Starting Chemo September 2015; join us!
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Minnesota Lisa, yeah, I guess fatigue and runny eyes are much better than the AC issues. Food and water taste like they're supposed to. And I'm able to accomplish a few things each day instead of being wiped out on the couch for 3 or more days like I was on the AC. I do seem to be a bit constipated early in the week, but there's no discomfort to it and it usually resolves itself after a couple of days. I still need to try to make myself consume more fluids.
Mostly I just want to get this over with and have my real life back, just like all the rest of us here! Miles to go...
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anyone else battled hives/major rashes through this process? Still getting them though they're better on the steroids but what happens when the steroids end very soon? I'm calling MO tomorrow but what a pain (and itch)!
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jabe have you tried benadryl? I had an itchy rash on my hands after round 1 and benadryl helped.
I'm trying to catch up, I felt a killer sinus infection and fever coming on Friday night of course after hours and spent 3 hours in the ER getting antibiotics and potassium supplements. My white count was fine 8.2, but my hemoglobin is low at 9.8. They don't infuse here unless it's below 8 either. Potassium was way low too so I'm taking horse pills for a week. The kids slept over at the neighbors, I'm so grateful to them! I need to call my MO tomorrow and let him know. I wonder if it will change my chemotherapy on Wednesday.
I missed a great party last night but I still felt awful. Today is a bit better which is good because DD has a violin recital this afternoon.
Good luck to everyone having treatments this week and everyone dealing with se's, new and ongoing.
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How about trying Cortizone-10 otc cream for the itchies?
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Unsalted baked pretzels make my tummy happy. If you're looking for an alternative snack, these are actually good.
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Exercise - your "just hiking out" story really touched me, and I am holding on to that image. Thank you for sharing that.
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unfortunately, these hives are beyond Benadryl and cortisone creams
. The ER had to give me IV steroids, Benadryl and then another anti-itch medication. I've now been on 3 days of oral steroids (will be 5 days total) and its controlled but not gone so I'm nervous what happens if not gone very soon. Very very uncomfortable before the steroids...I know it sounds (and is) minor in comparison to so many other SEs but it's got me so upset and frustrated!!!0 -
I had a rash around my waste last time. I had to wait for the next infusion for it to go away. Nothing else worked but iv steroids. It didn't come back.
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I have horrific joint pain this weekend. Of course, I forgot to take the claritin for the neulasta so that may have something to do with it. Painkillers are barely touching it. My head is not on straight as I'm worried sick about my son...why oh why does this have to happen now? How much can one person take?The pain in the hips, lower back and overall is excruciating. Ice packs helped. I will get through this...just have to vent.
Pain makes me very cranky.
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Do you have a am/pm M-Sun pill box? I have written down what goes in the am and what in the pm and every Sun it gets loaded. That way I don't have to think.
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Lindy - Pain makes everyone cranky - hang in there. Keep those ice packs going and power through. <<<hugs>>>
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LindyC My first Chemo I took Claritan once a day and I had such excruciating pain it was unreal. This past time I was absent minded and stopped my two a day claritan too early and paid for it.
Big hugs- Hang in there. Hopefully it will get better soon.
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I was taking claritin 24 every 12 hours. Nuelasta is a bitch.
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Lindy- so sorry about the achey joints. If it is helpful, I am taking Claritin, Aleve, and Zantac morning and at bedtime (also glutamine 15 mg 2x day and B6 at bedtime). Seems to be working. Mild aches for me today (day 4). Wishing you speedy relief.
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crank away lindy. I got hit last weekend in similar places from taxol/neulesta combo. I wound up living on prescription anti inflammatory and pain meds. Hang in there. It gets better on Monday. I am so not wanting to do taxol #2 Wednesday. Hope it doesn't get worse with further infusions. The nagging SE's from taxol for me are nerve pain, bloating, some d, trouble sleeping, & issues with decreased urinations/trouble urinating from UTI.
Good luck to all this week. And feel better to those who are not feeling well. We've got this ladies.
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Lindy - nutritionist gave me Juven - a higher dose l-glutamine and l-arginine supplement because chemo has all but stopped my healing from surgery.
My oncologist & surgeon gave it their approval.
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Annie: was that rash when you were still on taxotere?
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No it was round 2 AC although I did have a little taxotere that week so maybe. It went away almost immediately after an iv bag of steroids the next round.
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I'm making constipation the theme of my cancer. Yes I am 12 and poop jokes are funny.
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Good morning, everyone! I'm afraid to say it, but I feel almost normal this morning. And there's a rumor that it will finally stop raining later today. We saw the sun for a few minutes last Friday. My youngest is home because her school has no power (major outage due to rain), so we're having a happy Monday. If things go well enough, I might be able to stop obsessing about poo. Can you even imagine? A girl can dream, right
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I almost feel good today. I have a slight headache and I'm tired, but that's it. 7 days until round 4.
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Hello SC,
So nice to see I'm not the only one struggling. I've been in same boat as you re: pity party for one. And I'm only through 1 Chemo tx! 6 days out and continue to have horrible body aches and diarrhea. Was hoping things would start to improve by now. Will probably call MO office for advice. Wish there was a support group in my area that met freq. I actually haven't even found a support group locally for those of us going thru CT. I honestly believe it would be a great help.
I just want to live lfe😎My best to you and thank you for sharing a part of your journey here. It really does help.
Petula
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I'm 58 and not embarrassed to admit I love the poop jokes. Bowel movements = celebration for me these days.
All Hail Rosarita.
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we actually ate those beans last night at dinner
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I love those beans... bean and cheese burritos!
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I love those beans in my 7 layer dip :-) Happy Monday everyone! Let's all hope to stay strong this week.
Hazel_nut
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Petula - it took me 8 days to feel OK after both rounds of AC I've had, so recovery time is definitely variable. You should call your MO office, as they may be able to suggest or prescribe something to make you feel better.
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what is it they say?
"Beans, Beans a wonderful fruit the more you eat the you poot!"
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I've worn my wig out like 2 times. It's just not worth the effort. I just go out in a cap now. Screw em all if they can't take it!!! I need more hats though cuz it's getting cold.
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I've totally only worn my wig out twice (looks similar to yours Southern Charm). Scarves and beanies are it!
So the hives drama continues. My contact (2nd opinion) at a major cancer center felt concerned and suggested we consult an allergist and not move on to 4th round unless assured of a safe plan. Just spoke to my own MO who felt that this just happens and "tends to be self-contained" but we could add some pre/post steroids. She said I could consult an allergist so I am tomorrow morning. Why can't I get consistent freaking opinions? I'm so tired of completely different takes on serious medical stuff! I want to cry but am sick of crying
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