January 2017 Surgery Group
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You girls rock! Alwas passing on information to each other! I'm just over here cooking, cleaning and blasting my gangster rap! I get so over whelmed with all the reading. I just can't sit still most das and now it's worse than ever.
I had read about a little pH levels and how they relate to cancer. I found that super interesting since my hair dresser told me 10+ years ago I had a high pH that I need to use a different shampoo. She asked of my head was itchy and it was but they was no dandruff my head was just tingly itchy. I switched shampoo and my hear hasn't itched since. Then I read about drinking the water with Himalayan salt and organic lemon. Things that make you go...hummmm...could it be that's what my deal is???? Especially since I crave salt badddd!
Ok...what exactly is a mammaprint? I asked at my pre-op and was told we don do that??? Is it important? I guess I'm scared to research to much. You know...denial....I guess when my reality check bounces I'll know I need to get out of that state of denial!
I eat healthy all the time usually. The ice cream thing has been all for comfort these past few weeks. I have gave it up that past few night to. I did eat part of a funnel cake at the circus. First one I have had in 20 years! I'm glad it wasn't that good to me or I would have ate the whole thing.
Tomorrow is alost here. I have done everything I can to be ready for this journey. My DH is amazing and it now his time to shine! I have cooked and shopped for 4 days now. Let's hope I can give clear instructions on how to turn the microwave and stove on. Lol.
My boob is hurting...not throbbing not usual getting ready to start sensitive either. It's weird.. like a bruise. Not sharp pains just a sready sore type pain. I had no pain after my biopsies either which were December 20th. This started a few days ago and I am trying to pay more attention to my body. I ignore pain and just push forward. That's why my thyroid surgery was so bad. I just thought not being able to swallow, breath and choking while I slept was my new normal hahaha.
Boy this is a long post. Sitting in the car rider line to pick up my grandson. Oh how that boy loves me. What is he going to do when Gowa (what my grandkids call me) won't be able to get him for a few days. Really what am I going to do????
Any advice what to eat the night before? I am not a good puker. I do not have a strong gag reflex so throwing up is more or a dry heave thing. TMI....
Peace to everyone!
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Hey Vargadoll - Mammaprint is a test, similar to Oncotype. http://www.breastcancer.org/symptoms/testing/types...
I think it is newer than Oncotype, maybe not as widely accepted/known (or covered by insurance.)
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vargadoll just eat a light meal. Ask anesthesiologist for a scopolamine patch tomorrow or just tell him you get sick easily and ask for something to help with that. You will do so great and don't worry about family - you have tucked them in very well!! For once, focus on yourself and your healing so you can get back to helping them.
Back to the beets - I get them from the farm so they come with all those big beautiful leaves - any use for those? I've been tossing them out but I wonder if I should make a soup or something. Any tips from domestic goddesses welcome. I don't have that gene...
Oh - nm- just found a recipe to sautée with garlic and olive oil.
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My surgeon did say that there was evidence linking a low fat low sugar diet to better outcomes post cancer treatment. He had me get a book called the Pink Ribbon diet - it should be here in the next day or two and I'll share if I think it's worth it!! With that being said, I believe there is balance in maintaining a healthy lifestyle and enjoying the things you love.
Fightingirl: had my first PT today, and we decided it's a big lymph node under my arm - I loved the lymph massage!!
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You can sautee beet greens just like kale. i use garlic and olive oil. I sure hope that I will be feeling well enough to garden this spring! yoga has been getting me through these pre-op days, and I'm upset that I won't have my usual class. There is a local yoga class for cancer survivors that is chair-based. I will try it.
People seem to be having a terrible time with tissue expanders and getting pain under control. Can anyone with TEs tell on what day post surgery they started to feel a little better and less in need of muscle relaxers and pain pills? I know we are all strong enough to do this, but I would love to hear from people about when they startedto feel some relief.
