Shadow in chest is recurrence
Comments
-
Hi Lola.
It’s a bit difficult for me to understand your scan reports based on your description but, if the bone scan indicates it is in the sternum I would think that is Stage IV.it also sounds like the mediastinal node is involved. However, you really need your doctors to confirm this. I’m sorry your MO did not take the time to explain it to you. That is just not acceptable. Sometimes they assume you understand so it’s important for all of us to hit the pause button so that we can ask our questions. I feel so fortunate - my MOhave me his email address. While I try to use it judiciously, he is quick to respond if I have any questions.
Good news for me today. There was another cancellation in medical daycare so I was able to get my first pamidronate infusion. No more pills at 4:00-5:00 AM. Woo hoo! And I developed a new skill. They gave me an infuser that allowed me to leave the hospital after the IV was inserted. It was pretty cool as I could go to work instead of spending two hours at the hospital and I learned that I can take out my own IV. Ha! I had to laugh as my executive thought this was going above and beyond in terms of dedication to my job. 😉
Ioana, you have been very quiet which I hope simply means you are enjoying time with your family but my thoughts turned to you with the terrible news from Melbourne. My thoughts and prayers are with your countrymen during this crisis. I hope you are well and getting some R&R over the holidays.
Hugs. Pat.
0 -
Hello Liz,
Beautiful York - thank you for posting. 🌷
If you have a good relationship with DR P - I would value it.
Claire - you are one tough lady - looking good - I am hoping you will wrap you ATrain journey and More travel done on a gentler treatment. 🥂💐
Pat,
When you take your IV out - the "whole in the vein" is always a tad upstream of the skin puncture - so you apply pressure just a touch higher or both - think of the direction of the needle when one cannulares - it will bruise less - also IMO forget cotton wool type pressure - use an alcohol swipe with a gauze folded in four and press hard - alcohol dehydrates - everything closes up quicker. You will bruise less and less bruising better vein preservation.
I can't imagine you would have the patience to dust 😱🙄🍷, ok ok ...hold the wine.
Lola,
I am having difficulty piecing your story together - how did you present - what started the scanning?
Lung, pleura, bone including sternum would put you at Stage 4. Internal mammary node inv "only" is in the strange poorly defined - at least from my reading - potential local recurrence not quite pot... I would assume it's localised and ask very VERY specific questions about it - I am visual person - I usual get my surgeons to DRAW me something when I struggle with a concept they present. It's annoying to them but it makes one think. I think you will be treated as Stage 4 - and I would assume aggressively. I am wondering what are they going to biopsy on the 29th ? Pleura ? The internal mammary node? And the biopsy will be CT scan or ultrasound guided??
Wishing you everyone a Happy Christmas!!🎄⛄️Hugs to All!
0 -
I have two friends who were in the exact same position as you. One battled 18 years from that point onwards, and the other is still going strong after 14 years. They were NOT just saying that. These days, beating this thing is like a game of whack-a-mole with the body. It pops up, they whack it down again. I can only imagine how scary this must be for you. But there is so much more to this yet. Stay strong and keep going. BIG hugs.
0 -
Hi all,
My case is being discussed this morning apparently. Whether they get in touch remains to be seen; before Christmas I mean. The usual protocol is an appointment letter arriving. Call me cynical but I think it’s likely that I will have this appointment to confirm a NO. What a farce that will be.
Pat- you are incredible to be dealing with the IV but I get it- anything that buys us our independence is worth having.
Ioana- how is this hectic run up to Christmas for you? Are you finishing up at work or firmly in holiday mood?
Claire- how are you feeling today? How are your Christmas preparations going? I cleared my dining room in readiness yesterday. It doubles as my office and so there was quite a bit to sort. Still nothing beats the satisfaction from a good sorting out. Unfortunately my back is protesting and I am still full of cold. Rather annoying considering all the delicious wine I have planned. I like to start Xmas off with a glass of Baileys over ice and a good book. Currently reading: ‘The Christmas Chronicles’ by Nigel Slater. He is a celebrity chef but also very well read and an all round interesting guy. He loves Winter and the book is a mixture of childhood memories and recipes from November onwards. Good to pick up, read a chunk and revel in the season.
