Starting Chemo in February 2016?
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Thinking of you LTF. Here for you Hanley et al!
New symptom for me. Not painful but the red patches are coming up on left side of my palms. And dry flaking skin. More hydration needed me thinks.
Scotbird my love, no complaint ever to big or too small. The one thing any human owns out right are their own feelings.
Stay strong warrior princesses! My daughter's teacher says I need to write my own battle cry song! Lol
Piper 💕
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Piiper be ware of hand and foot syndrome. If you notice sensitivity to heat, call your doc. They were thinking thats what I had for a while but it attacked that back of my hands instead of the palms like it normally does.
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Day 2 on Infusion 2 - wow - lots more fatigue this time. Steroids don't seem to be having any effect. Last time I was all a buzz, working, etc., until the day I was off them and then crashed. This time it's like they are placebos. I stayed home today - just monitoring email and napping. All my bloodwork looked fine, so I don't think I am anemic or anything. Thankfully, I don't seem to be having any other SE so far (knock on wood).
Wishing I could crochet - it's my go to "down time" activity, but I'm trying to limit busy hand work to keep circulation low these first 7 days to limit "the itch" that may return. Typing is the one must for work, and I can even respond by voice to emails on my phone now and again. Talk about feeling like a princess...lol.
Thankfully I have a bunch of TV on the old DVR to catch up on in between dozing off today.
Cheers to Round 2 and 3ers.
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Thank you, Scotbird.
Prayers for a second wind for all you with fatigue. Last time I felt like I slept days away. I'm trying to prepare ahead of time for #2.
Piper- praying for peace from the itch. How frustrating!
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well, my surgeon took magnified photos of right breast for my onc and ordered ultrasound. There are definitely changes. The redness is also underneath and breast shape elongated. Good thing chemo will kill cells. It may last longer. I'm not letting this get me!
#fucancer
Love to you all💕Pip
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sorry to hear that piper. On the bright side, hopefully it means you will get it all in one shot and be done with this for good!!
I'm still feeling crappy. Bodyaches and so tired. Dragged myself out for a walk anyway. Really hoping to perk up tomorrow, because it is my daughter's 13th birthday
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True LTF. I'm still having a right mastectomy in any event. This will all be over none too soon. Hope you are getting rest and tomorrow is lovely for your daughter's birthday.
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Scotbird- I can relate to the mood swings...sometimes I feel like crawling in a deep dark hole not to be bothered...other times I am social, and genuinely happy! Today, kind of in the middle.
Piper- yes, more hydration needed for me too. Skin getting dry but I'm just not interested today in consuming my 70 oz today. Sometimes I'm a good girl, other days...not so much. Sending you ((hugs)). Hoping chemo does its job and you're other breast is a-ok!
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Hang in Piper, you've got this. Sending ((hugs)) and healing thoughts.
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5th treatment. ..7 more to go.
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hanging in reflect!
Looking fab Praline
Hope your night is well and resting LTF
All ladies...thinking of you !
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LTF, hope you have a fab day with DD tomorrow! 13? Legit teenager.
Praline, lookin good! So nice to see a smile!
Piper, Sending hugs!
Chambo, I can get about a row or 2 done before I'm exhausted. Not much progress on hats but I figure they'll be done eventually
I had some really good news yesterday! Went to the SO and she said my tumor is shrinking! She can tell a marked difference and if it continues, I may just need a lumpectomy when all the chemo is done! Woohoo!
We talked a lot about the new normal and she assured both my DH and I that doing nothing for days is just what the doctor ordered when necessary. I'm 8 days out on round 2 and the SEs are all manageable except for the heart palps. So, for now, I'm taking it really easy, spending a lot of time hydrating with electrolytes, sleeping and watching tv. Not much else. She said if you push it, you can set yourself back a few days. No thanks! Meanwhile, everything tastes remarkably sour and salty. Ick. The only things that have any taste are vanilla ice cream and Jelly Bellies.
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LTF. You have a teen! I wish a Happy Birthday to her! Hoping you can celebrate. 🎂
Thank you Myra. It's symptoms of that dastardly inflammatory bc. I still know I will be fine. I'm so happy happy your days are becoming more tolerable. Just ease into your new norm. What fantastic news for you re: shrinking tumour. Xo!