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Vargadoll YOU ROCK!! All the reading and research was overwhelming to me too. Of course it's natural to want to learn as much as we can when given a scary diagnosis. But I did find my mood start to go down hill when I had been reading too much. You are finally getting to the place where healing can begin tomorrow. It was a relief to me to not have to keep wondering what to expect and just get it over with and let the next phase begin. I wish you all the best for peace and quick healing!
Pamela_2016, I am 10 days post op, had TE in place immediately following my BMX. The doctor was able to get 50ccs in 1 breast, and 100 in the other on the operating table. I did have a rough time in recovery, and had to stay 3 extra days in the hospital but I did feel some relief when my drains came out on day 6. I really turned the corner last night (day 9) pain-wise. I went for my 1st saline fill today. The doctor had initially planned on injecting 100ccs, but decided to go more slowly, just giving me 50ccs in each side today, to avoid a possible pain flare up since I had the problem in the hospital.
I did GREAT!! A slight pinch with one injection, the other side I felt absolutely nothing. I left feeling fuller, but no horrible muscle spasms. As the day wore on, I did feel even more fullness, and got very tired, but again, my pain is very manageable. I reduced dose of muscle relaxer and pain med by 1/2, and can go longer between doses.
I am sure everyone is different. I was actually a little apprehensive of my 1st fill because of reading forums, women saying how toturous it is. Just keep a good line of communication with your PS. Dont get all anxious based on what others have gone through. There is no hard set rule how much you have to get injected. Your doctor should want you to be as comfortable as possible. If that means going a little slower, that's OK! I have a fabulous PS (he was my 2nd opinion doc). He makes me feel comfortable, confidant, and cared for. Can't ask for much more than that!!
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Good luck tomorrow Vargadoll! We will be thinking of you.
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thanks so much shoregirl. lt helps to know that you're finally feeling better after all that and thank heaven that the fill at least wasn't so bad. You deserved a break on some piece of this!
Too many names to name, but I am following everyone's progress and grateful for your guidance. Wishing the best for those still in post op pain, and sending love and best wishes to those on their way to surgery this week. Take care and we will be here when you get out!
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First, vargadoll you have done everything you can to prepare. Rest, relax and let a sense of calm and peace wash over you and know that we are holding your hand and our vibes, light, and love will be directed to you tomorrow. You are going to do great!!
Did-not-see, glad you got your PT today! I asked if my lump could be a lymph node and she said it's too big and she should be able to push and drain it but wasn't able to. Another thing I'm going to have to have looked at dang it! My cording therapy was painful today...she said she gave more pressure the first time so that was weird that I was more sensitive today.
I'm getting ready to do my pre-procedure stuff for my catheter implant tomorrow. Just like before surgery, they have you do an antibacterial shower the night before and morning of. Then I have to take an Aleve. Tomorrow I put a tube of numbing cream on my breast and cover with Saran Wrap! Take another aleve and then a Valium. I had a little scare in the mail today with my insurance denying my brachytherapy tomorrow and another letter saying it was approved so 30 minutes on the phone I found out I'm good to go! This is why I take lorazepam daily!!!
Oh and pugsmama, I absolutely could not get my appt with mo for Wednesday. They say he is double booked all day. If my current Thursday appt interferes with my radiation schedule I may well not get to see mo until next week! Ugggh! Another weekend wondering if chemo is in the plan. By now you'd think we are just used to that virtual waiting room
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I forgot to mention I applied for that cleaning service and already rece a denial letter. They are full in my area. They said to try back in 3-4 months but I hope to be past needing them at that point! I'm so glad even though it won't be me that there is a wonderful service like this and that those fighting this crap are getting some extra help.
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good luck tomorrow Vargadoll. 👍💪
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good luck gorgeous girls!!
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Vargadoll...
*giving you A LOT of shuga*
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my appt with MO did not turn out the way I hoped. Chemo for this girl. My treatment plan is four rounds of Taxotere/Carboplatin, and Hereceptin every three weeks. Then the Hereceptin continues every three weeks for a full year. After the four rounds of T/C, I do radiation and then also Tamaxofin for 5 years.
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Dani- you are on the same protocol that DocMama and I had (minus the Perjeta). We're here for you!!!
