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ROLL CALL ---- High risk oncodx and chose no chemotherapy

meow13
meow13 Member Posts: 1,363

Just trying to find out if the following:

(People with hisk oncodx and no chemo)

Oncodx number

Number of years NED


Comments

  • meow13
    meow13 Member Posts: 1,363
    edited November 2016

    No chemo but did 4 years AI.

    Oncodx 34

    NED 5 years.

  • meow13
    meow13 Member Posts: 1,363
    edited November 2016

    For people high oncodx and chose no chemo

    How long NED

  • meow13
    meow13 Member Posts: 1,363
    edited November 2016

    testing

  • meow13
    meow13 Member Posts: 1,363
    edited November 2016

    ok here is my post

  • adelozier
    adelozier Member Posts: 30
    edited December 2019

    following

  • meow13
    meow13 Member Posts: 1,363
    edited May 2021

    34, year 10 ned

  • beesie.is.out-of-office
    beesie.is.out-of-office Member Posts: 1,434
    edited May 2021

    Yay!! to 10 years NED. Nice to see you back Meow13!


  • sissy60
    sissy60 Member Posts: 11
    edited June 2021

    hello meow 13!!

    What a strange year or so we’ve had! UK kind of opened up a bit now but who knows!?

    Fantastic - 10 years!! Excellent

    Anyway as you might recall I was in a state about having chemo as I’d been told I didn’t need it until my onco score of 30. I didn’t do it and it’s 2 and a half years out and ok. I’m thinking of coming off the hormone therapy as tamoxifen has caused thickening in womb lining and letrozole looks punishing!

    It’s now clear that even with an oncotype score like that the latest studies show having chemo makes no difference and so we were right to question!

    I hope you are doing ok and sending very best wishes to you across the pond!!! You were such a help to me will always be grateful…

  • sissy60
    sissy60 Member Posts: 11
    edited June 2021

    two and a half years:)

  • avag
    avag Member Posts: 15
    edited June 2022

    I had an onco score of 44 and did chemo and 8 months into tamoxifen. I also do herbs from George Wong. My oncologist started me on 20mg, but I recently went down to 15 and am considering going down further to 10mg as I am really struggling, mentally and physically.

  • odyssey305
    odyssey305 Member Posts: 37
    edited June 2022

    10 years NED, fabulous! Following..

  • meow13
    meow13 Member Posts: 1,363
    edited August 2022

    34, on 11th year NED

  • thec
    thec Member Posts: 9
    edited February 21

    I would love to know also how many people who chose no chemo with a high onco score and how they are doing now. I have a score of 26 and I am choosing no chemo. ER/PR+, her2- Stage 1, 1.5 cm, grade 3 tumor. I start radiation next Wednesday.

    update: 10 months out, mammo and lung scan both clear. I chose no chemo. I have been on letrozole since August and did a month of radiation.

  • sissy60
    sissy60 Member Posts: 11

    I chose no chemo. Felt obvious not to do it after much research. Onco score of 30. Estrogen positive. Stage1/2 grade 2

    5 years now ok.

    still anxious ! Good luck

    sissy60

  • sissy60
    sissy60 Member Posts: 11

    Also a friend of mine just had a recurrence after 7 years - and her onco score was 8. She was led to assume she’d be fine. Oncotype isn’t definitive is it?

    sissy60