IBC lounge: roll call, support and just a good place to hang out

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  • bsandra
    bsandra Posts: 1,050

    Dear flo80, yes, THP is not an easy regiment but some people get "used" to it pretty quickly. Not my wife though - I used to administer her 3-5 day Neulasta shots. On the other hand… always remember, if you suffer, suckers suffer too, and THP is a very powerful combination. Keep us posted and I wish you strength to endure everything, fix everything (you will), and go on living and being happy and cancer free(will be)! Many hugs, Saulius

  • flo80
    flo80 Posts: 233

    Thank you so much I needed thi!s

  • Hi flo, sorry I don’t know much about the meds used for her2+ as i was triple negative and the meds are a bit different. I’m hoping the cocktail they have you on destroys that one spot as well as any possible remaining cells that might be floating around! Also wanted to throw this out there, idk where u live but winter time where I am means less sunlight and when I had my vitamin d level checked during treatment it was low, so my onc recommended i start taking a vitamin d supplement. Turns out there’s evidence that correcting low vitamin d has been linked to better survival rates in breast cancer, as well as improving immune function. I continue to take it daily, especially in the winter. Just a thought since you mentioned your neutrophils dropped it made me think of that and might be something you could look into. Anyways I really hope you’re feeling ok and hang in there. Hugs :)

  • flo80
    flo80 Posts: 233

    preciousbecky23 thank you. Will definitely check my vitamin D level. I went to work yesterday and my manager mentioned that I should take care myself and take short term disability leave. I was like what will I do at home it will make me even more sad. I know she meant for my wellbeing but still I was very emotional

  • flo80
    flo80 Posts: 233
  • katelynn50
    katelynn50 Posts: 6
    edited January 30

    Hi all. I have survived 34 years since my stage 3 B inflammatory breast cancer diagnosis. Several rounds of chemo, surgery, more rounds of chemo , radioation and then an autologous stem cell transplant amounted to almost two years of therapies given. I lead a normal life now and am thankful everyday that I survived these decades..

  • moderators
    moderators Posts: 8,926

    @katelynn50 that is so wonderful to hear!! Thank you so much for sharing your survivorship experience with us.❤️

  • bsandra
    bsandra Posts: 1,050

    Dear Katelynn50,

    Wow, congratulations. May I ask - what's behind autologous stem cell transplant - was it one of the BC treatments? Hugs and congrats again,

    Saulius