Shadow in chest is recurrence
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Lovely pictures Liz. This weekend was very mild here. it felt like spring. It us supposed to be quiet mild in the coming days as well so if the newlyweds are heading to Toronto it should not be too cold 😊
Ioana - Thanks for sharing that video it was very informative. Thanks for sharing your pictures as well.
Pat - hope you are over your cold by now. Hows Faslodex treating you?
Marian - congratulations on the soon to be new additions to the family. Twins are a bit of handful (my sister has a bit and girl) but they are so adorable as they play with each other most of the time.
Claire - hope all is well.
I passed my last two exams yay!!!
I see my MO on Tuesday and get my second shot of Zoladex, not looking forward to it. No Her2 results yet :-( I will print my RO clinic note and want to ask the MO about the lung nodule as I was not told in any of my previous scans and I did not have any follow ups for the lung nodule.
In December I had two CT scans a week apart and I am wonder if they are comparing those two scans. The scans were done at two different hospitals and one was ordered by the B.S. and one was ordered by the MO for the trial. Two more sleeps till I hopefully get some answers.
Kisqali has been okay so far some minor nausea and some fatigue.
I signed up for a 5k run in May, it will give me some motivation to get back to running and work it out.
Happy Sunday!!!
Lola
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So it was wild and crazy windy last night as I am sure Pat would attest to. 70,000 out of power mostly on the coast I think. We had sun, rain, more wind and a planned walk was cancelled for which I was grateful as I had one of my sweats and nausea days with some vomiting thrown in. I laid around mostly but decided to go back and start reading thus thread from the beginning so as to get to know you all better.
Off to an early sleep soon but I plan to read through the 25 pages left. Thanks everyone.
Marian
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Hi All,
It's been very quiet on the thread these days. Hope it's just a sign that we are all busy but doing well. I've had a hectic week conducting interviews among other things. One excellent candidate who I hope I can lock down for a manager position reporting to me. It's something I really need to help carry some of the load and give me a bit more breathing room. As I have said before, work is a big part of me and I hope to continue for quite a while but when treatments start to go sideways it can be more pressure than I need.
Mr. C seems to be the gift that keeps on giving. I really think Faslodex will help put the genie back in the bottle for a while but I continue to have symptoms that lead me to believe that the Xeloda was not working. The latest is some pain in my right groin (and hip). I wondered if it was the peritoneal mets continuing to spread but, by coincidence, I had a conversation with the RO I had when I was first diagnosed. He was my RO for over 10 years as I was part of a clinical trial so saw him yearly but then he moved to Alberta. Anyway, for some reason (I think we were talking about the abscopal effect) he mentioned a patient that had enlarged nodes in her groin which is very unusual. I told him about my groin pain and his response.... any lumps? (no) ... it's far more likely it's mets to the hip. Sigh... Will need to keep tabs on this but it's been persisting for a couple of weeks (before Faslodex but after my Palmidronate infusion so also wondered if it was just a SE). Oh for the good old days when I never went near a doctor and the only treatments I had were chiropractic and massage for my back...
Wishing you all a great weekend. I think it's supposed to be miserable here (although the sun is shining into my office window at the moment) but at least the days are getting longer! Can't wait for spring.
Hugs. Pat
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Hello All,
Australia Day - long week/end here - hot and humid and very very lazy.
Coffee in hand thinking about brunch.
Pat - I have PM you.
Liz - hope all went well with your onc Thursday.
Claire - how are you?
Marian - great to hear you are heading over to NZ.
Lola - brilliant - you are tough - handling exams and treatment decions ...
Hugs to All,
😊🌷
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Ah, Australia Day long weekend~~the reason my son and his girlfriend have a 4 day weekend. They are house/small farm sitting and one hen died overnight. When they have dealt with that we are going to Skype and discuss NZ plans as they are involved too.
