peritoneal carcinomatosis
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Oh, Rosevalley - here is praying for a better tomorrow and 2017! What does the oncologist say about your N/V? I know you are just so tired of getting sick. I can completely empathize with you and am wishing there is something better that can be done for you!
In my thoughts too, Hummingbird - please update us when you are up to it.
Happy New Year to you all! It's definitely not easy but I'm glad to still be here.0 -
I am so very sorry to let you all know that hummingbird4 passed yesterday. This terrible BC has taken another angel. My heart is very heavy
Babs
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Thank you, Babs, for letting us know. Hummingbird has been on my mind so much lately. I am just sick in hearing this. Heaven has truly gained an angel.0
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Gave me chills. So sad
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Oh Hummingbird, you were going through so much. I wondered if you could possibly survive everything the cancer hit you with. Such a big heart in such a beautiful person. MISS YOU! Cathy
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one by one my belly mets sisters are leaving. I feel I am next. The longterm ones don't last as long. Hummingbird you are free from pain and suffering, no more ascites, draining, intestinal blockages, brain mets.. the ILC nightmare is over. I will miss you. It's a New Year of peace for you. I will pray for your Mother.
Peace.
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Thank you Babs for letting the community know about Hummingbirds passing.
This is such sad news :-(
Sending our condolences to all who knew and loved her, may she rest in peace.
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I'm so very sad to hear of Hummingbirds passing. She was in my thoughts over the Christmas holidays and I was hoping she was out of hospital and home with her family. My thoughts are now with her family left behind to grieve. I know Hummingbird put up with so much from this awful disease at the end and I just hope her passing was peaceful and pain free. My thoughts are also with my belly mets sisters who I'm sure are feeling sad like me
Judy xx
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Judy
Hummingbird4 was home for Christmas although she really couldn't participate. She was in bed with her family all there. She was hospitalized again after but chose to go to a hospice center near her home as she didn't want to pass in the hospital. She left this earth in peace with her family. She was my wake up text every day. I reach out to text her but
I hate BC! I'm thankful she's no longer suffering
Babs
I
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Thanks Babs. I'm glad she was home for Christmas, surrounded by family at the end, not in hospital and at peace and pain free when she passed. Hugs to yo
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I'm curious how long each of us has been fighting peritoneal mets or other gastrointestinal mets from breast cancer. I was diagnosed 2 years ago but had symptoms for at least 8 mos. before that. Navelbine worked for me and then Ibrance and Letrozole. I just finished Halaven and am now on Faslodex and Ibrance. I guess having just lost Stephanie and then Hummingbird, this is all weighing heavily on my mind. I hope to be around for the next election......fighting hard!! LOVE and HUGS, Cathy
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Hi Cathy,
To answer your question: I was officially diagnosed with belly mets 2 years 8 months ago but tumor markers were rising 6 months prior to that. We knew my cancer was back when it was found in 5% of my bone marrow biopsy, but took several months after that to find it in my stomach. Funny (but really NOT) that they still couldn't find the cancer after 2 endoscopies (with biopsies) even though they could see that my duodenum was 100% blocked at that time. Was told it wasn't my cancer but was "inflammation" and was given protonix in pill form that I couldn't even keep down. Ugh. I'm still mad when I think about it! Had to go to Mayo Clinic in MN to find the cancer in my stomach.
I think about Stephanie and Hummingbird a lot too. There are not many of us here on this thread and those two were so precious to us.
Hugs to all, Sheri
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HI Sheri, I had numerous tests too before the ascites was bad enough that the fluid could be tested. My tumor markers don't change much so my Doc has to go by symptoms. I was doing well until August when I again started the abdominal pain and vomiting. We didn't wait this time for the ascites to build--he just put me on Halaven. I started feeling better almost as soon as the treatment started. The one bad thing I've noticed this time is that my abdominal area always feels tender and slightly painful and my G.I. system runs a little slower. Makes me wonder if from cancer cells or damage done from the cancer. I'm staying positive and trying to keep moving. Cathy
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I'm a newbie to belly mets - I was diagnosed on 29 Sep 2016. I had a biopsy of the omentum after a CT scan showed 'stranding and thickening' and this confirmed ILC. The CT scan also showed some lesions in the spine, so I'm now on Xgeva for this also. I hope for at least a year on Exemestane before other symptoms or progression occurs, but it's different for everyone isn't it? Next scans are in Feb
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any suggestions on how to get an emotional and mental grip on this. I have to take anxiety Med's to sleep and then again when I wake up. Always in a fog. Just can't seem to get it togethe
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Hey Dianarose, I think I'm in a bit of a funk right now. With losing 2 of our best so close to each other, this cancer feels even more overwhelming. I'm hoping I will feel better the closer we get to spring. I try to take it a day at a time; I try to not panic or worry about a symptom until I visit my Doc and get his opinion. I try to research my questions before I see my Doc so I know what to ask. Since I went to stage IV, my husband and I spent some extra money and went to London and Liverpool since we love the Beatles so much. I have a digital frame that continually shows pictures from our trip so I get to relive the fun all the time. We moved back to WA so I could spend more time with our daughter and have spent the last 3 years making memories with her, including a trip I took with her to New Orleans last spring. I had to push myself to get through it but it was worth every painful step and swollen feet and legs just to have that special time with her. I'm trying to make the best of everyday so I don't have or leave behind regrets. I also wanted to get back to Washington so that my husband and daughter would be together. I know they will do better if they have each other. I know this cancer will eventually get me, "BUT NOT TODAY." I'm hoping when that time comes I will be ready. I take Trazadone at night to help me sleep. If I needed something for depression, I would certainly talk to my Doc about that. And laugh.....as much as you can....I watch comedies with my daughter and we just howl. Wrapping you in a big hug..... Cathy
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News of Hummingbird makes me so sad, even though I'm brand new and really don't know anyone very well yet.
