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Comments

  • AnnieB43
    AnnieB43 Member Posts: 724

    Artista is class mom today. She made me feel better. Thanks :)

  • Artista928
    Artista928 Member Posts: 1,458

    Awe, you''re sweet Annie. I'm still waiting to start chemo with a tentative start date of 10/26. I appreciate you and all here sharing tips so I can jot it down in my notes- so thank you all! xo

  • aggiemegs
    aggiemegs Member Posts: 86

    My MO told me the same thing as Artista. Keep on the nausea meds, even if you are ok. So I take my compazine every 6 hours and Zofran every 8, with Ativan as needed for any breakthrough. I have been a lot better about staying on top of the meds this time, and haven't had nearly as much nausea, thankfully!

    Just took my first shower since the hair started to fall. I kinda laugh/cried a bit when I saw how much was coming out. Definitely becoming more real by the moment. Just feeling weak and blah today. Glad hubby took the boys to the deer lease this morning so I could get some good rest finally

  • AnnieB43
    AnnieB43 Member Posts: 724

    my mom is bringing me Aunt Betty's black chocolate cake with cream cheese frosting. That'll make me feel better for sure.

  • aggiemegs
    aggiemegs Member Posts: 86

    Annie, that sounds amazing!!! I'm so annoyed with my tastebuds. I can only taste very basic flavors, nothing complex. I wanted some fruit punch earlier, so I poured a glass. It smelled amazing, but tasted like sugar water. All I could taste was sweet. Blah. Kinda how everything is right now. Except eggs. They taste like eggs. Anyway....enjoy some chocolate cake for me

  • aj93
    aj93 Member Posts: 37

    hi all, I don't post much but I just wanted to let everyone know, I love this group. All the photos posted are absolutely beautiful. I don't have children so those with kids, I am in awe of how you do it. Everyone has inspired me in some way to fight, stay positive and just be the best person I can be during this time.

    Grey, I think of you often.I hope you still follow this group and know that we are all thinking of you, sending you positive vibes. Stay strong, don't allow this crappy BC let this get the best of you. While it is an unnecessary evil that follows us like a dark cloud, but that cloud will disappear and make us all the more stronger.

  • octogirl
    octogirl Member Posts: 2,434

    SC, damn! Now you have me crying like a baby too!

    xoxox

    Octogirl

  • LindyC
    LindyC Member Posts: 210

    Yep SC...tears here too...geeze that girl is gold!

  • Rosieo
    Rosieo Member Posts: 200

    Southern Charm

    What a beautiful message. I too have tears in my eyes. Your daughter sounds like a beautiful person just as you do thru all the posts you put on here.

    God bless all our daughters and sons. We as parents do know that they worry about us.

    Rosieo

  • Scotland
    Scotland Member Posts: 216

    Southern, you have raised a fine young woman.

    I've ventured forth a few times in hats/scarves this weekend. It hasn't been quite as strange as I'd thought it would be. Yesterday I had enough patchy hair left to look like I had mange; today it's just really sparse, really thin hair.

    Taste buds are at their lowest, as is appetite. Annie, I would love to taste that cake (dark chocolate with cream cheese frosting is one of my favorites). Or the brownies my daughter and her friend just made that smell so amazing. At least the house smells good. I just got back from a long walk in the cemetery with a friend from college, and I feel a nap headed my way. Naps for everyone

  • staykarlastrong
    staykarlastrong Member Posts: 16

    AWW! SC, what sweet note from your Daughter ! Love itHeart

    Stay strong ladies! We are all in this together . Im getting ready to go round 3 on Tue!

    Hugs!

  • mom2boo_and_buzz
    mom2boo_and_buzz Member Posts: 133

    Southern, I am bawling over your daughter's words - so beautiful! She is just as strong as her mama! I hope my daughter grows up to be such a fine young woman.

  • Shopgal2
    Shopgal2 Member Posts: 594

    wow southern I am so full of tears I am speechless. You did good with your daughter. Just wow.

  • AnnieB43
    AnnieB43 Member Posts: 724

    Alright crying my eyes out. I wanna be Southerncharm when I grow up!

  • AnnieB43
    AnnieB43 Member Posts: 724

    Anybody want my FB address PM me. I'd hate to lose track of any of you.

  • Minnesota_LisaFR
    Minnesota_LisaFR Member Posts: 316

    I experienced the predicted extreme post-chemo fatigue, both rounds 1 and 2 so far. But after somewhat normal energy Friday and Saturday, I was decked for most of the day today.

