Starting Chemo September 2015; join us!
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Beautiful!!!!
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thanks! You ladies all inspired me.
it's so weird feeling my head on the pillow. 0 -
Cajun you're gorgeous with and without hair!
I've had watery eyes and nose from day 4 to 18 last time and horrible acne that whole time too. It should start tomorrow, only now I'm balding on top of it LOL! I'm 51 so my periods have been sporadic for the last 2 years. But of course I have gotten it within 2 days of chemo both times. Not heavy but annoying.
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Cajun if you can try a satin pillowcase. It is soft on the buzz and feels great. And it is actually really nice to shower and let the water fall on a sore achy head. Now it's just a pat dry and go. I wish I was as brave as a lot of you to post my patchy head pic.
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Aggiemegs-I have completed a cycle since starting but I am also getting Lupron. So I really don't know what to expect.
aggiemegs and skittle as far as the non stop headache (maybe even migraine) the only thing that touched mine was Excedrin.As I have posted before my doctor thinks it could be Aloxi. Neulasta also shows headache as side effect. Also my doctor doesn't know I did my Neulasta a day later but still within the 24-72 hour range. As much as I hate taking more pills I might try to get through the headaches again. I don't want to mess with a nausea med that obviously worked.
Cajun you are beautiful. All of you ladies are and are making me more brave for what is to come. I am enjoying the last days with my hair.
Is everybody starting to lose their hair around the same time regardless of the regiment?
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my hair started shedding at day 13. It was bad at day 15 so I shaved it. I had fine hair to start with so even a little shedding was noticeable so I didn't wait very long. I still have fuzz at day 20, but it's thinning out more each day. I think after round 2 today it won't take long to all go. All the peach fuzz on my face is gone as well as armpits and some legs and nether regions, but I'm not body bald yet. I still have most of my lashes and eyebrows.
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My 6 yo has been up sick all night. I'm exhausted. I have an echo cardiogram at 9 and chemo round 2 at 1. It's going to be the worst and longest day ever.
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Annie have an easy infusion today. Try to rest when you can and hope your little one feels better.
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Annie: of course the 6 year old was up all night sick. Ugh! Get the warm blanket and cuddle down during the infusion. Sounds ridiculous but I was able to do it during IV hydration and it was actually kinda nice (I know different than infusion but...
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I'm having an internal struggle...hat or wig. Omg I hate being in a position to have to make such a rediculous decision. I'm sweating like a pig. I don't want to go. I've changed my clothes 3 times because nothing feels right. I think I've gone over the edge. I think I need medication . The anxiety is interfering with small decisions and making them mountains! Cancer sucks to hell!!!
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so sorry annie! It wasn't hard enough already, right?
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Annie, if you're hot, go with a hat. I will make that decision for you.
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comfy soft clothes that make you feel better. And hat if you are hot, not hair. And when you are in the chair you can always take the hat off. I did last week. Didn't give a crap. I was also sweating and nauseous and just didn't care at that point. Amazing how we get to that point.
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I am on day 6 of first cycle of TC. Anyone have help with Neulasta bone pain? Did you take Claritin and how often? This bone pain is hard to handle--can't sleep or sit. Ugh. MD wasn't particularly helpful with suggestions--said hot bath would help. REALLY? Wasn't expecting this. Help!
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Yes, I am having the bone pain--all over, can't sit or sleep. MD said take a hot bath. REALLY? Are you finding anything helpful?
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Claritin starting day of infusion and for the next few days once a day. I take the 24hr Claritin but generic from target. For bone pain I have prescription meds now cause nothing else would touch the pain. It was hell over the weekend for fri-sat but got better sun. I'd call the mo back and tell them you are really in pain and ask what they suggest.0 -
I took Claritin the day before, the day of the shot and the two following days and my bone pain was minimal. It actually didn't show up until a week later and it was relatively mild discomfort in my back and hips. Tylenol helped. I've had round 2 last Thursday and yesterday I had my first sign of back and hip pain again. Seems like I wait about a week after my shot. Its better today.
