Shadow in chest is recurrence
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Di, I was so pleased to see you here until I read your message. Oh no is what I said out loud then an audible sigh. I note that you say rib pain on right side so opposite of your original cancer? The walnut sized mass showed up in chest or in ribs area~~duh of course ribs and chest in same area. I hope you were on the other side of the car and regardless, what a terrible time for that to happen. Hoping for a "rush" on the CT as soon as you call on Monday. Is your MO pretty good at making things happen? Please keep us updated as you are able. A big virtual hug from me too.
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Di,
Don't know what to say.
We are ALL here for you.
Let's see what the scan shows.
(())
Ioana
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Di,
I was so shocked and upset to hear this news. The accident that followed sounds very frightening too.
There will be a plan Di, some action will follow this very soon. I know that is little comfort for you but your team will be there, your family will be there and your friends here are all with you, every step.
We love you x 💜
Liz x
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Hi all, So I typed out this long reply hit submit and the whole thing disappeared got to love computers....lol
Pat your future trip sounds wonderful! You are going to have a great time. You deserve it. Your bone scan must have been excruciating. Right now I'm currently not on any treatment. Here's a funny story for you. I went and got my hair done Thursday. My natural color is a very dark brown. I wanted my hair a light brown with gold highlights. In the process of lifting the color it brought out the brass color in my hair. My hair literally looks the that flower called a Matchstick. My hairdresser is going to fix it Wednesday. At this point it could be a neon green and I wouldn't care with everything else going on now.
Marian, Wow a months vacation what I wouldn't do for a vacation right about now. So happy to hear you had a good time. This new mass is on the opposite side of the original cancer in the ribs. ER Doctor said it's very concerning that it wasn't there on my last scan. She said she believes my cancer is back to call my oncologist Monday.
Loana, your beach pics were beautiful. I love the beach! When I go to Florida I could walk the beach for miles. It takes me to another place in my mind and so relaxing. I'm going to try to keep my head up but it's getting so hard.
Liz, Congratulations on your scan that is such good news! Your spa weekend sounded so relaxing. You ladies and all your trips I'm so jealous.
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DiV luv - where is the mass? Get this checked out asap, so sorry for the accident I hope the party that hit you is insured. Remember under US law you take the plaintiff as you find them, meaning it is irrelevant if you already have cancer and the accident made it worse. Please see a Dr pronto. And take pictures of the car. Let us know how you are!
(()) Claire sending a gentle hug
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Hi Claire, the mass is on the right at base of ribs under ribs. The man was insured. He was going to flee the scene. I'm calling oncologist Monday.
Happy Easter everyone!
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Di,
I love the beach too.
It's Monday today here - well about 8 pm...Let us know when you can and when youknow.
Let's see what the CT shows.
(())
Ioana 🐣
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loana I got the results from the x-ray today here is what it says: 2.9 cm right lower lobe nodule is concerning for either metastasis or primary bronchogenic malignancy. I called my oncologist he is out of the office this week. I left a message with receptions. I gave her all the information. she said someone will call me back. i also told her I'm scheduled for a ct scan on the 23rd but ER wanted it moved up. now the wait game begins...
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I wish there was some way to make the wait easier Di. Quite frankly, it sucks. I’m so sorry you’re back in the fray. Just know we are all here when you need a shoulder.
Hugs. Pat.
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Thanks Pat I really appreciate it. I have my scan tomorrow at 8:30 am then see oncologists on the 4th. I just can't believe this after everything I've been through. My ugly side is going to start coming out. I've really tried to keep my head up.
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Di, so glad that you have the scan moved up to tomorrow and oncologists in two days~~waiting games are the worst. Will keep you in my thoughts in the coming days.
