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August 2015 Chemo Group

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Comments

  • Bunnybumps
    Bunnybumps Member Posts: 37
    Hi Joseanna, welcome to the group. I'm sorry you have to be here, but I'm glad you're reaching out. It all must be very frightening, but this is a great place to get information and support, and even a good few laughs to help you through. Please keep coming back and let us know how you're doing!

    xxxxoooo
  • sparklypink
    sparklypink Member Posts: 17

    Joseanna: Ask ANY questions here - we're all teaching each other and no question - esp. about lingo - is silly. Regardless of what stage you are - we are all going through this together!!

  • Italychick
    Italychick Member Posts: 527

    Joseanna, dropping in from The March chemo group. I've been following your posts, so sorry to hear about your diagnosis. There is a woman on here, Bestbird, who has put together a very comprehensive stage 4 breast cancer guide. I think if you personal message her, she will send you her guide.

    Best of luck with chemo, and everybody here is on your side. Kill the bastards!


  • superius
    superius Member Posts: 310

    Day 4-5 of TC is worse, huh? Is that why I woke up so tired & with headache? (although I also started Neupogen last night). I had been eating normally last couple days & feeling quite well... UGH!! Snooze


  • Sloan15
    Sloan15 Member Posts: 845

    Day 4 of TC (session 1 of 4): Yep, I'm tired today, too. I went for a 2 1/2 mile walk this AM, and I'm glad I did. I'm resting now. No nausea. Like I said yesterday, my arms and legs (where the hair is) feels tingly.

    Thursday chemo starters: How'd it go? Any tips to share?

    Welcome Joseanna and the other new people. Sorry you have to join us. You'll get good support and great tips this group.

  • SDCA76
    SDCA76 Member Posts: 27

    Day 4 for me, too. I am very achy/headachy and tired today. Getting outside in fresh air is good therapy.

  • knitnpurl
    knitnpurl Member Posts: 44

    Serious question. I'm on day 4 and feel like I've been sucker punched. Not too much bone pain from the Neulasta, the Claritin seems to be working, but my teeth ache a little. Also doing pretty well for nausea. Just really fatigued and I'm afraid I would fall if I took a walk around the block and some of you are going on mile hikes! Are both of our experiences normal?

  • Sloan15
    Sloan15 Member Posts: 845

    @ksusan, why not B Vitamins? Did your foc give a reason? I think my oncologist referred me to the dietician/naturopathy doctor so I could figure out what I want to do. My oncologist doesn't believe in any of it, and the other guy wants me to take a crapload of stuff. The doctors work in the same cancer office so my screen on what I'm talking is shared. I'll ask the oncologist if it's OK though.For me, my belief is that I need chemo, I can eat better to help fight cancer, but supplements alone are not going to cut it.

  • Musosgirl
    Musosgirl Member Posts: 305
    The Good, the Bad, and the Ugly.

    I am on Day 15 and just had my 3rd chemo day today--just Herceptin. I am feeling pretty good. I have managed to walk a little over 1/2 mile the past three evenings (I used to walk 4 miles). Food tastes better so I plan on enjoying the next 7 days. Staying hydrated and not in any real pain (spinal pain was bad that first week). Mostly I am glad to have some energy back--that fatigue is truly legendary!

    My head is sore and my normal shedding picked up today. I was starting to think it would take another cycle to convince my stubborn hair to fall. Now, if my head gets any more tender I may start pulling my hair out! I do have one "sore" in my mouth, really it's swollen gums behind my last molar, but that's getting better too. They made me take 2 zofran today before my infusion--I think 16 mg (especially in pill form) was too much and now my tummy is grumpy--but nausea actually stayed away this cycle and I hope we can keep it that way.

    I STILL have diahrrea. Day 15. Immodium always takes care of it--for about 18 hours. I keep telling the nurses but since I am only taking 2-3 pills a day it isn't considered severe. I am also on day 14 of my period. It's light, but won't quit. What the heck?! I would really, REALLY like a few days when I am not worried about my bottom side.

