Who is starting chemo in September 2016?
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thanks smilethru..Guess I will get Claritin in case. Good luck tomorrow..will be thinking of you!!!!
Kd ..in case I can't get on in time..will be thinking of you Wednesday!!!!
ACS74..hope you get some relief woth your tummy..I am same cocktail..a bit nervous of that now...but will get some immodium I guess!
Good vibes to all
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Hi everyone,
Between dealing with chemo SEs and helping the kids with homework, I've gotten behind on reading posts, got to get caught up. It's been rough since about day 4 but my fever finally broke yesterday, and I'm doing much better now. The D cleared up, fever is gone, bone pain is manageable, and my WBC is up--so the Neulasta finally did its job. I've been on an antibiotic for the fever since the ER which was day 5. I had neutropenia which can cause a fever but I stopped having neutropenia on day 9 when my neutrophils went up but I still had the fever until day 11, so don't know if I had an infection that the antibiotic cleared up or what. Is anyone else having trouble with fevers?
Today is day 12 (actually 13 as it's after midnight), and like clockwork my hair has started falling out. It's falling out by the handful. I keep thinking i've combed out all the lose hair but nope, it just keeps coming out. Although it might have started on day 11 as I refused to wash or comb my hair all day yesterday, even went swimming and refused to comb it afterwards. Now, I feel like if I keep combing I'll be bald by morning. I thought I was mentally prepared but still, it's bothering me. My son (10) is so sweet, he saw me pull out a hand full of hair and I pouted at him and he said, Mom it's just hair, it will grow back, you're still you no matter what, just pretend you're a cartoon character like Donald Duck saying "AH my hair is falling out". Didn't really get the cartoon analogy, but he was trying so hard to make me feel better and it worked.
Has anyone's WBC been like a rollercoaster? Mine was 8 the week before chemo, 28 the day of chemo (told because of steroid), 3 on day 5, 4 on day 7, and 38 on day 9. I think normal range is 4-10. I don't know why it is spiking so high now as I'm not on the steroid. Is anyone else getting such high WBC? Is Neulasta supposed to cause it to go so high? I'll ask the PA but I don't see her until Thurs so just curious what others are experiencing.
BTW I have great tips on how to survive the big D without getting a sore bum. My gastro gave me these tips and it helps tremendously. I'll try to type it tonight but fingers getting tired so maybe tomorrow. If I forget, PM me if you want the info. I'm in full blown chemo brain mode so forget everything.
Thanks everyone for sharing your experiences, it is so helpful to not feel alone in all this craziness.
Hugs everyone or like I tell my sick kids "air hugs"!
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"I may have missed this info but does everyone get neulasta??? My MO did not mention it but I never got a class so..not sure."
My oncologist team never mentioned it either until I was actually at the first treatment day. Nor did they talk about any of the other supporting meds like the steroid pills, Emend etc in the IV, Benadryl pills and all. Had just told me about the four TCH-P chemo drugs for HER2+ and the IV fluid treatments to expect for a couple of times after the treatment, plus a vague mention of anti-nausea measures without identifying what they were except the IV fluids.
Not sure why they didn't give the full picture. Maybe they see those other things in the noise? Or just don't want to overload us. Which may have been wise as sometimes I can only absorb so much additional news in this process. Still ... had I known about the other meds in advance, I would have looked them up in advance. Instead I found myself writing them down as they popped up on treatment day.
First I had heard of Neulasta was actually reading it here.
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lmnecken- What my MO told me is that a lot of insurance companies won't cover nuelasta until your WBC actually drops. I am fortunate that mine covered it up front. It was never mentioned to me either until the day of treatment. I was given a handout to have claritin, and imodium and that's pretty much it. Hopefully you won't have any of the problems I've had! I have a very sensitive stomach and I do react oddly to medicines sometimes. I did not expect it to be as bad as it has. Now I know, and I will just take it one day at a time. I hope the end is in sight and I can get some of my energy back.