My pain in much worse along with the use of my hand deteriorating quite fast. I feel that it was stable while I was away the 4 weeks and my friend who was there too agrees with me. I could do shoelaces 3 weeks ago but not anymore. My pointer finger along with my thumb kind of worked along with my thumb but the wasting or atrophy has caught up with it too. Please thumb, stay working! I realized while driving last week that I cannot clench my fist as I could two seeks ago. I discovered that while driving. However I have hope again. I was referred to a plastic surgeon in Victoria last June after my Vancouver PS removed all my reconstruction~~implants and a lift as Dec./16 redo of recon had not worked. Anyway, it took months for the appt. and to be honest I had forgotten about it when I got a call. I thought I might as well go and she was not much concerned with my tight chest wall fascia issue but was concerned about my pain and lack of strength in my right hand. I was actually about to see my GP for a referral to an occupational therapist when I got that call to the PS. She (the PS referred me urgently to see a plastic surgeon who works with a physiatrist as a team. Of course I had no idea of what a physiatrist is but on looking it up this is one link: https://www.spineuniverse.com/treatments/what-phys...
So I see the team on April 10th and can't wait. Way too much pain and dysfunction.
To make matters worse, today I tripped in my bedroom and hit my forehead on a desk (my late grandmother's desk so quite special). Luckily no concussion (we think) but a very deep cut about 1.5 inches long. While it bled into a towel I managed to call my neighbour who took me to ER. There was a 4-5 hour wait but I went to the top of the queue due to my cancer and meds. At last something good about cancer other than the airline miles I get every month when I pay for Ibrance and Faslodex. So I have 4 stitches in my forehead and have to go somewhere in 5 days to have the stitches out. Why didn't he put dissolvable stitches in? Did not think to ask. I do wonder if the reason I fell is due to cancer and drugs. Arrgghhh!
Marian
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Hi everyone,
Any news Di? Been thinking of you every day my dear.
Marian, sorry to hear about your nasty fall. Hope you are recovering.,
I am sending best wishes to all.
Liz
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Claire😊
And
I found it on iherb.com
Not suggesting you drink the drops - dissolve some in water and gargle with it. Ok not your fav rose but I think it might help.
Propolis may have oestrogenic effects ( alas so does turmeric... and ginger...) I am not suggesting you take sups - consider it for gargling. Heals all cuts.
https://www.ncbi.nlm.nih.gov/pubmed/17285269
Should you need some science behind it.
Rapid solid healing - (())
Ioana
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Liz,
I saw your post - Di let us know how you are when you can.
😊🐣
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Hi Liz, Pat, Claire, Marian, Loana
I had my ct scan tuesday. Been processing results. here is what results are: Mass [ 3.2 x 2.4 ] in the right lower lobe,new since prior chest ct, highly suspicious for primary or metastatic malignancy. Infiltrate peripheral to the mass consistent with postobstructive pneumonia. No evidence of intra-abdominal metastatic disease, or other acute ct abnormality. Saw oncologist wednesday. mass is unknown. biopsy scheduled the 12th. See a pulmonary dr the 10th. So now the wait game begins.
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Hi Di,
Thank you for posting at this difficult time. I know that we have all been thinking of you since you first posted with the news of this mass.
I had a biopsy when I was first investigated for pain in my arm. Until it is done, and the report released to you, there will be a wait. Unfortunately the doctors will not say too much until the full results are in.
I am glad to hear that your medical team are acting quickly though. I hope you are ok tonight. You have been so incredibly courageous.
Sending massive hugs of love and support to you.
Liz x
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Di - sending warm thoughts while you wait. You won't know until the tests are finished. It might be operable. Stay calm - we are with you. ::))
Claire- who just got the lowest TMs in a year. CA. 27.29 was 92, last one was 170. Radiation did its job, although my hair looks terrible - ditto the mouth sores.
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Di, Once again, really sorry to hear about this new mass. It is good news there is nothing in the abdomen but know how worried you must be. At least they are getting you in quickly for the biopsy and hopefully you won't have to wait too long for the results. Hang in there!
Marion, sorry also to hear about the challenges you are having with your arm and the fall. It seems so many on this site are dealing with so much at the moment.
My thoughts are with you both.
Hugs. Pat
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Thank you ladies for being there for me. Yes I agree too many on this site are dealing with issues at the moment.
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Claire - thank you for posting your results 🍀🍾🍸😊😊😊 after what has been a gruesome 6-8 months or so.
