peritoneal carcinomatosis
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Thinking of you everyday Hummingbird and praying you are feeling much better soon for the Holidays. Same to the rest of you lovely ladies!
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Good morning! I have been doing better this week. Supposed to have Halaven tomorrow. Neuropathy is so bad. Got out for awhile on Sunday afternoon with the help of my daughter and husband and walker. My husband just ordered for me the Drive Euro rollator for Christmas. Can't wait. I have to be able to get out and walk so I quit getting weaker. I'm all over the place this morning--sorry. Telling Doc I will come back to Halaven if I need to but I need a break. Think of all of you everyday. Hummingbird--you're very important to us. Hope you are feeling comfortable!! Love and hugs to all. Cahy
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Cathy - thanks for your update. Was glad to hear you are feeling better. I look on this thread each morning and night to see how everyone is doing. Did you have your Halaven today?
I go to the onc tomorrow to do bloodwork to see if my WBC count is OK. Just finished cycle #2 of Ibrance/Letrozole, so doc wants to see if I can tolerate the dose or if it has to be reduced. I don't know if it is working or not but I really feel quite good on this combination so far. My last chemo (Xeloda) was harder on me - nauseous and got bad HFS, although was worse as time went on and this combination has only been 7-8 weeks.
Thinking of you all,
Sheri
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I'm off Halaven! YEAH! At least for now! Not too soon! My daughter and son-in-law took turns holding me up today. I'm very wobbly! Between that and the neuropathy I'm an accident looking for a place to happen. Got my new Drive euro tall rollator today. It's FAB! It will enable me to get around more and get stronger. Turns out neuropathy could also be causing some of the weakness in my legs. I should find out next week or so what my Doc is changing me to. My brain tells me I can do anything but my body keeps betraying me. Hope I start to feel better soon. Thanks Sherri for asking! Hope Ibrance works for you! My love to all of you. Cathy
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Retrocath- glad you got your cool walker- euro tall rollator? I hope it works well and gets you on your feet with no falling.
Sheri- so glad the Ibrance/aromasin is working for you. May it keep you well and progression free for Years!! It is nice to have a pill and lab tests and not have to go in to the center every week. lucky you.
Hummingbird- I am sending you prayers and much healing energies every day!! I hope they are finished with the WBR and the news is good and the brain mets knocked back. Has the ascites calmed down? What chemo are they suggesting?
I had chemo yesterday. We continued on the carboplatin. The weather was dreadful, 2 hours with chains to Portland the freeway was icy and snow covered. Blessings to DH who drove the whole way. I puked when I got there and then again in the afternoon.. ugh. I got fluids and can definitely tell when the chemo wears off. I think this is working although the markers went up 97 point from last week. Once the chemo gets in it seems to work and for the next 4 days I will feel better then it slows.. such is the cancer roller coaster. Ascites is unchanged. I will see Christmas with the girls and DH!! Now just hope I feel well.
Love to all my fellow belly mets sisters and I am sending you healing energies and great love- lovingkindess to sustain you through these hard times.
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There is an article posted on BCMETS.ORG that talks about how cancer spreads and how researchers now believe that cancer cells can spread or seed long before the original site is even diagnosable. (is that a word?) lol I always feel sad for someone who has just gone through cancer treatment and their Doc tells them they are "cancer free." How could anyone possibly know that? It's good to have hope but I would be mad if I was given "false hope." Of course, most of us were kind of given that idea after our treatments-- All those statistics that when you read closer only talk about 5 years. So CHEERS to each and every one of us who deal with cancer on a daily basis, dealing with reality and knowing we can't be "cancer free." LOVE AND HUGS TO EACH AND EVERY ONE OF YOU!! I was wishing I was like Stephanie who was so computer savvy and would have known how to share that article with you. Miss you Steph! Cathy p.s. Wrapping you in a big hug Hummingbird.
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Sorry guys. I think my post was kind of a downer. Trying to do a big "F... it" at least we are still here but not sure I managed it with the touch of humor like I wanted. Some times I just miss!! Love you all, Cathy
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retrocath--here is the link to the article https://www.statnews.com/2016/12/14/cancer-cells-spread-metastases/
I thought it was very interesting. I've always thought cancer was a crap shoot. They can talk early detection for all--breast, colon, prostate, whatever. If you have the nasty kind that is aggressive and is going to spread no matter what you do. My dad had prostate cancer. They told us he would most likely die from another cause than the cancer as he was 76 at diagnosis. His was aggressive and he lived for 2 years.
I have started to tell some friends about my mets diag. It's been almost a year. You can tell immediately that people who have had breast cancer or have a relative/close friend that have had it don't want to hear your story. They want to continue to live in the dream that they caught it early and are cured. I definitely feel like the elephant in the room of pink ribbons.