Cathy and Dianna I have been in a bit of a funk as well. Newly diagnosed in July I had been tested though since April for Symptoms that started in around February. I had been NED since 2003 so they were looking for everything else but cancer. Seems like I had every test in the world. They were about to cal it cyclic vomiting syndrome until a random doc in the ER ordered a CT scan when I when in for fluids because I had been puking non stop for 3 days. I try to focus on the fact that if they would have found in in the beginning the treatment or prognosis would not have been any different. My new mantra now is "Don't worry about it until it happens" Hard to do though. But I refuse to waste the time thinking about the future and what it holds while I feel good. I'm in California, so I can get pot to help me sleep.
Magpie, I am a newbie as well. Recurrence of original BC that is grade 1, so dodging a bullet for now and maintaining on femara. Last tumor markers had decreased significantly. I imagine because when they removed my gallbladder. ovaries, tubes and uterus they were all pretty full of cancer. I wish they would have removed the omentum, because that's the only place cancer showed up in my post op scan.
I really plan on posting more. You are all on my mind daily.
Stacy
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I am shattered by the news of Hummingbird. She was a very strong supporter for me all along and such a sweet and gentle woman. I had a feeling this was the case as I had PM'd her during the Holidays. Rest in Peace sweet Hummingbird and I too will pray for your Mom. You will be so missed....They found a strand in my omentum too on last scan so I feel like I am just waiting to progress. I am struggling with the mental aspects a lot, especially today. Prays for all of you ladies today who are having such a bad time with this and hope you are feeling OK today, tomorrow and indefinitely.
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Artistaheart- I too am struggling mentally. Have an appointment with a head doc on Wednesday. Ready for some Med's to calm me down and let me enjoy what time I have left. I wake up a total train wreck.
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Ugh - BC really does take it out of us in about every way - physically, mentally, and emotionally. I have never had any issues sleeping my whole life until I got on a 24/7 feeding tube in 8/2014. Ever since then I have had to be on some form of sleeping aid every night. I now take Ambien nightly and it still takes about 30 min to 1 hour to kick-in.
Dianarose, I'm so glad you are seeing a "head doc." It is important for us to be our own advocate and get all of our needs met. Some onc seem to understand that better than others.
I'm certainly praying for all of us who are struggling right now. It's tough even when we have pain-free or tolerable days, as the cancer beast sure does mess with our minds.
Rosevalley, how are you feeling today? Have you been able to keep any food down? Welcome to newbies Magpie and Stacy, and hello to Harley, Artist & Cathy. I hope we can keep this thread going, as I learn so much from everyone. Sorry if I missed somebody - hard for me to keep up sometimes as I definitely have some "chemo brain."