Any prescripton pain reliever should be able to help you. As for hot baths, well...it can't hurt! I've also used heating pad on lower back. Good luck and hope it eases up for you.
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Neulasta joint pain seems to ease a bit with cold packs --- I have prescription pain meds but am afraid to up the dose, even though the doc said do it. Having difficulty standing let alone walking. Trying to remind myself this is only a temporary SE...
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Good morning ladies.
Round 2 today. I think i might have slept three hours last night due to the dex. Hopefully i can sleep during the day today since i will be there so long. I'm dreading the next week but excited to have another round done.
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good luck AnnieB43 and TwiggyOR, I hope you have an easy infusion day!
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Regarding bone pain, I received 5 daily shots of Leukine at my onco's clinic, and was to take 1000 mg Tylenol before the shot and every 6 hrs as needed. The pain got less so I would take just half, 500 mg, after 6 hrs. On my 2nd infusion, I still took the.1000 mg before the shot but none after that. There was no bone pain.this time. I did get lingering skin reaction (pink and itchy) on the injection site, each time. Had to ice, use.topical cortisone, and benadryl nightly to relieve. The claritin was not enough this round.
Infusion
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Annie, hope you get some rest during infusion.
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Good luck to all this week who are having infusions. If it make you feel better my second and third have been easier on me than my first.
I have had watery eyes too. They burn and run on the sides of my eyes. I have taken antihistamines and I think they do help a bit.
My periods were like clockwork. I am 45 and they were not slowing down. I had a cycle after my first infusion and it was brutal. I have not had one since but have had hot flashes from hell. Last night was the worst....I was hot then cold then hot then cold. I had even taken Ativan before bed.
Cajun-you look beautiful.
I love seeing the pics of you all with your families. It's good to see you living life when you feel good. Helps the road to the end easier if we keep some normalicy in our lives. I'm not sure how you young moms handle going thru chemo and surgery with young ones. You are the strongest of the strong. Keep being amazing!
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There's no way I could do this without my husband. He does his very best with the kids and just wants me to rest as much as I need to.
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Skittle- my husband has been awesome too. My girls are 17&20 and have been great help as well. Glad you have a good support system.0
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Cajun--holy CRAP, you are gorgeous!!!!
Best wishes for easy infusions for y'all today. I'm on day 4 post and the upper-body pain started in last night. My sister starts her chemo/radiation regimen today...
Meghan, there was something I was going to say to you, and literally now my brain is so fuzzy that I can't remember anything. ARGH--this is so frustrating!
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Oh, SKIN! My period started the day after my second chemo round, which had me laughing. "Bless your heart, didn't you get the memo?" And my skin broke out like a crazy woman. My MO nurse said it was the freaking out because of the abrupt change to dry and traumatized skin. Much as I was frightened to because my skin tends toward very reactive and sensitive (and breakout-prone), I followed her instructions and slathered body cream all over my face. And instantly the breakouts improved. I couldn't believe it.
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I've been slathering coconut oil all over my face and going to sleep like that each night. It's really helped clear up the breakouts and my skin feels so soft. In the morning I do my regular moisturizer and under eye cream.
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I guess I'm either lucky or weird. I had 3 days of spotting right after my 2nd treatment at the time of my regular period. No breakouts at this point. I just use cold cream to take off my makeup at nite same as I always did and use my regular face moisturizer.
Does anyone have really crusty eyes in the morning when they wake up. It's so annoying. I feel like I can't see to open my eyes and stumble to the bathroom to splash warm water on my face to get my eyes to open. Also is anyone else's vision getting really bad? I am having issues seeing up close even and it wasn't this bad pre chemo.
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echo cardiogram done. They used my port for contrast dye and it was the worst pain I have experienced thus far in cancer land! Jim took me to Olive garden to stuff food on top of the emotional crap I'm feeling. Chemo at 1. I can do this. I can do this!
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