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Who is starting chemo in September 2016?

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  • MFalabella
    MFalabella Member Posts: 105

    Hey all, hello to our new friends!

    TMI alert, I have officially started shedding, and NOT on my head. Freaked me out as I was in the shower and looked down at the shower floor. OMG. Talk about happening out of the blue. yesterday none, and this morning, I noticed my buzz looking thinner, and shower time, that experience..... .

    The D has slowed down, and I am feeling pretty decent today, Just in time for chemo next Friday lol. SO the fatigue is cumulative huh? Oh great, I thought I was exhausted this time.

    I am generally a positive person, but to be honest starting yesterday, I thought out of nowhere, What if the chemo doesn't work? I scared myself and hardly slept last night, I kept it to myself, didn't want to upset my husband. Do you all experience this or am I just being a debbie downer?

    I hope you all are well, and the SE are minimal. Lmenckin, the fuzzy brain is most likely the steroid that they give prior to the chemo drugs....at least it was for me, the chemo fog started about a day later. Love and light to you all,


    xoxoMichelle

  • MFalabella
    MFalabella Member Posts: 105

    oops, forgot something, Call the wambulance. My infusion room is nice, but no tv, and they have snacks and soup, but no breakfast and lunch. They do however have unlimited warm blankets so I repacked my chemo bag and took the blanket out. Instead of tv, have a great view of downtown Albuquerque and the mountains.


    xoxoMichelle

  • MFalabella
    MFalabella Member Posts: 105

    oops, forgot something, Call the wambulance. My infusion room is nice, but no tv, and they have snacks and soup, but no breakfast and lunch. They do however have unlimited warm blankets so I repacked my chemo bag and took the blanket out. Instead of tv, have a great view of downtown Albuquerque and the mountains.


    xoxoMichelle

  • bagsharon
    bagsharon Member Posts: 142

    Bcrohde, you are definitely not a Debby Downer. Everybody reacts differently and I, for one, think it is really good to share so others can learn from what you have experienced. You and I are on the same chemo and your schedule is only a day behind mine so I'm definitely going to be quietly following your symptoms like I do many others on this thread.

    So the Milk of Magnesia was pretty much just spitting in the ocean. It didn't help, obviously, but it didn't make anything worse. This morning I broke down and took an Imodium. It hasn't stopped the diarrhea but it has slowed it way down. I actually sat through an hour meeting at work without having to bolt.

    My scalp is starting to tingle now but no shedding yet.

    Every day is an adventure.

    Oh, I forgot to mention my chemo bag routine. My chemo room has no breakfast or lunch; just bags of chips and crackers. No TV; just a radio playing top 40. Plenty of warm blankets, though. I don't really bring anything other than something to read or mess around on the internet.



  • ACS74
    ACS74 Member Posts: 62

    Bchrode-Welcome! Please don't think of yourself as a Debbie Downer. We all experience things differently and being honest with one another in our SE's and feelings is helpful on so many levels. It allows us to know if something happens, that it's ok it happened for bchrode, too, I'm not crazy. We are all in this together through the bad and the good. You started chemo one day after I did and I think we have about the same progress. The first day wasn't bad, the second day was good until the nuelasta kicked in. Day 3-5 are a blur of pain and tears. Day 6 was decent, but sat in the doctors waiting area most of it. Day 7, Felt much stronger until the steroids kicked in and it felt like rock bottom again. Today, day 8, I feel like myself. I was able to do some outdoor chores and some light cleaning. I have decided to take my steroids at night in the hopes of sleeping through most of the bad reactions to them. Plus, I need to take my son to get his allergy shots and I can't drive on that stuff.

    Bagsharon-I delayed in treating mine, please don't let it get too bad and weaken you. Take two imodium the first time D hits, then take 1 after each reoccurrence for a max of 4 pills per day. If it still isn't controlled call your MO for a script. I should have called mine sooner and she let me know as much. It increases your chance for a UTI and none of us can afford an infection on top of everything else. I'm lucky that hubby installed a bidet on our toilet and I think that's the only thing that saved me.

