peritoneal carcinomatosis
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Hi Sheri,
I want to respond to your Doxil request. I've been undergoing a battery of weird symptoms, and am trying to sort out causes. Hand-foot syndrome is one of those not-so-common side effects of Doxil. When I was on Xeloda, I had it in spades - soles of feet and palms of hands bright red. Couldn't walk. Needless to say, had to stop that drug. Too bad, because it really worked on the cancer.
Went to work one day, and noticed that it seemed like I had blisters on my heels. When I took off my socks, I saw that my heels were bright red and felt hot to the touch. In addition, the sides of my fingers were red and hurt, too. I just assumed that this was some weird form of hand-foot syndrome. However, the technical name for that is palmar-plantar erythrodysesthesia, which implies that it affects palms and soles, which is not what I've got right now.
Anyway, then my mouth and throat became very sore and swallowing was quite painful. Nurse friend took a look and thought I had thrush (fungal infection). Went to PCP and got prescription for Nystatin. After a few days of taking that, developed painful and itchy rash under my arms, and my tongue and the inside of my cheek developed painful sores. However, the swallowing issues went away. Email from my onc said stop taking Nystatin. Gradually, the mouth and tongue sores went away, and a web search revealed that Nystatin can cause mouth irritation. great.
Went to PCP for some immunizations and showed him the underarm rash. He took scrapings, looked under a microscope (!), and said it looked like a fungal infection and prescribed lotrimin cream. So, still a fungus among us... Meanwhile, the hand stuff has become unbearably itchy, and the heel stuff seems to be getting better. I've been working both at home and at work in bare feet, wearing padded socks and sandals when I have to go out. I've started putting the lotrimin on the hands and feet, too - maybe it's NOT hand-foot syndrome, but some kind of fungal thing. I don't really know, but I've taken pictures and sent them to my oncologist. I see her on Thursday, and I'm hoping for a definitive diagnosis.
If this isn't had-foot syndrome, then Doxil is lovely and, so far, effective. I'll find out the dosage and let you know what I'm getting. My hair went completely away when I was on taxol, but it came back with the Adriamycin, and has continued to stick around while I'm on Doxil ( so wonderful to have eyelashes again!). I have some fatigue, but only sometimes, and it's manageable. If it weren't for the hand/foot stuff, I'd say Doxil was pretty docile.
I'll keep you posted!
Cheers!-Erica
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Erica,
Thank you so much for the Doxil information! That's one of my worries about any IV chemo - so many crappy side effects. I have to mentally prepare for that. I think this time I'm more worried about losing hair as it's knowing my options are getting more and more limited, and I may not have hair again. I will pray that your oncologist has a good treatment plan for these side effects - time for all the yucky stuff to go away. Keep us updated. I have my oncologist appt tomorrow, so I'll let you know what treatment plan I'll be doing.
Take care,
Sheri
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Hi all! My Onc explained to me that peritoneal carcinomatosis makes your intestines more rigid which might be the cause of all my abdominal sensitivity. My cancer just doesn't seem to show up on scans until it has really advanced so it's hard to tell exactly what is going on. Getting through the latest UTI has been really hard on me like my body just can't catch a break. Hopefully I'm now headed in a more positive direction. Had a nice afternoon--my hubby took me to a movie. Can't wait until I'm feeling better and don't have to worry so much about falling. Love and Hugs, Cathy
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Good afternoon, gals -
I wanted to let you know that I saw my oncologist today. A little unexpected, but better, news, I think. My Guardant 360 blood test results came back and it showed that the cancer should respond to both Ibrance and Faslodex, but not Letrozole. You may remember I was just taken off of Ibrance a few weeks ago due to rising TMs. My TMs also decreased 74 points in the last 2 weeks while not on Ibrance, which was completely unexpected. (One of those weeks was the off week of Ibrance anyway, so maybe decrease of TMs was due to Ibrance even though I'm still on Letrozole??) CT scan results came back stable compared to the last one taken 5 months ago, which was good news. So, given all that, he wants to put me on Ibrance & Faslodex combination for a few months to see how it goes. If that doesn't work, I will be going on IV chemo.
I definitely want to give this combination a shot, although somewhat nervous too. I was on Faslodex 3 years ago for a few months and it didn't do anything for me - TMs rose. I stopped the shots after a few months as I got so sick and we didn't think it was working. (That was right before we found out my duodenum was completely obstructed and my BC had metastasized to the stomach/stomach wall.) Wondering if cancer mutation is different now and this combination will provide good results. Who knows?? I almost feel like this is a total crap shoot.
