Who is starting chemo in September 2016?
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Dennyj- I'm there with you. This last round of SE has been rough. Throughout this process never had a cold cough nothing. Well I finally get to the last treatment and what do you know a cold and cough. Didn't need this!
Are you starting on the every 3 weeks herceptin soon? The nurses already scheduled my start date. I thought I would get a break but I guess nof. Appt with breast surgeon is jan 23 first round of herceptin only starts on Jan 25.
For those that are on the herceptin only how is it? MO said this will.be easier than the TCHP. But just wanted to know how your feeling any bad side effects.
Thanks
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Leydi
I noticed an odd thing on one of my fingernails yesterday...which may be similar to your toenail? Not sure you can see the bump/bubble near bottom? I worry that's an indication I may lose this nail in the future.
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I've had multiple ridges on my fingers for a while, noticeably a little bit a part corresponding to the chemo cycles (I call them tree rings). They may be on my toenails also but I haven't looked lol.
I mentioned it to one of the R.N.s, she said it didn't mean my nails would fall out after I said I had read that could happen sometimes. So far so good. I suppose we can look forward to these ridges/rings growing out as a future sign the chemo traces are leaving the body?
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Hi there! I'm at the same spot as many of us who have finally finished up chemo this past Tuesday. Totally felt like climbing Mt. Everest, in terms of what we all have accomplished these past few months. SE's are not out of the ordinary so far which I'm grateful for. Not having any break between TCHP and HP which will continue through September. Is anyone else taking HP and not just H? Just curious. So looking forward to not dealing with the most adverse of SE's.....ever again!!!! Radiation will start up sometime in February for me. Won't have the last of my reconstructive surgery until late September. My plastic surgeon wants me to be 6 months post radiation before she'll do the final surgery. Fingers crossed here. It's a long road and so glad I've got this page to get support.
Best Wishes to Everyone!
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Sorry that I've been gone. Had my last chemo on Friday! Had to wait an extra week due to platelets.
Went for genetic testing last week and have to wait for results before deciding on surgery. Hoping no hospital stay this time.
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It's so encouraging to see so many of us moving on in our journey. I will be having #6/12 of Taxol tomorrow. It seems like I'm just slogging along, but I didn't really get behind anywhere, it's just the way it is... My surgeon says she removes my port when the MO says to, and he doesn't typically take it out until after the 6 month after PET scan, and sometimes he leaves it in for a year. Uggh. I guess that is better than taking it out too early and needing it again, but it seems like just such a looong time. It's a good thing my surgeon buried it deep enough that it isn't very noticible.
Had a CT scan on Weds, due to my tumor markers trending up. Getting onto the hospital portal and reading the report (because who knows how long it will take to see the MO), it looks like everything is fine. Wonderful words were there...stable...unremarkable...normal...
LOVE the hair pics! I too, have a bit of peach fuzz going on. Misslil, I LOLed at your comment...my hair is trying, too!
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Hahlyn...herceptin begins for me on the 24th and it will be every 3 weeks. Surgery is on Feb. 2nd and radiation will start not many weeks later. I think we are kind of on a similar schedule.
My nails do not look to great. This last round did a job on me!
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Dennyj- My SE's from the last round seem to hit hard and last longer than previous rounds... You'll get through it though! Last time!
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Last round of TCHP SE awful. I'm in bad shape. Getting hydration right now. Thank the Lord. Developed a cold cough and runny nose. Not able to eat. Potassium is low BIG D ( had since September) but seems particularly worse this time. I sure was hoping for mild SE I needed it. Just trying to hang in there.
Have a lot of you lost weight? I've lost 26 pounds. I could have stand to lose some and could probably stand to lose some more. Didnt want to lose it this way but i.guess I have to look at the silver lining i.could have packed on 26pounds. Has anyone else experienced weigh loss.
Hahlyn
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Hahlyn, I've lost around 20 lbs, a little more at peak periods after a lot of nausea or D episodes. Your SEs sound similar to mine the weeks after TCHP #6. I'm not really able to tell about any SEs due to Herceptin-only round #1, as I still have the SEs lingering from TCHP.