So, I feel like an idiot. Two days ago when I sent an email to my onc primary nurse for onc to read about family heart issue result of sis, my MO called me right away being grateful. Now, don't me wrong, my primary nurse is my life line and I love her even with the chemo debacle...so yesterday I emailed what was going to be sentthere from here from my BS. One line response "Don't use this as point of contact." I feel like an idiot as I said. Almost a lump in my throat for feeling like a bother. Why is this strong woman in me so sensitive!?
Anyway, my new fave? Creamsicle ice cream! 🍨
asher and chambo hands are good. not itchy or sore, still bumps on right of palms. I am still watching it.
Here's to a good day to all
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LTF Have a great day celebrating your daughters birthday.
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I am still miserable. It's not so much the pain I am just so tired and disoriented and dizzy. When I was on FEC, by now I was seriously starting to feel a lot better. I'm actually feeling worse day by day on the taxatore! The good news is my oncologist said she usually gives a full dose for the first one, then if it's hard to tolerate she lowers the dose. So hopefully it won't be as bad for the next two.
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Jill, I HEAR YA. it's kind of unnerving when days go by and you actually feel worse sometimes. Chemo is diabolical. So different from regular sick where you feel a little better each day. Sending hugs
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Piper- that would've upset me, too. Perhaps she was having a bad day?
LTF- Happy birthday to your teen. I hope today you're feeling better.
Myra- Congrats on your tumor shrinking!
Hugs and health to everyone
Hope you all have a lovely weekend.
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praline- you are an inspiration!
Ltf- I'm right there with you... I'm exhausted! And dizzy, and nauseous.
Thanks for the well wishes everyone! Day 5 after my second infusion and I'm feeling much better... But still dizzy and out of it. And they said this gets cumulative... What the heck with the next few feel like??!!
I'm keeping up with fluids, no steroids this time either. And I'm taking the zofran as directed/needed. But even looking at Pralines picture hooked up... That made me nauseous!! No offense praline😘 I've been living on fruit and nuts. It's really all that appeals to me. I did have some veggie fried rice last night which went down fine. But the rest of the Thai food that my family ordered and the smell of the pizza... I thought that I was going to heavah! My family just doesn't get it.
My buzz is looking nasty from the back n sides due to wear n tear from sleeping so much this week. I'm nervous to cut myself shaving heading into a low wbc week... Is it as easy as shaving our legs
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I'm keeping up with the shave in the shower. I sit under the shower and soap up my head really good, then use a 3 blade razor and GENTLY go against the grain. Learned the lesson of razor burn from scraping too hard! I prefer it smooth since the stubble is like Velcro on the hats.
So, question... When you guys say dizzy, what does that mean to you? I'm finding standing upright is entirely overrated. Right now, anymore than a few seconds on my feet lands me flat back on the sofa. I get a strong weirdness in the pit of my stomach and my heart starts to beat really fast. Basically, I feel like I'm gonna pass out. Just wondering what your dizzy symptoms are?
PS, sending DH out for creamsicles today!
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Myra I get the same. I feel almost feverish if I am on my feet too much, even though I don't run a temperature
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Soooo.... Just lost most of my buzz in the shower!
Myra/LTF- I have the exact same thing! I actually took my temp yesterdAy to make sure I wasn't running a fever. It was like a hot flash, quick sweat, felt it in the out of my stomach and really thought that I was going to faint. All I did was get out of bed to make some toast! After I ate, I got back into bed and felt better. Maybe we all get this due to dehydration, lack of food? Plus chemo detoxing...
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just woke sick sick sick. So nervous about taxatol addition in April. My cycle moving up a week makes me anxious too.
Maybe a creamsicle or creamsicle bowl of icecream when stemetil kicks in. Please hurry!