Pat, the sun is trying to shine in here too and I want to go outside even for 10 minutes to do some clean-up from last storms before next. My right hand is cold most of the time so I can't be out long. At my RMT appt. this morning she hit a point where suddenly my hand warmed up and she could feel it too but of course not really sure where it was. There is hope. She wants me to see an RMT specializing in fascial release as the rads and no doubt surgeries have created a spot where it is almost nothing but thinning scar tissue. This is my 2nd appt. and this RMT is working on my lymphedema.
Pat, will you have a scan for the persistent pain?
Lolis how are you? Do you do indoor training in preparation for the May run?
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Hi Ladies,
How are you doing?
I have been very tired lately so haven't done much. I feel like I need a vacation but am undecided between going to an all inclusive down south and Spain/Portugal/France vacation. My hubby is not much of a traveler and I can use both type of vacations. I need to get swimwear for people that have gone thru mastectomy as I haven't had my recon surgery yet (was supposed to have it in the coming months but the stupid cancer came back!!!!). I have taken a day off on Feb.6 as it is the day I go see the MO and will go swim wear shopping.....exciting!!!
I got the Her2 results and it is negative yay!!!
Marian - I will start training indoors soon. I have decided to joint the gym at work and will make an effort to go during lunch time. I am a bit overweight but I kept it as I needed it for my recon (prophylactic and mastectomy side) but I feel so unfit as I can't go up 6 flight of stairs without my heart pounding out of my chest.
Today I got my gym bag so I am ready for it.
How are you ladies doing?
Lola xox
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Everyone very quiet these days. Liz, how are things. DiV, hope to hear from you soon. Cive, sent you a PM. Hoping all is well.
So.... never sure what to wish for. The groin issue is still ongoing and I'm noticing it's uncomfortable by the end of the day and likely impacting my sleep. Thought I better let me MO know but, in typical fashion, I crafted a careful note telling him about the issue while indicating that I am happy to wait to se if it resolves and/or Faslodex has time to work. I sometimes wonder if my MO rolls his eyes when he reads my missives. His response, best to get an image... last bone scan was in September. Sigh....
I don't know why I struggle so much with these scans. It's not the fear. It's more the sense that I might be wasting precious resources and his time if it is not related to the cancer. I feel like a hypochondriac. There are lots of things that can go awry with our bodies, particularly with all the SEs we deal with. And yet, we always end up lit up in a machine. To make matters worse, I don't really trust bone scans. My last one came back clean while theCT showed significant progression in the bones. Still not sure I understand how that can happen.
Anyway, now anticipate he has ordered a bone scan. Not sure when that will happen...
Hope all are doing well and quiet means busy with your ver active lives.
Hugs. Pat
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Hi Pat,
Yes a quiet period on the board. I have been through a strange time in terms of low mood but I’m picking back up again now. I predict this is how things will go with me and actually it is the nature of this disease.
Tonight I took my son and daughter out for a meal. They are feeling the pressure at school. I have not been having an easy time of it with Lucy, 15 next week.
Tomorrow I am out on a school trip to this ‘Poetry Live’ event. I am glad to have a day out from the usual. Leave the house at 7.30am, trip all day till 3pm, get back to school in time for parents eve at 5pm. Ugh.., roll on Friday.
Regarding scans- whole thing puts me back into deepest gloom. Next one for me is in March. Don’t think you are a hypochondriac at all. Actually you are very measured about your symptoms.
We have all had issues that have turned out to be nothing and issues that have been cancer related. This makes it virtually impossible to remain cool as a cucumber! Strange simile but rather apt.
How is everyone else doing?
L x
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I too have been having a low this past week. The Ibrance cycle ends tomorrow which may be part of it but I have had a couple of bouts of nausea and vomiting (never for any length of time) and general unwellness. Also I am coming to grips with the right hand not being of much use and it has made me unusually unhappy. I know it is a big deal to lose the ability to quilt and do much cooking (hard to use a knife and at "House of Knives on the weekend I was told that it is not the matter of trying different knives but that fingers plus the thumb are needed. I was supposed to go to Vancouver today for s last weekend with friends and my daughter before I go to NZ in a week but came to the conclusion that I need to reserve energy. I have rarely cried over the years with BC but this week there have been lots of tears.