    Lmencken-glad that things seem to be going well. You're in my thoughts!

    MFalabella-I know we've all had those thoughts, but we just can't let ourselves focus on the what ifs. Live each day to the fullest extent possible and spend it with those we hold near and dear-which believe me I know isn't easy while on chemo.

    My chemo room is two rows of chairs facing one another six on each side with a glass wall and another room on the other side. No tvs, no music but there is wi-fi, snacks and water provided as well as ice. They will get pillows and blankets upon request.

  • smilethrupain
    smilethrupain Member Posts: 133

    hi ladies. Had first infusion of TC Tuesday. Pretty uneventful except the burst of energy that came probably because of steroids. Took 3mg of melatonin to sleep. Next day was mild nausia and headache and stomach ache and I felt the start of big D. Saw my acupuncturist- he said taxotere causes constipation but cytoxane is the one doing a number on the G/I system. So he recommended I take 40bln active cultures (like 4. Capsules of culturelle). To help normalize. He also stuck a couple of niddles to help regulate - but that lasted a day :). Today metal taste kicked in with more nausia and joint pain. Felt really off today - tingly, foggy, hard to concentrate, and my contacts bothered me...Giving myself the Neulasta shot shortly - see what happens.

    Good luck to everyone

  • oceansky
    oceansky Member Posts: 77

    Thank you for the welcome.

    Had my first infusion of Abraxane Tuesday. Is anyone else taking Abraxane?

    Got my hair cut super short!, after years of mid- length high maintenance hair. Love the new haircut, wish I could keep it.

    Am not taking steroids with Abraxane, is anyone else not taking steroids?

    Best of the best to all here...



  • vlh
    vlh Member Posts: 773

    Bcrohde, I'm sorry that circumstances bring you here, but welcome. Don't worry about being a "Debbie Downer." You'll find an empathetic audience here.

    I had my pre-chemo CT scan and Echocardiogram this morning. I still have at least one more week of IV antibiotics, but I may yet get the chemo process started while it's still September.

    Lyn

  • seq24
    seq24 Member Posts: 451

    MFalabella--That is what they told me about fatigue today. The other SE are typical of the first infusion, fatigue is cumulative. I was told that it may "take an extra day" to recover each time, but that the best way to combat that is exercise. No matter if we feel horrible we are supposed to go walk or any other form of exercise. I tried that the other day when I was feeling so tired. I didn't make it far.

    Over the past few days, I have had times when I feel great then an hour later I feel terrible and need to sleep, then great, then terrible. I still think it is the effects of the stupid steroids. Hopefully they are out by now!

  • Ware
    Ware Member Posts: 63

    Treatment 2 in the books.so far it has been uneventful. Still chugging water. Hair is really coming out in clumps. I think by the end of the weekend it will be hat or wig time. I don't have my wig trimmed yet. The nurse was surprised I had so much hair and then realized I'm on an every two week cycle, not three. So I expect by this time next week it will be pretty much gone. I didn't seem to get as tired or woozy during today's treatment as last weeks. Maybe my body is figuring out how to handle all the pre chemo meds. My wbc count is back up. Thankfully. All other blood work looked good too.

    I hope everyone has similar easy ride as I've had (so far). I'm sorry to hear of all of the different side effects you all are experiencing. The cancer center I go to is a long room with chairs next to each other and about 5 semi private rooms if wanted. I stayed out with the "general population" today. Ended up sitting next to my daughter's ex/soon to be ex boyfriend's (17 and has distanced herself from him since he left for college. She says she's done with him. Time will tell) aunt and uncle. Small world. I can order as much as I want from the hospital cafeteria for free. Warm blankets available and water available. Tv for each chair available and free wi-fi. It sound like I have a pretty sweet deal.

  • misslil
    misslil Member Posts: 229

    On the questions to me upthread, if LVI is lymph node invasion - no, I didn't have any indications of that in my original DCIS treatment. (Nor so far in this bout with IDC based on dr exams and ultrasound/MRI.) I had a sentinel node biopsy performed in conjunction with my mastectomy. The SLN with my DCIS treatment came out clean, they removed 2-3 nodes in total. And the pathology from the major surgery confirmed DCIS but showed no invasive cancer at that time..