    Next week we start our homeschool co-op and I start cycle 2. It's a big week, and I am nervous. I am so grateful for these boards and hearing everyone's updates. I felt so alone till I came here...
  • JenPam
    JenPam Member Posts: 163

    Hi & welcome Joseanna! You will find wonderful support, advice & information here. I hope everything goes well with your port placement and chemo.

    knitnpurl, I understand fatigue is one of the hallmarks of chemo. My main side effects last infusion were fatigue and nausea. It's frustrating to try to walk around and feel winded, but I am trying to learn to listen to my body (I wasn't that great at obeying my body's signs pre-diagnosis). I felt incredibly energetic by a week and a half out, and last night--before my chemo session--I was dancing around my bedroom. :D So it can get a lot better!

    Muso, I had to laugh at your bottom side comment...but gentle hugs to you & wishes for a quick improvement on all sides. Good luck with the homeschool!

    I had my next AC infusion this afternoon. Still have a big appetite (I feel as if I have a tapeworm), so I ate a ton of protein and other foods. I've got a terrible headache & hope it will go away within 24 hours the way it did last infusion. I drank 12 cups of liquid today!! <---trust me, that's amazing for me ;)

  • Prettyblueyes
    Prettyblueyes Member Posts: 4

    Hi all!

    Thank you for the kind Welcome!

    Italychick~ I appreciate the heads up and I will message bestbird and get that packet! 😊

    I most certainly am gonna kick some serious ass for sure!!! Maybe one of these days these MO are gonna stop telling us hard headed women we have a timer! Gahhhh😖😖

    I just did my pre op scrub and am ready to get this port in and get this party started😎

    You all are talking about taking Nulasta but my MO said he wants me to wait as it could cause pain in my bones.

    I was wondering how the women that are on AC felt. How soon did any symptoms hit? What symptoms? How soon did you loose your hair? I'm just trying to prepare my hubby and kids so we all know and are aware and understand.

    What did you find comforting as far as foods, drinks etc for nausea, sores in your mouth.. Do I need special toothpaste? Does your skin hurt?

    Soo many thoughts...

    Hugs ~Joseann

  • JenPam
    JenPam Member Posts: 163

    Joseanna, for my AC chemo I've had the following side effects: bad headache on day 1 (day of the infusion), nausea and fatigue on days 2 and 3, slight fatigue and queasiness on day 4, then gradual improvement until I was dancing around the room last night before today's infusion. :D I lost 5 pounds in a week but then gained it back, so I stayed at the same weight overall. My appetite came back with a vengeance (I say I have a tapeworm...I just ate crackers with peanut butter, two deviled egg halves, two cups of my mom's homemade ginger veggie broth, and homemade minestrone--and that was in a 15-minute period).

    When I was queasy, I enjoyed mostly soups and broths. Minestrone is my favorite--lots of beans and veggies. I also ate saltine crackers and bland foods (no heavy sauces). You might want to consider eating with plastic utensils to ward off a metallic taste in your mouth from regular utensils. Don't be surprised if water has a metallic taste or if it makes you feel nauseated. I've never liked water, but now I have to drink a lot. It can be challenging! Remember that all liquids count toward a daily total--broths, healthy juices, skim milk (avoid high-fat dairy if you can), and even watermelon, which is predominantly water.

    Re: oral care, I'll copy what I posted to taz: I'm assiduous about my oral care. I suck on ice during treatments, use a baking soda/salt/water rinse at least 5 times a day, brush and floss at least 3 times a day, use a rinse, and apply a gel at night. I use Biotene for the toothpaste, rinse, and evening gel. I use a very soft toothbrush & bought this cool brush sanitizer: http://www.go3bglobal.com/portable-travel-uv-tooth... Obviously this is just anecdotal, but I haven't had mouth sores (yet) and still have an intact sense of taste. I can only hope that will continue!