Glad I'm postponing IV chemo for at least a few months. All this - tests, waiting on results, guessing which treatment is best - is extremely stressful!
Any input/ideas are welcome. Hope you all are enjoying a pain-free day! Hugs to you!
Sheri0 -
Sheri, Wow, you're really going to be the high-priced spread! Faslodex/letrozole combo was my fist-line therapy, and I was shocked to discover that Faslodex costs $5,000/month. I thought that was outrageous until I went on Ibrance, which is $10,000/month. You, of course, are worth every penny! I'll really be interested to see how you do - it'll be a measure of how reliable the Guardant results are. I found both regimens pretty easy - here's hoping you have the same experience and get to beat back the stupid cancer, too!
Cathy- glad you're on the mend. You've been taking it heavy for a while and really deserve a break. Good for your husband for finding something fun and distracting to do! It always helps to focus on something other than the perpetual misery and uncertainty that this condition produces. Just what we all need - more rigid intestines. sigh.
Hugs to all! -Erica
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Good Morning Ladies!
Sherri- Thank you so much for the warm welcome and your kind words! Glad that your CT scan was stable and I hope that Ibrance and Faslodex is a symptom free/progression free combination for you. I'm intrigued about the Guardant 360 blood test too... do they share with you the tumor genomic profiling? IE- do they directly tell you which genes are showing mutations?
Cathy- Glad you enjoyed some relaxing time with your husband! Hoping that you're feeling better and find relief.
Erica- Wow! It is just shocking when you reference those costs. Everyone here is worth every penny. It makes me a bit frustrated that with the billions of dollars spent, and the high costs of the drugs themselves, these treatments are still so difficult to tolerate.
I went home yesterday and spent some time with my mom and dad. I sent my parents "Hello Fresh" (a meal delivery kit that sends fresh meats and veggies with the recipes) and my dad and I cooked the first meal together. It was delicious and my mom liked it! My mom starts chemo on Friday (the Adriamycin and Taxotere)... There was an available opening to meet with the doctors to assess her candidacy for laparoscopic HIPEC tomorrow in NYC... however, she doesn't want to go into the city. I respect her decision and understand that this is already stressful and she wants to begin her treatment with the doctors that she is familiar with.
Hope you all have a terrific Tuesday.
Tracey
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Have any of you had low platelet issues through all of this. MO thinks the cancer is causing it. It happened in November and I almost died and now it's happening again. I was supposed to start Ibrance last week but instead she had me do another round of the dreaded A/C. Was checked yesterday and platelets still around 55
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yes I am having trouble platelets. Dr is trying Gemzar/Carbo but cannot get full cycle due to platelets. I asked for 3 week break because I got so weak and short of breath. Xeloda made platelets go down but not like this drug.
I'm getting second opinion. Good luc
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Thanks all for your responses and good wishes. To be honest, I'm a bit skeptical of these specialized blood tests. It will be interesting to see if the medicines recommended are accurate. Obviously, hoping for the best.
Erica - you are so right about the high costs. When I tell my friends the cost of 21 pills for Ibrance is $10K, they can't believe it! I don't think anyone realizes all that we have to pay for medicines. I did get lucky this year in that my 2017 insurance plan is $3K maximum out of pocket per individual and my copay in Jan for Ibrance was the whole $3K as I ordered it before any other appointments or meds. Since I had the Pfizer copay one card for Ibrance, I only had to pay $10 out of the $3K. Now all my appointments, scans, tests, and scans are free for the rest of 2017. Financially it worked out well for me this year but every year is a crap shoot. I do agree that the Ibrance and Faslodex should be OK for me. I did Faslodex when I worked full time 3 years ago and I don't remember having any side effects. Also, the Ibrance has been fine. I'm tired at times, but that's manageable now that I'm on disability. I just rest when I need to.
Tracey - I really didn't get detail on the gene mutations. I should ask for a copy of the report. We were so busy trying to figure out what I was going to do, that I really didn't study the report the oncologist had in his hand. I did see that it showed my response to each mutation and what chemo or hormonal was related to what should work for that mutation. On a different subject, glad to know you liked "Hello Fresh." I always wondered if that or "Blue Apron" was good.
