Starting Chemo September 2015; join us!
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The look you get when you are bald and your husband starts complaining about his dandruff being flaky today...
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Annie: perfect!!
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I also have a never-ending headache. It is so horrible. I am also so tired of taking my oral antibiotic every 6 hours. I will be so glad when I am done with it.
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Hi everyone
Last night I had my husband buzz all my hair off. Ugh. It needed to be done, but I hate looking so sick.
I'll take a pic in my wig and post it later to join in.
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No worries, octogirl! I'm so sorry you're getting kicked in the teeth right now.
I'll copy and paste the list of September chemo ladies here, and we can always just edit the first one to welcome September ladies and indicate the complete list is on page __ or reply number __. Just a thought.
Please join in and let's support each other.
Octogirl.
September Chemo Group:
Hazel_Nut 8/27
Octogirl 9/9
Shopgal2 9/2
tshire 9/11
sailorgirl15 9/21
CarolinaAmy 9/3
Artista928 TBD
Teacherhikermom 9/2015
SockerChick80 9/10
LindyC 9/10
edwsmom 9/17
AnnieB43 9/8
greytmph2 TBD
twiggyOR 9/11
Carolyn62 9/2015
Tessu 9/10
Admonkey 9/3
Rosieo 9/29
Jennagwyn 9/25
bc 201509 9/9
Summerfun 9/15
Lila-claire66 9/9
aj93 9/10
Flower68 9/11
SouthernCharm 9/15
ldurham 9/9
AG3 8/31
Amberbaum19 9/4
mom2boo_and_buzz 9/8
starsarestars 9/8
fidget 9/15
Judi1952 9/24
Skittlegirl 9/30
Scotland 9/22
HazelFrances 9/21
Drummerswife 9/10
Mommadigs 9/22
Shelly52 9/10
KatieJones523 9/16
glensea 9/23
RosevilleDawn 9/17
Jabe 9/16
Luzeelu 8/31
DoingwhatIhavetodo 9/29
cajunqueen15 9/25
Cat Lover 9/24
chevygirl54 9/18
ShannonCannon 9/24
TFoxy20 9/25
Patticakes 9/22
DLcygnet 9/16
dab0722 9/28
staykarlastrong 9/14
Shadow19 9/21
here2win 9/21
aggiemegs 9/22
ozigran 9/30
Grammy4 9/29
SoCalMom5 9/170 -
Hi all,
I guess I'm now on day 6 after round 3. Yesterday was absolutely awful, but slightly better today. After round 2, Friday through Sunday were awful, but now that I'm managing to sleep better, I think it's making a difference. After round 2 on a Monday, I tried ativan on Wednesday, Friday and Sunday. This time I'm having one every night and it seems to help. When I go to bed around 10ish, I take 2 ibuprofen for the Neulasta bone discomfort, which seems more pronounced this go-round, and 1 melatonin. I usually wake up between midnight and 2 am, get up to pee, and then take an ativan, which helps me sleep until at least 6 am. Get up & pee again and then can get back to sleep for another hour or more. The nurse suggested that I try doing it that way and it seems to be working for me at least. Sleeping well has been a huge issue in how I feel. I think I'll do this for one more night and then go back to my usual melatonin or benadryl. Don't want to get too dependent on the ativan since it's part of a tricky class of drugs. Even the doc admitted that although it's prescribed for nausea, most people use it to help them sleep.
I know I need more fluids, but everything tasted terrible yesterday. I also felt like I either had a pill or a toothbrush stuck in my throat, a dry spot that nothing could eliminate. I was also freezing all day with my new bald head. Wore 2 hats and had a thick fleece scarf wrapped around my head all day. I'm in Virginia and it's been wet and chilly for days. I think the weather will break tomorrow. Need some sunshine!
Shopgal2, we seem to be on a very similar schedule. I can't wait to get this AC crap over with. Then I do 12 weekly doses of Taxol. Does anyone know what I should expect from that?
Don't be afraid to try the mj if you have access. I haven't had any problems with nausea since a tiny bit the very first week. But then, I'm just an old hippie anyway.
So many fun and funny people here!
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thanks CA, but while I really am not up to troubleshooting today, those that have an issue with length of first post should try making this a 'favorite' thread. I think that solves the problem. At least it does so for me on both computer and iPhone (takes you automatically to post below where you left off last time you read, so no need to go through old stuff).
Octogirl
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Prayers and strength and virtual hugs to all the brave women here in this wonderful group, especially those many of you struggling with side effects and sore ports and family troubles.