    My scalp hurts, and I believe I'll be shedding within the week. I'm not interested in cold-capping b/c I'm triple positive, and 50% of HER-2 mets go to the brain; I want all that chemo circulating to every last follicle. I'm going to be trying cryotherapy (icing) my hands and feet when I start on Taxotere--the taxane drugs are most likely to cause neuropathy. You can find a lot of interesting research at this site and elsewhere online about cryotherapy during chemo.

    I'm taking Neupogen instead of Neulasta, because I'm on dose-dense chemo (every 2 weeks, not every 3 weeks), and Neulasta's effects would carry too far over into my next cycle. After chemo, I take home 7 refrigerated pre-filled syringes of Neupogen. On days 3-9, my husband injects the syringe into my thigh or upper arm. I'm allowed to do it myself, but I prefer not to. ;) I can only speak for myself, but the only pain I've had from Neupogen has been at the site of injection--esp. as the week progressed (though I alternated injection legs/areas). I'm going to have to take Neupogen for another 7 cycles, but my counts were good & the side effects for me were nearly nil. Did your doctor mention this option?


  • Italychick
    Italychick Member Posts: 527

    Prettyblueeyes you are welcome. I hope her guide helps you.

    I iced during treatment. I took a basin and put water and ice cubes in there, one for hands and one for feet. An emergency room nurse said the iced water is actually more effective than just frozen ice cubes or peas or anything. And I sucked cold water and chewed ice the whole time. I did get some leg neuropathy, but no nail issues at all.

    I rubbed coconut oil in my mouth and used a tongue scraper to remove the dead taste buds. My sense of taste was gone for about 4-5 days after each infusion but came back.

    I never had nausea, constipation or diarrhea, but I was sure to eat small amounts of food all day long, and I think that helped me. Seriously, zero nausea. And I never took anti nausea meds, other than what I was given during chemo treatments. For constipation worry, I was strict about taking magnesium every day. It is the best poop making thing ever. Magnesium and potassium can get severely depleted during chemo. At one point, even with potassium supplementation, I was borderline low on potassium.

    After round 5, I got severe esophagus and intestinal burning and took Pepcid A/C which worked for me.

    The port site will probably be sore for a few days, but that soreness should subside.

    Watch for folliculitis when your hair falls out and if you get it, get a prescription from the doctor for it. They gave me topical antibiotic cream, and I also rubbed coconut oil on my head too.

    I ate and drank normal stuff, heavy on kefir after round 5 because of the burning issues. That was the worst! I had to sleep propped up a few nights.

    2 and 1/2 months out, I don't feel like I even had chemo, except for 15 pounds of weight gain and some slight tingling in my lower legs.

    And by the way, nobody should give you an expiration date. There are lots of brave women on this forum that have been living quite well with a stage 4 diagnosis for a long time. There are a lot of treatment options out there, as you will find out.

  • ksusan
    ksusan Member Posts: 461

    My MO pulled me off almost all supplements. She's a purist.

  • octogirl
    octogirl Member Posts: 2,434

    starting 9/2 assuming my incision is finally healed..I assume I can join here, not that I want to?

    I am a bit overwhelmed but would appreciate an answer to one quick and probably incredibly dumb/naive question: why use Claritin for the bone pain? what is the advantage over advil? (which is what my MO had recommended if I do get bone pain)

    Thanks all

    Octogirl

  • gooseberry
    gooseberry Member Posts: 39

    If this wound from where my lumpectomy incision got infected does not close my chemo is going to be delayed again. It was supposed to start Aug 3rd and then the infection made it Aug 24th. Now if its not closed the oncologist will not go forth with the first infusion Monday. It was packed for 2 weeks and then we stopped packing so it could close and its closed a little but now where near completely. Is it even possible it closes in 3 days or should i just forget it and accept another delay, which will prob be 3 weeks and put me into a Sept. start. Was is feasible for it to seal in 2 weeks? The surgeon will probably call tomorrow and tell me, but I just feel like wining right now lol...