    I don't recall HER2+ coming up at all in my DCIS diagnosis, perhaps they didn't test for it?  It was ER+ (hence the tamoxifen) and I forget on the PR. It may have been positive but much less so than the ER. In the way they were grading severity of DCIS at that time, I was pretty high based on the tumor grade (comedo? etc)  and that I had several separate areas where there was activity, not all that close together.

    They were able eventually to get my port working today for treatment after a couple of hours trying to flush it into working, running he anti-clotting agent, and having me do more contortions trying to get a blood draw. It was good to hear if that had not worked, they would have gone ahead with the treatment anyway just doing a regular IV. Hope it won't prove this touchy all through the process.

    Otherwise the treatment was uneventful, feeling ok tonight except for the change in taste sensations which is already starting :(

    Best wishes to all

  • lmencken
    lmencken Member Posts: 77

    Round 1 down. Still awake and supposed to work tomorrow. Steroids energy...went for a 45 min walk..starting metallic a little already. Nothing else so far...nervous because when I checked zofran had not been called in yet so won't get it til late tomorrow. Hope I am not nauseous!!

    And I am coming to all your infusion rooms!!!! I ONLY have warm blankets which I didn't even try..well there is music..but no food..no TV..I colored . Thanks goodness you all prepared me One of my papers said go to a dentist 2 weeks earlier..really???!!! They are nice but also I checked in for my first infusuon and they said...oh this is your 2nd treatment....hows it going..ahhhhh!!

    Mfallabella..thanks..I don't recall anyone else mentioning fog during so didn't expect that. Glad your D is subsiding..didn't even think about THAT shedding!!!! Try to focus on that you feel thiese SEs because chemo IS working..you are doing what you need and was recommended. The rest take day by day! Hugs

    Misslil..Glad no LVI for ypu!

    ACS74..thanks you!

    Good vibes to all

  • LisbethS
    LisbethS Member Posts: 88

    Kechla, I've noticed that more and more articles are recommending 10 years over 5 years on the tamoxifen and AIs. I'll be interested to find out how long my MO will recommend.

    Bcrohde, welcome, sorry you have to be here. This is the place to get it all out. All that matters is that we get to be honest and we are all here for each other.

    jiffrig, Half-way done! YAY! I get IV fluids to prevent dehydration and also to flush the meds out of me because I was having a bad reaction to one or more of the meds. They really helped. Hope you get your anemia under control, what a double whammy with the fatigue.

    ACS74, I want a bidet! Is yours a standalone or the seat cover kind? I saw the seat cover kind at Costco a year or so ago and told my husband I want one! Haven't gotten one yet, but my b-day is coming up, a girl can hope!

    Sr2295, good luck wig shopping. I have one picked out but haven't decided when to buy it. I do have my halo wig and a couple scarves and my baseball hats, so I'm good in a pinch.

    Falabella, I know exactly how you feel about whether chemo will work or not. I think that's why i like obsessing about SEs, it keeps me focused on the day-to-day and keeps my mind off the afterwards and what ifs… I forget most of the time, but once in a while, bam it's like a ton of bricks have been dropped on my head.

    Bagsharon, glad everything wasn't too bad with the milk of magnesia. Hope you're keeping hydrated.

    smilethrupain, i didn't know that the taxotere causes the C and the Cytoxan causes D, interesting. The PA did tell me that Cytoxan causes muscle pain whereas the Neulasta causes bone pain so double whammy. oh joy.

    seq24, I hate the stupid steroids too! And now, to add insult to injury, they've given me the worse acne ever, on my back of all places. I couldn't figure out what was going on, I thought my hormones were going nuts but the PA today said it was the steroids then I remembered that I always get acne from prednisone which they used to give me for asthma. Duh, chemo brain.

    My PA told me today that they are cutting my steroids down to a quarter for infusion #2 (from four pills the day before and day after to one pill day before and day after), and no steroids for infusion #3. I'm happy but a tiny bit worried because I know from the August group that the ladies that had a BAD reaction during infusion—needed oxygen etc., they often had it with infusion #2 not infusion #1, someone explained it like this: first infusion your body has no idea what hit it, second infusion, your body is like "Oh heck no, not this again!"

