Starting Chemo in February 2016?
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Myra, hang in there my friend, just breathe. Glad they did not start you right away, just a couple more days my dear. The end of this chapter is near
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Final Chemo! Friend made my sign for me!
My son and great friend...made this day better than I ever would have imagined!
Love Shelly Brown Jewelry! This picture even made it to her Facebook page. She is very talented, as is he husband, Zac Brown of the Zac Brown Band.
My son with me as I rang the bell with many cheering me on!
I have my first radiation "planning" appointment in 13 days. Hope I feel okay! The day after that I will have my 3rd syma scan of my heart for my MO who I will see a week later and also get my Hercepton that day. Tiring just thinking about it! So glad this part of the journey is complete -except my upcoming SE's. Was told today how many tx's of radiation I will get. I think she said 15 and 6 boosts but not sure! Can't be chemo brain because my friend cannot remember either! Time to load up on the meds, take a sleeping pill and chill out! Had a great celebratory dinner at The Keg tonight, it is a great steakhouse here! A real treat!
Thinking of you all!!!!! Xox
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p.S. Can't wait to,get rid of the steroid face and body!!!!!!!!
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Great job Karen!
PS - I have tix to Zac Brown Band on July 16th to celebrate my last rads on July 12th!
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Thank Chambo!!! I have tickets for July as well, in Kitchener on the 8th I believe. May be a little sore but I know I will be taken care of! Hopefully going to go to Saratoga to see them on labour day weekend too. Last summer I travelled with my friend in the above picture and saw them 5 times. Best fan club and people ever! That's how I met my friend above! Glad you are celebrating by seeing them!!!!!!!!
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Hey Fab Febs!
It's so great to see those finishing chemo. I finished AC and started weekly Taxol yesterday. I had no allergic reaction so I hope they reduce or drop some of the premeds. Benadryl always knocks me out. I plan to ice next time to prevent neuropathy. I'm already on Lyrica for sciatic pain, but I added a vitamin B complex for the neuropathy and to help hair growth.
There's been a little drama with my in-laws. My husband's stepmother sent a long email apologizing for not checking up on me due to some health problems of her own and that my SIL is angry with them for not going to my nephew's wedding. My FIL also has health problems plus they don't have a lot of money. We aren't going to the wedding either because it's during chemo. She hasn't said anything to us, but she asked my stepmother to ask my husband to call her (?). She must not be happy with us either if she can't call or email her own brother like before. I replied to my stepmother that I don't feel neglected by her, that we're both managing our health problems, and she shouldn't stress about my SIL or me. Oh, my husband refuses to call his sister, and she isn't answering my FIL's calls/emails. That last part is the only thing that bothers me. My FIL is in declining health, and he deserves better. We supported her when she needed it, but we get nothing when we have problems. I'm done with her. We will send a nice gift to my nephew.
Since I've stopped working, my goal is to rest, take long baths, watch my hair grow, and exercise to get rid of my sciatic pain. I stopped my treatments once cancer arrived, and now I've lost significant muscles mass and my hips are misaligned again.
Be well, everyone!
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So lovely to hear that everyone is finishing with chemo and making plans. I think I'm finally over the SEs from my last one today, thank goodness. Thanks so much to you all for sharing and for making this easier than it would have been. I really appreciate each and every one of you. Let's stay in touch! X
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Hello all,
Checking in the evening after Taxol (paclitacel) # 2 (weekly. Felt like I'd just left there. I asked if benedryl could be omitted or reduced and they cut it in half--much better. Also I am getting steroids and pepcid in addition to bene for premeds. Hope I sleep at a reasonable time tonight. Food is uninteresting (no weight loss noted however...). Last time days 3-4 were the hardest--achy all over--I worked day 5 but was really tired and stayed home day 6 (didn't have a ride to work, 1 hour commute too much for me). I had my echo this AM (for shortness of breath) and the tech said she didn't think I had to worry. Thank you tech! Ejection fraction apparently in normal range.
Mulling the idea of LTD (I have a policy at work, but it doesn't kick in until 60 days no work, no income. No idea where those $ would come from, we are paycheck to paycheck here) I have some extra coming in from some consulting work, and offer or more (can be done at home if I have energy). Maybe it would be enough to carry us until the LTD kicks in.)
I am just...so...tired.
Piper, you hang in there, you are going to do this and ring the ##$#%%$ bell.