I feel like at this point despite my efforts to hydrate that I am severely dehydrated. The D just doesn't allow me to keep anything in my stomach at all. I have muscle cramps now all over my body. It's very difficult to eat knowing what the result will be. I pray my MO will give me something today to stop this D so I can begin to feel somewhat normal again.
Be strong ladies, keep fighting!
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I am getting Neulasta too and I did see my MO yesterday and she expects that the pain from it will be better with each treatment. I really hope so, it is incredibly painful and hard to take anything for it when you are dealing with stomach issues.
I did learn yesterday that I am ER+ 80% and PR + greater than 60%, I am not sure really what the numbers mean, I mean as far as the cell ratio, I get that but otherwise.
I am rather frustrated with the center at this point. I try very hard not to complain and be positive but yesterday I went to my appointment and they said it had been canceled. What? No one called me. I was beyond mad, I called the main center (I see MO at the local hospital) and the lady said she would have scheduling call me to make a new appointment. Instead, God bless her, she called me back and had talked to her office manager as well as my doctor and I was able to see her at the end of the day, after a 1.5 hour wait. Anyway, still mad about the appointment but very grateful that Audry went above and beyond to help me. Today, the pharmacy called me because I had asked about why the Zofran hadn't arrived yet. They call me and say that they have been waiting for my credit card number! Umm you mean the one I gave you on Friday? Oh we don't have that, we went back through our papers. Seriously? I have been miserable because you messed up and then act like I didn't do my part? Wow! Sorry, I just am upset. I will get over it and hopefully it will be here tomorrow. She said it would be overnight.
I hope you are all doing better today. Good luck on the wig shopping! I am sorry, I am having a hard time keeping up with everyone. I haven't really even thought about a wig, not sure about how I will get one yet. I guess I should look into it since by the weekend, it will be my turn.
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Hi, I'm starting Abraxane today, it's a form of a taxane. I'll have it every week for 3 weeks, one week off, then 3 more weeks one off and then a third time.
Am wondering if anyone has been studying nutrition while taking chemo? My nails are painted black and I'll take freezer bags of ice. Am wanting to fight the chemo with food though. Has anyone tried doing research on this?
Sending good wishes to all..
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Acs74..thanks for the neulasta info..Guess I'll as Thursday if I have coverage
You and Lisbeth and bagsharon....now I am nervous..with the D..is it incompacitating?? We are same meds so figured I will get it too...maybe I can't work???
Lisbeth..I have a soon to be 12 year old too . your son sounds so sweet..mine teared up when I told him about my hair future. I told him It will be.fun for Halloween!!! But I think I will be like you..all prepared and then OMG it's happening!!! I will PM u for D remedy but only when you are feeling better!!
But I ordered my wig today..very weird!!! I guess I will shave day 11 right after visiting day for my college daughter.
Welcome oceansky!!!
Hang tough everyone....will be joining you Thursday
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Hi everyone,
My friend was in town for over a week, and then I had a cancer retreat this past weekend, so sorry I havent been on much, I have kept up with you all. welcome to all our new friends. I can say that besides my taste buds and appetite, I have handled my first infusion pretty well. I have had some chemo brain, I had to ask my husband my pin for my debit card! lol I have LGFB next week which I am looking forward to, and then second infusion on Friday. I hope you all are well.
xoxoMichelle
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Good afternoon,
I have good news and bad news. Bad news first. Emily was hit with severe fatigue yesterday/today (days 6 & 7), and started experiencing the 'Big D' and stomach pain pretty bad yesterday. Seems like this is a pretty common SE. She has been having scalp pain/itching and a low-grade fever too. She took Imodium for the D last night and is starting to feel better today (less fatigue too). She washed and conditioned her hair this morning and applied some coconut oil to her scalp to relieve the itching, but the pain is still there. She says it feels like a bruise. I can't help but think the hair loss is right around the corner.
