Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Fall 2015 Rads

1575860626378

Comments

  • brutersmom
    brutersmom Member Posts: 968
    edited November 2015

    RearviewMirror, Have you tried stretches. I found gentle exercise really helped keep everything limber. Don't over do it. Start slow and build up comfortably.

  • trvler
    trvler Member Posts: 931
    edited November 2015

    I have stretched the entire time I did rads and I think it helped a lot.

  • Molly50
    Molly50 Member Posts: 3,008
    edited November 2015

    I third the stretching advice even though with my skin so dry it hurts like h*ll. I don't think for me the deep pain I feel is nerves regeneration since I had a mx but who knows.

  • trvler
    trvler Member Posts: 931
    edited November 2015

    I guess that's one of the pluses of having no feeling in my foob. How are you doing, Molly?

  • Molly50
    Molly50 Member Posts: 3,008
    edited November 2015

    Trvler,

    Thank you for asking. I'm doing a bit better today. I think by the time my full field session starts again on Thursday I will be able to handle it.

  • bluedog
    bluedog Member Posts: 147
    edited November 2015
    Congrats, RearviewMirror!!! Yes, strrrrretch!
  • cuddyclothes
    cuddyclothes Member Posts: 98
    edited November 2015

    This morning I discovered the nipple on my radiated boob was twice its size...outward, I mean. In contrast to the other one, it looked so weird. It seems to have receded/gone down/whatever the phrase is!

    4 days off! Heaven! I started photographing clothes to sell on Ebay. I used to do it full-time, but now I'm doing odds and ends to clear out the place.

    I've been walking more, and stretching. I'm still having sharp pains in my hips and lower back, but they're somewhat easier.

  • RearviewMirror
    RearviewMirror Member Posts: 2
    edited November 2015

    Thank you all--I will keep focusing on the stretching! I think just needed more encouragement! Much appreciated.

  • princesstina
    princesstina Member Posts: 129
    edited November 2015

    Congrats trvler and RuthAnn for finishing!!!!!!

  • trvler
    trvler Member Posts: 931
    edited November 2015

    Thanks, Princess!

  • one_bad_boob
    one_bad_boob Member Posts: 31
    edited December 2015

    I don't remember reading it anywhere but I'm assuming swimming pools are out of the question during rads. I'm having joint pain and my YMCA offers aquatic Zumba. I've gained so much weight and I'm ready to start shedding it! Anyone else know if pools sreon the no-no list?

  • brutersmom
    brutersmom Member Posts: 968
    edited December 2015

    One bad boob. Sounds like fun, but no pools was on my list of no's during Rads.

  • molliefish
    molliefish Member Posts: 650
    edited December 2015

    I got that too. We have a pool and I was told no chlorine or swimming during rads. I just finished tx 5 and my. Nurse/rad tech noticed my skin reaction already. She recommended polysporin x3 per day. I will see the RO tomorrow for my first follow up

    But I can't help but think it's the glaxal. I didn't use it today. Will let you know what he says.

  • Molly50
    Molly50 Member Posts: 3,008
    edited December 2015

    Wow, Mollie fish that's really early to have skin reaction! I saw the RO today. She's dropping the bolus from my remaining TX. I am peeling in my axillary area. My foob is incredibly red. I can't wait to be finished. 5 days to go!

  • Ohiotripleplus
    Ohiotripleplus Member Posts: 9
    edited December 2015

    Please add me to the fall group. I have had 9 out of the 33 I am scheduled for. Just starting to feel a little bruised with some skin darkening. Using Cetaphil every day post treatment. Hopefully done by Christmas.

  • rainnyc
    rainnyc Member Posts: 801
    edited December 2015

    Ohiotripleplus, we started on the same day, and I've also completed 9. I have 25, not 33, but it's across a very wide area as I had bmx. I'm also starting to see darkened skin. It's also starting to itch. Nurse suggested an OTC called Sarna for the itching, which she says can be used at the same time as the cream I'm also using. I'm in a clinical study to see if a topical steroid might be more effective than Eucerin for keeping the skin in one piece.

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited December 2015

    Ohiotripleplus: you're on the list now. Did I get that right?

    OneBadBoob: ask your RO about whether or not (the chlorine in) public pools are OK for you. Mine was fine with it, as long as my skin was intact. Chlorine is an irritant, to be sure, so it may make the irritation (stop laughing, everyone!) caused by rads worse. But then again, it may not. And if swimming's going to keep you happy during a (no really--stop laughing, you guys!) rather stressful time, then definitely explain that to the RO!

