CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • adelozier
    adelozier Member Posts: 30
    edited August 2018

    Hi guys.... so I had an ultrasound today and its definately a lymph node. The radiologist said it has one characteristic that could be concerning out of several they look for. Hes recommending more imaging in 2 months or a biopsy now. I'm so beside myself and cant stop crying. I'm so worn out. He then said that hed be suprised if it was cancer and that it would be the :earliest cancer hes ever seen in 25 years" Considering my hx it makes him slightly more concerned. He said it could possibly be an reactive lymph node from my masectomy bra being too tight and causing friction... Has ANYONE had a b9 lymph node after biopsy??? I'm way at 2am holding my toddler and crying

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2018

    (( Adel )) ..sorry you are going through this ...try and remember your radiologist's words..he doesn't think it's cancer ....If it were me I would have the biopsy as soon as possible ...rather than wait the 2 months for more imaging...that way you can put you mind at ease about it ..


  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    Adel....get the biopsy....your mind can kill you way before the cancer can...at least “ME”...the stress is not good for you...get it done, and find out once and for all...you are torturing yourself waiting...Adel, I am 83, and have been around the block more then I admit to, but I think I am giving you good advice...if it is nothing.....you will get peace of mind.....if it is something, you will start a plan...will be praying for you.....big hugs.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2018

    Adel, i am with ducky on her suggestion, best wishes and the crazies will be here for you

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2018

    Yep, Adel, get the biopsy done now as the others have said...we've been there, we know how you feel, and always best to know and to have a plan than to continue to have to worry so much, when it is probably nothing.

    While you wait for results, please pull up a rocking chair on the Crazytown porch. We've got hot chocolate with Ativan sprinkles, or tea, or a glass of wine, whatever works for you. You can see the ocean from here, the waves will calm you... and one of us will bake something, and we will rock and sit with you quietly. Sending gentle hugs!!

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    image

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    We’re all here for you......this is family....we lift each other up....hang with us...you will see how miracles happen.....we laugh, we cry, we hug, we are family.....and we have our Beppy up there praying for you and lookng down saying “your gonna do fine”...she was our special lady, and the Mayor of Crazytown......Hug

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2018

    Ducky .. beautifully said 💕

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2018

    Adel: (a little late but hopefully comforting) I'll be waiting on the CrazyTown porch for you, with a cold drink for myself and whatever suits your fancy for you. The waiting is the worst part of this process--we all know, we've all been through that ourselves.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    Always room for one more.....image

  • adelozier
    adelozier Member Posts: 30
    edited August 2018

    I had the biopsy today ... I'm TERRIFIED ... I cant sleep or eat and everything I read is BAD...

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2018

    ducky, dibs on the chair swing....

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2018

    Adel, hang in there. Still most likely benign. Want a cannabis gummy bear or piece of chocolate? I don't have any Ativan, and I'd offer you a Xanax but I'm almost out...

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2018

    We're still with you, Adel.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2018

    (( Adel )) ...yes hang in there ....did they say how long until you get your results ???

  • adelozier
    adelozier Member Posts: 30
    edited August 2018

    I am trying so hard to be strong ..I have a 4 year old son. The dr today was very nice but, I felt deep down the way he talked to me like for example.. "this warrants a biopsy" that this isny good. He said that everything on the lymph node looks normal EXCEPT the focal thickening of the cortex... everything I read about that points to bas bad things. I'm frankly worn out. The last 6 years have been a living hell for me. Has ANYONE had to do a lymph node biopsy well after diagnosis? I'm literally ill with panic.

  • proudtospin
    proudtospin Member Posts: 4,671
    edited August 2018

    yeah, i needed a biopsy about 3 or so years after all my surgery, my surgeon thought it was nothing but rad doc wanted it......turned out to be nothing, they said it was something like fat necrosis? Think it was scar tissue

    Hang in lady, we are all here

    Restless night, dealing with a uti, first in 3 years, i get them lots! Pills should clear it up by tomorrow as i visited the urgent care place the other day, such fun

    My contractor and new windows are all complete, drapes hung windows look good, last home improvement project for me, i hope!

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2018

    My housekeeper has taken my spot in CrazyTown tonight. Her DH has diabetes, heart disease, and is a prostate cancer survivor. Recently, he has had pain and weakness in one leg (not the rest of that side) and has been nearly unable to walk. They did an ultrasound and found several DVTs in the leg. They put him on powerful blood thinners, and will do a filter mesh implant in a couple of weeks to keep the clots, if still there, from embolizing. But if it doesn't work, he's facing amputation. His PSA, thank heaven, is 0.

    My back is a bit better, so we're going out to dinner tonight. Alas, my fridge is officially dead. New one coming in the a.m.