This weekend, after my second round of chemo, I've been doing what I was too stupid to do after the first round: rest. I have a deeply ingrained tendency to over-do, and also don't have as much common sense as I should, so I make things rough for myself. The joint and bone pain from Neulasta is so much worse this time, I can hardly stand let alone walk ---- maybe because last time I got generic, this time brand name? ---- but my husband is finally helping more, and my 11-yr-old dog is learning that sometimes she has to "go out" with him even if I'm home.
Good night!
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Might as well take my name off the list. I'm still tbd and we're in Oct. I'm still following this thread of course and will you all well in your respective journeys! xo
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you having a hard day octogirl???
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Artista STAY!
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Octogirl: One idea is to create a google docs spreadsheet with everyone's info on it and post the link in the first post. Lynne from our April group created one and members could also add their chemo regimine and other info of their choosing.... such as their first name, where they're from, etc.
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Artista, please stay!!!
octogirl, you don't need anything to worry about. I certainly don't mean to pile on and only mentioned it once someone else did. No worries. 😉 This is on my favorite threads (with email notifications), but I still have to scroll down past that first thread with every page. Odd, since you don't seem to have that issue.
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I have it as a fav topic and when I click on the side bar, it takes me to the last I post read so no scrolling required. Seems to be different for many.
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hi ladies.
Sorry, Taxol is 100% hair loss.
Tessu - it's hard. Everyone thinks it would be great to be thin but not when you're medically underweight. I'm trying to eat foods denser in calories like nut butter.
Teacher - I'm so sorry you are going through my close friend had a similar experience and said she wad truly ready to be called home but it will get better, I promise
in other news, I'm going to buy new make up and shave my head tonight. I want to do it while I feel good and am on an upswing.
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Oh well..only consolation is that when i start Taxol, there won't be any more hair to lose! Anyone else keeping an old fashioned calender and putting a big "X" on each day that passes. I'm working towards Dec. 17 as my last chemo infusion and counting the days. This is the only time I can say I am wishing my life away. Of course, I have radiation to look forward to in January...
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i haven't marked a calendar because they don't schedule the bloody appointments in advance. They're all like oh no there will be delays...everyone has delays. It's sadistic!
I was dreaming that I packed my ruck and snuck out in the middle of the night and just skipped the rest. If only...
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can I run with you Annie? Just took my kid to Supercuts. Umm bad idea day after buzzcut. Wore my wig and hated it-because it's a wig. Anger phase commence
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Thanks ladies. I'll stay. I appreciate you all posting your experiences. All these delays have me nervous about the window of chemo being most effective, which I've read is 3 mo post sx. Early Nov is 3 mos po for me. While I don't relish starting chemo, I know I have to soon. Much love to you all! xo
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priceless Annie
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Jabe, we are on the same regimen and schedule. My second round is this Wednesday. Ugh. I was feeling great the last week and a half, but the dread of the next round is getting me down. My mind just keeps saying "I don't want to do this" and I get angry and frustrated. I know I have to do this and I know it will be over some day, but I also know I have to work my way through the anger and tears and loss as well. I never thought it would be this hard emotionally.
I look like a chia pet with my buzz cut.
I don't know whether to laugh or cry. Thankful I have a decent wig for going out. I'm not confident enough to go out in public without it. Maybe some day soon. Prayers and hugs to all of you! Thanks for letting me vent.
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We're all pissed today because we're all coming up on another round and are just seriously not wanting to do it.
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Annie and Katie: yes! So pissed about round two and not feeling comfortable in wig outside house but scared to do other than wig. Meeting folks for dinner (which is ugh cause food isn't my thing right now-appetite is there but most stuff doesn't appeal. Why did I say yes???) so wig or no wig???
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I've gone out with a wig and with just a hat. Honestly, I felt self conscious in both. My husband on the other hand, said the wig looked more normal and got me less looks.
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Thrilled to have found this forum and this thread in particular!
I am Stage 2B and my first chemo was Sept 22. AC Chemo #2 is this coming Tuesday, Oct 6.
My scalp began to ache today and I had been waiting to get my buzz cut. Well, after reading others' advice, I'm waiting no longer! Fury Road Look, here I come.
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Welcome Lisa! I have round 2 AC tomorrow.
This is a good group. It's helped me so much, not just with info but with genuine affectionate support.
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Annie - Thank you for the welcome! Having Round 2 within 24 hours of one another, I declare us Treatment Sisters. I'll be thinking of you tomorrow.
- Lisa 0 -
Hi LindyC
The 24th of December is my last chemo session. I too have radiotherapy scheduled in January. It's therapeutic to have an end date. It makes the treatment seem so much more doable. I had a reasonable amount of rest last night and feel much better today....isn't sleep a wonderful tonic. What I hate the most is how old and tired I feel...so roll on 2016 I've got a whole lot of catching up to do☺☺☺
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Hey Lisa! I'm sorry you have to be here, but this board is gonna get you through. Welcome. 💚
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