Speaking of hair, that's the good news. Our insurance company re-referred us to a much nicer wig shop, so we'll be taking a drive up to Raleigh this weekend.
Welcome OceanSky! Here's a cookbook tailor-made for this situation that Emily & I will be getting:
The Cancer-Fighting Kitchen - "It features 150 science-based, nutrient-rich recipes that are easy to prepare and designed to give patients a much-needed boost by stimulating appetite and addressing treatment side effects including fatigue, nausea, dehydration, mouth and throat soreness, tastebud changes, and weight loss. A step-by-step guide helps patients nutritionally prepare for all phases of treatment, and a full nutritional analysis accompanies each recipe. This remarkable resource teaches patients and caregivers how to use readily available powerhouse ingredients to build a symptom- and cancer-fighting culinary toolkit. Blending fantastic taste and meticulous science, these recipes for soups, vegetable dishes, proteins, and sweet and savory snacks are rich in the nutrients, minerals, and phytochemicals that help patients thrive during treatment."
You can find it on Amazon.
Welcome back Michelle, we missed you! It's good to hear your SE's weren't too crazy.
Angela - Sorry to hear about your SNAFU. Emily didn't get Zofran for nausea/vomiting. They gave her Compazine (thankfully, she hasn't had to use it). Hope you feel better!
Lizbeth - Not sure about the WBC count yet. They just told us if Emily's fever gets to 100.5 that it most likely means her WBC levels are too low and that we'd need to go to the hospital if that happens.
It appears some of you have reached the bottom and are starting to recover a bit. That's good news too!
Stay strong!
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Hi All! Haven't written in awhile but have been keeping up with everyone. So sorry to hear of troubles with the ports. I'm wondering about mine. And, it was a big surprise when the thing just sticks out of one's body. My seat belt really irritates it...ughhh!
- I'm taking Lupron,a monthly injectible, for menopausal issues. I'm 52 and had an IUD placed in November last year for my heavy, and I mean Heavy, menses...and prolonged. Then a couple of weeks before my dx (7/20) was put on the birth control pill to yet still better control the bleeding. First thing when I met my onco was to take me off the pill and refer me back to my gyn to have the IUD taken out. All the progesterone feeds the cancer. The Lupron prevents the ovaries from producing any hormones. It's something I'll have to take for a good 10 years - forever, until I a am successfully post-menopausal.
Had to go to ER Saturday night because it appeared some of my sutures were getting infected. My surgeon met us there. I was so worried that it would require surgery which would then put off my chemo. Luckily, I just needed some antibiotics and to wash with betadyne several times a day. It seems to be working thankfully.So sorry to hear about the SE's, especially the tummy troubles. Thankful to all of you who are going through it now, sharing your experiences and tips and wisdom!Has anyone else heard of the problems with Taxotere and permanent hair loss?I, too, am curious about Pertuzumab with the TCH chemo. Sam13 we almost have the exact same dx, but my onco did not suggest that particular med. I'm wondering why/why not. I guess I'll ask her on THursday before I start chemo next week.Just wishing everyone well! Hang in there! So glad we have each other!PEACE!0 -
Hello again, is it normal I wonder to get the big D on days 10 and 11? Jeesh I should move my stuff into the dang bathroom!
xoxoMichelle
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ACS74, oh my gosh that sounds awful. Does your MO know that you are dehydrated? If I even mention that word to my PA, she has me in the office getting IV Fluids, I had to go three times last week for IVs. Sometimes after having prolonged D I still feel so sick but once I eat foods high in electrolytes, I instantly feel so much better. An electrolyte imbalance can cause muscle aches/cramps, weakness, bone pain, anxiety, headaches, diarrhea (ironic), joint pain… Have you tried things with electrolytes? Salt, magnesium, potassium, & calcium rich foods: Bananas, boiled potatoes, watermelon, kiwi, cucumber, fruit juices with calcium, salted broth, yogurt. Or good old Pedialyte if you having trouble eating, water alone is not going to get you feeling better so drink pedialyte. During this last bought of D watermelon, bananas, salted chicken broth, greek yogurt and orange juice with calcium (and of course tons of water) saved me. And a probiotic supplement. Watermelon tastes so good even with chemo tongue it's one of the few things that tastes normal to me.