    Ware, you do have a sweet deal. I'm in big room with 20 recliners in a big oval all facing each other. A couple big screen TVs but not on anything that anyone wants to watch. There's one private room but that's only for contagious patients.

    misslil, glad they got your port working. What a pain.

    OceanSky, How short is your hair now? Mine's now about 3-4" instead of 12". My husband cut off my ponytail for me and now it sort of looks like a chin length bob. I was going to go to the stylist to get it fixed, but haven't had a chance yet.

    lmencken, Yay, so glad you got your first infusion over with. Try the warm blankets next time, they are the best thing ever! Sending you NO SE vibes!

    Okay, you know I can't write a post without giving advice, so here it is. I looked it up and talked to my PA about it. The reason the wig place told me to NOT shave my head is because it cuts the hair off at the surface leaving the hair nubs attached to the dying follicle under the skin. Some of them will fall out but many will get caught under the skin and cause a pimply painful rash. If you get your hair hand scissored at a half inch or more, it gives you something to get a hold of to pull out the hair and it won't be trapped under the skin. At the same time though, if you leave the hair too long then the weight of the hair pulling can cause the nerves to get sensitive. The PA didn't know why they prefer scissors over buzz clippers but it could be scissors are easier to keep sterile or maybe buzzers don't cut hair long enough, IDK. The PA also said if my head starts getting really sensitive to put a bag of ice on it at home.

    As usual, I've stayed up too late and wrote too much. I had a good day today, until I tried to cut an 8" styrofoam ball for my son's animal cell model and found there is no knife sharp enough not even our electric knife so now I need to find our hack saw. Who would have thought styrofoam would be so hard to cut? Zapped all my energy.

    Shedding like crazy, I'm going to try vacuuming it tomorrow.

    Air hugs and air kisses to all!

  • Ware
    Ware Member Posts: 63

    Morning after 2nd treatment. 0 SE so far (except for the shedding). Just took a compazine pill which I suspect is responsible for my inability to focus and fog like state. I guess we shall see if that happens. I take compazine instead of zofran because of an interaction with another med I take. I'm better prepared this time around for the fog. I wish I could take on some of you alls SE to help you out. I would if I could. I also wish I could share my treatment center with LisbethS.

  • mocogram
    mocogram Member Posts: 94

    Hi everyone,

    Had my port placed yesterday, start chemotherapy on Monday. Port placement went well, a little sore, but OTC meds are working okay. Nervous about chemo, mainly because I don't know what the side effects are going to be like. One of the worst parts of this whole journey has been the loss of control and not knowing what's going to happen.  

  • seq24
    seq24 Member Posts: 451

    Ware-Just a thought I had regarding the Compazine and my office visit yesterday. When I took that after the first infusion, I too experienced the fog BIG TIME. I was dizzy, couldn't focus, you know the feeling. The infusion nurse instructed me to take it as a preventative measure for nausea starting the following day. When I saw the FNP yesterday she was asking me about all of that. I was also prescribed the scopolomaine patch to wear for 72 hours starting the day before infusion. She said that the meds in the patch and the Compazine were in the same family and that they could not be used together. Either one or the other and I was feeling so foggy and dizzy because it was basically an overdose. I'm going to verify this with the actual doctor. I also have Zofran which they said not to take until 3 days following infusion (never even took that) and Ativan which I am supposed to take at night to counteract the effects of the steroids so I can sleep. For the next time I was told, since I didn't have any SE the first time, to hold off on the nausea meds, unless I am actually feeling something. Not sure that is a good idea either. Keep us posted as to how you're feeling. I'm right behind you for infusion #2 next week. Getting very scared for the shedding to start. Nothing yet, but I know its coming.