Today I feel better and my sister and BIL from NS arrive tonight as they are house/cat sitting and I am looking forward to that. Now to get my butt in gear and finish cleaning.
Thanks for the venting space
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I'm sorry you are both feeling down. It's a funny time of year. I know I am fed up with the rain in Victoria and am really looking forward to some longer days. I know it will help my mood, partly because I am tired of juggling and umbrella, flash light, doggie disposal bags, gloves, etc when taking Sadie out.
Marian, are you sure you are not getting the flu bug that is making the rounds? I had zero nausea with Ibrance - just really hit my red blood cells.
Just a month or so before spring is here in the northern hemisphere. Quite looking forward to it, although... not sure how I will manage in the garden this year....
Hugs to all. Pat
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Marian,
Something about your lesion bugs me especially in the context of no other demonstrable disease.
This is what I can put together:
You are travelling to NZ.
You have a son in Melbourne.
You have a lesion that involves the brachial plexus and in that is close to the axillary artery and vein.
I would ask your son to get a referral to Prof Peter Choong at St Vincent's Hospital in Melbourne - head of surgery and orthopedics (too many tittles to mention) - a life spent battling bone and muscle cancer - or to even make an appointment without a GP referral - Peter takes overseas patients consults. Send him the films. The advantage of having this viewed at St Vincent's is that the plastics Victorian reconstruction hand unit are also there - Timothy Bennet, David McCombe. Not only would I aks Peter to consult but I would ask for the plastics guys to look at the films.
You can easily google them - please consider.
Marian - what have you got to loose? Just get a consult and get them to look at your images.
They are not silly - your son can go to the first app without you for a no /or maybe -but we need to know more.
I may be way wrong about this as I have not seen your films but I do know the work they do - if one has what you do they would be the ones to ask.
Hugs to all,
Ever so stubborn,
Ioana 😊🌷🐣
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Okay, lost my cool this evening. Pharmacy screwed up the order for my Faslodex and it was not there when I went to pick it up at 5:30 PM. Was told that it would come tomorrow by 3:00 PM which is not precisely helpful as I have an 8:30 AM doctors appointment for the injection. So now I need to figure out how to fix this as I need to have that shot on time.
I am really angry, particularly as tomorrow is Friday and if we can’t get this sorted it will be Monday before I can get the shots. My GP’s office, which is not close to my pharmacy, closes at 4:00 if not earlier on a Friday. The pharmacist indicated that there was a 2-3 day leeway but I have also reviewed the monograph and this applies once maximum serum levels are reached. I’m not there yet and trying to hold it together with worsening symptoms, while playing the waiting game. To make matters worse, I am supposed to be in day two of a series of all day meetings at work but will now have to miss most, if not all, to sort this out. This at a time when I am already starting to feel they can no longer count on me to perform in my role. Grrrrr!!!
We’ll see where this goes. I can be quite the b*tch when I am pushed too far. I left it at, I don’t care if someone has to fly to Vancouver to personally pick it up, you need to get me that drug by noon. Second option is to hire a nurse to give me the injections at the end of the day. They have pushed me to my limit on this as they messed up the costing on this drug when I was getting started resulting in delays while I tried to deal with my extended health.
Okay. Rant over. I am sure it will work itself out but tonight I feel the need to tear a strip off of someone. They apparently hit a raw nerve....
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Ohh Pat only one strip - go for it - wrip them to bits.
Let us know how it goes tomorrow.
Thinking of you and ...for a second I was tempted to post you a youtubevideo of gluteal injections - upper outer quadrant being the golden rule. No !!! - hire the nurse if you have to. Wish we were all closer.
Do you have doctors that do call out home visits in Canada - can you call someone out ? We do here - they are not always the pick of the bunch but they can give you an injection.
Or could you contact an emergency dep and ask whether you could drop in for an injection? It's not as crazy as it sounds - but you would need to speak to the triage nurse before you show up to see if a time was slower...calmer.
I am nuts but ou all know that.😊🌷🐣😱
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Thanks Ioana. It’d nice to know you fon’t Think I blew a gasket unnecessarily.