    Also is there anything bad that can happen from delays? I mean I am her2 positive so could it be brewing something in there to be resistant to the chemo? Maybe now I won't get enough??? Just more things to worry about... I just want to get it in there and get it done and over with kill the cells... If I have a recurrence, this delay will be all i can think about and i know its irrational but thats the way my mind works. I also chopped all of my hair off on tuesday and if I need to wait 3 more weeks I am going to be doubly ticked...

    Appreciate any sealing thoughts... Tired of waiting... Its prob more torture than getting it going. You at least know what you are dealing with and each round is one closer to being done... I am stuck in the scared of it stage... I could be 1/3 done monday and I am at 0. Done whining I guess lol... Thanks for any info...

  • knitnpurl
    knitnpurl Member Posts: 44

    JenPam Thanks for the update. Just woke up at 5 am on day 5 feeling normal but hungry. Your outlook for everyone else is helping me too. My mo doesn't really believe in the cryo for neuropathy but he's letting me ice my hands and feet when we get to Taxol. I haven't been as vigilant as you about rinsing my mouth, but I did ice while I got the AC infusion and have used Biotene a few times, and no sores yet. He's also fine about l-glutamine and pushed for a b complex supplement. I'm on dose dense too and he's got me on neulasta after each infusion. What were the "effects" or difference between neupogen and Neulasta? I do like the self-injection box for Neulasta cause I'm such a wimp.

  • Suzanne50
    Suzanne50 Member Posts: 221

    Hi ladies - just checking in on Day 19 from first treatment. This last week the metallic taste in my mouth is pretty much gone. I would say I felt 100% normal this 3rd week. Treatment #2 is Monday. My hair is still on my head so perhaps the penguin caps are working. Still too early to tell. I did not get any mouth sores. I used Biotine 1x/day and rinsed with salt and baking soda a few times/day the first two weeks. This past week I haven't done anything. Energy level is back to normal - that was only a bit low the week following chemo.

    I agree that the first treatment is the worst since you really don't know what to expect. Although I am not looking forward to Monday, I am not dreading it.

    Ruska - you should ask about drugs! Emend was great. I only took zofran twice but you should have something in case you need it. You don't need to feel nauseous due to chemo any longer.

    Good luck all you ladies starting out this week! I am coming home from vacation tomorrow and will try to catch up here.

  • VickiRides
    VickiRides Member Posts: 163

    I had my first round of AC yesterday. The infusion itself was not unpleasant, just a prick when my port was accessed and I little headache during Cytoxen, but that could have been brain freeze from the ice chips I was sucking on. It wasn't bad enough to take a Tylenol and went away before the Cytoxen was done. I felt fine at home last night and ate a good dinner. I took my usual Unisom before bed (MO says that's fine) and went to sleep around 9:30. I woke up at 11:00 feeling warm, dizzy and a little headache. I think the dizziness was from the Unisom. I took a Tylenol for the headache and was fine the rest of the night. I woke up a couple of times but went right back to sleep. They had given me a steroid with the anti-nausea meds at chemo so I was expecting a restless night. All in all, I think the night was pretty good.

    I feel fine this morning. I had a light breakfast and I am at work now for a half day before my Neulasta shot this afternoon. I was advised to take Claritin starting today for 5 days to prevent bone pain. My MO said ibuprofen is OK for 3 days if there is any bone pain.

    Question: My MO said my husband needs to use a condom for a week after chemo. Has anyone else been told this? The nurse said he'll have to have coyote sex for a while: sit by the hole and howl!!

    How did the other Thursday starters do?

  • Sloan15
    Sloan15 Member Posts: 845

    Day 5 on TC (session 1 of 4): I feel good today. I walked 4 miles this AM, no nausea, no headaches. My hair follicles are tingly... :( I still have that swollen lymph gland on my scalp, but no fever. Hopefully no neulasta shot this time. I decided to start giving everyone the 3 foot rule and no hugs from friends (as many are school teachers).

    Welcome to all the new people. I don't have any answers to your questions since I'm only on day 5, but I'm posting so other TC patients can see what others are going through. I find it helpful when I see, "oh, others had headaches, too" or whatever. My best advice: Don't lay around unless you are really wiped out. Live your life normally. We've all gone to work or did back to school night when we were tired, so still do those things now. It's helping me, sho I hope it helps you.