The beast is back in its cage - I am in awe of your grace through all this.
( one of the plastics surgeons I work with - asked me during my my dose dense chemo whether my hair was shorter than his - my thought - forget the hair I can't bloody taste anything - holding on to that special bottle for you for when taste buds and ulcers have recovered - but then I am a bit of a tomboy - I have NEVER gotten a manicure - I am not certain I could sit down for that long, my hairdresser never blow dries my hair - I figure if the cut is really good, no need to fuss)
Di - you are neverfar from our thoughts - your courage knows no measure.
Marian - I don't know what to say about your arm - I am sad to hear of it.
(()) you All
😊🌷🐣
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Wonderful news Claire. I just saw your post as apparently you, Liz and I posted simultaneously! How’s that for a group hug Di? Will be thinking if you and Marian this weekend. Hope taste buds come back soon Claire.
Pat.
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Claire congratulations that is great news!
Marian I'm so sorry to hear about the worsening of your arm. You are in my thoughts and prayers.
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Di, the worsening of my hand/arm is minor in the great scheme of things, most importantly what you are going through right now. I noted the dates upcoming for you and will be quietly thinking of you then. I see a team I may have mentioned earlier on the 10th, same day as you see the pulmonary doc. I see a plastic surgeon and a physiatrist team and have an hour scheduled. Pat it is at the Vic General so my first time out there. This was a referral very recently from a plastic surgeon (breast) that I was referred to way back last June and she was very concerned about my hand/arm. Di, I think of you almost daily having mastered life with one arm and I think you lost your dominant arm, am I correct?
I also saw my MO Friday and more on that later as the UBC crew are due here in an hour to set up their computer etc. for the 4 week study I am embarking on.
Ioana, I am grateful still for your advice and without it I may be doing things differently than now. I am encouraged by much. Liz, how did your time of go? I hope that the weather cooperated and you were pampered at the spa etc.!
Love Marian
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Marian,
Wishing you the very best and the smoothest course possible as you explore your options - let us know how it goes.
To all
Life has been busy and I am slowly getting back to full swing clinical practice which I love. I am having a week off at the beach - wine, chocolate and oven roasted pizza plus one of the best seafood restaurants in this part of the coast just a 100 m from our apartment. Will swim and surf a little, ride a bike and watch the Commonwealth Games! I love seeing the athletes compete
Hugs to all,
Ioana 😊🌷🐣
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Ioana, glad to know that things are getting back to a normal rhythm for you. And your week off sounds lovely. It's hard to believe that it's less than six weeks to my excursion. I'm still trying to wrap my head around the cost but what the heck. It's just not in my comfort zone to spend that kind of money on travel. I had too many years when I was paid to travel but, of course, this did not include the standard fare (primarily developing countries).
I noticed your post on Faslodex. Not sure if you recall from my posts but it is also not covered under the public system here. Fortunately my extended health care covers it as the price tag is a bit steep... I believe $1200 Canadian per treatment. Ouch! And yes, it has been approved for use here for some time. All signs are that it is working for me so grateful to have it in the arsenal.
Marion, I hope you can turn things around with your arm. Di, sending positive thoughts for your biopsy on Thursday.
Hugs. Pat
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Pat you go on that trip and have the time of your life! You deserve a break from the side effects and work. I will be there with you in spirit. My favorite vacation was when I went to Aruba. I really want to go back. My boyfriend and I have talked about it.
Loana beach hmm do I need to say more. 🏊♀️ 🏄♀️🚴♀️ Sounds absolutely wonderful!
Marian keeps us updated. Wishing you the best.
I saw pulmonologist today. He was very compassionate. His view on mass is he thinks it's breast cancer mets. He said he thinks this due to how fast the mass grew when it wasn't there at end of September's scan. I get biopsy Thursday. Gotta admit I'm scared. I really thought I was on my way to NED. What more does the good lord want from me.
Liz how are you doing?