Hugs to each and every one of you,
Sheri0 -
Dear All! I'm embarrassed that I wrote all that stuff about travelling and making memories. It's okay if you feel good enough to do it, but a lot of us hardly have the energy to walk across the street!! I am just so glad we have a place to come to where we can just be ourselves and really express what we are feeling. I, too, since being on Halaven, have really tried to wrap my brain around that fact this this could turn at any time. None of us know how much time we have so I'm all for being your own best advocate and getting the help and drugs that you need to get through this . I'm celebrating (HA) 5 years out from being told I was Stage IV with the cancer all over my bones. I've had the peritoneal mets for at least 3 years, who knows, maybe since the beginning. I've been dealing with cancer now since 2002 at stage IIA--almost a quarter of my life. After my Halaven experience I will really have to take into consideration quality of life issues before another chemo. I just don't handle it well. I could hardly get off the couch. So if you need to vent, this is the place, and maybe we should all let our hair down and do more of it. My love to all of you. Cathy
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Cathy--You should not be embarrassed about posting what you are feeling. I am just 1 year into this whole mets thing. My doctor says what I have is slow growing, but it's been growing for many years. Initial diag was 1998 as stage 2. My husband & I have talked about it. I feel pretty good right now. Mostly tired and weak legs. We are trying to do as many things as we can now. We are both in our mid sixties. We figure even if things stay good with me, we have about 10 years of being able to get as many things done on our bucket list. We are taking our kids to Maui for a week in March to celebrate my 65th birthday and our 40th wedding anniversary. I am looking at it as making good memories. I have a 10 month old granddaughter. They live about 90 minutes away. I babysit 1 day a week. I want her to remember me. There are a lot of women in this group who are much sicker than I am. My heart goes out to them and I pray that they will find drug regimes that work for them. I've yet to hear the words "The scan shows progression". I know it will come at some point and I'm also sure it will be devastating to hear. This disease sucks. I'm glad we have this forum to vent and listen to others vent. I am glad I found it. I agree we must be advocates for ourselves, seek out treatment options and make sure our needs are being met by the medical establishment and our families. No one knows what it is like to be us but us. Janet
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Cathy,
Please don't feel embarrassed about writing about your good times. It reinforces to me that there CAN be good times! I have literally gone from weeks (or less) away from dying to feeling quite normal, and everything in-between. It gives me hope when I see some of us being able to actually live life, especially lately with the terrible recent losses of Stephanie and Hummingbird. We all know how quickly things can change.
I agree with you that this is our place to be able to share the good and the bad. So, I say, "You go, girl" and live it up the best you can.
Right now I find myself just wanting to decompress after the the chaos/busyness of Christmas. I enjoy the holidays but also find it a LOT of work. I was definitely ready for the slower pace again.
Keep sharing all - we are here to support each other through this!0 -
I have reached the point where I am afraid to make advanced plans because I never know how I'm going to be feeling. I feel flaky but I'm afraid it's part of my new reality. My husband is having back trouble so I've been trying to pick up some of the slack for him but my legs aren't very strong and neither is the rest of me right now!! Trying to not dump all of it on my daughter and son-in-law. Thank you for your wonderful comments. You lifted my spirits! BIG HUGS! Cathy
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Janet - I was writing when you posted. So awesome you are celebrating your milestones with a wonderful trip! Happy you feel well to do it. Creating memories with your family and granddaughter and doing what is important to you. Good for you - thanks for sharing with us!
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Cathy, never apologize for anything. This is a place where we can be supported no matter what. And we all have bad times and good times. I'll be great one minute and the next my mind is in places, ahead of itself with not one positive thought to be found! I remember when I was really sick over the summer I didn't want to plan for a simple dinner out in fear I would start puking. I remember in July headed up to Lake Tahoe (about a 3 hour drive) made it about 1 hour into the trip and had to pull over so my friend could drive. I threw up the rest of the way up and for about 8 hours after we got there. Positive thinking is supposed to be where it's all at, but sometimes you just can't do it! At least I can't.
Janet, I'm kind of where you're at right now, at least with the belly mets. Original Dx was in 2003, stage 2b-3a IDC. ANd everything was great until just this past year, I'm really just trying to live and quit waiting for the other show to drop. Having a hard time with this. Keep doing what you're doing. It inspires!!
Southern Survivor. Yes!!!!!!!!!!!!!11 decompress from those darn holidays!! Just what I need.
You're all on my mind,
Stacy
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I had a blood test yesterday, flu shot and faslodex injections all at the same time!! LOL I'm on 3rd week of Ibrance and doing pretty well. My one concern even after chemo is that my abdominal area always feels tender--damage, cancer or both--who knows. Hoping it gets better with time instead of going the other way. Hope you all are doing well. Thinking about you Rosevalley and hoping you are doing ok and getting some relief. Love and hugs to everyone. Cathy
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I wanted to ensure you all saw Rosevalley's post on Saturday in the "Rosevalley - this is for you!" thread. She said she has been in the hospital since last Monday and on Friday was transferred to inpatient hospice and is very tired.
This news is truly devastating- first Stephanie, then Hummingbird, and now Rosevalley. All since November. Praying for peace for Rosevalley right now; she has truly fought this BC mightily and valiantly.
Hugs to each of you,
Sheri0 -
Southernsurvivor
Too much at one time. I too hope for peace for Rosevalley
Bab
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OH NO! Wishing you comfort and peace, Rosevalley. Love and hugs, Cathy
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