Of course being on this board unites people from all corners of our world. So in the spirit of Christmas, what is your favourite recipe, tradition, scent, walk, event etc??
Sorry went off course a bit there.... not everyone enjoys this time of year. I do understand and respect that....
Lola,
As my friends on here will testify, I agonised over the staging of my cancer in the early weeks/ months of my recurrence. I have always been classed by my doctors as stage 4, despite most literature defining internal mammary lymph node as loco regional. Professor Stephen Johnston from The Royal Marsden, London, wrote “ loco-regional recurrent Breast cancer.” I would have to check but I am pretty sure the term “ metastatic “ was also on his follow up letter.
This disease is a crap shoot. The advice I would give you is to push for answers/ clarity. Be your own advocate. Aim for aggressive treatment if you feel it is in your best interests and only after you are clear with your doctors about a way forward.
Personally I would call back and say that you need someone to go over the scan in plain English. Do not be shy of asking what the terms mean. You will feel much better once fully informed. Much love and let us know how you get on.
L
0 -
Thanks Ioana.
Ultimately I think I did okay with the cannula, no bruising and, yes, used gauze. The tricky bit, one arm out of commission with the IV, and one hand to pull out the cannula, hmm... how to hold down the gauze? Not flexible enough to use my foot so had to enlist one of my staff members (she’s our first aid attendant so I figured she could handle the ick factor). She held down the gauze.
😜
Liz, I love Christmas and although it was out of the question this year, I love to decorate my old house. The smell of fresh fir trees is wonderful. And I really do enjoy the Christmas songs. It looks like snow is a possibility in Victoria over the next few days so it may look like Christmas outside at least.
Hugs to all.
Pat.
0 -
Hi
Thank you ladies. I know its hard to interpret things without reading the reports.
Just a bit of background to give the entire picture. I was going for my annual mammogram and because my breasts were dense I was doing an annual MRI. this year was the same clear mammogram and the MRI in September showed an intra mammary node that had a thickened cortex (2.8mm) classified as birad 4. So I was sent for a FNA biopsy which came as negative. The conclusion was to repeat the MRI in 3 months. The attending physician was my breast surgeon. I repeat the MRI in December and it showed a larger lesion (1.5cm x 2cm) in the sternum area and the potential for pleural involvement. So I was sent for all these tests for restaging which confirmed no bone mets and no pleural effusion.
The biopsy next week will be for the area on the wall so the node and the chest wall. And it is a CT guided biopsy as wig the prior FNA they did not get enough material.
Claire that's one of the reasons I like my RO she drew the findings of the MRI for me last time. I will call the nurse today to ask her question although when I asked if this was considered stage IIIC she said it's stage IV.
We have a snow storm here and I live outside Toronto so the commute to work will be long today.
Hugs.
Lola
0 -
It is a beautiful sunny day here in Victoria and I am still in my pj's~~may be dressed by noon but enjoying this time to catch up on this thread.
Lola, how was the snowstorm commute and your final exams? My biopsy in August after enhanced tissue showed on an MRI and lump showed on CT with contrast was also CT guided and done by a radiologist in BCCA Vancouver. I like him more than anyone I have met at BCCA in my years with them and he even gave me his card with his email on it and said If I fell through the cracks to email him.
Pat, I note you have an MO who you can email~~my old MO said that but never gave me her address. Lola, keep us posted on the biopsy and glad it is being done before the NY.