We will be thinking of you and your Mom on Friday. Adriamycin and Taxotere are 2 strong chemos - praying it kicks those cancer cells to the curb! I do completely understand your Mom wanting to stick with familiar doctors - it's definitely most comfortable for us. I've had my same oncologist going on 10 years now since I was originally diagnosed with Stage IIIC in May 2007. Although, a surgical oncologist performed my stomach surgery in March 2015 and really saved my life, so sometimes new doctors are great!
Cathy - hope you are having a good day. I'm assuming your neuropathy just gradually goes away since you are no longer on Halaven? Are there any permanent impacts? These side effects of chemo can really impact QOL, that's for darn sure.
Bye for now - I'm off to the grocery store. Have a good day!
Sheri0 -
Capinva- are you doing anything to bring platelets up or just waiting it out
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just waiting. Have been told there is nothing to eat or drink to bring it up by dr and several nurses. I try to eat protein with every meal. That helps with red blood cells
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Dianarose and Capinva - how are you two doing?
Are the rest of you ladies hanging in there?
I had my first two Faslodex shots last Friday. Sore butt that night and next day and I'm so tired too. That may be from starting the Ibrance too last Tuesday. Otherwise, not much else happening besides doing my taxes - ugh!
Hope you are all managing your side effects. Just wanted to touch base with everyone.
Hugs to all-
Sheri
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Hey Sheri, I sometimes take a Benadryl pill before my Faslodex shots and I ALWAYS use the Benadryl cream on the areas where I get the shots. It's made a huge difference for me. I'm finally having a better week. Not quite so tired. I have company coming towards the end of the month and my house has the winter doldrums--needs a good cleaning. I sure didn't feel like cleaning it during the winter what with chemo and all. Our weather has been terrible. I need Spring and warmer temps. Hang in everyone--we need each other. Love and hugs, Cathy
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Hi Sheri,
I'm doing better. After the last chemo treatment 3 weeks ago, I got short of breath and extreme fatigue and just not feeling well. Couldn't get the second dose of Gemzar since platelets went so low again. Saw the dr and he said my options are becoming limited. I have an appointment at MD Anderson on March 20 and praying for better answers and to be able to quit having to have the fluid collect and drain every week. Just got home from another drain, 5 liters.
I am also trying to get our taxes done before we leave. We have a farm and lots of paperwork. LOL.
I pray you are continuing to do well with the Faslodex shots.
Praying for all you ladies for minimum to no side effects this week.
Charlotte
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Been battling low platelets again the past few weeks. I was supposed to start Ibrance three weeks ago but instead been doing weekly A/C chemo again. I am discouraged. Can't seem to get ahead of the cancer long enough to start Ibrance. Last scans showed mets to skull now as well as spine. As far as tummy mets the radiologist said it appears to be the same amount of cancer but looks less angry 😡. Hope everyone is doing well and getting good results with treatment
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Cathy, so glad you are starting to have more energy. I don't even try to conquer the world anymore. If I'm tired, I rest on the couch. I watched a Law and Order SVU marathon on Saturday. I don't make dinner every night either. Just living life for us is tiring, so I definitely want to make the most of my time. Thanks for the Benadryl tips - I will use them the next time.
Charlotte, Are your red blood cells low? I was thinking it was my red blood cell count that got really low on the gemzar/carbo combo. Maybe I'm remembering wrong. Just remember that I had to get 2 units for blood transfusion that took all day in the hospital 3 years ago. I'm so sorry for your build-up of fluids. I'm sure that is miserable. Are you going to MD Anderson for a 2nd opinion? I was wondering as I read on a different thread on this forum that they no longer will just give 2nd opinions but people go there to see if they qualify for a clinical trial? I am very interested in this as I live about 4 hours from Houston and wondering if this is an option for me someday. My treatment options are becoming more limited too. Please keep us updated on how you are doing - we care!
Sending hugs your way-
Sheri
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Dianarose, good to hear from you! Apparently we were posting at the same time. Weekly A/C chemo is TOUGH, but I swear that drug combo works for so many. I think I have had my lifetime supply of that my first BC go round in 2007. I can definitely relate to cancer continually being one step ahead. This ILC really just sucks and is so darn sneaky. Does your onc have a plan for you with the skull and spine mets? Keep us updated - I think of you and all our belly met friends so often and truly wish us all an easier time.0
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Southernsur-I am getting monthly shots of XGEVA for bone mets. I get really freaked out when I have pain in my head. Did you have issues with low platelets
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Dianarose - I don't remember low platelets but definitely had very low red blood cell counts and had to have blood transfusions. I was on a feeding tube the whole time during gemzar/carbo and I was so incredibly weak. I'm not sure how much of my weakness was from the chemo and how much was due to the feeding tube. Just remember being so very sick.0
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I need your help with your experience.For those ladies that haven't heard of us, I am my daughter's hmm everything? Advocate. So, she is stage IV for awhile, was bone mets for years, then liver mets sprung from 2 to innumerable in 4 weeks, and brain mets, that is being controlled.