Sam, sorry Emily is starting getting the SEs, hopefully she'll recover quickly. Glad you found a wig place covered by insurance. I'm going to check out that book—it sounds good.
Imencken, my wig place and PA said don't shave your head, it causes all sorts of bumps and rashes and our heads are too sensitive for that. Instead get it hand scissored real short. The wig place said it will feel so much better especially with a wig on. They even brought a lady over that was there who had shaved her head to show me the red rashes on her head, poor lady it looked painful. The head gets very sensitive even without a rash.
Welcome Oceansky, sorry you have to be here but this is a great place for support and information. I've been trying to look into nutrition. Let me know if you learn anything good. The only thing I know is that garlic seems to be at the top of the cancer fighting food list followed by the rest of the foods in that family (onions, shallots…), followed by cruciferous foods (broccoli, kale), green leafy vegetables, bright vegetables, berries…green tea… Keep me posted as I am very interested in diet's roll.
AngelaKS, that's a relief, I had heard that Neulasta does get better, I am hoping it's true. That's exactly how it was for me, trying to control the pain when the stomach is going bonkers was a challenge. My MO said the ER/PR+ are good because it means your cancer is hormone driven so there are lots of drugs that are really good at fighting hormone driven cancer. The percentage just means how heavily hormonal they are. Higher number is better. That's what they told me at least. Sorry for the hassle with the Zofran. Frankly I didn't need anti nausea meds (which is weird because I am the barf queen), I got a little queasy on day one and freaked and took Zofran and I was sorry because Zofran turns my insides to cement so biggest problem the first couple days was the constipation—right when I was trying so hard to get the chemo out of me. But it's nice to have the Zofran just in case. They gave me nausea patches now, haven't tried them yet.
Misslil, my original PA didn't want to tell me the drug names in the IV pre-meds either, it was like pulling teeth to get her to slow down and tell me the names of the drugs. She was very rude about it but I have a new PA now that I love! She is so smart and so good at her job.
They did tell me that some of the IV pre-meds are long lasting and work for 2-3 days after infusion and that is why the symptoms often don't start until day 3. I thought that was interesting.
seq24, yay you made it through your first infusion. Ugh, port flipping, didn't know it was possible. I keep feeling mine now wondering if it's going to do the same.
Bagsharon, I felt the same way, like wolves were chewing through my bones, then the pain would move all over the place and when it rolled into my knees, I would gasp out loud. It's bad but luckily goes away. I'm praying it's not as bad next time.
kdTheatre, the soreness with the port went away quickly for me, hope yours does too.
MFalabelle, what's a cancer retreat? So glad that it is going so well for you (other than the D now) especially with all the delays and infections you had to deal with at the beginning. Day 10 & 11 is when my D cleared up but we're on different chemo drugs…hope it clears up soon. I'll be thinking about you on Friday.
makeiki3, I'm getting my ovaries removed after chemo. I almost wish they'd put me on Lupron now like you, because I feel like my hormones are still high and since I have ER/PR+95% it freaks me out. My PA said that permanent hair loss is bunk, idk though. I try not to think about it.
Well, I'm off to put my hair in a ponytail and my husband is cutting it off. I wonder if I should wait for the kids to get home to be part of it. I just want it over with.
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Lisbeth--True story! The port can flip!! The surgeon told me he has never had that happen before. I thought something was strange a couple weeks ago when I noticed the port area seemed flatter than it had. I even commented to my husband about it. I just figured the swelling in the area had gone down and it had healed. Wrong! Imagine my surprise when they tried to access it last Friday and hit the flat side which is apparently made of metal! YIKES! Imagine my bigger surprise when he was able to get it flipped back over without having to go back into surgery!