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    Hang in there Adel.......stop reading...get off google.....wait till you get your result, then start researching......I know, easy for me to say, but it will have you “crazy”.....tought having stuff done on a Friday.....the weekend will send you into Crazytown....which is where you are....we’re all holding your hand, praying for you.....:We got this......hugs.....been there, had that....went through that.....best advice is......stay as calm as possible.....and that aint’ easy.......but try!

  • adelozier
    adelozier Member Posts: 30
    edited August 2018

    Thanks everyone.. saw surgeon yesterday and he said he thinks thos is a reactive node but there is still a 10 percent chance its cancer. He said my right side has been through a ton of trauma ect. I still dont feel easy about this as everything points to cancer. You guys make it a little easier. I promised my husband I'm moving forward and enjoying life of this is b9. No more terror over a reoccurance any longer.


  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018
    Adel..after 4 years on Letrozole and dealing with the. SE’s I finally had enough and decided to tak myself off the med.....My Oncl was not thrilled but we discussed it even though my mind had been made up...What good was I to myself or anyone else when my quality of life was gone....Each and every day I thought...”did I make a mistake, should I have just dealt with the aches, pains, etc of Letrozole...Every new thing that showed up to me was a sure sign I had made a mistake going off the med, and was now going to pay the price....So far I am ok, still have aches and pains, but agining does that to you....but nothing like I had with Letrozole.....so here I am 2 1/2 years later still wondering if I did the right thing....Cancer has a way of doing this to you.......you will always question, always wonder if that wart on your big toe is cancer, what about that pain you have in your back...ok did it hit my bones now.....damn I should have never stopped Letrozole....my point is....you can drive yourself out of your mind...damned if you do, and damned if you don’t.....I decided I would just be grateful for each day that I was here, knowing I am not “cancer free”, because “that is a myth”....but also knowing that whatever path I choose to take it is going to be for my own good...even if it means still wondering...”DID I DO THE RIGHT THING GOING OFF LETROZOLE”....but still sticking to my motto from the day I was diagnosed.......I made up my mind that “I HAVE CANCER, BUT CANCER WILL NEVER HAVE ME”...HUGS GIRLFRIEND
  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2018

    Adel: that means it's 90% likely NOT cancer.

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2018

    Terrible anxiety is setting in ...my mammogram and ultrasound is next Monday , also giving blood for tumour markers then..and will see my BS for results of the blood tests Thursday ..I hate August :-(

  • Me2018
    Me2018 Member Posts: 12
    edited August 2018

    I have recently completed a cycle of Abraxane and had a PET scan/blood today and am now waiting on results.....I hate waiting. I want to know what's next and get on with it... I will get results on Friday. is it Friday yet?

  • Lucy55
    Lucy55 Member Posts: 2,703
    edited August 2018

    Me2018..I know the waiting is the pits ...we all know how you feel ...hoping for great results for you .Hugs .

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited August 2018

    Me2018 Friday will come too soon and yet not soon enough. As Lucy and my father (another cancer survivor) have said, the waiting is the worst part. The waiting for the diagnosis. The waiting for the test results. The waiting for the treatment plan. The waiting for the treatment to finish....the waiting....

  • duckyb1
    duckyb1 Member Posts: 9,646
    edited August 2018

    Been cleared for another year.....you always hold our breath.....glad its over....also got a good result from the “heart Pet scan”...not sure if I even mentioned that one.....looking fo rthe cause of the rapid HR....just tired of all the testing, but happy for the good result.....hope you all get good news too....God is good

  • m0mmyof3
    m0mmyof3 Member Posts: 9,758
    edited August 2018

    Well I am not on treatment right now. Hoping my break will be a long one!

  • chisandy
    chisandy Member Posts: 11,408
    edited August 2018

    Queen, now you've put a Tom Petty earworm back into my brain. ("The Waiting is the Hardest Part" was on an endless loop during labor, while waiting to be admitted to the hospital after shattering my leg, Bob's ER visits involving CT scans for bowel perf, and the two weeks between my ultrasound & biopsy).

  • octogirl
    octogirl Member Posts: 2,434
    edited August 2018

    Hugs to all of you who are waiting and anxious!

    I think I mentioned my mammo a few weeks ago was clear. Today I had my last MO visit before I move (and have to find a new one...) and that went well also: all blood work, etc looked good...he wished me good luck and sent me on my way....looking forward to the road trip to get to my new home!

    though of course still anxious about hubby: he had his skin biopsy today (finally! I tried to get him to move it up, no luck) but he won't get the results for another week! By that time we will be arriving at our new home...argh...more waiting....