How Many Are We?

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Comments

  • talpha1
    talpha1 Member Posts: 5
    edited August 2016

    Hi all! Stage IV diagnosis in July 2016 (mets to lungs).

  • ShetlandPony
    ShetlandPony Member Posts: 3,063
    edited August 2016

    2011 Stage 1 ILC

    2014 Stage iv ILC (Mets to liver etc.)

    So far I see 183 results here, but subtracting the 15 that are comments, Q&A, and deletes, that gives us 168 people with stage iv who have posted here so far. I count 22 who mention ILC either in their post or in their stats, which is 13%. I did this calculation because it seemed like we had a lot of ILC stage iv here, but 13% coincides with the information from the NCI SEER that says ILC makes up 10-15% of invasive breast cancer cases (all stages). SEER counts stage iv de novo cases (6-10% of cases), but does not keep track of early stage to metastatic cases. Many people here did not give subtype, so I assumed those are IDC.

  • susaninsf
    susaninsf Member Posts: 1,099
    edited August 2016

    Hi, Dx in 2000, Stage IV in 2014.

  • Pagej
    Pagej Member Posts: 42
    edited August 2016

    Dx 6/2014 tnbc, brca1+ Stage1

    Dx 4/2016 solitary met to brain

  • MaineRottweilers
    MaineRottweilers Member Posts: 44
    edited August 2016

    Stage IIB in 2013 MBC in 2015 currently NEAD from the neck down.

  • May66
    May66 Member Posts: 2
    edited August 2016

    Hi , took me almost 2 years to join a support group .

    My name is May -- Stage IV mets to liver and bones . 201

  • moderators
    moderators Posts: 8,636
    edited August 2016

    Hi May-

    Welcome to the community! We hope you find these forums to be a supportive place. We're here for any questions you might have!

    The Mods

  • Lita57
    Lita57 Member Posts: 2,338
    edited August 2016

    Stage IV Invasive Ductal Cancer w/mets to spine and pelvic organs April 2016.

  • anne16
    anne16 Member Posts: 38
    edited August 2016

    Stage 2 invasive lobular-2005

    Stage 4 mets to hip-2008

  • adc21791
    adc21791 Member Posts: 2
    edited August 2016

    Hi !!! 2016

  • acs
    acs Member Posts: 1
    edited August 2016

    Hi! Diagnosed StageIV de novo March 2012

  • Proparent
    Proparent Member Posts: 14
    edited August 2016

    Hello! Original BC stage IIb 2011, stage IV (bone mets) diagnosed July 2016.

  • nellas36
    nellas36 Member Posts: 1
    edited August 2016

    Hi,

    Original BC stage I in October 2012. Stage IV (liver and lung mets) diagnosed in November 2015.

  • ninetwelve
    ninetwelve Member Posts: 328
    edited August 2016

    De novo September 2014, right breast, several lymph nodes, sternum and lung.

    Progression July 2016 - original tumor grown into chest wall, and discovery of a 2nd adjacent tumor.

  • kirstensmum
    kirstensmum Member Posts: 76
    edited August 2016

    Hi,

    Originally 2b in March 2009 then stage 4 in March2014 (though looking back at ct from Oct 2013 showed mets just not picked up).

  • lalady1
    lalady1 Member Posts: 530
    edited August 2016

    Hi Z - originally stage 2 IDC in August, 2012; then stage 4 in December, 2015 (mets to left lung and sternum).

  • Noni
    Noni Member Posts: 74
    edited August 2016

    Hi all,

    DCIS Dec 2007

    Mets to bone and lung Nov 2015

  • punam
    punam Member Posts: 2
    edited August 2016

    Hi, Skeletal bonemets from the start. EndApril 2016

  • MustangIA
    MustangIA Member Posts: 54
    edited August 2016

    Hello - 2011

  • seagan
    seagan Member Posts: 32
    edited August 2016

    Hi, mets to bone ("innumerable skeletal lesions") and ovaries as of May 2016. Originally Stage 1 IDC + DCIS in 2009, recurrent DCIS in same breast 2011.

  • jan125
    jan125 Member Posts: 11
    edited August 2016

    Jan~ 10.5 year survivor with mets to liver, lungs, and bone.

    Currently NED

  • Donna72
    Donna72 Member Posts: 3
    edited August 2016

    Hello from downunder. DX Mets to bones,lymph nodes, adrenal gland and now liver 😠

  • Dvdsp
    Dvdsp Member Posts: 23
    edited August 2016

    2008 stage I

    2014 stage iv mets to lungs and pleura

  • moderators
    moderators Posts: 8,636
    edited August 2016

    Welcome Donna and all the newbies!

    Big hugs!

    --The Mods

  • GatorGal
    GatorGal Member Posts: 750
    edited August 2016

    1987 stage IIb

    2008 stage IV

  • Alcarroll
    Alcarroll Member Posts: 7
    edited August 2016

    Hello. Diagnosed May 2016 - stage 4 from the start. Mets to bones

  • Nap
    Nap Member Posts: 16
    edited September 2016

    Hi! Original dx stage 2 2008.

    Stage 4 dx Apr 2016. Thanks

  • Pooky60
    Pooky60 Member Posts: 3
    edited September 2016

    Hi! Stage 2 2011, bone mets 2016

  • moderators
    moderators Posts: 8,636
    edited September 2016

    Welcome to you Nap and Pooky, We hope that you will stay connected here and experience the support and knowledge of our wonderful community members. The Mods

  • Amytrvnojamyt
    Amytrvnojamyt Member Posts: 1
    edited September 2016

    Hi - DCIS - 2006, Stage IV Spine, Liver 2015.