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I'm sorry DaniCalifornia. Damn. A lot of us are needing chemo. I am so afraid for my MO appointment. I have to wait 2 more weeks! Was it the HER+ that was the deciding factor? You can do this and it looks like unfortunately, you will have plenty of company.
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daniCalifornia, I'm sorry it wasn't the news you'd hoped for. Hopefully docmama and BeachBabyK can give you some tips. Cowboy-up is right though...we may be filling the chemo boat this week. There are a few of us waiting to find out. I know that probably doesn't help right now but you are going to obliterate those stupid cancer cells. ❤️
Win-chimed, I just love the shiva you give! Can I get a little for my catheter placement tomorrow? If you got enough...vargadoll needs it more! 😁❤️
Annoyingboob, every time you post those pics it makes me happy and sad at the same time. I just want to be there like right now with all you girls!
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hi ,
I have a lot to catch up on here today . Have my 10 yo grandson down with that croupy cough , ear infection with fever , so I have been a little busy keeping up with his needs today .
Vargadoll , wishing you all the best tomorrow. I know you will do great. Know we are all waiting for you in the cabanas .
Will address all others after I get a chance to read through. I have multiple appts this week , MO ,RO again and BS for followup on incision from SNB . So this week is a stressor in that , I am worried about rads and what that will be like and will they suggest a pill for a number of yrs!? Ugh no I hope not! Anyway , ladies Love you all , and couldn't do this without you .💗🌸💪🏻
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Girls - you are my cheerleaders! I took my special shower and damn I'm itchy! I also took a whole Xanax so I am getting fuzzy. My DH said the nonsense stops now. No more cleaning cooking or racin around like a mad woman! We are alone. I got my girl dropped off at her parents and I wanted to cry like a baby. She is my glue. She holds me together. I took my grandson home as well. He stays with me alot. I'm going to miss my big guy! I shall dream of crystal blue water and white sugar sand. Please have a tall glass of coconut rum and orange pineapple juice waiting for me at the bar.
I am too fuzzy to remember who didn't get the news they hoped for. Sofry for that. Time to reroute this journey.
Windchimed we all need some of your shuga!
Thank you each and everyone!
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Vargadoll - good luck tomorrow. We will be holding your hand and waiting with a nice spot at the cabana.
FIghtngirl - you are one step closer tomorrow - best of luck on everything moving smoothly!
DaniCA - I'm so sorry. I know I'll be joining you. Maybe not the same protocol but on the chemo train as well.
Wind=chimed - love your shuga
I see my MO, RO, and BS tomorrow and PS on Wed morning. I already know chemo is coming. Echo scheduled for Friday. PET Scan will be scheduled and I'm terrified of that. I'd almost rather have the chemo and rads and then see if we got it all.
I have to be honest, I've been in tears all day. It's been a week since BMX and I am having such a hard time. I'm an extremely driven and independent person and have a very successful career with two amazing children. I went through my divorce last year and thought this year was a new start and I feel like I've been pushed back wth this. In addition to the normal fear of the unknown, I have to be here for my kids. They are my world and beingso vulnerable is just so hard for me.
Anyway, I guess I'm just sharing my pity party because this week is so scary. Knowing that my tumor was so big and so many nodes - I'm shaken to my core.
I took something to help me sleep tonight so I hope it kicks in. Thanks to everyone and we will all get through this scary week.
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Prayers for peace for you Shellybeans. We are here for you.
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Sending prayers & love to all my girlfriends tonight...
Vargadoll, you're going to rock it tomorrow! I'll be in the cabana & saving you a lounge chair!
Fightingirl: good luck with your catheter placement tomorrow. Did you buy the pink Saran Wrap for the occasion? Lol...hope your Thurs. schedule works out & you're not bumped back to the waiting room!
Shellybeans: we've all had days that you've had. Don't beat yourself up. Being vulnerable is being human & there's a lot we're all grieving right now. Hoping tomorrow's appts. go well. We're all here for you & you're not taking this journey alone...