  • KateB79
    KateB79 Member Posts: 555

    Hey ladies, and happy Friday!

    I'm eight days out from my first TCHP, and feel almost 100%. I second what Sloan15 says: try to live your life normally. It's hard--and it was hard for me last week, but I consider it a lesson well-learned--but worth it in the end. We don't have to BE cancer just because we HAVE cancer.

    My own experiences on this regimen: tired for three days. Horrible withdrawal from the dexamethasone (I'm talking to my doc next week about this), which included anxiety attacks and what felt like depression (something I struggled with in my early 20s, but not since). This feeling abated yesterday. Constipation turning into diarrhea, which I've been controlling with a daily dose of Imodium. Loss of appetite for a few days, but I combated that by eating mild broth and crackers instead of the gourmet meals my wonderful partner prepared (sadface). Pain in my hips and back on nights two and three, controlled with ibuprofen. Acne, for which I'm going to get some kind of cream, dry eyes, which I'm treating with Systane Ultra, a couple of minor nosebleeds, and . . . wait for it . . . oral thrush. They called in a prescription for Magic Mouthwash, and it's clearing up (thank goodness--talk about adding insult to injury). Also--and this might be TMI but this is a chemo board, so I figure nothing is off-limits--I started my period. Again with the adding insult to injury.

    I totally agree with what others have said: the first is the worst because we don't know what to expect, and fear of the unknown is no picnic. That said, I agree with Suzanne50: I'm not looking forward to the next round, but I don't live in a constant state of dread about it, either. And, after round two, I'll be 1/3 of the way done, which is something.

    knitnpurl, from what I understand, Neulasta is long-acting and can have more side effects than Neupogen. The upside is that Neulasta is just one injection per cycle, whereas Neupogen has to be administered daily (by you or a loved one, at home after the first one). I've got my fingers crossed that I won't need either one. How the Claritin works is a mystery, but everyone swears it does--my chemo nurses even said that, if I need Neu----, I should do the Claritin. Must have an effect on bone marrow.

    gooseberry, you'll be okay. I'm being treated for HER2+, too, so I get what you're saying. But here's the thing: 20 years ago, HER2+ was a death sentence. Today, it's one of the most treatable kinds of BC there is! My doctor actually looked at me, smiled, and said, in her Lithuanian accent, "HER2. Good. We will go for cure." You'll do no harm by waiting a couple of weeks. Take the time you need, and know that the chemo will help you when it happens. Wait for that incision to close; chemo is hard on the system, and you don't want any infections. Deep breaths. You'll get there. :)

    Welcome to the new members!

    I hope you all have a wonderful weekend.

  • Bluefrog76
    Bluefrog76 Member Posts: 250

    I started chemo last Thursday and have been violently sick all this week. The Zofran has not helped, but the more challenging issue was the unrelenting diarrhea. At the hospital now getting IV fluids. The nurses said next time to take Prilosec in advance to try to counteract how acidic I've felt. I've eaten nothing but toast and a banana since last weekend. And it was my birthday! Hoping to feel well enough for a do over this weekend.

    Here's my question: being at the hospital, I've just seen myself under fluorescent lights for the first time since chemo. My face is peeling off with red blotches underneath. Any suggestions? Thank you!

    Hope the weekend provides some rest and enjoyment for us all.

  • Bluefrog76
    Bluefrog76 Member Posts: 250

    KateB79: my doctors too pretty much rejoiced when the tests came back positive for HER2. It is amazing that we are going to be cured (!) with medicines that have only been available since 2012.

  • MsBrompton
    MsBrompton Member Posts: 324

    Hello great people. I'm new to this group. Had my 3rd Taxol today. Also on 3-weekly Hercpetin.

    Almost NO side effects so far. Insomnia for a couple of nights after the Taxol (due to the steroids they give you to stop the reaction). No big deal, just got up and checked my email. Got tired at about 4 am so went back to bed. It's circadian.

