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ROLL CALL ---- High risk oncodx and chose no chemotherapy
Just trying to find out if the following: (People with hisk oncodx and no chemo) Oncodx number Number of years NED
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Whether to take the drugs that take away the estrogen
I found out in August of 2024 I had ductal carcinoma in situ, 1.1 cm. There was no evidence of invasive carcinoma. No cancer found in the lymph node on the left side. I had a lumpectomy and did not require radiation or chemo. My cancer is positive estrogen receptor status. I have a decision to make regarding taking…
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Long term "high oncotype test" survivors
Is there any long term survivors who have had a high oncotype score. I know that this test is relatively new but I also know that it has been on the market at least 4 years. So I know that "long term" regarding this test isn't very long term. I had it done 3 years and 4 months ago. My oncotype score was 52. My onc told me…
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Should I skip recommended radiation?
I am grade 3 DCIS ER/PR negative and had a lumpectomy. My surgeon mentioned that I needed to take radiation due to high grade. He referred me to a radiation oncologist, whom I met this morning. The oncologist said my recurrence rate is 20 to 25%, and radiation can reduce it to be less than 10%. The side effects include…
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Are there many over 70 here to talk to?
I was dx and treated with lumpectomy and rads in 2002, had another surgery to remove scar tissue in 2011. Opposite breast (dcis) in 2023, had lumpectomy, then another surgery a few weeks later to get better margins, followed by rads to this breast. I have yearly MRI's since 2011'. This past Dec. went for the yearly and…
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Signatera test -pros cons
I have seen discussion on here about this test, But my oncologist has never mentioned it. Looking for information you have received from your doctors on pros & cons of test. Thanks.
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Thyroid
Hi has anyone had hormone receptive breast cancer then had the worry about taking a hormonal drug for under active thyroid problems
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Scared!
Hello all! Scared!! Found a lump the other day in my 12-year post diagnosis breast. I had DMX, followed by chemo, bilateral reconstruction, a fat graft transfer and 10 years of anastrazole. At the time, I was stage 2 grade 1 and no LVI. I saw my primary today and was referred to our local breast cancer center, but I can't…
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Calcification
I am a10 year survivor took a mammography and they say I have calcification on my healthy left breast and they want to do a biopsy it kind of sacres me because i am afraid it might be back. What is calcification?
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Has anyone had a preventative DMX years after Lumpectomy?
When I was going through breast cancer in 2021, my breast surgeon, my radiation oncologist, and my oncologist counseled me to get a lumpectomy and radiation. They told me that getting a SMX or DMX for what was thought to be a 5mm tumor (it turned out to be 3mm) was like trying to kill an ant with a sledgehammer. The…
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Need help thinking through AI with ovarian suppression
My MO would like me to start an AI and ovarian suppression/removal. I am 42. Onc score was 31 for IDC with lobular component. No nodes. I understand that I do have a risk of recurrence but I also value an active lifestyle. I had no question mentally regarding the mastectomy and chemo. I do not feel peaceful about the…
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Drinking Alcohol!
Hello, I figured I better come here for some advice. I am a 8 year Breast Cancer Survivor. I have a history of Breast Cancer on my Mothers side of the family. However, I am a bit worried. I drink alcohol. I have about 4 drinks a week. If not more. I am a social drinker. I am to the point of getting worried that my Cancer…
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RCB III - Terrified
Hello! Recently (12/12) I successfully underwent a double mastectomy. I'm healing pretty well and my pain seems to be getting better every day. Today, I had a post op appointment with my Medical Oncologist that has made me both sad and scared. We went over my post surgery pathology and there were more infected lymph nodes…
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Abnormal ALP level
My ALP level is 134 and the cut off point here for a normal level is 130. I have to have it tested again on Christmas Eve... Do you think it is a sign of metastatic spread to bone? My other liver enzymes were normal. This is the first time that my ALP has been abnormal, so I am very worried and I have convinced myself that…
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Follow up imaging recommendations post bilateral mastectomy
what is the follow up imaging post mastectomy? MRI ? There is still residual breast tissue post mastectomy! My oncologist is very casual about it and tells me there’s nothing to worry about. My high grade DCIS was grade 3 comedeonecrosis ! No need for tamoxifen (my score was 3+estrogen positive! ) worried about the lack of…
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Pathology - What is focal lymphovascular invasion?
