Who is starting chemo in September 2016?
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You too Dennyj!! I looked back, and it slowly dropped, but this one was a bigger drop from 127 I think to 87. Fingers and toes crossed for you!!
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Ajbclan......sorry your chemo was canceled...Wednesday will be here before you know it:)
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ABJ-Now you can enjoy this weekend! Go ahead and change that reply to whatever you were hesitant to agree to and make the most of it!
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Abjclan - I am so sorry to hear! Get strong and kick it's a$$ next week!
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Thanks everyone!!!
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Hi All!
ajbclan - I am sorry it was cancelled. I know the feeling but the last one. Hang in there.
I am sorry that I haven't been on. I have issues logging in - I have to reset my password every time and honestly the past couple of weeks have just been rough. I think I posted that I was in the hospital for five days. Blood transfusions and just before discharge platelets were infused. I was supposed to get #5 last Friday but they wouldn't do it. I was so disappointed. I was supposed to be done before Christmas but no, now it is tomorrow and we are getting a snow storm. My husband had to take a vacation day (his last until Oct 1) so that he can take me. I was sick pretty much from the last treatment until last weekend. My body is not tolerating the chemo well and they are reducing the dose as well. I have not met with the surgeon yet and I am not sure what we will be doing. I know surgery and then six weeks of radiation and possibly more chemo which I do not want to do. I am so over all of this.
Best wishes to you all xoxo
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I have been having the eye twitching and bloody/runny nose too! Thanks for the tips on that!
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Angela- I can't complain! You've been put through the ringer, and we're on the same drugs, really close time line. Hang in there- weather and vacation days aren't helping either. It's beyond frustrating sometimes. Even though I'm tired of the crowded Southern Calif, I can't complain about how close my Dr's are (and we have decent weather lol). I've had my pity party and now mentally moving on. I read about foods that can boost platelets (who knows)- so even though I'm not a papaya fan, I bought one and some nectar and will try and make smoothies this week. It can't hurt lol.
Keep us posted when you can.....
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Thank you! I will be fine, and I will get through chemo. I was just feeling a bit down about it all earlier.
I envy your weather! I envy everyone that lives where the weather isn't so awful in the winter lol
xo
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Angela sorry, it's the carboplatin ... any chemo with platinum is very hard on the body. hang in there... Wishing you the best.
I am 3wks pfc and eye twitching and watering just started today... Can't concentrate at all at work
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Yes, I forgot to say that. That is what she is reducing.
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AngelaKS - Wow, you have had a really rough go....I hope that things turn around for you soon!
On the eye twitching...I am back to drinking gatorade and it seems to be a little bit better...
Bought a wig today. Kind of a surreal experience to go wig shopping with my mother and kids.
The kids missed their first day of school today for a good reason....My mother and I brought them to a Christmas theme wonderland. They had a great time...we watched a 3D Polar Express and went skating. I am not one to pull the kids out of school but this experience has taught me to live in the moment and so that is what we did today.
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Hi MFalabella, Tatatootsie here, I read your profile and I was diagnosed out of the blue with ILC
in September, have had BMX and am approaching the reconstruction phase. Both surgeons and
oncologists say I'm healing and doing well. My nerves are at a total frazzle because I am not
able to take anymore hormones....and I feel I am becoming homicidal !!!! Some people think
it's funny, but it is horrible. They say "I know the feeling" but they really don't. I am fairly new to
BC.org and have been very encouraged by a lot of the gals who have already experienced
what I am about to embark. Have you visited the "Lumpectomy LoungeS" ?
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Hi MFalabella, Tatatootsie here, I read your profile and I was diagnosed out of the blue with ILC
in September, have had BMX and am approaching the reconstruction phase. Both surgeons and
oncologists say I'm healing and doing well. My nerves are at a total frazzle because I am not
able to take anymore hormones....and I feel I am becoming homicidal !!!! Some people think
it's funny, but it is horrible. They say "I know the feeling" but they really don't. I am fairly new to
BC.org and have been very encouraged by a lot of the gals who have already experienced
what I am about to embark. Have you visited the "Lumpectomy Lounge" ?