    Got low white blood count today but if it goes any lower they will give me the bone marrow booster jabs, so again no big deal. I am allowed to go to work. They give you this 'your tests are abnormal' spiel but actually the tests aren't THAT abnormal - they just reflect a bit of a hit from the chemo. If I have to miss a week, I will miss a week. No big deal.

    Wearing cold cap. Cold head, otherwise no big deal. Hair still on head. But if it falls out will buy wig.

    Exercising lots - walking 6 miles every morning. Feel tired when I set out, less tired by the time I get back.

    Taking glutammine to prevent neuropathy.

    Taste buds are a bit weird, craving spicy foods. Watching my weight because the steroids make you hungry. Aiming to maintain steady weight. Thanking my mother in law for that weekly home-baked fruit cake but not eating much of it.

    I'm posting this to remind us that not everyone gets all the horrible side effects you see on the old threads! I know some side effects are cumulative but when I started out I assumed I would get all the side effects from day 1. Actually I'll probably only get some of the side effects for some of the time.

    Sometimes I feel negative but right now I don't. Hang in there everyone.

  • superius
    superius Member Posts: 310

    Today is day 5 of TC (round 2), everything tasted like chalk. SickTiredbut I'm still eating.

    I think I can deal with the physically part of chemo & stuff (got to do what needed to be done); but my mind has been going 100 miles per hr & can't stopped thinking. There's are some new emotions that were presented to me recently by a friend. Totally confused. Bawling


  • MsBrompton
    MsBrompton Member Posts: 324

    Hi Superius

    I've been there. Up and down. Some of it is the drugs they give you, they make you swing like a teenager with premenstrual moods.

    Keep a bit of your brain on the level: "this crazy mood is because of the drugs and the emotional fall-out, it's not [all] real".

    Check out some of the other threads - the scuba diving one is fun even if you don't scuba dive :-).

    Hang in there.

  • superius
    superius Member Posts: 310

    My friend is the one "throwing" all these emotions at me, & he's not the one on drug! I already vent about it on another board. but still so confused. We are both VERY reserved & don't talk too much about things that's too private /personal

    I know he was angry when I told him about my diagnosis. & he was frustrated, angry, & worry about me having to do the chemo. There have been few "outbursts" when he leashing out.

    One time, when we were with our mutual radiology friend, he said to her (I was right there): "why does She have to do Chemo! Dr said surg was successful! it's clean! Chemo are poison! It's making her sick! It can be worse than the cancer!" It's only when our friend offered to talk to the doctors at weekly conference that he stopped.

    Last week, I missed church because of my Picc line apt, which I didn't tell him about. Later I was told he said to a friend, "See! I told you she's not strong enough! This is not doing her any good!..." Yet... when I saw him at the later service, he was all cheerful & making joke, "aren't you a little late for service?"

    When I saw him this week (we always meet in church group), he just couldn't stop smiling -- not the usual funny LOL when people joking around; but the Looking-into-your eyes, "I-am-so-glad-you-are-here" smiles; an expression I've NVER seen for last 7yrs I've know him (dare I say "tender"?) And it was directed to me. Who? Me?

    All these are within the past 3 wks since my first session.

    I'm really confused & not sure how to react (or if I should react) - this is totally uncharted territory for me. Did cancer "create" these emotions I'm seeing, Or did it just brought it out to the open? Why now? Is it pity? Friendly concern? Or something else? Shocked

  • KateB79
    KateB79 Member Posts: 555

    superius, sometimes people get confused when folks they care about get a diagnosis. I have a couple of friends who are behaving oddly, too, and I figure it's just par for the course. Everyone else just asks me how I'm doing a million times a day (okay, not that many), and I'm trying to tell the truth. As in, "other than the digestive distress, I'm doing well, thank you," or some such thing. It's so common to pretend we're great when we're not--most of us were raised that way, I think--and I've found a lot of liberation, dare I say empowerment, in being honest.