Myra, loved your rap/poem. You broke the mike girl. I am only thinking about the possibility of being creative again (printmaking, sewing), maybe I can do 5 minutes towards a new project at a time. I want to feel like myself again. Whoever that will be.
xo love you all. Hope some of you continue on this thread as I'm going through early August with Taxol!
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Hi Reflect
I will be on Herceptin until April next year so will still be popping in here as I know some others will be on it too. Hope your SE's stay uneventful this time for you. Mine are not too bad yet but I keep forgetting I was on a Tuesday this week not Monday. Have been rinsing my mouth all the time to try to prevent the mouth sores and really watching that I eat nothing to set them off. I think I gained 20 pounds in this process but can definitely see the puffiness in my face and body from the steroids. Going to start walking more with my dog as soon as these side effects clear and I can breathe better again. The nice weather sure helps! I hope you can figure out a plan to take a work break. I thought I would be back by now and been okay but not the case at all. Very tired and cannot imagine standing all day running around, let alone half an hour!
Thinking of everyone this week. Hope those of you who had Chemo with me this week are sailing easier through the SE's and can enjoy some sunshine this weekend!
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I guess this chemo was not walking away quietly. Uggg I was hoping for an easy one!
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Thanks Karen, and hang in there Frances. Forgot to mention I have like 3 eyelashes on each upper lid and about 8 hairs in each brow. I have very light hair so not worrying about it, but it is very strange to me, also lashes keep getting in my eyes when they fall out.
Minor issues, what with everything else.
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Sounds like me. Brows are done ...they were coming back but this last one will change that. A few lashes left as well. I just hope they come in quick to help with all the watering eyes. Hair on my head is growing though....a little...but a little is exciting at this point! Watching my nails...worry about my big goes nails as they are sore.
Hang in there Frances...almost complete. Thinking of you!
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Hey Karen and Reflect, my eyebrows are starting to fall out now too. Really I went this long. My nails are so sore. I did lose my one on my big toe.
Such fatigue this time around and the kids are out of school.
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Are you two icing? I keep meaning to get it together, but have done 1 & 2 without. No problems yet but I am concerned.
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I iced all 3 of mine, they supplied it for me. I do have sore nails a bit and have read they can actually fall off long after. Oh joy! Frances I just lost my brows on my last one, was seeing them just start to grow again.
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Frances, hang in there Girl! Hope the worst of these last SEs are on their way out.
I feel so much stronger and So glad they had me wait another week for my last one but I'm not looking forward to the last round of SEs either.
Re: Toenails....I had just taken some Tylenol before I logged on...LOL. My damn toenails on my big toes are so sore, the pressure from the sheets is making me want to cry. The right one's starting to lift so it won't be long now. I was diligent about icing my hands and feet every round... I guess it's just one of the door prizes.
Re: eyelashes... I was holding on pretty good there until this week when half the lashes on my right lid fell out. Left lid is sparse but we'll see if I can keep them for another minute. Brows are thin but still in fairly good shape...I pencil them in a little when I go out. Oh who'm I fooling. The only place I go is to the Dr's
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Well I can certainly feel today is my usual Friday feelings, which is terrible. Neighbour went outside around 11 last night with some others while drinking and woke me up and kept me up until 12:30. Was awful feeling terrible and listening to rambling drunks! Have felt terrible all morning, lying here. My head sweats so much. I think it is from the steroids. I wake up and my pillow is wet, my head is damp. Cannot wait for this to be over!
One of my big toes is really sore too ...the treatments that just keep on giving. I have some incontinence which I have never had before as well. Going to have to get my son to pick up some groceries today. Fridge is empty. On a good note, no mouth sores yet. Wish I could flash forward a week and be done with this
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Having the last chemo is such a milestone, and it's great to have it done. Mine was 2 weeks ago and I keep thinking I should be getting over it and feeling much better by now, but I'm still exhausted. Have to rally myself to get up and go out for a walk each day, and cooking dinner feels like running a marathon. Every day I tell myself, I'll feel fine tomorrow, but so far it's not really happening.
My nails actually are OK so far, but my whole level of energy is rubbish! Funny thing chemotherapy, very unpredictable. But at least it works! X
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Hi all!
Haven't been on in a while. I'm over a month from my last chemo. I have all my nails......although my fingernails have these wavy ridges going across them close to the cuticle. No issues with my toes at all. I still have my eyebrows and lashes albeit they are thin. I STILL get easily tired though. Just going shopping, coming home, putting everything up, tires me OUT!