Jackboo I too loved the York Christmas scene. I saw that your case was being discussed yesterday~~any chance you have heard anything? Mine is loco-regional but called metastatic because no chance of surgery due to the neurovascular bundle being grabbed by my tumour. I totally agree with you about asking for clarity from our doctors and other members of our cancer teams. I usually have a note-taker (my nursing school son came to my MO appt. last week) for appts. I think need another ear and since I can't write well or fast due to right hand use continuing to deteriorate it is good to have someone with me. Yesterday I saw my new pain doctor. I had asked to change and this turned out to be a good idea. She is young, sees to be switched on and after going over the meds I am currently on, brought up medical marijuana. I had been to both the Victoria Compassion Society and what I considered to be a very professional pot shop in the past week but wanted some advice and there it was!
There has been discussion here on pregabalin (Lyrica) and dosages too. I have come down to 25 mg tid and have not had any sleepathons since then. She wants me to continue with that dosage and suggests adding CBD's with THC 4:1 twice a day. Both and the manager of Cloud 9 (pot shop) feel that some THC is warranted for nerve pain.
Enough~~my daughter and younger son are here for a few days over Christmas and my nephew and niece (who are Jewish) are coming tomorrow to join us. My husband will be with his family in NZ and our other son will be with his Australian girlfriend's family in Brisbane~~her family bought them tickets to fy from Melbourne!
Wishing you all a peaceful holiday.
Love Marian
0 -
Just popping in to wish you all a Merry Christmas.
Here in Victoria we had the first white Christmas in many years. Not a lot of snow thankfully (we don’t cope well in the banana belt of Canada) but enough to be festive and to make Sadie act like a puppy. She loves the snow - only issue are the snowballs that attach to her fur!
Wishing you and yours all the best of the holiday season.
Hugs. Pat.
0 -
Wishing everyone a very merry Christmas.
Liz
0 -
Merry Christmas to you all!!! we had a white Christmas as well. This a picture of my backyard this morning.
Marian - the commute was slow but we made it home okay. I wrote my final exam on Dec. 18 so hoping I passed. I don' really want to do it again.
Hope you all had a great time with your families!!!
Hugs
Lola
0 -
Wishing you all a very happy new year! I hope 2018 is filled with joy, great adventures, serenity and, of course, good health.
Hugs. Pat.
0 -
I took these within minutes of each other in July last year.
They are my reminder of how diverse and ever changing life can be.
Wishing you all strength, gentle days and much health.
It's turning into a post not for the faint hearted...
Claire - happy travels. 😊
Liz - I have pm you.
Pat - you are soooh going to end up with some of us in your back yard - I am almost planning a trip to Canada again...yes, I know there will be children and pets of all kinds...ok and you can not divert to Costa Rica. How was the musical ??
How are you??
Di - you are never far from my thoughts.
Marian - I am off to NZ for a few days - happy, I like it there.
Lola - how did you go with your biopsy?? - thank you for posting snow - I miss mountains and the snow at Christmas.
Bright - where are you now? Your travels amaze me - and I am holding on to that Queensland spot you shared with us a few months back.
Cive - I think I have got everyone - almost....
Hugs to all,
😊🌷🐣
0 -
Happy new year to all on this thread. For now I am simply posting this smiley photo of myself.
Back in March 2017 I was a million miles from this photo and I have made it through thanks to the love and generosity of you all.
May 2018 bring us health, humility and happiness.
L x
0 -
Lovely photo Liz. Thrilled to see that smile. And what is that in the glass? 😉🥂
Fabulous to hear from you as well Ioana. Would love you to visit but, of course, “Canada” is a big place. Where are you thinking? By then, hopefully my house will be back in some semblance of order and it will have warmed up. I seriously have a bad attitude about winter this year. Totally done with the cold and damp! ⛄️
I’m doing okay. Struggling a bit with the fatigue from Xeloda which is having a significant impact on work. But who knows where things will go. I finish round four on Sunday and then we scan again. My MO is thinking of a move back to hormone treatment, perhaps trying Ibrance again but I’m sure all this will depend on the results of the scan. I also have an appointment scheduled in mid-January with a naturopathic oncologist at a clinic in Vancouver. While I struggle with the “woo-hoo”factor, I will be interested to see what he recommends as they do hyperthermia at that clinic. All to be vetted through my MO but another step forward.
