Starting Chemo in July 2017
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paulette, yes a small break is a help regarding the nueropathy
My nueropathy is feeling stable i guess, not getting better but no worse,
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Iris, what is on order for timely delivery? I've always wanted a bidet toilet seat. A hardware store I go to has one in the bathroom and I get enthusiastic every time I "go" there. I'd have one already, but you need one of those elongated toilet seats.0
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travelhound, well i have a toilet in beige, the local hd only stocks white and i have also ordered a vanity with a top. I have local hd so plan is to pick the stuff up, it will be delivered to the store. It is all moving along well
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ended up with the dose reduction... 153 whatevers to 135 whatevers... or something like that. They were concerned that it can get really bad, quickly... ok.
Otherwise uneventful... came home and voted ... on to the steroid rollercoaster...
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Jen - hope you can get some rest tonight. Crossed 🤞 fingers,
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JenRuns, glad the infusion was uneventful and the dose was lowered a little. I hope that reduction helps.
Several posts back, Teese was talking about not having anymore patience for all this. Me too-I have serious battle fatigue. I'm so tired of weird things happening to my body-I'm like, "Oh, really? WTF now?" when I find little purple marks on my hand and arm, have strange, intense itches - one on my forehead, which is now all red, muscle spasms in my calf, new things like that. I'm getting pissy. I'm supposed to be an old hand at this now and know what to expect.....
Anyway, whaaah, poor me, poor all of us!
Okay, I'm done. Ready to continue soldiering forth.
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Leatherette - it is always something new, yesterday I got some mild pains around my appendicitis area, I was so worry. Every little thing got on our nerves and we worry something serious or it turned into something major. My joints pains from knees down is getting worse now I have to very careful to walk downstairs. Feel like an 80years old woman now.
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Jen, my dose is also 135. I'm sure it will help.0
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I’m hoping I’m not getting UTI, don’t want to delay my Friday infusion...... 🙏🙏🙏🙏
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Paulette, praying this is not an UTI, no fun.
Jen, glad they reduced your dose. I was amazed how quickly I went from minor to what I would consider significant symptoms. If I were to have another dose I'm sure I'd have needed a reduction.
I'm thinking we all want some pics of these remodels. So impressed with you two taking this on.
Even though I've finished chemo ivefound that for one reason or another I have an appointment each week somewhere. So looking forward to a whole week of no Drs, tests, scans, blood work or whatever. that would be Thanksgiving week, then the following Monday I start rads.
When I was there for my mapping, I watched a woman come in for her treatment. She walked in and went straight to the back, I was following as they just called me. She grabbed her gown and changed in the amount of time I waited for my tech, then she was taken in for her treatment. I saw her leave all dressed in what seemed like 5 min. I thought, I can do this, so much easier than a 5 hour infusion.
Hoping for a good day for all, hugs and prayers,
Theresa
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thanks all
I did a little googling last night and it seems that 85% of the recommended dose is the lower limit for where they're still comfortable the dose is within acceptable parameters. Mine was technically 11%, well within that range. (Hell, if I hadn't gained weight, the lower dose could well be 100% LOL)0 -
hmmm, seems taxol might be causing me diarrhea, had a slight issue 2 days running, hopeing to avoid it today
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Remember to drink a lot of water during taxol, I thought I have UTI, after down with cranberry juice and water I’m ok. So the key thing is drink plenty of water.
Jen, glad you are doing better lower your dose, it makes a big difference. Sounds like you gained some weight with taxol.
Proud, did you take your Imodium? If you still have diarrhea, call your MO for stronger meds.
Teese - still have that many dr appointment to go? I’m going to meet my MO next Thursday then my BS after Thanksgiving don’t have anything set for mapping yet, perhaps will be after thanksgiving also. I’m little scared for the next stage of the treatment.
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paulette, no i did not take imodium but system seems ok this morning and no,issue. Just sitting in recliner and letting stuff digest!