  • seq24
    seq24 Member Posts: 451

    Lisbeth--interesting about the steroids. I was told by the FNP to cut my at home steroids in half "if I wanted to". I know they definitely help with the nausea and I am very nervous about cutting them down for that reason, even though my biggest complaint has been the effects I had coming off of them this week. It was absolutely horrible and I don't want to experience that again either. I have to take 2 pills each morning for days 2-4. Someone suggested the full dose on day 2, 3/4 on day 3 and half on day 4. What do you think? Of course my MO is out of the country for 2 weeks so I can't even ask her.

  • misslil
    misslil Member Posts: 229

    hi all

    If the steroid pills can cause zits, that could explain the red spots I got last time. It took quite a while for them to fade off, finally started to last week (2 weeks from treatment). So maybe they will be back now that I have been on the steroids W-F for my treatment yesterday.

    The salon I went to for my wig and getting my hair buzzed was pretty tough love about it. I was testing out the idea to have it cut maybe to 1/2 or an inch just to see. Longer I figured would too much under the wig and with shedding. But i was hoping to stall off a bald feeling.

    She was pretty insistent that it should go to fit under the wig properly and to avoid triyng to hold onto it once it started to deteriorate. She buzzed it off not fully to the skin but probably 1/8 inch or so with just a bit of hair left. The only area that has been a touch sensitive was sensitive when I had my full mid-length hair and quite a bit shed in the middle part region where it was very visible on the third morning after the shedding start.  First day I noticed it falling, I wore it long to work and it was ok. Second day I pinned it up and disguised it a bit which also preventing hair falling out weirdly during the day when I was talking to coworkers. ugh.  Third day it was too ratty so I wore a scarf over it to work. 

    Since I got it buzzed off, its both been growing and falling out lol.  And giving me a good idea what's really under there at the roots after I've colored my hair for ages. More of the original color than I'd realized but lots o' white.

    Woke up way early today at 4:30, not sure why. Otherwise feeling pretty decent. Back to the clinic for IV fluids and Neulasta this afternoon.

  • ACS74
    ACS74 Member Posts: 62

    LisbethS-we got ours off Amazon for $50, and it was simple to attach to the toilet. It took hubby all of five minutes. He surprisingly loves it more than I do. The only downside is the water isn't heated, but it doesn't bother me. After my bilateral mastectomy my drain tubes prevented me from being able to properly cleanse so this was our solution. I really don't know why these things haven't caught on in the US, they are more hygienic and save so much toilet paper.

    Seq24-My MO tapered my steroid dose like you suggested to prevent withdrawal SE. She decreased my dose by 1 pill every 3 days. Based on that, I'd say your plan sounds good. Zofran works in under 30 minutes. I only took it as needed, I have compazine, too, but she told me to take that ONLY if zofran is not working because it does have more SE's like drowsiness and a "foggy brain". I was fortunate that nausea was not one of my SE's very often and it usually quickly passed.

    Prednisone causes acne? ARGH!? That's why she prescribed it. She said what looks like acne was a reaction. If I get acne now in place of this faux acne..grrr. I found a way to cut down a lot of the SE's with the steroids. I don't know why I didn't think of this sooner. My children (2 have asthma) are often prescribed this med and the doctor always said give it at night. So, I waited all day and took mine at bedtime and boom minimal SE's now. I slept much better, no D, just a little shakiness but much better than the first day.

    I still haven't even started wig shopping, I have no idea how much my insurance even covers. I'm still in denial big time on that one. I do have two scarves that I've received in the mail.

    Ware, Smile, Lmencken-I hope minimal SE's for you ladies! Hang in there, rest often, stay strong!

    Have an awesome day ladies and Sam! For those that haven't posted in a bit my thoughts are with you and I hope you're all doing well.

