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Starting Chemo in July 2017

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Comments

  • proudtospin
    proudtospin Member Posts: 4,671

    holiday weekend and need driver for next chemo, am i the only one who does not drive home after chemo? I am just tired and nurse told me that the benedryl would trigger a dwi if stopped on highway? I do not feel bad but definitely weak after infusion

  • JenRuns
    JenRuns Member Posts: 299

    proud, I get a ride home too, I drive myself for A/C, but the Benadryl can do a number on me with Taxol.

  • PauletteK
    PauletteK Member Posts: 1,279

    I can’t drive home on taxol, last one I got I was so sleepy I can barely walk to my car.


  • runnermum
    runnermum Member Posts: 346

    Benadryl has the opposite affect on me than you gals. It makes me hyper! :) Always has...I haven't taken it for years because of this reason. I was pretty nervous when I found out it was in pre meds before receiving Taxol. I would get a little woozy feeling for about 15 min after receiving it but that always went away during the Taxol infusion. Since I received dose dense, my infusions were 4 hrs long. I always drove myself in the morning to my appointment. I would go an hour prior to my Dr appointment for port draw. My husband stAyed home and made sure our youngest got off to school ok then met me at center for Dr appointment. Any friends or family that came for infusion would meet us after I finished with Dr appointment. It was a long day but I was always able to drive myself home after. I am so glad it didn't make me sleepy.



  • proudtospin
    proudtospin Member Posts: 4,671

    Thanks for the info, guess i will find a pal to,drive me again, i have pals who have offered but i have not taken them up on the offers, holiday weekend coming up

  • travelhound
    travelhound Member Posts: 63
    Proud. I always have a driver. This last time I did not take the benadryl for the first time. I still felt fuzzy and weird. My nurse said it was probably the Zofran.

    Sundays are generally my bad day. Today I never made it out of my pajamas. I feel so tired.
  • PauletteK
    PauletteK Member Posts: 1,279

    Travel, usually today is not my bad day, Monday is my bad day. Because this time my body is weak, my bad day started early. I went for my walk this morning, after that I pretty much turned into couch potato. Not fun.

  • JenRuns
    JenRuns Member Posts: 299

    Don’t want to jinx it, but I think the reduced dose helped ... this weekend was definitely not worse than last weekend, thankfully. (How sad that “not worse” is good!!)

    Was busy this weekend, which may have helped. Packed up for my trip to San Diego... walking in the 3-Day for the Cure next weekend. We leave Wednesday... excited to spend time with friends in my “pink bubble” the event is. A little worried about the sun — everyone at the MO office keeps emphasizing the need to be covered up. Taxol + sun don’t work well together, I gues

  • PauletteK
    PauletteK Member Posts: 1,279

    Jen 💪💪💪 have fun next weekend and I know you can do it! Yes reduced dosage really helps, now you have more energy so you could do your 3 days walk.

  • Tpralph
    Tpralph Member Posts: 281

    Teese I'm 3.5wks pfc. Doing well. Energy returning. Able to walk faster and keep up with my DH on our walks. Just started using my home gym yesterday. Haven't been at it since diagnosis last March. Could only do 10 min on elliptical then weights for about 10 minutes. Figure I'll start out with ten and increase it weekly. Appetite good unfortunately. Stull have numbness to my right thumb and index finger.

    Trying to lose weight now. Am 30 lbs over. Went to Niagara falls last week for a two night vacation. Was cold but nice. Tried my first glass of wine since diagnosis and didn't like it! So drank ice tea the rest of the trip. Bought some cider from a little vineyard and chocolate from a chocolate factory. Still having more surgery ALND Nov 30 then rads mid January. I think I'll be the last one to do that in this group.

    Congratulations Paulette and lojo! Here's to moving ahead. Who else finishes this week?



  • Tpralph
    Tpralph Member Posts: 281

    Jenrun awesome. Hope you have a great time!

  • Tpralph
    Tpralph Member Posts: 281

    Proud I had to have my DH drive home s home. My mo insisted I not drive.

    Someone asked about tamoxifen. I will be starting it after my surgery end of month. A little worried about SE but am told I'll only be on it a couple of years then will switch to a AI as I am 51 and had not been menopausal prior to chemo but since it has stopped my periods and caused hot flashes . I hear Tamoxifen will do the same. I have to dress in layers now so I can switch from removing them to adding them again. Oh the joys

  • proudtospin
    proudtospin Member Posts: 4,671

    yeap, got a pal frrom gym who readily said yes to driving me to chemo on fridayi tend to not want to ask for help,.

    Spent some time at,gym this morning, felt good to have a better reason to be tire! Also good to see the gym folks, home and resting

  • proudtospin
    proudtospin Member Posts: 4,671

    gym folks are good people

  • Teese
    Teese Member Posts: 355

    Jen, awesome and enjoy every minute.

    Proud, yes I echo needing a ride. That Benadryl knocks me out, then I come around but feel icky. You have good pals, too often I read on here about friends dropping away. I've had one that did. Probably we all have had at least one.

    Tpralph, you sound good, yay! We enjoyed a weekend at my daughters school. She graduates this year, where did that time go.