Unfortunately, no we don’t have doctors who do house calls here and I was actually at emergency with my mother last night. (Long story, I think all is well.) it was a zoo. Six hour wait to see a doc and no place to put patients. It’s flu season here big time so I suspect they are short staffed as well.
Let’s see how we go. I’m treating the nurse as their problem to solve if we need to go that route. I’ll see what I can line up with my GP this AM.
Thanks for listening. Pat.
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Hi ladies! So sorry I haven't posted lately. I had a lot to catch up on since my last post.
Lola I'm so sorry to hear about your recurrence. You have found a great group of ladies. The support and knowledge these ladies have and offer are beyond words. Yahoo on passing exams!
Marian I sent you a pm.
LaLady so happy to hear the Abraxane is working well for you.
Pat, Liz I don't know how you two continue to work so much after all you've been through.
Pat I would be made as h**l too If my medication was supposed to be there. Please keep us informed about bone scan. Have he HFS cleared up?
Liz the pics from wedding were beautiful! I'm so happy to hear about your positive response to treatment! Don't you even mention how long your going to live. You are going to be here a long time. You have a new daughter-in-law who will no doubt will have babies for you to coddle, a niece with a baby on the way. They all need you to be in their lives! You stay positive!
I'm so jealous of you ladies and all your vacations! Wish I was there. I saw my oncologists Tuesday. We scheduled my next ct scan for April 24. I try not to think about cancer and what it's done to me. I try to look for happiness in everything I do. Just recently my boyfriend and I were out for dinner and my boyfriend said 2 teenage girls were looking at me and talking about me so I turned around and waved my amputated shoulder at them. With that they both got up and came and spoke to me. They wanted to know what happened to my arm. They said they liked my sense of humor when I waved it at them. I've been busy here at home cleaning stuff out getting ready for my boyfriend to move in. Oh and I got a new bedroom set no more sitting on a board to change my sheets. We have had some really nice weather here upper 60's then cold and snow then warm again. It's supposed to be cold and snow for next 2 weeks.
Hope to hear from you all soon!
Hugs to all
Diane
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First of all, today Diane I got your PM and I was so happy to get it. Not sure what happened to the PM I thought I sent you but by reaching out to the TN group, here we are connected. I will e responding!
Ioana, I was so touched last night by your suggestions. Trust me, I am mulling it over and trying to figure out the best way to move on this. Rather than PM at this point it might be good to stay public to get other opinions. I have a private Facebook group that evolved out of our BCO September 212 Chemo group and often one of us will think to go private but usually the others are interested or offer a new perspective.
I leave for NZ in 6 days and see my MO the day before. I have pulled out my consult dictations in hopes of being able to give you a better definitive diagnosis since I respect that you, being a doctor, will understand it. I thought I could scan and send a few things to you. Meanwhile I will call BCCA and see if there is any way to get copies of my films. Do you think that if you give me email address(es) that they cold be sent directly? Pat, you have years of experience dealing wit BCCA, what do you think?
I never did submit questions to MD McDonald in Houston and in part this is because of my imminent travel. I have blessed to have separate insurance that I believe would pay for a second opinion though I would have to check on that. My son in Melbourne leaves there March 2 to meet us in NZ with his girlfriend who is Australian. They are sailing on our boat to Victoria with my husband and a friend (he is a Kiwi and family is in NZ) Of course all this somewhat complicates what I do since Dick et al will to get here until July or August. But I do believe I need to get that second opinion. How, where and when are the big questions.
Pat, as you know British Columbia has some of the best cancer care in the world so I am always trying to decide if it is worth it to go for the second opinion? Any comments?
As all of you know, we all have to constantly be advocates for our own cases. Diane, you are a shining example of that! Right now if I did not have the $ for an RMT for my lymphedema and soon one for my awful scarring on my chest and if I had not asked my MO for a referral to physio (he looked embarrassed and said "I should have thought of that myself) I would simply be sitting here taking Ibrance and Faslodex with the other problems making things worse.