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tatatootsie- LOVE the Lumpectomy Lounge! My favorite board!
Angela-why are you getting herceptin/perjeta with your hard chemo? I would ask to start that after? I finished my AC chemo first, & now get H/P with Taxol (every three weeks; but Taxol weekly). That is a LOT of meds your body is trying to process. I'm not sure reducing the one will really work.
I had Taxol #4 with Herceptin & Perjeta #2 today. Thankfully no riggers this time. Also had them cut back the benedryl drip dose so I wasn't so groggy. Feeling good so far, just some minor tummy icks & random/weird hot flashes. They almost didn't do the Herceptin/Perjeta because my Troponin level had gone UP to .10! It was.07 when I wound up in hospital a couple of weeks ago. But I felt fine today-weird. NP called my cardio doc to confer (who I had already met with after troponin hospital visit). She confirmed that unless the troponin gets to .20 she's not too worried because my heart passed all the other cardio tests when in hospital last. So NP allowed infusion. I do have my 3 month echocardiogram on 12/21, so I'm sure that will be key in determining future steps.
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kdtheater - TCHP is usually given as a combine treatment. It's the manner in which the study was done and therefore most oncologists continue with the protocol as prescribed. Herceptin will continue for the completion of a calendar year for most of us after the TCP portion is completed, but I agree Angela, perhaps they could make an exception in your case and stretch it out a bit if they think that will help.
My MO told me even before I started TCHP that most in the trial did not make it through rounds 5 & 6, stopping the treatment after round 4, presumably due to the side effects. Mine have not been bad enough for me to consider stopping (as much as I would have loved to), but I undertstand it for those that have had a rougher go of it.
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Ditto for Emily. She gets all 4 through 6 treatments, then continues Herceptin every 3 weeks until next August. She is already almost back to "normal" at day 10 after her 5th round, so she should finish on schedule on the 21st.
As far as the eye twitching, it may be caused by a magnesium deficiency. Before Em was told her levels were low (round 4) and got a prescription, she had bad eye twitching. Now she takes 400 mg twice a day and the twitching is gone. Might want to ask your MOs. Can't remember which chemical strips your body of magnesium, but it's most likely the taxotere or carboplatin.
Have a great SE-free weekend!
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One more Taxol!!!! One more taxol!!!!!!!! One more taxol!!!!!!! I can do this!!!!!!!! You can do this!!!!!!!
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Hi All!
Hope everyone is having a nice start to their weekend. Here in So Cal it's a little gloomy.
Well my 5th TCHP is scheduled for wed Dec 14 if all test come back okay on Monday. Have been. Having twitching in my legs thought it was potassium took blood test no call back for prescription so I guess that's not the issue. also have twitching in eyes will talk to MO About that on Monday.
For those that are nearing the end of their treatment have any of you been contacted about a scan to see how things are? MO said breast surgeon should be scheduling a scan but haven't received a call. Some of you seem to know when your surgery is etc... just wanted To know if this is normal.
T
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Beachbaby is right - it is all done together and the Herceptin has to be done a full year. I will finish that in early Sept. It also does not cause the same s/e that the chemo drugs do. I was told that it is protocol to reduce especially the Carboplatin and they do not seem concerned about it at all. I am guessing it is a better choice than stopping chemo.
I did have a good echo last week so I was happy about that. I was concerned about having to stop the Herceptin.
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Ladies, was it this group where someone developed a swollen eye during chemo? Mine is fairly minor at this point and I don't like contacting an on-call doctor on the weekend, but don't want anything to delay my first Taxol treatment on Tuesday. Thanks!
