CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.
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Hope this series of infusions works for you without side effects, Iris. Molly, Lucy--still praying for you and the little (and not so little) ones.
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sandy, thanks for your thoughts. Felt wooppee the day of infusion which was wed but today friday. Well i feel great. I hit the gym this morn for what is currently a healthy work out. Interesting that yesterday I had a call from hospital checking on me. Interesting as the caller ID said msk data center and they were checking how I had reacted to my new med. Seems this med has only been used for about 3 years at sloan.. I have not found anyone on line who is on this med as yet
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Molly, I have been praying for Wyatt and you. Just want to send you all cyberhugs today.
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So Happy ..my grandson is finally going home from hospital today 🤗...he will still be on oral antibiotics and have to go back for follow up chest x-rays and scans ..but such a relief to see him going home ..
Iris ..so good to hear all is going well with your infusions..
(( Molly )) love and prayers.
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lucy, yeah looks like i will be hitting up pals for drives to chemo, next is next Friday, not sure when next but hoping by then i might be ok driving myself
Still seems wierd that this med is only about 3 years old, taxol has been used for over 20 years, then again, this med does not cause hair loss or so i think
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Lucy, glad that your grandson is finally on the mend. Iris, could it be that this new med is not a systemic cytotoxic chemo but a targeted immunotherapy drug? If the latter, no hair loss. If another stronger experimental anti-estrogen drug, probably the same side effects as AIs, Ibrance & Verzenio.
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sandy, actually i do.not know, i am getting some questions ready for my next treatment, confess I am trusting of my team. You know a lot more than me about meds I think
Ok, gonna hit the gym for a bit, later all
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GmaFoley! I was just thinking about you. Wyatt is still hanging in there. Some days better than others. We are exhausted mentally, emotionally and physically. My oldest son leaves this afternoon to spend two weeks with his GF. He is my rock but I try really hard not to let him know that. I don't want my children (adults) to take on my problems. Sandy and Octo, so happy your DH's had benign results. Iris, you are a rock star! Hang in there and ask questions! I know you trust your team but you need to be prepared as well. Sending love and hugs to all of you...especially Lucy and her DGS.
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I wanted to share two pictures of my trip to Rwanda- It's my sponsor child and her family. I am so glad I went, even with all the extra meds and vaccinations that went with it. I am truly changed. Now back to the stress of doctor visits that I don't want to go to.
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A doll of the proper color, as is only right.
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Hanging out on the outskirts of Crazy Town. The rash is finally gone
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GMA, such a lovely trip and with all your issues, You are the strong one to me!
You know, i was thinking last night about my previous oncologist who basically fired me as a patient....it was the best thing she could have done for me. Much happier with this team, course i sort of blame my first mo for not being more aggressive with my initial treatment.
But crazy life is a good life, had lunch with a gang of gym pals, about 8 of us, sort of guess we all have issues but we get together monthly for lunch, i just drag my cane!
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Oh Gma! What lovely, lovely pictures! You look so happy and so does your sponsored child! What a blessing to visit them.
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Queensmomcat - I made them for her and I also made a "Grandma sponsor" doll that looked like me to reminder her I'm always praying for her. The whole family laughed and wanted to have a turn looking at the dolls. It was really fun.
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ok , hitting the road for infusion of new med today, i hope after this one that i am comfie to drive myself home, my buddy art is driving me today
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Gma, how amazing you were able to visit your sponsored child--in Rwanda, no less! (As advenurous as I am, that would probably be orders of magnitude outside my comfort zone).
I had a mini-stopover in C.T. last night. I was so happy to be able to have enough L hand mobility (albeit still painful 8 wks post-op) to wear one of my fancy sheer lace Empreinte bras fastened behind my back, sans extender). But late in the evening, my cat brushed against my L breast (aka "Thelma," with the R--cancer--breast being "Louise") and I nearly jumoed out of my skin. It felt sore, especially around the nipple. I palpated and palpated--no lumps, bumps, thickenings, redness, etc. But then I noticed when I touched the bare nipple, it wasn't painful...just hypersensitive compared to the R one (which had been "tanned" and thickened by radiation). And along with the sensitivity, I felt a sensation elsewhere I hadn't in quite a while...which is actually the way Nature designed it. Turns out I'd been wearing lightly padded T-shirt bras or lined satin ones for so long that the bare unlined lace sort of irritated my nipple. Maybe if I wear a "headlight cover" (aka "nip-slip") the next time...
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sandy, guess i was in crazy town yesterday, geez, comedy of crazies yexterday. They do a blood draw first, check out the tumor markers and stuff, then it is off to infusion. Doc was backed up with a new patient so i saw the nurse practitioner and she answered my questions. This is a new dif chemo med tnat is only used if your liver is clear and used with my other pill chemo.
The blood draw guy stuck me in my arm, sort of high up so when they went to stick my arm for chemo......they some issues. Thought i was going to do puzzles to pass the time but that messed up thi gs. Thought sure i would wake up with black and blue marks but all clear. Means those nurses are good,
Off to laundry morning
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Well ladies, I am back in CT - I just got a letter from my NEW (1 year) doctor - She is now moving out of state and I need to get another one. I only saw her once.. This is 3 docs in less than 3 years... I just get them to understand my situation and then they leave me at the curb. Guess that is what I get for living in a small city.. I don't want to deal with a new doc.... but I guess maybe I will find a better one?
Off to make applesauce from the apples I picked this week and grape juice from the grapes I picked.
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Gma, that really is too bad....sorry about the need to change docs again. I bet that apple sauce is great!
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Gma, that is so frustrating. It almost feels like being jilted.
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gma, igot dumped by a doc, lousy!
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hey all, it's been awhile. thought i'd check in on crazy town and see what's shaking. glad to see the old familiar faces, names, avatars. sending good thoughts, wishes, and prayers to all who need them. still keeping on out here in california
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Hey, Suladog--still cooking? (Brilliantlly, as I recall)?
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Sula ..so good to catch up with you , and to hear everything is going well for you !!!
GMA ..how frustrating to have to find a new doctor ...
My toy poodle pup , Honey , had her first grooming yesterday ..she is 16 weeks old now ...it was like a major transformation to watch ..I will show you the " before " and "after " photos ..
I love her ..she is so naughty ..but she gives me such joy 🤗
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oh so sweet, i keep thinking about getting a dog, not sure on my alergies but yours iS precious
Another gloomy day in nj, tummy acting up again so later all....
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awww, Lucy--she looked adorable even ungroomed.
Noisy here: jackhammers breaking up the street for water main, supply line & sewer work for next-door neighbors finishing their basement; and power vacs, saws, nailers & sanders by our attic ceiling repair crew.
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So mad at myself. I bought shoes for the wedding I am going to in the near future when my feet were retaining a lot of fluid from the treatments. Went to wear them last Saturday to break them in at a funeral mass for two family members of a close friend and found out they are a half size too big now since the fluid retention is gone. So now I have to get new shoes for the wedding! Should have waited until the fluid was gone!
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Just pad them (anti-heel-slip and ball-of-foot cushions, maybe a layer of foam insole, all available at the drugstore or Target)--they'll fit fine. (Unless you want an excuse to buy new shoes).
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Lucy, Honey is adorable!!!
Sula, so good to see you. Every time I am in Sonoma I think of you, and chide myself for not contacting you...not that I am there that much...but anyway, glad you are doing so well!
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Couldn't put stuff in the shoes because they are mostly open. So new shoe search is still going on. Went to the Kohl's near me and the closest I could come to my size was a 10. I need a 10 1/2. Hate being in the big foot category! Have a couple of other stores in my area to check.
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