No word back yet from the extra labs they drew last week to check on anemia and other potential lingering deficiencies.
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hahlyn, I also have lost about 25 lbs( that needed to go anyway). 10 days since TCHP #5... Worst side effects so far, especially the diarrhea! Sorry TMi . And the fatigue! Making me nervous for #6, but so anxious to just get it over with!
Another bad side effect is my toungue . It's like pop rocks when food touches it. I may be exaggerating a little , but it's the best description I can come up with. I haven't really heard or read any one else describing it that way. It's more than just a bad metallic taste, it's almost like certain flavors, esp salt just kind of "pings" off my tongue. Weird. It lasts anywhere from 4-10days. I can't wait to enjoy eating food again! I really love food! Lol
Anticipating surgery the beginning of March , lymph node dissection (occult primary), then radiation and continuing with Herceptin.
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I am currently getting my Last Taxol!!!
Yay!!!!!!!!
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Nayda congrats! Happy Dance! I start my first round of herceptin every 3 weeks until September on Jan 25 finished TCHP 6 rounds on Jan 4. Be glad when this is said and done. Have s great weekend!
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*doing the happy dance! *
Thank you Hahlyn!
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nayda985: Congrats! So exciting!!!
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Yes it is exciting NotTheBoss!....I have been smiling all day! Thank you lady!
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Nayda--I posted to you on the other board too, but congratulations!!!! So happy for you! I'm right there with you. My last Taxol is next Friday. If there are any side effects that to along with the last treatment I doubt we'll feel them because we'll be too darn happy that this is OVER!!!! I can't wait to join you in the happy dance!!
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Nayda congrats!!!
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Thank you! Seq and Smile!
Super excited to be done with Chemo!
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I just had my last tchp on Thurs!!! Woohoo! No SE yet but I'm sure they are coming. I have a breast mri on mon, meet with the surgeon tues and gyn on friday. Surgery lumpectomy and ovary removal scheduled for Feb 9th then rads 3 to 4 weeks after. Lots going on. I also get my first single herceptin Feb 6th. It seems like a few of us are on a similar schedules. Best of luck ladies!!! Stay strong and positive on this crazy journey!!!
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Congrats Lynn on being done! Seems like you have everything already lined up surgery rads etc...
i finished last tchp on jan 4 SE are still bothering me. This last one really wiped me out. I have appt with surgeon on Jan 23 I guess then I will get surgery date etc..I start 3 weeks of herceptin on Jan 25. Hoping for the best for all of us.
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Congrats to everyone finishing chemo!!!!
I am pretty much done with SE's from my last round. I was definitely more tired this round! I had a MRI yesterday (I am impatiently waiting for my results...the Ativan is not really helping) and I start herceptin next Tuesday. My surgery is coming up quickly and I am a bit nervous. I finally decided on a Radiation Oncologist so that definitely eases some of my anxiety.
I really cannot wait until all of this is a distant memory!
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My second round of Herceptin-only is next week. Feeling a bit better this week but still lingering issues of occasional D, neuropathy on fingers and feet, etc. The constant heartburn seems to have faded, happy about that, and eating a little better. Still getting episodes where my heart feels like it's pounding or short of breath - feels though like they are slightly less frequent than they were. Won't know if I'm making progress on the anemia or low potassium til a follow-on lab test which may not be until mid-Feb unless I have a pre-op blood best before then that would tell me anything.
Met with surgeon last week, he had no plans to work from until I got a new MRI which I did this morning. Expecting to get a call from him on next steps after he gets the report, also have to meet with plastic surgeon later this week.
I had the ultrasound follow-up evaluation ordered by my MO on Friday. No details but they said that the tumor area was still visible (boo) but considerably smaller than it had been back in the summer (good). Not shocked that it didn't go away entirely as that seemed to be less common with my combination of ER+/PR- readings. Trying to take it as a reminder of why the rest of the treatment steps are needed to get rid of this as it could still grow and progress without further interventions.