My pathology report says lymphovascular invasion present, focal. What does focal mean? They also found 0.3 micrometastis in the sentinal lymph node. Does this mean I have cancer cells spreading in my blood?
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Verzenio for early stage cancer
Hi everyone. Has anyone taken Verzenio for stage 1 cancer and if so when did you start it? I have been on letrozole for 7 months now and my oncologist just today asked if I wanted to start Verzenio too due to my high Ki67 and 1 positive micromet in my sentinel node. I thought you had to start Verzenio at the same time as…
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Mitotic Rate
What exactly is the mitotic rate? Does a mitotic rate of 1 mean the cancer is slow growing? My doctor said I have aggressive breast cancer. I have grade 2 estrogen positive and her 2 negative breast cancer
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Preventative Measures Screening/monitoring guidelines after completing BC treatment
I just want to check with this community about screening methods guidelines after you have gone thru your initiate breast cancer treatment. I am near the finish line and reading up on next steps. Read about the Survivorship Program (thank you for that Breastcancer.org). Trying to get in touch with a local place that offers…
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Fat Necrosis or Recurrence in Chest Wall??
I hate the waiting. I am almost 9 years out from bi lateral mastectomy when during a routine CT thorax showed a small 1.5cm mass on chest wall. Ultrasound was inconclusive other than ruling out cyst and being BiRad 5. Today I had a biopsy and now have to wait up to 5 days for pathology results. All the medical…
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Recurrence 2023 ?
Want to hear from those who had stereotactic biopsy for possible recurrance ? I am 3 years out from lumpectomy and radiation for a very small 8mm tumor. Had chemo because it was Grade 3, Her2+. I cannot believe the latest diagnostic mammo is showing "something" in the same breast that was not there last year. I am…
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Mixed Messages from the Medical Community
Maybe it is just me, but I feel there are so many mixed messages from the medical community that it is no wonder patients are confused. Example: After having breast cancer three times, I am now experiencing bone pain. I finally was convinced by many here, including the moderators, to see my MO sooner than scheduled. I have…
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Internal Mammary Lymph Node Biopsy specialist?
I had a IMLN biopsy attempt 10 days ago that was unsuccessful. The 2 nodes were too close to my lung and resulted in a pneumothorax. Has anyone had one completed successfully? If so, where? Is there someone who specializes in this type of biopsy? I'm finding very little information on IMLN, let alone biopsy. With thanks :)
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Does Drinking Alcohol Increase Recurrence Risk?
Does Drinking Alcohol Increase Recurrence Risk? Aug 22, 2023 It’s a common question: Does alcohol increase the risk of breast cancer recurrence? A study looking at the issue doesn’t really offer a good answer because it only looked at drinking alcohol six months before and after diagnosis. Read more…
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Verzenio and Tumor Marker
Has anyone had their CA 27-29 score go up since starting Verzenio. Mine has slowly been increasing and was recently above normal. Thanks
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Long term luminal b survivors!?
hi just found out I am luminal b. I am her 2 negative er 99% pr 30%. My mammaprint stated I am high risk at 29% chance of recurrence but endocrine therapy and chemo would bring it down to 5 percent so I guess that's decent Anyone else with a similar situation? Any words of encouragement would be great!
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Stage 1-Should I worry about recurrence???
I had bi-lateral mastectomy and Ooph this year. My Onco says I'm at low risk for cancer recurrence. I just keep wondering if I really need to be on Arimidex since I'm low risk. From my understanding they put you on an AI if your tumor is over 1.0, mine was only 1.5. I was told that by getting the bm and ooph that I lowered…
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6 month followup today and Im scared
I originally had my next 6 month followup scheduled for May 16th...yesterday the onco's nurse called and said that since the Doctor knows how stressed I got the last time he wanted me to come in today.....so last night was a rough night as I couldnt sleep and this morning Im at work trying to keep my mind busy but getting…
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losing color in areola with movement
Hi girls! I am so scared and frustrated. About 7 weeks ago I was experiencing a sensitive nipple and feeling a little anxious about a possible reccurrence. I went shovelling a few days later because husband was sick. Shovelled heavy snow and then did a new tape for turbo jam with weighted gloves. Did first 10 to 15 minutes…