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Jen glad they reduced your dosage and hope you got some sleep last night! How many Taxols do you have left?
Paulette..feel better soon!
Travel & Proud...Happy remodeling! We r planning a remodel for next summer! Our house is 18 years old and in need of some updating. I have big plans!
Leatherette...sending you a big hug. I felt the same on Monday. Got the call from my radiologists office scheduling my upcoming spots. After the high of being done with chemo last week, I was cranky on Monday thinking ahead to 6wks of rads EVERY SINGLE DAY!
I gave myself 10 min to feel sorry for myself and then moved on. Staying positive during this battle has helped me so much during this battle. I just need to take these next weeks a day at a time. Teese...I too am SICK of dr appts! The week of Thanksgiving,I have been blessed with 4! 2 on Wednesday and 2 more on Friday. I had an appt with the counselor from my cancer center this Friday morning. I just cancelled it. I know she thinks I need to see her but I need a break. And I dont think the appts with her have been overly helpful anyway. Our son is off school on Friday and last night I told him he could have a few buddies sleepover on Thursday and decided I want to be home that morning to pick up donuts for the kids and be a mom. Our lives have been so consumed with cancer since April, we all deserve a break!
Day 7 since final chemo...rough night last night with bone pain. Forgot to use my essential oil and take Ibuprofen before bed. Some mild neuropathy in feet today but overall doing good. Looking forward to a relaxing weekend
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Runnermum- from what I gathered the weeks after last chemo can be pretty tough. I think our bodies gave out so much, finally it crashes and tired. Wish we have more time to recover before radiation. I haven’t checked much on the radiation thread I will do that after my last chemo. I’m hoping you and Teese can walk me through.
Proud - rest up hope you have better weather than me. It’s so dark it looks like rain is coming.
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paulette Yes we have no clue how hard this has been. I feel very good for going thru what I have gone thru...the bone pain kept me awake last night and didnt allow me a decent nights rest, thats all. It will be better tonight. Bone pain has been 1 of my annoying side effects from taxol. Since chemo was done last thursday I am eating pretty clean again, starting to exercise more consistently, going to bed at 8pm every evening which is what i did 85% of time thru chemo. Just being very conscious of using these next few weeks to get as healthy as possible before rads start. Its exactly what i did between surgery and chemo starting. And i made it thru chemo standing and amazed my dr with how well i did and how well my counts were. He told me he had never seen some finish chemo with such good counts! I am not going to allow my body to crash...i am feisty, stubborn and determined and dont want people to feel sorry for me! I know of many that are going thru something much more rough than i am right now. My side effects are temporary and I am blessed to be able to continue with my life. I truly believe its all in the attitude
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paulette Yes we have no clue how hard this has been. I feel very good...the bone pain kept me awake last night and didnt allow me a decent nights rest, thats all. Bone pain has been 1 of my annoying side effects from taxol. Since chemo was done last thursday I am eating pretty clean again, starting to exercise more consistently, going to bed at 8pm every evening which is what i did 85% of time thru chemo. Just being very conscious of using these next few weeks to get as healthy as possible before rads start. Its exactly what i did between surgery and chemo starting. And i made it thru chemo standing and amazed my dr with how well i did and how well my counts were. He told me he had never seen some finish chemo with such good counts! I am not going to allow my body to crash...i am feisty, stubborn and determined!
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Not so grumpy today, but anxious! I worry something will prevent me from my last infusion tomorrow, prolonging this awful process, or that I will get my infusion and have the worst side effects ever!
I have a call in to my onc nurse so she can talk me down, and I am about to take an Ativan. Don't know if it will have much effect since I just took Dexamethasone.
I agree with you on attitude, runnermom, and I think I am talking myself back into one. I don't think I am feisty, though-I am more of a "slog through what you must, and move on," kind of person. I am not a person who is "kicking cancer's ass," more like tunnelling through it, and near the end of this tunnel. I do admire the feisty ones!
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you gals are such a blessing right now... thanks for being you...