  • Creativevintage
    Creativevintage Member Posts: 53
    edited December 2015

    Had my first treatment today....I laid on the table on my stomach for an hour and a half while they measured, marked and readjusted...then finally got my treatment. I got a bit emotional at the start when I first got on the table, but the tech was just so sweet. She rubbed my back and told me to just let it out. I felt so much better after just a few tears. I have noticed that through me treatment...if I get stressed or scared if i just let it out I feel so much better quickly. I have so many sharpie marker marks on my back and side that I look like a map of the 50 states! Well, one down and 32 more to go. The nurse was waiting for me when I got out of the treatment room, just for moral support today. I will meet with her right after every treatment and will see the RO once a week until she goes out on maternity leave. The RO covering for her after that is very nice and I have worked with him in the past on hospital equipment purchases, so I know he will be just as compassionate.

  • queenmomcat
    queenmomcat Member Posts: 2,020
    edited December 2015

    Creativevintage: my/our sympathies! I think most of us do get worked up about the radiation treatment, and it doesn't really matter whether or not we had chemo first.

  • Molly50
    Molly50 Member Posts: 3,008
    edited December 2015

    (((Creativevintage))) I got very emotional with my first treatment as well. Since then I have only had one other emotional moment and that was when I was starting to get very red and sore. I wanted to cry laying there knowing my under arm was going to hurt even more.

  • Molly50
    Molly50 Member Posts: 3,008
    edited December 2015

    Welcome Ohiotripleplus!

  • zinny
    zinny Member Posts: 169
    edited December 2015

    Hello lovely ladies:) Keeping up with you but not posting much these days. Cheating on you all with the chemo forums too, now that that is in my future;)

    Today was #22 of 28, the last 3 being boosts - Getting close! Just getting itchy and pink this week. Being more fastidious with the Aveeno lotion, which is what I was recommended. Seems like getting my heart rate up and sweating every day or so is helping keep my energy up. And my spirits.

    Since many of you have been down the chemo path, what are your thoughts on buying wigs? I have looked at the wigs page, but those people feel like strangers, *laugh. I have a large head, selection is limited in the shop at the agency, can't go hat/bald as my little boy is really afraid of me being bald - poor love can't look at me after a drastic haircut in "real" life.

    Going to try the cold caps but not sure that with ddAC/T it will work well enough - guess we will see!

  • trvler
    trvler Member Posts: 931
    edited December 2015

    There are entire threads on wigs and cold capping in the chemo section. You might have more luck over there. I know people who did cold capping and some it worked for and some not so much.


  • zinny
    zinny Member Posts: 169
    edited December 2015

    Thanks Trvler!





  • rainnyc
    rainnyc Member Posts: 801
    edited December 2015

    Creativevintage, my sim and first treatment were incredibly hard. It has since gotten a bit easier, just knowing what to expect. Your tech sounds lovely; what a difference that makes.

    Zinny, I spent a fair amount of money for a wig made of real hair and don't regret it for a second. I also bought a synthetic but in retrospect shouldn't have bothered; it's far less comfortable than the real one. See if you can get fitted now so it can be matched to your real hair. I got a list of stores that sold wigs from the social worker at the hospital.

    40% done with rads, and skin is beginning to be red and itchy. It's getting real....

  • zinny
    zinny Member Posts: 169
    edited December 2015

    Thanks rainyc:)

  • ElishebaJoy
    ElishebaJoy Member Posts: 54
    edited December 2015

    I haven't been on lately since so busy with work, so I haven't read all the posts lately, but wondered if anyone noticed their rads breast getting dark spots, kinda like freckles but a little bit larger. My rads breast is not pink or red, but is kinda tan, but with the last couple of treatments, I noticed more and more small (not raised) dark spots. Today was #23 of 33 treatments. I am just curious if this is normal and if it might be permanent.

  • EnigmaticFox
    EnigmaticFox Member Posts: 39
    edited December 2015

    ElishebaJoy, I also had dark spots in my treatment area -- I think they were actually my pores darkening. My RO and nurses reassured me that it was pretty normal. :) You can always ask a nurse to take a peek during your next visit just in case, if you're worried. Let us know what they say!

    Take care,

    --Sherri, aka EnigmaticFox

  • ElishebaJoy
    ElishebaJoy Member Posts: 54
    edited December 2015

    Thanks, Sherri. I will probably be seeing my RO tomorrow for weekly checkup, so I will definitely ask him and post what he says.

  • chisandy
    chisandy Member Posts: 11,408
    edited December 2015

    Saw my primary today about a sebaceous cyst on my back--we’re treating it very conservatively--but he looked at my mammary seroma and said most of the swelling was caused by the radiation and should probably heal more quickly than the RO predicted. He suggested I keep applying aloe vera even though the skin is intact and not irritated.

    The brand of 100% aloe gel I use is “Fruit of the Earth.” No alcohol, dye or fragrance.