She is triple positive.
Pet/CT this week, showed progression in e/t, much progression from 6 weeks ago. All over. The whole liver has had mets all along, Ascites, Onco tried Navelbine, then she was on Ixempra/Herceptin/ Xeloda chugging along, but this scan showed mild ascites. What does mild ascite mean only the guy looking at it knows, which is ridiculous. She feels ok, she doesn't like to complain so she pushes herself as much as possible. But as of this week she has been taken care of her little girls, and minding everyday life just fine. She is in her early 30's. So the goal is that she could continue to take care of her family, she is very independent.
Onco put a stop to current treatment. She is pondering what next. She mentioned IMMU 132 even though it is geared to TNBC she said there is a cohort that allows for heavily pretreated patients to get onto this trial.
So I will have a conversation over the phone, I am actually trying to see if I could see her personally, but it will be what's next. DD does not want to know the details.
I have so many questions, should we ask for an MRI to better know what's going there? I am not sure a Pet/CT is the best modality. What does mild mean in ascites? Would chemo directed to the area be a possibility? Did any of you ever do such a thing? What smart questions should I ask.
Aside from progression in the bones also, she has a new lung nodule. And some nodes in the axila that are progressing also. WTH?? What does that mean?
Any ideas, comments will be so appreciated. Thanks everyone.
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Also should I ask to see some kind of specialist. I am freaked out, because we have to make a decision on treatment, I don't wanna have to delay it. I think someone that really understands the belly and all involved should be looking at it. At least an ultrasound no? Would that give some info they don't have?
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there are 3 types of ascites -1)Mild 2) Moderate 3) Massive so mild would mean around 300ml to 500 ml .plz plan your treatment asap as this ascites would go from mild to moderate if left untreated even for a week.my wife progressed from mild to massive in a fortnight while she was not under any treatment due to WB
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Momallthetime,
I read your post and want to reply, even though I don't have many words of wisdom but wanted to offer my support. I'm so sorry your daughter is going through so much - she is so young. This cancer certainly does not discriminate and is so unfair! I'm very happy she has you as a strong advocate for her and I'm sure she is very appreciative of your help.
I have never had to have ascites drained, although my last 2 scans have shown a "small amount of abdominal and pelvic ascites." You haven't mentioned that her belly feels uncomfortably full or she has issues eating, so that is a good thing. I think I have read previous posts where certain chemos (I'm thinking Halaven and Navelbine, which I know you have tried) have helped reduce the ascites in some, so it may be helpful to read through this thread. Also, due to mets in several organs, I would think chemo would be given to your daughter to systemically address all the mets in her body and not specifically the ascites. If the ascites gets too uncomfortable, many have these drained or have had a drain installed in order to do it themselves at home.
I have only done CT scans and PET scans for my ILC belly mets, so don't know if an ultrasound or MRI would show any further info. My cancer is quite sneaky but we also rely on my tumor markers, which based on history have proven to be an accurate predictor of progression. Do you feel inclined to get a second opinion at this time? I'm not sure where you live or where your daughter currently gets treatment, but thought I would offer that suggestion.
Sorry I can't be of more help. Do you have Bestbird's MBC Guide? You can request it by following the instructions given under the Stage IV thread titled "Request your FREE MBC Guide (over 2,000 copies sent!)" This source is a wealth of knowledge.
Keep us posted on your decision. I will keep you and your daughter in my prayers.
Big hugs,
Sheri
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Hi momallthetime,
So sorry for your daughter's (and your!) struggles with this beast.Ascites is fluid build up in the abdominal cavity. My understanding is that the cancer causes cells to leak fluid to such an extent that the body's usual processes for reabsorbing can't keep up. "Mild, moderate, massive" simply refer to the amount that's present. Believe me, if your daughter had massive amounts, you and she would know it! The fluid presses on organs and causes various kinds of discomfort. When my ascites was "mild," I had no idea it was there. However, when it was moderate, I was very uncomfortable. If you search the web, you can see scary pictures of extremely distended bellies. Apparently when that happens, the stomach feels hard. At exams, my oncologist would palpate my belly and declare that it was "soft." When my ascites started building up and went from mild to moderate, I started feeling it, strangely enough, as a backache. Because my belly never felt hard, I had to complain loud and long before my oncologist ordered a paracentesis, the process by which a radiologist, using ultrasound to locate the largest "pocket" of fluid, inserts a very thin catheter into the abdominal region and sucks out the fluid.