    My advice is to have a heart-to-heart with him. Ask him how he's feeling, and let him know how you're feeling about your diagnosis, your treatments, and his behavior/comments. It sounds to me like he's genuinely worried--some of his comments suggest fear (especially the ones about chemo, which so many people say they would never do until it's their lives in the balance)--and it might do him some good to talk openly about it.

    The American Cancer Society has some really great booklets for friends and loved ones; a lot of stuff is available online, too. Here's a link. Maybe he'd be willing to take a look?

    http://www.cancer.org/treatment/treatmentsandsidee...


  • Sloan15
    Sloan15 Member Posts: 845

    Homemade Mushroom Soup

    8 oz sliced mushrooms, 2 Tablespoons onions, 1-2 gloves minced garlic, 2 Tablespoons butter, 2-3 Tablespoons flour, 2 cups chicken broth, 1 cup light cream (or whole milk or 1/2&1/2), 1/2 teaspoon salt, 1/4 teaspoon pepper, 1/4 teaspoon nutmeg

    Melt butter. Add onions, mushrooms and garlic and cook until onions are soft. Blend in 2 Tablespoons flour and make a roux (a paste). Add chicken broth (or water and bullion cubes), and heat until slightly thickened while stirring frequently. Mix milk/cream with 1 Tablespoon of flour and seasonings. Add to soup. Heat until thick.

  • JenPam
    JenPam Member Posts: 163

    My short haircut Wednesday night? Looked cute, and then my hair fell out in clumps this morning. LOL! My husband buzzed me with clipper setting of 0. So much for that. ;) It turns out I have a nicely-shaped head. Who knew? I expect to be fully bald within a week. I'm fine with it & ordered some cute hats. :D

    Theresa, can you tell me more about the ice water? Doesn't it get bitterly cold & put you at risk for hypothermia? I'm imagining 90 minutes with your hands and feet submerged. Do you take your hands and feet out of the water occasionally?

    Gooseberry, I'm sorry to hear about the setbacks. I hope your wound closes up soon so you can move forward. I bet you look great with your short hair! Sending you lots of healing thoughts.

    Knitnpurl, I can't personally speak to the difference between Neulasta & Neupogen, but as Kate said, it's a matter of Neulasta being one high-dose injection as opposed to Neupogen being a lower-dose injection that you administer to yourself every day for seven consecutive days. I have to be on Neupogen because I can't have Neulasta in my body for its entire duration, since I get chemo every two weeks. Neupogen is out of your body within 24 hours. I don't enjoy it, but so far my counts are good. It's certainly not the worst thing being done to my body. :D

    Suzanne50, I agree that Emend is great! I only get it in my IV during infusions, but I believe it's helped me, as I haven't experienced bad nausea.

    VickiRides, yes, my MO told my DH to use condoms for a week, because our bodily fluids are toxic after infusions (that includes our sweat, vomit, etc.). The coyote sex comment is hilarious! Sex now is quite challenging...recovering from mastectomy, axillary dissection, port placement, and hoping to avoid lymphedema. After nearly 27 years together, we've decided it's fun to mix things up...what else can you do but laugh??

    KateB79, I also have a history of depression (plus OCD) & have been on daily Prozac for 20 years. I'm worried about having to change my AD once I start Femara, since Prozac and various other SSRIs conflict with many/most of the AIs. I'm glad you're feeling better now!

    Bluefrog, I'm sorry about your terrible reaction! No blotchy face here (yet), but I bet it's one more of the indignities we're expected to endure. What does your doctor/nurse say?

    MsBrompton, welcome! Six miles of walking...WOW. You're a rock star!

    Superius, your friend might be well-meaning, but your encounters are clearly emotionally taxing for you. I think you need to put yourself first and distance yourself as much as possible. I am appalled at what he's had to say, though I'm charitably assuming he's operating from a place of true concern. I agree with Kate's excellent advice about having a heart-to-heart, but in the end, your friend might be unable to cope with your illness & you'll need to move on. (((hugs)))

    Sloan15, thanks for the awesome recipe!