  • GonnaBePoz
    GonnaBePoz Member Posts: 20

    FIRST DAY OF CHEMO. MY EXPERIENCE: After a month of dread, I was relieved that it was so easy. The worst part was the tiny stick for the IV. My best friend came along and kept me company. We had a tv but didn't watch it. They offered warm blankets, but I already had prepared my "chemo bag." Thanks, Pinterest. My friend brought me a chemo bag too lol. Within 5 minutes, I was drowsy from the Benadryl but never went to sleep bc I was visiting. The nurse also gave me a steroid, followed by the Taxotere. I guess she added the Cytoxin, but honestly I can't remember. I was still groggy when I got home and dizzy when I got up. I've been drinking so much water that I've been to the bathroom every hour on the hour. I've taken Claritin the last couple of days to prevent bone pain. The bones in my legs were hurting last night. Is it normal to have bone pain on the first day? Also, a friend recommended the Tea Tree Oil for my nails. For those of you using it, when do you start it and how often do you apply it? I didn't sleep any yesterday due to all the visitors. I woke up feeling great this morning (the steroids?). When I arrived at work, my stomach became upset, and I got a LITTLE weak in the legs.

    At this point, I'm feeling great mentally and emotionally, except I'm worried about my finances. I'm a high school teacher without many days off. I will get docked for days missed. My ex stopped paying insurance on our daughter two years ago. He has been promising to pay, but now, he says the law says I must pay because he's self-employed now (???? long story). He also quit paying child support almost a year ago, so I added her to my insurance, which costs a fortune just pisses me off that he is not paying it. Financially, I'm in a mess.

    Thanks for all of your posts. They have been very helpful.

  • Ware
    Ware Member Posts: 63

    I am going to try the compazine every 8 hrs instead of 6 and see how that goes. I've taken it twice today already. So far no problems.

  • lmencken
    lmencken Member Posts: 77

    Lisbeth..you are too funny...hope you finally got that Styrofoam cut!!

    I will definitely try a blanket next time..since my

    center has no other perks...boo!

    So the CT people have 1 D med and 1 C med. Too bad they don't cancel out!!!

    Thanks for the low SE vibes.so far so good..just a red face from steroid..

    So I prepped for the neulasta but was told when they check my levels in 10days... i only get it if i tank. So probably not til later cuz I'm assuming the tanking is inevitable.

    He Gonnabepos..I bought tee tree oil too..did not use yet.maybe this weekend ..couldn't hurt to start right??? It's a natural oils and why wait til they get icky. Sorry about work and the ex....but take it 1 day at a time. Some people worked straight thru..you may only need a few days off..hang in there

    ACS74.thanks for the pump up!

    Ware..2 down!!!!

    Here's hoping my zofran is at the pharmacy today.got the weekend coming!!!




  • Jiffrig
    Jiffrig Member Posts: 158

    For all of you using tea tree oil, I have been told by several people to dilute at least 50/50 with a base oil, jojoba, almond, coconut, even baby oil as it is very strong and will irritate if used straight.

  • lmencken
    lmencken Member Posts: 77

    Thanks Jiffrig!!!!!

  • AngelaKS
    AngelaKS Member Posts: 67

    Hi All & welcome to our new friends!

    I was doing pretty well, the big D came I think on Monday and by Tuesday I took 1 Immodium and it was all over. About two hours later, I was vomiting and have been since then. I went to the ER on Wednesday and they gave me pain meds, a bag of fluids (not nearly enough) and anti-nausea meds. None of it helped. I have been taking Zofran but between vomiting and D, I cannot get anything in me. I haven't taken my normal meds since Tuesday morning. I did take a nap this morning after taking my son to school and woke up feeling a bit different. I am not sure how else to explain it but I pray it is the beginning of feeling better. I haven't eaten anything since Tuesday morning and know that I need to get something in me at some point. The stomach pain has just been too much to try anything.


    My center has vending machines, microwave and heated blankets. There is a TV in each little cubby but always someone or 2 or 3 that have them so loud you cannot hear yours. No food offered and the cafe on the floor is pricey especially if you need breakfast and lunch which my husband and I did last time.

    I hope you are all doing well and I apologize for not responding to you all. This is the first time I even felt up to reading the posts.

    xoxo

  • GonnaBePoz
    GonnaBePoz Member Posts: 20

    ((Angela))

  • lmencken
    lmencken Member Posts: 77

    Aw.Angela..hang in there!!!! Sending hugs and strength to you..hope it passes soon!!!!