Dani: I'm sorry to hear you'll be on the chemo train. More & more of our group are getting that news these days, unfortunately...
Love you all
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vargadoll- you got this girl! We'll all be waiting for you at the bungalows with a cold beverage 🍹
Fightengirl - I am sending you positive energy for tomorrow. You will be one step closer to kicking cancers arss!
Annoyingboob- thank you for always being an amazing supporter of us all. 💖
Shellybeans- sorry it's been a rough day. We are here for you. It's always ok to have a pity party. You just need to remember to invite all of us!
With each other's support we can all make it through this journey. Remember, this too shall pass 😊
Whin-chimed - I love your shuga!
Today at work I couldn't help but talk about all of you. I love you all so much and would be mental without you! I really do hope we can all meet each other someday.
Good night ladies. You are all in my prayers.
Xoxo
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Let's get this party started!
Girls- this is another day on this journey of the unknown for each of us! I truly love you all with my whole heart!
Each and everyone of you have a role in the journey for each of us. I feel like I'm the needy whiny one right now. ;0). We all are strong women who take no shit! (Except from our fur babies, you should see the hole my big guy just put in my sofa!)
I'm hungry, cold and itchy! No wonder I use soap made from goats milk. DAMN! I am pretty sure that soap took any hair off that it touched!
I'll be back before you know it...this momma don't waste no time!
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good girl varga! Go get 'em! Yes, that soap smells like it would remove hair! Did you use hibiclens? That's what I used last night and have to again this morning. They warned me not to use it in the "private" area...thank goodness because i van see how unpleasant that would be.
Thanks for the words of encouragement ladies and dang it if I don't have pink Saran Wrap pugsmama!
As with my surgery, I had that sense of peace and calm last night and this morning I feel pretty much the same. A little anxious because like vargadoll, I just want to get the party started and be on the other side of this. I'm going to blast Rise Up on the way to my procedure. It's about an hour drive so I will get to play that and Eyeof the Tiger over and over and drive my husband crazy! Plus I will be on Valium as we drive so I'm thinking I'm going to be a flat good time! He will probably be glad when they come take me away!!
Vargadoll, I will be thinking of you and I'm not going under but I'm still going to the cabanas in my mind so I will see you there with your coconut rum orange pineapple 🍍 which sounds good, so I'll order two. Best of luck to anyone waiting on news or recovering today.
I will say again as vargadoll did...I just love and adore you all so much and this journey has been made better because of all of you. LeftCoastie, it would be the best thing ever for us all to meet someday!
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Good luck to the girls getting surgeries today. You can do it!
I've got my chemo schedule. I start next Tuesday , February 14. Then every third Tuesday until April 18th finishes it up. TC. I'll be glad when this is over. 4x, I can do this! Then I'll know I did everything I could to prevent recurrence. If it ever would recur, I'll know it's not my fault. I have to do this.
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You got this one 3bears ,
Your attitude is right on and in a good place . I hope I can emulate that when my treatments commence. Of course I want no recurrence as well , but once in a while I need a lorazapam to calm my over anxious brain from spinning out of control! I swear , it is not pleasant to overthink everything! Just happy to see you tackle it head on . You give us all strength. ❤
Varga .. good luck , meet you in the bar later! fightingirl , good luck today with the cath placement . Love to all my ladies for a great day moving forward , we warriors stand strong together😍💗
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good luck varga and fightingirl!
You can do this 3 bears!!
Coconut rum and pineappple orange coming up!!
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Vargadoll, your on my mind. Remember God has his eye on you. You got this, you'll recover in a flash!!!
Ladies, I've been researching, so haven't been around much.
For those getting chemo check out the American Cancer Society look good, feel better class= free make up, and stuff to make you feel better.
For all- Chaga tea, and low dose aspirin.
FIghtngirl- did not mention cording to bs, I was so nervous before appointment about pathology that I thought I would puke. Hopefully going in this week to get other drain out, will ask then. 2 weeks this Thursday, my drain is getting old and pulling, don't like!
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