Chicago was wonderful. If I had it to do over again I would not buy box seats. We found it a bit challenging to see what was going on at the far right of the stage but the performance was quite amazing. Makes me want an encore. Les Miserablesis playing in Seattle in June. It’s an easy ride on the Clipper (ferry) so seriously considering buying tickets.
Once again, wishing you all the best for 2018!
Pat.
0 -
Happy New Year Ladies!!
It was a white one this year and very cold.
My biopsy was an adventure. I went in thinking it was a CT guided biopy but it was an ultrasound guided since the node was not too deep. The doctor was a resident and couldn't find the node and I think my FNA in September was in a lower location but I might be mistaking. So the resident calls the doctor to confirm that they had the right node. After confirming the location he freezes the area and stick the needle in and I felt this sharp pain and I asked for more freezing. After that it was fine. they kept me in for about two hours as I had a bit of a swelling.
I have a high tolerance for pain but this biopsy was the most painful I have had to date and I didn't anything the day after as I was sore.
I felt much better yesterday so much so that I cleaned the house.
I am hoping I will get the results before the end of the week. On Friday I have an ultrasound and mammogram of the other breast due to this non mass enhancement that showed up on the CT and MRI. wondering if it is DCIS or just a benign, although it wouldn't matter at this point I think.
Hope you all had a wonderful new year's celebration. Wishing you all health and clear scans this year!!!!
Lola xox
0 -
Liz - love that sweater - what a beautiful colour!! 😊💐
ohh Pat,
So happy you had a good time!! Absolutely go to Seattle. Really, just a ferry??
Les Miserables was the first musical I made my son sit through - it was more then 2 years ago - Brisbane - loved it - to my surprise he made through the first act (long....) at the time he had just turned 6. This year the poor child had to sit through Madam Butterly in Sydney, and I found myself having to explain that suicide is really a poor life option ...well, I think I was a little more Balcanic then that. I think he got the "we stay and fight and bear and pray" part of me. On a more positive note we had the London production of Wizard of Oz here just before Christmas and it was magical.
I have been to Canada twice - mostly south - Vancouver, Rockies, Calgary, Toronto, Montreaux but for one reason or another not made it to Victoria Island. I would like some snow/maybe ski end 2018 - not necessarily for Christmas - I am probably staying put for that because of my parents - but maybe after. My options are Europe - Austria or France - where I have friends ( but horrid long flights) or Whistler or Japan. The direct fly Brisbane Vancouver is very attractive and everything is simple for me in Canada.
Well it's a dream - I don't book anything too far in advance - I kind of judge things on how the two of us are going and what feels good.
Lola
Happy it's done - the local ( it's usually lignocaine but maybe bupivaciane or ropivacaine ) takes a good 5 minutes to kick in - have no idea why "people" don't wait a little, adding more does not usually solve it except by the time they do that the initial local has kicked in... take good care o fun yourself. Let's see what it shows.
Not sure why you would have a mammaogram after an MRI - I think the ultrasound is reasonable looking for cystic structures but I don't get the mammogram - worth asking why you needed and what they hoping to see that they don't know from CT/MRI.
Sorry - I am not meaning to be troublesome just a little baffled....
Hugs to all,
Ioana 😊🌷🐣
0 -
I will definitely ask that as my breast is dense and not sure of the value of the mammogram at this point. Will find out soon as Friday is not that far away but at the same time the technicians here don't provide much info it' usual "that's what the doctor ordered.
Lola
0 -
Ha! Ioana.
Your son must be amazing. Madame Butterfly? I've been laughing ever since I read this last night. If he can sit through that.... Just please don't make him do Gilbert and Sullivan! Even I struggle with that. (Of course, it doesn't help that my GP is part of the Gilbert and Sullivan Society locally. It's a bit disconcerting to watch one's family physician ponce about on a stick pony... just saying...)