  • bagsharon
    bagsharon Member Posts: 142

    Is anybody exercising? I have a race tomorrow that I registered for nearly a year ago. I tried to do a practice run last Sunday but that brought on extreme fatigue and I've been afraid to try again. I'm not even going to try to run the race but now I'm wondering if even just walking it will be too much. It was originally going to be 14K (aprox 8.5 miles) but I changed it to the half - 7K (4.3 miles). I'm feeling pretty good. The diarrhea looks like it has stopped. I'm keeping hydrated. My last run was the day before chemo so it hasn't even been two weeks.

  • smilethrupain
    smilethrupain Member Posts: 133

    it's been 23 hrs since Neulasta shot. The pain is excruciating and mind-numbing. It's kind of disorienting be use so many diff parts are aching, so many pain receptors activated - hard to process. From jaws, to the pinkie to joints in my toes.... I walked for 40 min - stretching helps more than walking. And Advil takes the edge off

  • CC2016
    CC2016 Member Posts: 94

    I thought I'd offer my experience this week, maybe it will inspire someone since I don't have many complaints! My port was placed last Friday, surgeon said the goal was that I would be able to forget about it between infusions. That has not been true! The swelling has gone down but my shoulder and neck is still sore and it has been uncomfortable to sleep. Besides the fact it's a visible lump under my skin! I took hydrocodone the first couple of days but then remembered an essential oil blend I made for my husband's bad back. Slept well for the first time that night after rubbing it in. I'm still using that rather than the meds. First AC infusion was Tuesday morning. Scared to death walking in but it was really not bad. My biggest fear was some horrible reaction to the drugs. The infusion center is not in a hospital, the doctor is there but I'm sure an ambulance would have to be called. No need. Wild imagination. I got to go home and see my kids. Prayers answered. Port access was no problem, freezing spray before the poke so didn't feel anything. I had put the lidocaine on but didn't mention it since I know the spray works really good ;). I had a bag of anti nausea, I know she said I would get steroids but don't know when that happened. Then started C and finished with the red A. Got a tad queasy a couple of times. The nurse called in scripts for prochlorpromazine and zofran. The P for mild to moderate nausea and Z if it gets worse. She recommended I pick it up and take it right away since it seems I have a "sensitive tummy". (I didn't a few weeks ago, until the nerves of chemo prep took over.) I did take 2 P on Tuesday and put on the Seabands. I was drowzy and queasy the rest of the afternoon but can't be sure how much was meds and how much was nerves. I actually ate a decent dinner-and got horribly nauseous and tired so went to bed super early. Wednesday was nothing to report-Seabands made my thumb muscles sore I think. I took them off that night and haven't had to put them back on yet. And thumbs are better now. Yesterday and today I've definitely been more tired than normal and my stomach has been making weird noises. Some D by that has been off and on for a few weeks now-nerves I think. A Culterelle has kept it under control so far. I've made some essential oil mixes for tummy/nausea and keep the Seabands with just in case but haven't needed it yet. My appetite has been good, not great, but definitely better than expected. Metal mouth has come and gone several times, saltwater rinse when it does just in case that's a sign of oncoming sores but nothing yet. I've heard neulasta is a possibility if levels drop, here's hoping I can hold off. I prefer to keep the meds as minimal as possible. Some of the stories y'all are telling scare the crap out of me so I'm glad of the lack of pill bottles I have right now! I've heard days 3-5 are supposed to be the worst so am holding out hope that was it. I've got big plans this weekend that I really want to make it through!

    GonnaBePoz - I'm praying you're community gathers round and takes care of you and your daughter. Exes and bosses are not what you need to stress over! I hope a secret admirer brings you groceries soon ;)

    Bagsharon- if the race has the "give up trucks" or whatever they're called I'd say go for it! As long as you can stop when you need to and you feel up to it at the starting line, why not? I started walking a couple miles most mornings just over a month ago now trying to prep. It's been harder this week but then the air has been crazy heavy humid. Can't be sure again if it's the chemo or not. I'm sure it's a factor but to what degree...?

    I hope everyone has a wonderful weekend full of rest and fun and healing and positive thoughts. A girl can dream..