It's been a long day for me. I had steroids to take for 3 days after my infusion on Friday. Yesterday was my last day and today I'm really struggling with the effects of coming off of them. Really dizzy, shaky and lightheaded. I've been trying to drink even MORE water to get it flushed out. Not feeling too bad right now so hoping the worst is past. Otherwise I am happy to report, as of day 5 no other SE. I have to go on Thursday for a toxicity check, whatever that is.
Sending best wishes to everyone!
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Hi ladies
Well today I recieved my picc line...it wasn't that brutal but there is a little pain. I have to go in once a week to have the dressing changed and have to make sure not to get it wet. They gave me a little sleeve to cover it. I was hoping for some plastic...I don't know how I'm going to shower. I guess my right arm will be hanging out. Also not sure how I'm suppose to.sleep. geezzz just so much. Sorry for my wambulance rant. Just frustrated.
Chemo will start next Wednesday September 21.
Thanks Ladies!
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seq24, oh my gosh you are much braver than me. They would have had to tie me in the chair, after they caught me that is. I would have been, you want to flip it, you give me pain meds or a local! I'm a wimp. Half the time I can handle the pain, it's just a mental thing. I felt shaky after the steroid too, it was my first SE, I thought it was the chemo but makes since it was from coming off the steroid. Congrats on the lack of SEs, knock on wood, ha ha. I'm curious what the toxicity check is, keep us updated.
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Hahlyn, they told me to wrap a dry washcloth and press and seal around it for showering. I tend to take baths with it. Just easier to keep dry. Check out the care Aline sleeve. Very comfortable
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Hi Hahlyn, I read on another group something that was recommended for a picc line. I'll try to find it and post it for you.
Here it is, it's not about showering but I think it's still good to know. When I had similar things and needed to shower they had me use the Glad Press and Seal wrap--it's stickier than regular saran wrap and then use medical tape to seal the ends.
From Kechla: A tip that I thought I'd share. If anyone has a picc line, I am using the CareAline sleeve and highly recommend it. It is much nicer than the fraying "sock" they give you at the clinic. It has a nice hole to stick the tubes through and covers everything up while keeping pressure off your skin and is very soft. Also they look nicer. My NP asked me today about it and was going to recommend that they start carrying them to give to their patients who require picc lines. It was $20.
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ha ha, Kechla beat me to it.
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Lisbeth--Once I find out about that on Thursday I will post what that appointment is all about.
Glad I'm not the only one with weird effects from the steroids. I was getting a little worried early this afternoon that I'd be heading to the ER or something. The dizziness and shaking were getting pretty scary!
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I'm shedding
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I have my second AC treatment in the morning. I scheduled it early to see if I can get in and out of there without the long delay of my first treatment day. Also interested to see if round 2 follows the same pattern as round 1. I've been drinking lots of fluids the last couple days. I figured I should be as hydrated as possible going into treatment day since I know my stomach won't tolerate it as easily after treatment. It's been causing some sleep disturbances, however, as I keep waking up to use the bathroom.
Claritin - I've noticed that most women seem to take Claritin starting the day before their treatment and extending a few days afterward. My MO suggested I start taking it before my first treatment and just take it all the way through. He said there was no reason not to. I take it at bedtime along with my usual nighttime routine so that I don't forget.
Neulasta - Consider having the Neulasta pack placed on your stomach. I did this the first time and it worked out very well EXCEPT for taking it off afterwards. It was painful to remove the clear bandage and pack adhesive from my tender tummy skin.
Chemo Brain - Maybe it is all in my head (ha!) but I swear my thinking is already affected. I find myself more scatter-brained than normal. No big mistakes yet but I've warned my husband and daughters to keep an eye on me to be sure I don't leave the stovetop on or something similar. Anyone else?