    Now at 4 p.m., I feel 90% normal. Anyone else on this Energy Roller Coaster?

  • Shopgal2
    Shopgal2 Member Posts: 594

    aggiemegs the hair falling out is the hardest part. The buzz is hard too but it feels better to get those shedding hairs off. You can do this.

    Scotland hold your head up high in those scarves and hats. Attitude is everything. Rock it.

    Annie I take zofran also on AC. It can cause constipation along with the chemo and steroids. If you are nauseous take the meds. My nausea comes in the morning and goes away when I eat. Try crackers, pretzels, or animal crackers with ginger ale. Small meals help manage the nausea I find. My nausea did get better the 3rd round after my mo put me on protonix for the acid reflux the chemo caused.


  • aggiemegs
    aggiemegs Member Posts: 86

    Wow, Southern! What a proud mama you must be to have raised a treasure like her. Beautiful, touching, and made me bawl like a baby!

  • aggiemegs
    aggiemegs Member Posts: 86

    Shopgal - it's scheduled for 9:30am tomorrow! I know I will feel better when it's all done. The leading up to it sucks though. This is the first time I find myself crying so far...,although wait, I also cried when I realized I will no longer have nipples, but that's a different story, lol

  • Shopgal2
    Shopgal2 Member Posts: 594

    I bawled like a baby when the huge clumps came out after a hair wash on day 13. Big gut wrenching sobs. Be brave girl. You got this.

  • AnnieB43
    AnnieB43 Member Posts: 724

    Some of my fuzz hair is growing, but it feels more coarse like pubes. I certainly hope my hair doesn't come all the way back as pubes. You survive chemo but sorry now you're a pube head!

  • jabe
    jabe Member Posts: 165

    SC: hugs to you and your daughter. I hope my 9yo daughter grows up to be as sweet and proud as yours is.

    I just described to my husband that many of us are talking in here about low appetite etc. he says "it's like living in a sorority house. You're all cycling together". Hahaha. Now if I can figure out something to eat for dinner. Reflux med--then spaghetti-os?

    Those dealing with hair--I found sobbing in the shower to be quite cathartic. Good news? I'm adjusting to my uneven bald/buzzed look

  • twiggyOR
    twiggyOR Member Posts: 246

    SC, your daughter's words,are very touching. You did a fine job with her!

    Aggiemegs, my hair came out in clumps on day 16. I cried and cried with my hubs and then he shaved the rest of it off. I still hate it but the daily anticipation of when it was going to happen was harder on me than anything. I keep telling myself it will grow back eventually.

  • twiggyOR
    twiggyOR Member Posts: 246

    Speaking of Facebook, when my youngest son was in basic training one of the mom's started a closed Facebook group for the families to connect. I'm not very Facebook savvy but maybe we should do that. ????

  • Shopgal2
    Shopgal2 Member Posts: 594

    Annie I said yesterday that my hair was growing then a lot of buzz fuzz left in the shower. They all piled in the corner of my tub waiting to mock me as the waited to wash down the drain. Now I look balder but with a ceaser like crown of new stubbly bits like a ring around my head. Yuck. Pubes had me rolling with laughter just what I needed to make me smile.

    Jabe I wish I could eat spaghetti with reflux. I miss spicy stuff. Too burny even with meds. I'd kill for some chipotle takeout right about now. Spicy salsa mmm.

  • AnnieB43
    AnnieB43 Member Posts: 724

    so I took pictures of the top and back of my head just to see what it looks like. It's weird! Freckles and spots I didn't know we're there. I need something constructive to do I think. :)

  • AnnieB43
    AnnieB43 Member Posts: 724

    Spaghettios. ....oh ya I'm doing that. It's kid food so it's bland but yummy.

  • jabe
    jabe Member Posts: 165

    we'll see if I can handle the ole spaghetti-os but I'm going to go take an extra reflux med before as it is the only thing that appeals. Annie of spaghetti-os appeal try chef boyarde beef ravioli too.

  • AnnieB43
    AnnieB43 Member Posts: 724

    I cant rock the ravioli. It's the texture I think, but the O's are old friends from college.

  • aggiemegs
    aggiemegs Member Posts: 86

    Ravioli, oh my yum! I wish I had some of that on hand! Doubt I could taste it, but I surely would try!!!!