It's good to see you all. Since my chemo was delayed because of the second lumpectomy and nasty infection from draining a seroma, I mostly hang out in the October group, but still read this group's posts. I've had a rough time with my AC so it's nice to see those who are farther along in the process.
Yay, Ware!
Lyn
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VLH - On my 3rd round of chemo (maybe a wee or 2 out) my eye started to swell up (like I had been punched in the eye). I keep a warm compress on it for most of the day and night. When I woke up in the morning both eyes looked like they had pink eye. We called the hospital and they were not overly concerned. I took eye drops and the swelling went away (and it was not pink eye)...That was my eye experience and I have not had one since then.
Round #5 coming up tomorrow. My platelets are running a little low...I am really hoping that tomorrow will happen (lol, who would ever think I want chemo!!!)
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Dennyj- yes- when would I ever type "wishing you chemo tomorrow?!" But I'm with you- I'm still thrown off mentally from my delay due to low platelets last week, and now just hoping they're coming up and I can get this done Wed. Keep us posted....
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Thanks, Dennyj. The on-call doctor is calling in an Rx for another antibiotic. I'm going to try the warm compresses with his blessing, even though I think of cold packs for swelling so that seems weird to me. :-
Lyn
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Taxol #6 was on Friday. Halfway done with that. Thank goodness. Not feeling much effect from Taxol so far and no major problems as of yet, which I am very thankful for. White blood counts are dropping every week though. Does anyone know if they would delay chemo from a low white count? I know that happens when the red counts drop too low. I'm being very careful to not go anywhere there are crowds of people to avoid getting sick. I have lost most of what was left of my hair after AC and my eyebrows are now thinning. I am not happy about that. But I do have a lot of new hair coming in. It's about 1/16" long. I have heard that the Nioxin brand of hair products are good to use to get hair growing faster. Has anyone used them and had any success? I looked on their website and there are several different formulas. Not sure which one to use, if any at all. I had my radiology consultation last week. I was surprised to have this a full 2 months before I start radiation. I have my full appointment schedule now including the rest of chemo, port removal, radiation and a few of the follow ups afterwards. I'm not sure if that makes it seem like the end is in sight or that there is still a very long time to go before this is over, because it goes into late spring/early summer.
Here's wishing everyone well!
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I cannot sleep! Steroids, anxiety over tomorrow, and hot flashes are keeping me up!!!!
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Seq24 I do believe they have a threshold on the white cell count, and may delay it if it drops below that, but I'm sure each MO is slightly different. My platelets dropped tremendously between #5 and #6, so I was delayed a week (fingers crossed they're coming back up to get this done Wed!).
Dennyj- Wishing you lots of chemo today lol!! Keep us posted, I hope you were able to get back to sleep!
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Well #5 is in the books....I had my blood drawn on Friday and the platelets were low so they had to retest my blood today. Amazingly enough...my platelets were increased by 80 so chemo was a go. I was so worried that they would put it off a week and that I would feel crappy for Christmas. My goal is to have my last round of chemo on Jan.3rd....and then we are heading to warm Florida at the end of January. My Oncologist will guarantee nothing but this is my light at the end of the tunnel (at least this first round) that I am really holding onto. Everything is so time sensitive to make it happen!!!!
Little nervous about this round because I am already feeling crappy..... Have to lay down so I can watch the Patriots tonight!!!!
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Dennyj - I have #5 on Friday and started feeling yucky Saturday evening. I am okay now but this morning was rough. I hope that it gets better for both of us. I was sick pretty much the whole time between my scheduled rounds. I was feeling better by the time I actually had my infusion but ick! I am ready to be done with this part. I am scheduled for my last round on Dec 30. I am with you and hope that I will feel good for Christmas.
xoxo
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Dennyj- so glad to hear you were able to cross another one off! Amazing your platelets increased, I'm a little fatigued so it's making me a little concerned- fingers crossed mine come up by Wed. Smooth sailing Or few side effects I should say- to you and Angela.
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