Hair - Scalp seems extra itchy today. Wondering if the big shed is close behind. It's been right at 2 weeks since first AC treatment. Amazing how much my hair has grown since getting it buzzed a week ago. If it doesn't fall out soon, I'll have to re-buzz it.
Tamoxifen - I believe that I am the only one on this thread that is starting tamoxifen during chemotherapy. It sounds strange even to me, but I was more nervous to swallow that first pill than I was to get my first chemo treatment. I've taken tamoxifen for a week now and have had no discernible side effects.
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Hahlyn, I got a Picc line last Thursday for IV antibiotics . I also was told to use Glad Press n Seal for showering. They said to tape the top and bottom to keep the dressing dry. The hard part for me is trying to do the wrapping with my clumsy, non-dominant hand and an encapsulated shoulder that doesn't appreciate reaching across my body.
Michelle, I'm glad you're OK, but bummer on the potty problem. I knew your schedule was going to be busy, but wanted you to know that you were in my thoughts.
Sam, I'm sorry to hear about Emily's problems. What might they do in the hospital to help her? I'm not educated on what can be done to support us if we encounter a problem. Good news on the wig.
Regarding Pertuzumab / Perjeta, I think it's only approved for neoadjuvant use for early stage cancer although I've heard some doctors will prescribe it after surgery. Since that's not standard of care and the drug is wicked expensive, insurance coverage might be an issue.
The surgeon discharged me today. In the past two months, I've had two lumpectomies, two large seromas, and a nasty, stubborn infection. My arm is a bit swollen and my breast is still about two cup sizes larger than her sister, but other than the upcoming port procedure, I'm glad to have the surgical portion of the treatment done. With everything that went wrong with what I thought would be the "one-and-done" easy part of treatment, apprehension about chemo and radiation is growing.
Lyn
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Sam..so sorry Emily is feeling the big D..hope it ends soon...great about the wig though!!!
Lisbeth...thanks for the hair info..so just a super short cut maybe..did a hair dresser do yours? And I wanted to check on getting my ovaries out also...my Surgeon said it was aggressive..but it seemed ike a decent option. I'm 100 estrogen +
Kd.good vibes tomorrow..you.got this!
Leydi.thanks for all the details
Sorry to hear about weird port flips from so many of you!!! Stinks!
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lmencken, I'm getting my ovaries and fallopian tubes (possibly uterus too) out prophylactically because of my high risk of ovarian cancer due to being BRCA2+. I'll also have to get another mastectomy on the other side. The ovary removal will also help the BC because there will be no ovaries to produce estrogen. I was bummed when I found out I'd still have to be on hormone suppressing meds like Tamoxifen or Aromatase Inhibiter because fat etc. also produce estrogen. Here's a good article on ovary removal for BC.
I just put my hair in a pony tail and my husband cut it off. So now I have a short bob--I kinda like it. I was tired of the long hairs falling everywhere-my hair is very fine so it kept feeling like spider webs on my arms. I'll go in later to get it cut shorter by my stylist.
Leydi, glad your not having side effects from Tamoxifen. I'm scared to go on that drug. My MO told me I'd have more problems with that then with chemo. Ugh, hard to imagine. Although I hear even worse things about those Aromatase Inhibitors, bone pain, yuk.
VLH, you have been through so much. Sounds very painful. Glad to hear you've been discharged though. Yay! I'm not looking forward to more surgery after chemo. They're making me wait a month after chemo, hoping to get as much of it done this year as possible. Three surgeries in December will be hard to schedule though.
Ware, poor thing. I feel ya. Shedding everywhere too.
Air hugs and Air kisses!
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Hello ladies! I tried replying individually several times, but my computer keep freezing. i'm hoping the update I completed will fix the problems I was having.
lmencken- As far as working...I honestly could not have worked this past week and I am the type person who works through anything. Today is day seven for me and is the first time that I have felt almost normal since receiving chemo. My job requires constantly dealing with people in my face and their germs. If you have a private office type job then it might not be bad for you. I work in a credit union, so it's fast paced and depending on what position I'm working (we rotate), I have hundreds of people in front of me on any given day. That being said, I may not have a choice but to return if my disability check is like the one I will be receiving this pay period. It was barely 1/4 of what I normally make when it's supposed to be 60%.