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Hi all,
Di- I felt some comfort in your ‘compassionate’ doctor. I hope that there will be a plan for you very soon but am so sorry that you are back dealing with all this again. It stinks! Your strength is super human though and it will get you through. That trip will happen, believe it... keep us informed on the biopsy results. I am thinking of you every day dear lady. Huge hugs 🤗
Pat, not long to your trip now. Enjoy it all. You completely deserve this Pat after a long hard road of tx. Great to hear that F appears to be working. Fab news as you start to think of packing that suitcase.
Marian, am sure you will let us know about the doc appointment for your arm. You are also very brave to be battling this issue so I’m crossing everything for you and hoping this appointment leads to some action. I seem to recall that your appointment was the 10th?
Ioana, Commonwealth Games is on TV constantly here. Husband big fan and I have enjoyed watching too. The beach- heaven. The UK has had truly dreadful weather, but the sun is set to shine this weekend and the BBQs will be out! It is set to reach 20 C on Sunday. Wow!!! Last Summer there was a mini heatwave where we had 30 C. Here in Britain we can’t cope with extremes. It really is funny.
Claire- I’ll PM you to discuss our meeting. Hoping the Bonjela has eased your mouth sores.
And finally, to me- I am back at work. I go on a trip to Stratford to see ‘ Macbeth’ with our exam students on Friday. Looking forward to the play but we could only see the 7.30pm performance and so it will be a long day/ eve. I have also joined a gym! I swam last night and I must say it does help aching joints and stress!
Liz x
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Hi Pat,
Yes it definitely looks like money rather than any wish to act responsibly towards the people one proposes to serve drives the Faslodex fiasco. In Australia its about $800 per treatment or $2500 per total treatment through an access scheme but still for the the bottom 30% income group of the diagnosed it means a No unless they can source a sponsor.
I am going to follow by drawing everyone's attention to what is happening on the liver thread at present.
It seems that women are now having to prove that local plus systemic treatment is more beneficial, before it's offered.
This is article got posted and has some good numbers
http://www.ejcancer.com/article/S0959-8049(18)30231-4/fulltext
It's absurd - in ALL other disease - independent of pathological process - we know ( aka for thousands of years - you drain the pus, rest the patient give him broth,and green vegetables and honey) that local therapies plus systemic therapies plus supporting the immune system are the cornerstones of ANY LOGICAL treatment programme, why should this be any different??
We know from bowel cancer that when the liver mets are resectable / or Y90/or local chemo techniques the five year prognosis moves for 11% to over 50%.
I mean really !!! WTF - if you lose your child in the supermarket do you need to map your entire the genome before someone hands your kid over??
Surgery has advanced - many of these procedures are now non invasive ( Di I don't know your plan but a VATS - Video Assisted Thoracoscopic Surgery - may be an option if surgery is on the table - just scope size cuts )
Ok rant over, back to the sand,
😊🌷🐣
Liz - did you manage to get away?
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The rant is well deserved. I couldn’t open the link but will look for the article. I have been following the discussion on the liver mets thread and wondered how a similar discussion would go here. (Tried to do some preliminary searches to see if Y90 is offered. It’s in the back of my mind given that my damn mets seem to be cozying up to my liver. I want to be prepared to attack at the first sign that it is crossing the line!)
As to Faslodex, the argument they make is that is close in action to Tamoxifen which is, of course, not precisely true. But given that Tamoxifen costs pennies while Faslodex costs hundreds it seems the powers that be are unprepared to listen to reason. I do feel tremendously fortunate. My energy is better than it has been for ages - my back is killing me but it’s from shovelling mulch onto the garden and not the bone mets. 🤪
Enjoy the beach. You deserve it.
Liz, well done on the gym. I know it will make you feel awesome.
Hugs to all! Pat
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My spa hotel, surrounded by a moat. The left hand side is the 12th century part and Henry V111 stayed here! The right hand bit was added in 1836.
Full of character and a lovely couple of days.
Tired again already though and I have only been back at work 2 days!
Will read up on the F issue but thanks Pat/ Ioana for raising this here. I will need to check the UK situation.
Have a good day everyone
L x
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