I am thankful I found this board with fellow belly mets folks. It encourages me. I hope everyone on here has a wonderful holiday with their friends and family and have days of peace and no pain. Janet
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Thank you Janet for finding the link. I know what you mean. I was asked if I wanted to join a breast cancer support group. I was in a group back when I was supposedly stage IIA -- it was helpful at the time but now I would be their worst nightmare. There is some peace for me knowing this is just the way it was going to go. I have never asked "why me." and I have refused to take blame. Life is a bit of a crap shoot and this was my toss. I try to handle this with dignity and perseverance for my family. They need to feel like I fought to stay with them for as long as possible--so I fight every day--especially for my daughter, who is going to be lost without me, I know. We've just always had a very close bond. We bought a house with an apt. so my daughter, Amanda, and her husband, live with us. That way she will still have her Dad close and he will have her. They will need each other. She is so much help to me now. Does laundry or whatever I need if I don't feel up to it. Wrapping you all in a big hug. What a year we've all had....I think I will be glad for the new year. Cathy
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Hi all-
Cathy - don't ever worry that your posts are downers. I know we all need to have an outlet, so I'm happy we can be completely honest here with no retribution. This cancer ride is like a freaking roller coaster - so many ups and downs. I do think we take everyone's suffering so personally, as we each know how it feels to feel so bad. I personally had a "relatively" good 2016, after a horrible 2014, where I was in and out of the hospital on death's door, and a so-so 2015, terrible first half of year and OK second half. Now I'm concerned about 2017, as I don't even know if my Ibrance/Letrozole combo is working since it's too early to tell but my tumor markers have been rising. Just ugh. I do feel pretty well so I'm trying to really enjoy Christmas time this year, but it's hard when you don't know what the immediate future will bring.
I did find this article interesting too - thanks for sharing. Seems cancer is a hit or miss - can occur with what seems as no rhyme or reason. My cousin died at 36 of colon cancer (diagnosed at 31.) She seemed completely healthy - no family history of cancer, ate well, and was at a very healthy weight. It was growing 10 years in her before it became cancer. Her death has always been devastating to me - she had a 7 year old and almost 6 year old. She was just 2 years older than me and we went to the same college. 😥 Cancer sucks!
Hope everyone can enjoy family and friends during this time which always seems quite stressful. Rosevalley, praying you are able to eat. Hummingbird, praying for you too right now for some positive news. Hugs to all of you - you are all in my nightly prayers, belly met sisters.
Sheri
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Hi All. Will update as soon as I get some strength back. Still hard to even text.
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Hi Hummingbird!! Great to see you post. Praying for your recovery. Lots of love your way. To your Mom too.
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Thinking of you today Hummingbird. We are looking forward to you feeling better and getting some strength back. Take care.
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Thank you. After the whole brain radiation treatments (10), I had to have a NGT tube put in my stomach due to the bowel blockages. Had that for 3 days. Now tomorrow I will be having surgery to place a decompression peg in my stomach so that I don't have to keep coming to the hospital to release the pressure etc from these blockages. I'm very nervous about it, but I just can't keep struggling so much with this. Please wish me luck. If all goes well, I'll be home for Christmas. I've been here in the hospital for so long!!!
Love to all.
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Good luck with everything, Hummingbird. Wrapping you in a big hug with hopes you get to go home soon. I sure hope 2017 is a better year for you. LOVE, Cathy
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Hummingbird, wishing you the very, very best tomorrow and in the upcoming recovery days. You remain in my daily prayers - we want you home for Christmas too!
Big virtual hug to you!
Sheri0 -
Holding you in my thoughts too Hummingbird! You have been in there a long time and I am praying to hear you are home for Christmas! Love to you too!
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HI ladies. I don't post much but read this thread every day. I must be honest, as being newly diagnosed with mets I am frightened of what my future holds. SO different from 14 years ago when I was first diagnosed with IDC and loaded myself with information hoping to stay NED forever. Got comfortable at about the 12 year mark and then BAM! Like a few others said as well, I feel almost silly when I see what some of you all are going through when I am still feeling relatively well, back to work and functioning pretty much as I did before my surgery. My path report showed that I was pretty much full of cancer in my ovaries, right tube and ovary and my gallbladder (Which had a huge mass and was mush)
I have a question. What markers do your Docs draw. AS of right now mine is drawing a CEA and a CA15_3 every 2 months.
Hummingbird, Hope you are home for the holidays and can enjoy your family and friends.
You all are always in my thoughts.
Stacy
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Dear Hummingbird.. wow what a long ordeal you have been through. Prayers for tomorrow's surgery and may it relieve the pressure and back up. I know all too well what that's like and it's miserable. Lets hope it's a success and you get home for Christmas. Prayers and fortitude your way. ((Hugs))
Lovingkindness and peace to you all.