LisbethS-thank you for the tips! I saw my MO yesterday. It wasn't dehydration, but instead a reaction to my chemo. Perhaps that's why Ive had such difficulty. I'm on 12 days of steroids now.
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"Regarding Pertuzumab / Perjeta, I think it's only approved for neoadjuvant use for early stage cancer although I've heard some doctors will prescribe it after surgery. Since that's not standard of care and the drug is wicked expensive, insurance coverage might be an issue."
That's what I was told, for early stage it can be approved for insurance based on a fairly recent clinical trial when Perjeta was used with the TCH drug combination and showed improved results in neoadjuvant treatment. Since it was not tested post-surgery for early stage, it's not typically available today in that scenario since there's not documented evidence if it helps or not (I guess). For early stage, also the cancer has to be 2cm+ or certain other attributes I think. Mine originally was too small based on measurements with ultrasound, but hit 2cm when I had an MRI. (They told me that was due probably to sensitivity of the two tests, not that it had grown 33% in a few weeks. Hope that's the case.) So that led to their shocking me late in the consultations with the recommendation for the four-drug full 'tough regimen' 6-cycle chemo treatment, when originally I was not hearing about any chemo or targeted therapy at all other than possibly Herceptin post-surgery and a pill like Arimodex (sp?).
My hair was buzzed off to a very very short crew cut, it's kept growing a little since then. Of course now that's cut so short, I'm not noticing if it's continuing to fall out lol. I did pick up the wig, it looks nice although pouffier than my normal hair. I've worn it to work the past couple of days, not too uncomfortable as i'm getting used to it. Receiving a few comments ranging from people who just notice my hair look has changed and comment it looks nice, to a few clever ladies who rapidly guess that it may be a wig. Oh well. I wasn't hoping it would be totally unremarkable, just that it wouldn't attract great attention when I'm in meetings with people I don't know that well and who don't know what's going on.
Feeling pretty good this week, though still get tired and tending to fall asleep very early by my standards in the evenings. In to the doctor today for my first lab test and check-in with the MO with Look Good Feel Better class right after that. Hoping nothing weird results from the labs.
Back on the steroid pills this morning before treatment day #2 tomorrow. I didn't notice any side effects from the steroids the first time through.
Best wishes to all
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Emily is feeling much better this morning (day 8) and actually has an appetite. Let's hope she has reached the bottom and is coming up the other side.
VLH - I think a very high fever might indicate some sort of infection (due to the compromised immune system), so they'd most likely treat with antibiotics.
Makeiki3 - I suspect your cocktail varies a bit from Emily's because of your stats maybe? While we were in one of our initial meetings with her MO, he showed us how they determine the chemo regimen (via some onco website). The plan is based on several individual factors. I'm sure all oncologists follow the same protocol and use the same treatment-determination software. It takes all the guesswork out of it. Having said that, it is odd that your stats look very similar to misslil's, but she is getting the Perjeta. There may be another factor at play. I'm curious what you find out from your MO.
Lizbeth - Totally agree with all your food comments. Emily is following a very similar diet. Like you, she says watermelon tastes normal to her. Weird, right?
Hope everyone has a great day!
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Hi everyone,
First infusion day was incredibly long day - but not as horrible as I expected. I'm headed to my MO office for neulasta shot this afternoon. Feeling ok but waiting for the se to kick in. I'm not sure about when to go in to work. I guess I just have to see how this cycle goes.
Sam - glad to hear things are improving!
VLH - stay strong- you'll do great!
AngelaKS - glad you're starting to feel better- great info that the neulasta se may decrease in later cycles
Have a great day everyone! Hope everyone has at least one really good laugh today
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