At first, I was having a paracentesis every 3 weeks, and 3 to 4 liters of fluid were removed. Then the fluid began to build up more rapidly, and eventually it was 3-4 liters a week. All of this happened because the chemo I was on was totally ineffective. The cancer was having a field day, increasing itself and increasing the ascites. By the time my oncologist decided to ditch that chemo, the cancer had advanced enough to cause a partial blockage of the small intestine. The next treatment was supposed to be pills, but by that point, I couldn't taking anything by mouth.
Here's the good news: While I was in the hospital, they placed a PleurX catheter so that I could drain the ascites myself at home. At that point, I was producing about 3 liters every couple of days. In addition, they treated me with Adriamycin, which proved to be very effective. It got rid of the blockage AND reduced the ascites. For the first few weeks after I was discharged, I was draining at least a liter a day, but that has gradually tapered off. I can go 14 days now, and still only drain off about 1 liter. At this level, I don't really feel discomfort from the ascites.
In my experience, it was a CT scan that spotted the metastasis to the peritoneum. The PET scan didn't pick it up at all, so for tissue stuff, I'd say CT.
BUT, I had CT and bone scans just last week, and the results as reported were really confusing. The CT report saw changes in the spine that looked like " Diffuse osseous metastatic disease," but the bone scan saw only "Mildly increased radiotracer uptake within the L3 vertebral body," meaning that there's a small lesion in just one place. I work at the hospital where my scans were done, so I emailed the radiologists to ask them which report was the one to use for planning treatment. What I learned is that what CT scans show for bones is hard to read - normal bone processes can look like metastasis. In my case, the bone scan tells the true story. The radiologist said, "It would be very unusual for the tracer to appear in one area and not in another if the second area were also a site of metastasis."
All of that said, I don't really know if MRI would add any information. However, the thing to know is that the ascites is a symptom. Treating the cancer will make the ascites go away.
Has your daughter been treated with Adriamycin already? It's an interesting drug in that there's a lifetime limit to the dosage you can have because it can damage the heart. I found it to be an easy regimen and it really worked and worked fast. My oncologist stopped it before I had the limit - she says she's saving the last couple of doses in case I have another crisis. Now I'm on Doxil, which is a milder form of the same drug.
If I were you, I would go for a second opinion. I've done that all along, even though I like and trust my oncologist. She is very open to this. In fact, she welcomes it. At one point I was going to cancel a second opinion appointment, and she urged me to keep it - she wanted to hear what the other doctor had to say. It must be difficult to be an oncologist. There's so much unknown about how cancer works. In some sense, we cancer girls are all human drug trials - at some level, the only option oncologists have is to try one drug after another, hoping that one of them will work.
Here are two things you can ask about:
FoundationOne (www.foundationone.com) takes a sample (I don't know if it's just blood, or if they take tissue from prior biopsy or surgery) and looks for mutations. Then they look at what drugs might be effective against the mutations that were found.
Guardant350 - this looks for cancer DNA in a blood sample and looks for drugs to target whatever mutations are found. If you look back in this thread, one of our sisters has gone this route.
Sorry to be so long-winded. I hope this helps rather than scaring you!
Hugs to you and your daughter - hang in there, both of you!
-Erica
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Rara- I was just reading your post and I didn't know nor did my MO mention about a lifetime limit for Adriamycin. I got two full rounds back in November then was off while I did 11 rounds of Taxol. Now back on A/C (low dose). Just finished number 4. What is the lifetime limit
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Momallthetime,
I'm the one who recently did the Guardant360 test rara_avis (Erica) is referring to in her post. My brain isn't functioning on all cylinders sometimes! I just had this blood test performed, so not sure why I didn't think to recommend this (thanks, Erica for the reminder!)
The Guardant360 test is supposed to be able to test for 73 cancer mutations. My oncologist took 2 vials of blood and sent it off to the company. It takes 2 weeks to get the results back. If you are positive for a certain mutation, it lists the hormonal/chemo treatments that your cancer should respond to. Only time will tell how accurate this blood test was for me.