I love Les Miserables and regret missing the production when it came to Vancouver which is why I now need to rectify the situation. I will likely book tickets for the touring production in Seattle but then... I wondered if the London production might not be preferable! One thing about this situation I find myself in, it gives me licence to be more spontaneous and somewhat less practical (i.e. a bit irresponsible!).
A visit at the end of the year would be grand. I just can't accompany you on the ski hills. I never mastered the sport after a poor first experience as a child. I have always claimed that my strong sense of self preservation will not allow for it. Hurtling down a hill with slippery things on your feet seems like a recipe for disaster, or at least broken bones. I managed to break my arm twice figure skating.. skiing is definitely out!
Cheers. Pat
0 -
Hi friends,
I hope this new year finds you all in good spirits.
I have finally heard back from the CORE trial. My case was reviewed by the multi disciplinary tumour board in Sheffield on 22 Dec.
I am not suitable for SABR because of my good response to systemic therapy and because there is no evidence of a metastatic lesion on the November PET scan.
I meet with Dr Proctor on 18 Dec in York. I am currently seeing him every 6 weeks.
Would appreciate any thoughts. I waited an awful long time for this decision.
Liz x
0 -
Hi Liz,
I'm not sure what to say. I know, in some ways, it must be a disappointment but must admit that I am not completely familiar with the trial so not sure what the outcome would be. Can you refresh my memory? Was it surgery to remove the node? I'm not sure what they can do if you don't have evidence of disease.
I think the important thing is that you have had such an amazing response to treatment. This is wonderful news and to be celebrated. I have seen a number of women that are NED for some time as HER2 and, with this strong response, there is every reason to feel that you will be among them.
It's always challenging navigating the systems as a patient. It seems there is often a disconnect between what we hear and what physicians are thinking. Not sure how this will ever be resolved. As I've mentioned in other posts, I have a great relationship with my MO but every now and then we don't seem to communicate well. Happened again this week. We were not 100% sure the Xeloda was working after the first two cycles and the last two conversations we had were... "two more cycles and then we scan again". I received my appointment card this week (just finishing the last cycle) and it had me going to another Cancer Agency GP and starting round 5 of Xeloda after my one week break. Huh? Reached out to my MO as my shortness of breath is definitely getting worse again and he indicated that his plan was to scan after six cycles. ???? With symptoms he thinks it's probably best to scan again now. So some time between December 20th and this week he had a change in thinking. Not a big deal but I would have really been wondering what to do next week.
Wish I was more help with your situation Liz but I'm here for you if you need an ear.
Hugs. Pat
0 -
Hi Pat
Thanks for your input. You are always helpful and as I’ve said many times before, it is just so wonderful to be able to share what we are all going through.
The core trial was open to Oligometastatic patients and was to determine whether stereotactic radiotherapy had a better outcome versus standard care radiotherapy. Think the outcome objective was PFS.
At this point I can’t say I’m too disappointed as the position of this lymph node is in “ tiger county “ as Ioana puts it and was always going to be fraught with risk. So Sheffield have escaped having to make the call on a poor location basis because I am currently NEAD.
I totally relate to the gap in communication you mentioned. I am distinctly unimpressed with Sheffield. If I enrol on this trial I would have to move all my care over to them which fills me with horror.
Dr P in York says that more and more treatment does not necessarily mean better treatment and he is possibly right. Perhaps it is human instinct that drives this premise??
I remain delighted to have achieved this response and want to try and just live now. I hope that comes across in what I’ve said.
I am sorry to hear about the return of the SOB. It must be difficult to get your mind set on one path, only to change direction at the last minute. Our doctors either don’t understand this, or are unable to prevent it- perhaps a mixture of both.
Thanks for your post and keep us up to date with the next stage.
L x
0 -
Happy New Year everyone! I have re-read the comments since my last post and there are many. As Pat said, we had a white Christmas here in Victoria and enough for a walk from outside my door to the rocky park just west of us. My son wanted to show us a half dead/ha;f alive Arbutus tree over on the other side from us which was a bit tricky for me. I have used poles for years and in the recent May trek in Nepal but cannot hold the right one. One new add-on for my disabled right hand. But no worries, we just left the pole in the snow and carried on with my son helping where needed. BTW, this is not exactly difficult but was slippery with the wet snow which was gone by the next day.