Diane, I âgée with you on Pat and Liz on the fact they are still working full time! I am 68 so would not be working anyway but am still so impressed.
Love to you all!
Marian
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Hi Diane - love seeing you back here.Wave your arm with pride. Pat - in the US, our fasoldex is waiting at our oncs - picking it up at a specialty pharmacy seems like a needless step. oy Liz and other ladies, I made it to Sundance and had a good time in the snow, but returned to find that I had bone/liver progression after 5 1/2 mos on A- Train. I have a met in my dura (which surrounds the brain), just saw the radiologist and waiting to find out how many weeks of head rads I will need in that horrible mask.
I was sent my first box of xeloda yesterday - waiting to find out if it pairs well with rads (I was going to suggest a nice dry chardonnay). We shall see. I will keep you posted. Sternum and pleura still clear thanks to Ibrance. Take care ladies!(()) Claire
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Hi Ladies,
I am lad it's Friday. This has been a long week for me, work wise. I had my week off from Kisqali and still feeling the same as when taking Kisqali.
Diane - thank you for the welcome. Yes the ladies here are fantastic. Kudos to you for sharing your story with others.
Marian - I think a second opinion is always important especially when you are in doubt.
Pat - sorry to hear that you are having such a hard time with getting your meds. Were you able to get it? Have you thought of contacting CCCA? I hope those are available in BC.
Claire - I am really sorry to hear about your progression. Will they change the meds for the liver/bone mets? How are you holding up?
Hugs to all of you.
Lola
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I don't know... I think Xeloda pairs better with a nice Zinfandel! But then, I'm more of a red wine drinker...
More antioxidants. Good to hear from you Claire. I've been thinking about you a great deal so keep me in the loop as things play out.So... the pharmacy saga is resolved, although it did cost me an afternoon in a planning session. They managed to get the meds by noon and I rescheduled my GP appointment until 3:10 PM. So, in an hour I will have cycle 2 of the fanny pack treatment. After the hassle I feel wrung out to be honest. I am surprised at how poorly I handle stress these days. I agree that this is a needless step but unfortunately, the drug is not covered by the Cancer Agency and, as a result, they cannot administer it. The Agency has a pharmacy but it only deals in drugs covered under our provincial health care plan. It it's outside of this, the process is different. Slightly convoluted.
And in a similar vein Marian, you can't get films from the Agency unless they did the scans which is unlikely. All of my scans are carried out either at the Royal Jubilee Hospital or the Victoria General Hospital, both of which fall under the Island Health Authority. In your case, I suspect many of your scans were carried out by either Fraser Health or Vancouver Coastal. This doesn't mean that you cannot access the scans. What you need to do is go onto the health authority website to fill out the form asking for access to your scans under our Freedom of Information Request (depending on how they have it structured you may have to fill out a form for a specific hospital). I just went through this exact process, recently receiving CDs from each hospital. It's quite neat to be able to view your scans although, I have learned that I suck at it! Pleural effusion was no problem and I could certainly see the change in the alignment in my ribs that has taken place (caving likely due to the pleural mets) but the bones??? Complete mystery to me.
As to second opinions, I haven't really felt the need but interestingly I did have a conversation with my old RO who is now in another province. I wanted to pick his brains about radiation options and possible clinical trials. While there was certainly no examination, he misunderstood what I was after and consulted with another colleague about my case. The treatment plan was pretty much identical. But, keep in mind, in my case the treatment is not really the question. For me it's trying to understand why I am not responding well with this slower moving beast. You have other complicating factors which you need to consider.
Diane, so pleased to hear from you. In terms of inspiration, you constantly amaze me with your wonderful attitude. I don't know if I could manage to pick myself up the way you have. Work distracts... at least some days.
Well, must get a couple more things done before the next assault on my personal bits!
Hugs to all. Pat
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Maybe I am lucky in that my MRI, August 5 CT with contrast and core biopsy were done at BCCA Vancouver. The last CT with contrast was at the Jubilee so would have to go through their system. Did you go to the Jubilee for that process?
