep ..well worth having a colonoscopy to get some diamond earrings !😃
Well ..a big week for me ..had my blood work and scans on Tuesday ..and saw the doctor today , and he said everything was good ..Yay ..I might be able to sleep tonight now !.He also said we can change my visits to yearly now I'm at the 3 year mark ( unless I want to see him of course )
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I plan on it.
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(((Lucy))) that's good news! I hope you see some improvement from DGS. Oh I would love my DGS to meet your little beauties! M0mmy, I hope you feel better. Sandy, yes non convulsive status epilepticus. He has Lennox Gastau Syndrome. It's a horrible, rare seizure disorder.
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yay for good results Lucy!!!! and believe me, hiking in Australia was good for me...it is just the knees that are horrible. Can't wait to get new ones!
Enjoying time in Boston with my son and his fiancee,helping to plan their wedding next fall. Hubby has never been here before so we spent much of yesterday sightseeing. Going to a family event to meet some of my son's new in laws today, and to Fenway Park to see a Red Sox game tonight, if the rain that has been threatening for two days holds off. Using my cane to help me get around...having fun!
Hugs to all!
Octogirl
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My mom passed away yesterday. More than a decade of suffering from Alzheimers Disease. It is still hard to lose her even though mentally she's been gone a long time.
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Oh Molly - I'm so very sorry for your loss. Thinking of you and your family
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Molly ..so sorry to hear about your Mum ..sending love and hugs ...
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(((Molly))). May your mom’s memory be for a blessing. I remember when my mom called to tell me my dad had passed—he had been in so deep a depression that all his docs except his last shrink thought it was Alzheimer’s, and to me it felt as if the dad I knew had died more than a decade earlier.
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Molly, so sorry to hear. It is never easy, even when a parent had problems for a long time.
Hugs coming your way.
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Molly, so sorry to hear this.
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molly, the loss of a parent is especially hard, my thoughts and prayers
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Molly,
I am so sorry for your loss....sending you hugs!
In this time of losing you Mom, is to remember the good time.....before you "lost her" to her disease.
Di
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Molly, I am so sorry to hear of the loss of your mom. I am going through the same agonies with my dad. Alzheimer's disease is brutal for us and for them. Heartbreaking. Holding you in my thoughts.
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Molly, deepest sympathies on your loss. One truly knows the meaning of being an adult when your parents are gone. Keeping you in thoughts & prayers.
Di2012 - enjoy your Alaska cruise! Was lucky to travel to a conference in Anchorage & stay on to see a number of sights. Wonderful experience! (What a reward after colonoscopy.)
Everyone else - hello, good wishes, healing thoughts.
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We will be boarding the Island Princess on Wednesday afternoon, for 7 days.
Here is the address for the webcam: https://www.princess.com/bridgecams/
(click on Island Princess)
I am hoping the weather will be better than it is now!
Di......the frequent cruiser to Alaska.....love, love, love it, no matter the weather
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Molly, I'm so, so sorry to hear about your Mom. What a beautiful picture of the two of you. I hope her passing was gentle, and echoing Sandy, may her memory be a blessing.
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Molly, I am so sorry for your loss of your Mom.
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Oh Molly, I know how hard it is to lose your mom. I lost mine this year too. Remember all the good times and take a moment - Imagine her sitting in a chair next to you. And just talk to her. That helped me. Lots of tears ahead during the talk but I find, I feel a bit better afterward. Sending you cyber hugs:
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Molly sending you and your family prayers of love, light and strength. My deepest condolences on the passing of your mom😢💕
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So there I was getting ready for bedtime around midnight, bringing my plate & glass back into the kitchen, and suddenly my feet flew out from under me—landing me squarely on my ample (but nonetheless inadequately cushioned) rump. WTF? I know I hadn’t spilled anything on the wooden dining room floor, but it was as if I had skidded and slipped on grease. Then I smelled it….kitty vomit! All over my PJ shorts and my thighs. “Oh, you fell on the cat puke,” Bob said matter-of-factly. Amazingly, I had held on to the stemmed crystal glass which didn’t break. I put it carefully on the dining room table and painfully scooted my butt over to a chair to help myself up, with a boost from Bob. After taking the day’s second shower, I am sitting on an ice pack, took a couple of Aleve, and my left foot is twingeing (as are my wrist and even armpit on down my left side). Oh, goody. I had to blow off Monday’s training session because my back was locking up on me, and now this. I have an 11:30 session in the morning, but I texted my trainer to advise him I might have to cancel this one as well. Keep your fingers crossed for me that I can get up & out—might end up walking across from the gym to Physicians’ Immediate Care (which is getting to be a home away from home lately) to have my tailbone checked out.