I have a little hair growing. It's very light so I'm going to assume it's coming in gray. Yay.😒 I haven't had my period since March, so I guess I'm in chemopause. The hot flashes.......WOW. Out of nowhere....BAM.....my head and chest...INSTANT heat. Really really annoying! I go on Tuesday for x-rays for radiation. I've already had the ct scan and tattoos. Otherwise...I'm doing ok. Hope everyone is doing ok!
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Well I just spent the last 3 days in bed, aching from the Nuelasta shot -even with clariton and Tylenol, sweating like mad (mostly my head-glad there is no hair tight now), falling asleep for hours on end just to wake up hot and confused as to where I am and what I am doing. ...along with all the other fun stuff! Had a good shower this morning, going to try to get the dishes done. Just feel really weak but I guess I am on day 6 and probably this is my normal for now. Really need to do laundry but one step at a time today. I know I'm exhausted when my son kills a monsteous spider in my room (last night) and I still passed out! Normally I would have come slept on the couch ...not that it has happened before!
I have one sore in my mouth, of course at the back left of my throat that I feel every time I swallow. Seems like the favorite place for me to get it, although I usually have more and am thankful it's just one!
I wish I didn't feel so weak and out of it. This one has been harder on me emotionally as well. I've kept a good smile on thru all of this, I think it has caught up to me and I am just so tired. One week and I go get my pre planning for rads. I hope everyone is feeling better than I am. Some days I feel alone because no one really knows how tough this is!
Thinking of you all xo
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Hang in here Karen, you are nearly there!
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Ah Karen, sure you'll feel better in a few days. One day at a time my dear! Look after yourself and don't worry about dishes, laundry or anything else, it can all wait. X
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I'm having a terrible time with my nails, too! I'm halfway through Taxol and I've already done AC. My first three fingers on each hand and my big toes: the nails are lifting up and there is fluid coming out (gross, I know). The fluid smells and is cloudy. The nurses say it's an infection but are hesitant to give antibiotics until we absolutely have to. Instead I have been doing soaks with Domeboro salts. It seems to help but I have no clue what's next- will they lift completely off and fall off?
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Hang in there Karen, day 8 and I think I am start to get energy. Not sure why this one was so rough.
seejuliago- hate that about your nails. Mine are just really sore to the touch and ridged. Yours sound painful.
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it's better now chambo. Did the Claritin as well. I always forget the pain when it ends...until it happens again.
Karen hope you are getting better
Reflect sharing hugs
Myra hi! Sorry haven't been around. So much happening.
Frances I can't seem to read all posts but saying hi to you and Nola too
Thinking of everyone always. Rads ladies...you rock. I won't be there until July
Piper
Bragging about my girl accepting an award from hockey great Bobby Orr for youth excellence
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Piper! Congrats to your daughter! That is so special! Glad to see you posting.
Seems to have been a little rougher for all of us this time. My nails are fine. I was worried about my large toe nails at one time, they really hurt but seem to be okay. Seejuliago I have read some people put band aids on their loose nails so they won't get torn off ....I would assume they will eventually fall off. I'm sorry you have to go through that, sounds very unpleasant to have to deal with.
Frances, yesterday wasn't too bad but last night I got the big D and was up with that. I slept in until 11 this morning through someone cutting a tree down, so clearly still tired! I did manage to get all my bedding and pillows washed and fresh too, nothing I love better! I'm still feeling like I could sleep though so that may be the direction I take shortly.
Thank you Scot and Reflect, always seems so awful at the time but I am finally seeing the light at the end of the tunnel. Tired of being tired!
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Ladies, Today I am started to feel like myself! Thanks god!! and just in time for a long work week. of course.. back to the grind right..
Thankful to have that chapter behind me.
Piper - Congrats to your daughter!
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Thanks for the tip about the bandaids, Karen! I'll give that a try.
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Look a few lashes and eyebrows left but the my normal mousy brown hair color is coming back in on my head. It was just blonde stuff but noticed this wknd it was getting darker! Tired of the eyelashes falling into the bottom lashes and annoying me.
The neruropathy in the fingertips is lasting longer and stronger after this #7 taxol. So adding Glutamine to my B6 and B12 today. I didn't have it last week but noticed it a bit the treatments prior. Nails seem normal. Bloody nose getting worse but I'm sure air conditioning and allergies contribute to that
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Haus- Love it! Time to get the hair back!
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