Hope your day gets better those suffering and thanks asher et al
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Yep, ladies, I got the lightheadedness this round too. Day 3 for me which is the day the steroids go away. I was super tired yesterday even with them - slept all day off and on. Went to the grocery store with the hubster and had to go to the car while he checked out because I thought I was going to faint. I think I locked my legs standing there too long. Sitting up seems fine but standing feels really weak. And I definitely have the hot flashes with no fever. My tongue is already sore but no coating - I think it is re-aggravating what was sore last time. I've started the baking soda/salt rinses to ward off the thrush - but I've got my diflucan on stand by...lol.
I can only taste tangy and salty things - everything else is just bland - I think I lost those mild taste buds. So weird.
This skin is now peeling off the back of my hands where the worst of the itch was - it had gotten thickened, like eczema sort of, and now is peeling like a sunburn would. I guess I am molting...lol. Hoping and praying the icing mittens prevented it from occurring this round. Won't know for another week since it seems to start with the Nadir time period.
Maybe this is just March Madness for us all???
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Hello all,
I've started the process of getting a second opinion from Dana Farber, and hadn't heard anything back from my MO. Well she called this morning (Saturday!) and we had a talk. While she trusts the radiologist (who is now saying his is not worried about my L breast, after planning biopsies) she feels I am entitled to another opinion. I should, however, go through my primary. (who I've had zero contact with except at the very beginning, when I asked her if I should choose care at the larger center they are affiliated with. She got kind huffy and assured me the docs at the local were excellent. Well, they weren't and I ended up with repeated tests and finally, a dx.) She hasn't called or anything which I think kinda stinks. I've been seeing her for years and have always really liked and trusted her. Anyway, I have to call her and ask for referral. I can tell her I have the support of the MO. Just don't want any grief about it. The local is obviously (after my discussion with MO) a bit sensitive about their status. MO thinks they should focus on being excellent at the basics, and send other folks--like me--on to the specialists.
Anyway, that's where that is.
Picked out a wig with dd and will get it Friday. Hope I still have hair!
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Well, rats...was thinking this round was going better. Even though I got a neulasta injection on Wednesday, apparently my white count tanked again this time. I've run a fever (100.5) most of the day and I have thrush again. The dr called in some levaquin that I started on this afternoon. I hurt so bad all over. Here's hoping tomorrow is better.
This is rough. My husband has stage 4 lung cancer dx last September. He has 2 more days of radiation and then starts Opdivo on Thursday. We both feel like hot garbage.
While I'm typing this my sweet neighbor is outside mowing my yard.
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(((Hugs))) dgail
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Oh, Dgail, hugs to you and your husband. I am glad you have loving neighbors.
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chambo - oh the peeling skin. Yesterday I slathered medicated cream for dry skin all over my hands. I also started on my face. March madness? sure, let's say that. Hope you are better today.
reflect - I'm glad you started the process. I understand the excellent care to the experts thing. Still, from what I've read this is enough. Those words "be your own advocate" is so very important. I am hoping this process runs smoothly and brings you what you need. Thinking of you.
Dgail - exponential (((hugs))) to you and yours. Hope things are better today.
Seems like this week we will be all be down more than last.
as always, thinking of you all Piper0 -
Insomnia, Daylight Savings, and my iPad have me all confused...is it really 6:30 am or 7:30 am in disguise...gah! I hate it when I am never sure if the electronics have automatically caught up with a time change or not...lol. I will be happy for more light at the end of the work day though...I need my sunshine.
Lots of tossing and turning last night with hot flashes. And I definitely don't have a fever - in fact my temp is always the other direction...96.7 when I got up this morning...I think the highest I've registered is 97.8. If I ever get to 98.6 I'll probably be in the throws of a fevered meltdown. No wonder my poor body doesn't know what to do with all the added chemo chemicals - it barely knew what to do with normal body stuff.
For those of you getting 2nd opinions - stay strong. I think you have to take control - especially if you are in small towns like me. The local primary care docs are just so used to dealing with day to day ailments that I think they get numb to the possibilities. I've been watching my right side now for a while (same side as lump). The nipple is puckered - I can't decide if this is due to how the skin is still being pulled up from the lumpectomy or new puckering. It's a long way off from where my tumor was, and no pain...just tucks in where it didn't used to. So...hmmm....MO? BS? PCP? Am I being paranoid? Probably, but hard not to be when you're getting chemo for one tumor and TN.
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