Andy, my nursing school son, me, my daughter Mary and my niece and nephew Christmas Day
Ioana, your photos are stunning~~where were they taken? Your son must have much patience but it will all be so good as he grows older. Are you back from NZ? I leave in just over a month and am organizing with my SIL there to find a doctor or nurse to administer my Faslodex. She also needs to find me a nurse qualified to flush my port. She and her partner live near a small village so it will have to be further afield. I have already called Border Services re carry on of a small cooler with the pre loaded syringes of Faslodex which needs to kept cold and it should be no problem with a letter and intact packaging.
Liz, I am not sure what to make of your news of the trial since I have not read back to see your diagnosis which clearly must be different from the short one below your posts. I too love that yellow sweater. Lola, cold and snow and more to come I am hearing right now on the weather report.
Fatigue is still my biggest issue and being retired I can't complain though it is annoying that my alarm clock is not enough to drag me out of sleep. My cats wake me but I often just feed them, open their cat door and fall back in bed.
I have monthly blood work Tuesday and see my MO Thursday and hope I will be able to start Cycle 6 of Ibrance in a week.
Oh, I meant to comment Pat, on the miscommunication with your MO. It seems a fairly big disconnect but glad you were able to contact him easily. My next scan will be in March in my return from NZ.
0 -
Hi All,
Hope you are well.
Liz - Ned is great news!!! Hope you remain like that for many many many years.
Pat - sorry to hear about the miscommunication with the MO. When is your next scan?
Mariam - that's a lovely picture!!
My head is hurting from trying to understand the notes from my Dec. 29 biopsy and researching the web. I see the MO tomorrow and hope that she will have more info on the pathology report.
I am pasting the summary of the report here for any interpretation and input based on your experience.
"Sections show fibroconnective tissue infiltrated by sheets and nests of poorly differentiated carcinoma, forming tubules, cribriform architecture and solid nests.
Immunohistochemistry performed at UHN reveal the following profile on lesional cells:
Positive: GATA3 (diffuse), ER (diffuse) and AE1/AE3
Negative: PR, HER2 (score 0-1)
The prior resection specimen (S14-26410) was reviewed to reveal morphologically identical tumor. The findings are consistent with relapsed/recurrent breast carcinoma. Breast biomarker studies will be reported separately by Breast Pathology service."
So if the pathology report report show the same as above then it would mean that it has changed from PR+ (85%) to PR- and from grade 2 (moderately differentiated) to have 3 (poorly differentiated).
last Friday I went for the mammogram and u/s of the right breast as a follow up of the enhancement the CT and MRI picked up. The technician found this other mass for which she called she called the doctor, who looked at it for a few minutes and then went to discuss it with the radiologist. after 5 min they all came to the room and the radiolgist was looking at the mass. She said she couldn't find the enhancement seen in the MRI and that the mass they found looked like a fibroadenoma and she suggested a core biopsy for a definite diagnosis and to eliminate the need for follow up. I agreed and the doctor took 5 samples......a bit more than usual but the mass was small so it's better that they took more. I looked at the mass on the screen and it was irregularly shaped but according to the radiologist it didn't have any other features that suggested malignancy.
Will update you tomorrow after my meeting with the MO, I am supposed to start the trial meds tomorrow.
Thanks for listening.
Lola xox
0 -
Lola - cancer can "change it's spots" ; looks like you may be ER+/PR-/HER- like our friend Z who is very active on the liver mets thread. Please make sure you ask your MO for confirmation of changes and what the next steps are for you. What meds will you be taking in the trial? FYI I have been finishing up IV Abraxne - this is my last month (total of 6), so apologies to my dear bco ladies if I'm behind in reading, but the fatigue is cumulative. lol 2 more rounds to go, and then PET at end of January. Maria - what a lovely family! Pat - how is xeloda holding up for you? Seems like onc was waffling on changing your meds. How are you feeling? Iaona - we need a glass of champagne soon. I will have one when I finish chemo. Liz - NEAD is a joy. Hang in there and see you end of May at the Mayfair (after the royal wedding).