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Hi Harley honey, my doctor checks the CA15-3 levels which have fluctuated between 22-27. I understand anything under 30 is good. I have mbc in the omentum and bones. I don't believe the CEA levels are checked.
I too am at the beginning of the mbc journey and while I feel well and work full time my thoughts are with Hummingbird and Rosevalley who are doing it so tough at the moment. It is scary to get an insight into the road ahead through their suffering, but I do appreciate everyone taking the time to post and update.
Hummingbird I am sending you all my very best wishes for the operation to go well and for you to be home for Christmas with family and friends.
My best wishes to all my belly mets sisters for a happy Christmas and a 2017 that is healthier and happier than 2016
Judy xxx
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Harley honey- my MO does the 27-29 marker which is the breast cancer one. She doesn't do the other one you have done as I think it is more ovarian cancer . Even though I had mets to my ovary it was still breast cancer not ovarian cancer.
Humming bird- in my prayers 🙏.
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Merry Christmas everyone! I'm off Halaven -- the neuropathy I developed has inched its way up my legs and arms. According to a Dr. friend, I have motor (weak muscles and spasms) and sensory (numbness and tingling) neuropathy. He says some medications might help but no guarantees. I start Faslodex and Ibrance (100mg) next week. I was on the 125mg before and it was a bit hard on me. Always new treatment beginnings for all of us. I sure hope 2017 gives us all a break. LOVE AND HUGS, Cathy
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Dear Hummingbird,
Thinking of you and hoping you are able to be home. Wishing you happy holidays and happier, more comfortable days ahead
Big hugs
-Erica
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HI Stacy,
My doc checks the CA27.29 marker once a month. It really seems to indicate what's going on with my cancer. When it goes up, scans show progression and the ascites and edema are always worse. I had my first dose of Doxil. Here's hoping it works as well as the Adriamycin did. So far the only side effect that I notice is that I'm somewhat more tired than usual.
Love and happy holidays to all my belly mets sisters!
-Erica
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Hi Stacy - my doctor only does CA 27-29. Right now I do bloodwork every 4 weeks. This test has always been a very good indicator for my cancer. When this marker started creeping up in late 2013, we knew something was up. Sure enough, it took awhile to find it but my cancer had come back.
Wishing you all a very Merry Christmas and wonderful quality time spent with family and friends over this next week!
Much love,
Sheri
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Hi everyone. Merry Christmas to all. I hope you feel better Hummingbird and are out of the hospital and home. I am doing pretty well except for hearing loss, peripheral neuropathy and some bladder issues.. (TMI leaking..) no nausea and am able to eat a little better. I will take it! It will be a good holiday all the kids are here. Yahoo..
Lovingkindness and peace to you all. ((Hugs)))
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Well I tried to eat like a normal person at it was a disaster. DH cooked a fabulous meal and it all came back up. ugh.. I just can't eat anything with roughage and substance. What ever I eat needs to turn to mush and milk. sigh. It was worth it though. Christmas was good and everyone was here all healthy and happy - best gift of all eh? . I also pulled off 1500cc of fluid Christmas. I just used 2 containers. I knew there was too much left over for just one liter. Anyway tomorrow I get my hearing test and adjustment to my hearing aides! Yippee. I really need it. I think the word I uttered the most all weekend was "what?"
I hope everyone is doing ok. Hummingbird did you make it home? I hope so. My doc does tumor markers every week and they are a good indicator of progression. Beats a PET scan at 1200$.
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I don't know about the rest of you but I am so ready for this year to be over even though we go into the great unknown with the new President. Wishing you all the very best for the new year. HUGS, Cathy
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Hummingbird how are you? I haven't seen you post since the 20th. I am worried. Did you get out of the hospital and home? The WBR finished? Was it helpful? I am sending prayers your way every day for you and your Mom. Blessings to you.
Blessings to all of you.
I had a very hard day yesterday. It totally sucked. They waited to to do my chemo 2 days after- usually it's wed. We I had to wait until Friday. I was just sick as dog. I puked early in the morning, mid morning, explosively in the chemo suite until I choked. Kept nothing down. 24mg of zofran didn't help. I only asked for 500cc of fluid and I should have asked for more, my own fault. Cause after we left it was just non stop vomiting, at DD2's apartment, in the car all over myself since I missed the cup. At home the same situation just miserable. I slept in the recliner to keep the reflex and burning down to a dull roar. I woke up feeling pretty wiped out but ok. Ascites was still a liter never changes.
Happy New Year to my belly mets sisters. Lovingkindness to you all.
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Thinking of you too Hummingbird.....Rosevalley, that sounds absolutely miserable. I am so glad you are feeling better now and hope it lasts and lasts.
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