In my case I was told that inoperable because of the location and surgical excision could cause a bleed or paralysis. I asked right when I first saw my Victoria MO if I was the richest person in the world, could he/she have surgery and the answer was no. When the head of radiology Vancouver BCCA (he did my core biopsy and was involved in reading all my tests) called me in response to an email from me on business day 4 after the biopsy, I mentioned surgery. He started to answer in a way that sounded like no or difficult then said I would have to ask my doctors.
So I would say that yes, I need a second opinion. I tried to see my MO earlier than Wed. 3 PM as I leave Thursday noon but he is full. Maybe I need to take this month in NZ off and enjoy the many plans. Now of course my mind will take me to how to circumnavigate the system. And then I am so tired that I hardly can find the energy to look through all the documentation I have~~LOL.
LaLady1, when I was first trying to find out how to get my Faslodex injections without a GP, BCCA did check on whether a nurse there could give it if I had it in hand. No, because only way they can give it iris you are in a trial and no way I wanted a 50/50. They did find my a specialty pharmacy (Pat you might like this) where they have a nurse for infusions and things like Faslodex. It cost $30 but once I moved my prescription to them from a regular pharmacy they do not charge. Vital Health Pharmacy near Fort and Foul Bay. I get all meds there now including my Ibrance.
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Marian definitely get a second opinion and perhaps see an orthopedic surgeon. Probably best for peace of mind knowing you advocated for your treatment.
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Gosh how this thread rocks when everyone is here...
Ok, Pat - the system is pretty screwed down under as well. I have very little patience for my time being wasted because of, let's be blunt, incompetence.
Di is good to hear from you - you are brilliant and your description of how to get a bra on is always with me on some level - did you get your Botox? How is your Mum??
Marian, don't mull it over - get your films, sent them to Peter Choong, Melbourne and ask - what can be done? It's not a money question. It is question of finding the right man for the job iF there is a job to be done.
I don't want to get your hopes up because I do NOT know the answer. But I think it's worth asking - and you might as well ask while you are in NZ.
Peter has been at the forefront of hemipelvectomies - taking half of the pelvis out for bone cancer since the late 90s - it was a blood bath when we started but now it's a 6-8 unit transfusion and overnight in ICU. He is involved with Peter MacCallum - probably the biggest cancer institute in Australia. The plastic hand unit I mentioned grew under a man called Wayne Morrison, another men for you to look up, almost retired hence my not mentioning him.
Liz and Pat will tell you that I don't hold back much. You are in your early 60s I presume with a good trekking history so otherwise healthy. You have a local large recurrence but from your history nothing else lights up. You had a lot of lymph node inv to begin with so maybe the biology of this is about local invasion rather other organ metastasis. You have pain, lymphoedema and if you can not hold a knife (I do listen) so some neurological deficit. A consult in Melbourne will cost you well under $500 Australian.
If it's No you will never have to wonder. If it's a maybe, then we can ALL mull over it. Get your films on disk and send them over or if easier call his rooms on Victoria Parade Melbourne and talk to his secretary. Well. I have said my peace. I am sorry if it's too much.
Lola - I am barely starting to have my walk break into a run - good plan on the 5k marathon
Liz - well ...hmmm... you are starting to get to know me😊🍷
Claire - bugger - hey - how are you holding up?? Offf.
I know you are supertough - words fail me.
(The radiation guy Z saw at Mayo seemed pretty switched on. Interestingly no proton radiation in the Southern Hemisphere.)
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Marian,
A first consult in Melbourne will be well under $500 Australian.
It's the combo of this surgeon and the hand reconstruction unit that I believe is valuable.
What you have is not so common in current breast cancer. It's a large local lesion but no apparent spread at present in hormone positive cancer. I was specific about it in that, that you don't need an orthopod but someone who does soft tissue tumour surgery that involves neurovascular structures occasionally.
This is my suggestion for an opinion - Peter.
http://www.nationalgeographic.com.au/videos/miracl...