Claire
0 -
Liz, the good news is you're having a great response to treatment and the bad news is you've great responsed yourself out of the trial.
Boy Pat, if you're already SOB you don't want the cold also known as "the plague". Fingers crossed.
0 -
Definitely have the cold but it's not that bad. Seems like my typical three day cold. On day two so by tomorrow hope to be through the worst. The heels, on the other hand, are showing no sign of resolving themselves. Darn HFS! It was like stepping on shards of glass this morning. Ouch! Making it difficult to walk the dog.... poor Sadie!
0 -
Lola- I remember having my chest biopsy and then waiting for the result. This is a very difficult stage but you seem to be hanging on in there and I’m sure will have the full picture and a treatment plan very soon. My biopsy was a poor specimen and for that reason the Her 2 part is an assumption. You are doing brilliantly.
Mariam- lovely family photo. Happy times and I’m glad you got to look at the tree. I also see that you do t let anything get in the way of living life, hence the sourcing a nurse to flush your port! I will have one eventually and hope for it to be routine.
Claire my dear- May/ June is getting closer. I can also picture our meeting and first cocktail.
Pat- colds are truly rubbish. I hope yours exits quickly. Everyone seems to have colds or this Aussie flu here.
Di- how are you?
Cive- well put about my trial news. I was very nervous about more rads because of position so in a strange way this is the decision taken out of my hands.
Ioana- I have PM’d you. Catch up soon.
Liz
0 -
Hi Ladies,
Hope you are well.
I started Kisqali/Ribociclib yesterday and other than a bit of upset stomach this morning I haven't had any other side effects.
I saw my RO this morning and she suggested that if the area shrinks then radiation would be a good option as well in order to be very aggressive. She suggested that a surgery could be done with a resection but I am not keen on doing that.
Her clinical report of today's visit though did mention that the CT scan noted that there was a 6-mm right lung nodule which has remained stable apparently from previous imaging, though she cannot find it on the imaging for comparison. The CT scan report I have there was no mentioned of this and I am not at home to read by CT scan from 2014. I had two CT scans a week apart so not sure if these two are being compared.
I am aware that lung can have nodule but the timing if this seems a bit suspicious. I will print the RO's clinical note to my next MO appointment and ask her about it.
Lola
0 -
Lola, thanks for the update.Hoping for no further S/E. What kind of surgery with resection was your RO referring to? I had two nodules on my good side lung that showed up in my August CT that had not been there a year before. My November scan showed no change. Hope your is same or better.
I had my monthly blood work yesterday through my port and get results when I see my MO tomorrow. I am starting to makes plans and lists for my trip to NZ for 4 weeks in Feb. to March and tomorrow will ask for a letter from MO to add to my little cooler with the Faslodex in it. My SIL in NZ has lined up someone to administer it there. The nurse who did my draw yesterday said I can go a few days longer than a month for a flush which is great and would have been more complicated to find depending on plans.
Pat, has your cold gone? I am off to spend 3 days with two good friends in Calgary next week~~one is flying from Edmonton same flight times as me. Both have had breast cancer. I heard on CBC today that Calgary is the epicenter of flu in Canada so I think we will not go where crowds are!
Sleepathons ended 3 days ago and can feel my neutrophils building!
Marian
0 -
Hi Marian,
The RO was suggesting resection of the sternum and the MO mentioned that a hospital in Toronto has a trial for sternum resection. But I don' like the idea of more nodes being removed I have a bit of trunchal lymphedema.
I checked my CT from 2014 and there is no mention of lung nodule. I will ask the MO and hope that the next CT shows no changes to it.
Marian - I am getting excited for your trip!!! Stay away from crowded area!
Pat - hope you are feeling better.
Hugs to you all.
Lola
0