Wishing you all the best,
Sheri
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Where to start. First I must say you ladies and many are just so incredible. I am so touched, and really thank you so much!!
Many i was just reading your post when Onco called, so it helped me to stay grounded when I read about the differences in ascites levels. Yes, hers is mild. But mild by Dani, is like saying it's only 2pm, you turn around and it's 11pm. She is on a train with NO brakes. So that's what scares me. You went through so much, you were truly by your wife's side. And look at you, grieving, but helping out others. Thank you.
Southernsurv, Erica you guys really nailed it. You both mention 2nd opinion. Well, let me first say what Onco thinks we are doing.
So, finally Onco called in the afternoon.
First she mentioned Taxol, then another treatment with be a trial with Enzulatamide or the one Onco prefers the IMMU 132. I thought Taxol she already had, we know it's a tough one, the 2nd choice would not be at her Center, and the 3rd she was involved with for TNBC but could be promising for advance stage IV., loss of hair included.
I kinda agreed to IMMU 132, it's a 3 hr infusion, 2 weeks, one week off. So it's pretty much gonna be a whole day affair for her, which she is not happy about. She would have to wait 2 weeks to get the last treatment washed out. Which worries me very much due to ascites, but there is no choice, Onco thinks her lung nodule and everything could get better with this.Of course they are going blindly, and what am I doing? I feel like I am taking her to the slaughter. She depends on my research, on my opinion. What can I say? It's just that so much has gotten worse, that I don't know if we have the flexibility to play around, but which is sure? Even if she goes on Taxol, do i know? Should i go with a more familiar tx like taxol? And I really hate these 2 weeks with no treatment.
All of you guys explaining about the mild moderate stuff was so helpful, she said while Dani does not complaint we could assume it's not bothering her, so...let's hope. Her appetite is not much to write home about anyway,she eats small meals spread out, she hasn't had a normal meal in the longest time, she is to petite so there is not much to work with. SO i hope she is able to withstand this.
If that's the path, then next week she has to spend a full day having pre screening, also, her HGB is low, for this trial it has to be at least 9 or 10, it has not been there in awhile, so short of blood transfusion, let's hope that by not being on any treatment maybe it will go up.
I did not tell her about the ascites or the nodule in the lungs, maybe with time..., PCP and Onco agree. She will be examined, if she complains then maybe we'll tell her, she doesn't like to know much, i hope she does complaint if she feels something. I'll put hubby in charged of spying how she is doing.
I shall be copying this and posting in my other threads, sorry for the doubles.
I shall keep you posted, She had Foundation One done and the Guardant360, so they have that. She has the CDK4/6, the Pk13 and others, and with all that even with what F1 said it should work for her, it hasn't!!!! And also she was checked for Androgen Receptor which she is 75% and onco says it might be helpful.
Always open for advice,
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momall. If ascites is your worry to decide if you want to wait for a fortnight or not ,you may get a ultrasound done weekly which will clearly show the amount of ascites .hope this helps
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Hmm Onco is so not for it, then I'd have to tell D and maybe if she says something, but I was trying not to tell her, I have to see. I'd have to try to get Onco to do it, is there anything I could say that would make her consider it. I would really like a sono. You are right. She is not her own boss, it's terrible, she has to answer to the Center, so
I was thinking about a 2nd opinion, it's just that it's hard to get docs to give their own opinion, because they are all chummy chummy. Anyway, she's been to 2 large Centers in NY already, awful experience when it came for 2nd opinion. They told me oh, so and so is very good, did I say that she or he is not? No, i was looking for a professional opinion. But so it goes. There is one fellow I'd like to go to, he is very caring, i've heard first hand, but the office is like 1920's the staff is horrendous, so I was thinking to leave it for when we don't have a choice.
I'd love to hear from anyone that had this IMMU therapy. I guess i'll start a thread.
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Hi Dianarose,
Here's what I found on the web about Adriamycin: Limit lifetime cumulative dose to <550 mg/m²
I was getting weekly doses of 20mg. I'm not sure what you mean by "two full rounds." According to that website, it can be given weekly, every 14 days, or every 21 days and the dosage varies - you get more if the interval between infusions is longer. There's also some calculation based on body mass, but I haven't yet gotten my head around that - it's the /m² part of the formula.
Did the taxol work for you?
What's A/C, anyway? How are you doing on it? I hope it's treating you kindly! Hugs to you! -erica
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