No mention of radiation by the surgeons or MO, but given the ultrasound report I'm thinking that I will wind up needing to consult on that. It's a little tricky as I had radiation to the same general area when I had DCIS back in 2008. They said at the tumor board that they could still do radiation this time despite that previous cycle; didn't get details on how, or how worried I should be on accumulated exposure from two different radiation cycles.
Best wishes to all finishing their treatments or moving to the next phase.
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To the ladies that have started herceptin....how is it going? Do you feel any se's from herceptin?
My MRI results came back pretty positive...the only thing that scares the living daylights out of me is that I still have a tumor (it was 8mm and went to 3mm) in my internal mammary node. I am praying to god that radiation takes care of it.
My surgery is creeping up rather quickly. 2 weeks from tomorrow....it's crazy, I feel a sadness about losing my breast but a relief to get the cancer out. I think the unknown really scares me....too many unknowns!!!!
Well, I hope everyone is doing well! Be well!!!
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Doesn't seem like there is many of us left on this board. Finished last tchp on jan 4. I wish I had stopped at 5. I felt so much better after 5. Im still pretty much down and out and I have been hit with horrible neuraparhy awful in my feet difficult to walk. I'm so sad on top of everything else now I can barely walk because of neuropathy! The pins and needles feeling is awful all day no break from it and I fear it's hear to stay. So many thoughts going through my head..just really sad today.
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Hahlyn, hang in there! I felt pretty cruddy after TCHP #6, it took some weeks to shake off but I'm feeling more like a human this week. I had some SEs after Herceptin only but they may have just been SEs from the TCHP that hadn't faded out yet. One thing I'm using to compare, I had a TCHP cycle where they added an extra week so there were four weeks between treatments; I still had plenty of SEs lingering at the end of that 4th week so I haven't anticipated that by 3 weeks from my last TCHP round, also being Herceptin-only first treatment, I'd be free of too many SEs from the TCHP regimen.
I have my second Herceptin date a week from tomorrow, will be interested how that goes as far as SEs. Hoping the SEs will lighten up gradually. I am feeling better with less shortness of breath/etc, though far from signing up for any exercise classes
I still have the neuropathy feelings in my feet, which is fun at night as they feel sort of twitchy and keep me up 
The R.N.s at my clinic told me it could be 2-3 months before neuropathy signs diminish greatly.Dennyj, best wishes for surgery and radiation to tackle that pesky node; glad overall your MRI came back favorable. Still waiting to hear back on results from mine earlier this week.
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Thanks Misslil im trying to hang in there. I had my daughter rub my feet she is worried about me she said it and I can tell. I'm not sure about my husband he just tries to.remain positive. I pray this neuropathy will leave soon.
Good luck on your next herceptin treatment.. I get my 1st one next week on Wed Jan 25. Meet with BS on Monday Jan 23. Praying for the best in the midst of this storm.
Please continure to update. This board really helps me and seems like me you and Dennyj are the only ones left.
Thanks Hahlyn
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Hi ladies!
I am still here.....I look at this page everyday to see how everyone is doing....even though I have finished chemo...I will still be on this page....they weren't lying about having extreme fatigue...I am sooooo tired...and I go to bed at 9 or 10 oclock. each night..but I still wake up feeling like blah...lol
many of you got surgery done first then chemo....how long did it take you to recuperate...I am trying to figure out how long I will be out of work....I am going to have the double mastectomy...with no reconstruction....in Feb or March...not sure yet...gotta talk to my MO Friday about whats next.
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Hi Nayda
I haven't had surgery yet..but i remember at one point you had black feet and hands..did you have neuropathy with that and do you still have it? My feet are black as well and I'm wondering does that have something to do with this neuropathy. I'm hoping this leaves soon..not pretty at all. Thank God it's winter and my feet are covered.
Thanks
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Hey Hahlyn
I still got the black feet and hands and nails lady..lol....and they be on fire...its neuropathy...from the 12 Taxols I done...I am going to ask my MO tmrw how long will it last...When I soak my feet in Epson salt it seems to keep it at bay for a couple days..then it comes back:(
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