I have 3 doses left... there's a light at the end of the tunnel, and for once it doesn't feel like an incoming train.
My neuropathy is really mild today, which is a good sign. The MO said they worry when it doesn't abate through the week. (For me, with infusions on Tuesday, it's usually OK on Wednesday and Thursday ... the kicks into gear Friday through Tuesday.)
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Hi all of my July Chemo Ladies!
I just finished my last radiation treatment today. Want to tell you, radiation was MUCH easier than chemo for me! As my chemo fatigue and feeling all around crappy started to fade, I kept feeling so much better. I did have some fatigue the past week (mainly went to bed a bit earlier than usual) and will continue to have some SE's for the next week or so, but overall, radiation was okay. The worst has been dry skin and itching... I keep Miaderm on it all the time to help with this.
I still have tight muscles and joints from the chemo, and am still building back my strength so I can hit the trails soon. I also think some of my fatigue is still due to the chemo, more than the radiation. My nails are growing, but are thin (keeping the Opi Nail Envy on them). My hair is growing back. It is about .25" or so. I'm actually going out with no scarf or hat more often, even though it is pretty much a buzz cut!
I'm now 7 weeks PFC and and hope that by Christmas I'll have enough hair to actually color it and style it as a very short pixie.
My next appointments are the week after Thanksgiving to get my port out, follow-up with my RO and then meet with my MO to start the Tamoxifen train. So, still more to do, but the big treatment phases are behind me, and now I feel like I need to focus on getting back to center!
I'll still be around. Love this group. You have all been so amazingly helpful during this. There were times I wondered if it would ever end!
Sending all of you healing thoughts and wishing you minimal SE's as you get to the finish line.
-LoJo
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Leatherette - I’m kind of like you also, since I have poor appetite I ate whatever my appetite wanted so I will keep my weight and tried to eat as much meat as I can since I don’t eat too much meat period. I love to go to bed early but I can’t sleep during AC, taxol makes me fatigue now I take an hour afternoon nap. With the neuropathy nothing I can avoid that. Some SE you just can’t control.
I admired you Runnermum, love your determination and kick ass attribute. Could be my age, I mellowed down. I relied upon God to lead me and strength me. Tomorrow I’m going in for lab test, I pray to God I have good counts so I can do my last chemo on Friday,
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LoJo - congratulations!! Are you the first one finished the whole treatment?? Keep in touch so we would know how are you doing. If you like you can join our FB group also. You give us something to look forward to.
Jen - we will be with you, prayers for minimal SE on day 4 on and no neuropathy.
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congrats lojo!!!
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We are all pretty feisty!! I have certainly had many very rough days too but absolutely hate any looks of pity. Sometimes I think I am more ornery than feisty! I don't know if that's a good thing!
Wow LOJO congrats! It's good to hear people say rads is easier! I hope you are doing something to celebrate you!
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After a couple good appetite days now I have the big D , took couple Imodium and hoping it kicks in fast so I can go for my lab test this morning.
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Feeling a little more kickass today-I like to dress fierce for my infusion days, and have my knee-length black boots on. Feel good, a little over steroided, but good. Sitting in the chair for my last motherf#%€ing chemo! Rawr
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leatherette, i like your style, you kick butt
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Thanks, everyone! Will definitely be enjoying a couple weeks with no appointments!
Leatherette - Love your style! I think it helps! I bought a pair of fun keds with a cool pattern and wore them to every session. I called them my happy chemo shoes. Seems strange to call them happy chemo shoes, but they made me smile, and still do, when I wear them.
Yay for the LAST MOTHERF*&^ing CHEMO!!! If you're feeling up to it, treat yourself to a coffee or something with your kickass boots knowing that you've kicked ass and are done with chemo! :-)
-LoJo
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I just got great news! since I had increased neuropathy symptoms, they are eliminating the taxotere this round! So I am not dreading the next ten days as much as I was.
Thanks for the encouragement, LoJo!
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