😊🌷
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Ioana, I am sending you a PM
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ok Marian,
I do not know if there is hope.....!!!
or not but to honest it all seemed to much of a coincidence...your son in Melbourne, you flying to New Zealand and this thing being localised for now. So don't get too excited - it's doing ground work first, we don't know there is a solution. It's also possible the answer might end up a NO. But you can be sure it will not be given without some serious thought.
I can not read scans - I am NOT a surgeon, I am an anaesthetist. I would never give a medical opinion unless I saw, spoke to, examined a patient. And it is very very far from my area. Here I am suggesting you seek a clear second surgical opinion from a team who does a lot of this genre of work, albeit mostly bone, muscle tumour.
I don't think there is a need to have further scans at present for this.
Also you don't need to see all three. What I am suggestingis that you get all info on your past to date scans in CD form and also find out exactly where the films where done. You ring the rooms of Peter Choong, the Victoria Parade Specialist suites when you get to NZ and you tell them the truth - you are nurse and an overseas patient from Canada, you have an axillary soft tissue tumour( happens to be be breast, but nothing else) involving the brachial plexus, you live overseas but you have a strong connection with Melbourne through your son. You are hoping to be fitted in for an appointment or for a Skype consult - you need to know if it is operable, and if so what is the benefit and what are the risks. You understand plastics may need to be involved but you leave that up to him. To be honest I find that telling the truth works best. I would be surprised if they did not fit you in.
It is best I do not make this for you - several reasons - mostly professional...
Let us know how it goes.
Hugs aplenty
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On a lighter note, when you spoke of chooks, here is me last April in Vancouver just before I left for Nepal. I had 9 chooks in my backyard in Vancouver. The were having a yogurt treat along with our cat Jake. Almost midnight and I will be thinking everything over tomorrow and the next day....
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😊ha... you are much more organised then I.
I told Pat that I had them relocated for the two weeks we were in NZ, and corn started growing in my modest coop. I have only three and they pretty much have the run of the backyard....
I don't beat around the bush much - I am pretty outspoken.
I would absolutely support anything you decided - either way. I can only imagine how hard it is.
I have said several times on this thread i find advocating for myself the toughest thing to do, it's a REALshitty disease and you just never really know.
Di - it was great to hear from you!! Did you have the Botox? How is your Mum?
My wise Liz, hmmm how you hold us together.
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Claire,
I have not said anything because I don't know what to say. I picked up on the dura.Here is hoping that the rads will sort it out and that Xeloda is doable for you. I am in awe of your grace and toughness through this - wow! I did say to Pat - I wish we were all closer on the map - that dry chardonnnay sounds a treat.
😊🌷🐣
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Loana
I saw my therapist and at this time she doesn't recommend botox or steroid shots at this time. She said they're too invasive and doesn't want to gets go that route yet. I just try to deal with it. It does wear me down. My mom's biopsy on lung was negative. She get scan every 3-4 months to keep an eye on the nodule. She made an appointment with an ETN Dr.
FINDINGS:
LUNGS/PLEURA/LARGE AIRWAYS:
There is some suspected dependent material within the trachea.
Bibasilar atelectasis. Irregular subpleural nodular opacity in the
left lower lobe measuring up to approximately 2.0 x 1.1 cm grossly
similar in size when compared to previous examination. This appears
slightly more separated from the pleural surface when compared to
previous examination. There is some mild adjacent infiltration or
atelectasis. There is some mild nodularity along the posterior
pleural surface on the left measuring up to 5 mm. No pleural
effusion.0 -
Claire
Like Loana I don't know what to say. I'm so sorry to hear about your progression. You're one strong beautiful lady. We are here for you any time you need it. I too wish we were all closer on the map. Would love to have a glass of wine with all you wonderful ladies!
I have met 3 beautiful, strong women from this site. One woman lives close to me so we see each other when we can. Another woman from Montana coe to town for a second opinion and we met for lunch. Another woman from Kentucky came to visit family and we also met for lunch. I think it's great when we can meet up with our supporters and friends from BCO!
Pat I'm so happy you got your meds straightened out.
Diane
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