Talk about busting my butt for my pets...
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oh sandy, those kitty piles can be wella tad on the messy at times, i do remember little piles, hope you feel better. Gee what did we do before the urgent care places!
Well was thinking about going to gym but while i was typing, my vision suddenly got wierd. Not comfie driving but it has passed. Never had that before, sort of like an occular migraine which i have had in past.
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Woke up this morning with a really sore butt, but Bob said not to skip training—I should let my trainer evaluate my ROM and work around it. He also said no need for an X-ray, since if my coccyx were fractured I’d have been in such pain last night that I’d have called an ambulance, and if there’d been a spinal cord injury (there are no disks in the coccyx) I’d have been unable to move or even control my bladder.
The trainer said it was only a bruise, and we worked the surrounding structures. My wrist is sore, so he advised wearing a splint, especially during sleep; and he said to get a donut-shaped cushion. I got one made of memory foam, but it’s pretty hard with too small a hole, so I’ll get an inflatable one or a kids’ swim toy on end-of-season clearance. He also said to sit as little as possible—either stand & walk or lie on my side. And the only other time he had available for this week was…tomorrow afternoon. Oh, joy. At least I’ll keep up the exercise. (Did 20 min. on the treadmill today—can’t use the bikes or rowers till my butt stops aching).
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Thank you all for the support! I really appreciate it. I spent Tuesday morning cleaning out her dresser and closet. We donated most of her clothing.I am back to work today. Sandy, I hope your tailbone is feeling better today.
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argghhh....!!! What started out as a very pleasant day just turned sour and I am pissed! As most of you all know, I retired the end of June. When I retired, I switched to my husband's health plan: he works for the same employer I did, and had the same coverage I did, and cost to add me to his plan is minimal, so there you go...nice and easy, right? Payroll said it was all handled, the additional amount was deducted from his most recent paycheck, I got the new insurance card, everything is fine...
NOT. First hint was that the insurance turned down my mammogram. Since that happened right after the transition I figured it was transition mistake, and asked them to resubmit. Still said I wasn't covered. Hubby talked to insurance company and turns out that the issue was that when my old employer submitted the paperwork for the switch to the insurance company, they typed in my birth date wrong. They said I was born in 1921...you know, 96 years old!!! (with a 61 year old hubby still working. Lucky me :-))
Insurance company acknowledges that it is obviously a mistake, but that since they got the paperwork with wrong birth date from employer, employer needs to send in paperwork to fix it, verifying the correct birth date. Ok, fair enough, hubby asked employer to fix it almost three weeks ago...they said they would, we got a (second) new set of insurance cards in mail, so I assumed it was fixed.
But no. today the group doing the pre-op stuff for my knee replacement surgery called and said I wasn't covered...talked to billing, Billing eventually verified that the problem was indeed that birth date is still wrong in insurance records. They can find me through husbands group and id, but birth date doesn't match their records. She assured me that appointment in early September for pre-op EKG is fine: but that if it isn't fixed by then their records will still show as uninsured and I would need to pay up front!
So, hubby has been trying to reach payroll, who made the original mistake, to fix. But of course they have no phone numbers listed on their website, and they don't answer their emails. I suggested he call the head of HR, who we both know slightly, and tell him that if I have to make any more calls to get an obvious clerical error fixed, I will also be calling a lawyer!
Mind you, this is not some small employer with only one or two people doing payroll. I worked and hubby works for the second largest employer in the State of California.
None of us should have to deal with this type of stress.
Thank you for letting me rant.
Octogirl
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octo, that sounds like the pits, guess big organizations have lots of dif folks doing dumb clerical input stuff with lots of chances for errors, hope you can get it resolved sound
Chemo day tomorrow
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Holy Chit!!!!!
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