    Each day my DH and I walked and I increased the distance till we hit a little over 2 miles. It felt great and the shortness of breath is noticeably less. I'm starting to see my old self start to emerge. We have a home gym and I was just thinking while out walking today that I feel like I can add that on to my day. Plus I used to ride my stationary bike everyday. I've never been so enthused to use that stuff before

  • proudtospin
    proudtospin Member Posts: 4,671

    tesse, great you hae stuff at`homento use.and feel,like using it now

    Yeap ride for this week set so,i will stop stressing over it!

  • PauletteK
    PauletteK Member Posts: 1,279

    I only have a treadmill at home, so glad I didn’t get rid of it. I will try to do my walking as much as I can, today I haven’t done it yet, we went to Trader Joe early in the morning to avoid crowds.

    Teese and tpralph- how’s your hair and eyebrows? I’m hoping you gals have more hair so that will give me hopes.


  • Tpralph
    Tpralph Member Posts: 281

    Paulette. White fuzz in the head and a little where the eyebrows should go. Very light colour on eyebrows . Hoping that changes back to brown and it is not going to be grey. Didn't have grey eyebrows before! Nothing in way of eyelashes yet

  • Tpralph
    Tpralph Member Posts: 281

    image

  • PauletteK
    PauletteK Member Posts: 1,279

    what? Grey eyebrows Sad first time I heard that. I can see your hair growing Happy


  • Leatherette
    Leatherette Member Posts: 272

    tpralph, I have been trying to photograph my fuzz, and couldn't get it. Mine looks similar to yours, but not quite as long. I keep reminding myself that I could still lose it-don't want to get too attached. I am 4 days PFC.

    I admire everyone's exercising-once I feel a little better I will do my rowing machine, walks and yoga...at least, that's my plan. I have gotten so weak! I still have a hard time going up my stairs and opening jars!






  • PauletteK
    PauletteK Member Posts: 1,279

    Leatherette - I am trying to do a little exercise or stretch each day, I need to make sure my left arm is comfortable stay up for 10-15 minuets so I can do radiation. You will get your energy back slowly, that’s what I’m telling myself each day now.


  • runnermum
    runnermum Member Posts: 346

    Nice hair tralph!! :) I can feel stubble and some fuzz but it's hard to see...seems to be coming in white! :)My head looks pretty shiny and bald still in selfies!

    I started my holiday running/workout challenge today! Ran on our treadmill for 35 min straight with no walk breaks. Did a 5 min cool down walk. It was slow but it felt good. Also took advantage of our nice temps today and took our dog for a 30min walk outside. It was in the 40's and no wind. Its been cold and snowy here lately so a welcome warmup. I am still having a hard time running outside. The cold air seems to aggravate my shortness of breath. Running on the treadmill inside feels easier. Will probably be stuck on treadmill for a while. Finished the day with 30min of restorative yoga before climbing into bed. Tired muscles but feels good!

    11 days since my final chemo. A little neuropathy in feet that comes and a goes every once in a while. Feeling good, still feel very dry...trying to keep drinking lots of water during g the day. Energy level is good.






  • runnermum
    runnermum Member Posts: 346

    Nice hair tralph!! :) I can feel stubble and some fuzz but it's hard to see...seems to be coming in white! :)My head looks pretty shiny and bald still in selfies!

    I started my holiday running/workout challenge today! Ran on our treadmill for 35 min straight with no walk breaks. Did a 5 min cool down walk. It was slow but it felt good. Also took advantage of our nice temps today and took our dog for a 30min walk outside. It was in the 40's and no wind. Its been cold and snowy here lately so a welcome warmup. I am still having a hard time running outside. The cold air seems to aggravate my shortness of breath. Running on the treadmill inside feels easier. Will probably be stuck on treadmill for a while. Finished the day with 30min of restorative yoga before climbing into bed. Tired muscles but feels good!

    11 days since my final chemo. A little neuropathy in feet that comes and a goes every once in a while. Feeling good, still feel very dry...trying to keep drinking lots of water during g the day. Energy level is good.






  • PauletteK
    PauletteK Member Posts: 1,279

    Runnermum- you rocks!! Only 11 days you can run 35 min, 💪💪💪

    I’m looking into healthy cooking recipes now, will try to learn how to eat healthy then exercise. I I’ll be happy for good hour walk daily.


  • travelhound
    travelhound Member Posts: 63
    Yes! The opening of jars, and the putting on of fitted sheets. So many things my fingers don't want to do anymore.
    Great photo pralph..
    Jen, glad the dose reduction is helping. You will have a nice weekend. we're almost done.
    You are doing great Runnermum. As I would have expected, you were a very motivated person before this all began.

    My tiredness turned into sickness. Low grade temp, swollen glands, sore throat, aches and headache. I called my MO and they just said hmmmm.... Anyone else have this happen? I let my guard down recently. I have been shaking hands without worrying about sanitizing. That is probably what did it. Next chemo Thursday. Don't want a delay.
  • PauletteK
    PauletteK Member Posts: 1,279

    Travel, I always carry my face mask now, went to Trader Joe early the morning to avoid crowds too. Take Tylenol and rest up. Send you good vibes and prayers.


  • sunnyjay
    sunnyjay Member Posts: 143

    It's been a week since I started rads and still have vertigo episodes but it's usually when I get up from lying down. So I have to sit for a few seconds before getting up. I forgot to mention it to my RO when I met with him yesterday. I think my episodes are due to inner ear inflammation which usually happens to me after a cold. I had a slight cold a few weeks ago and I think it was aggravated by the air travel a couple of weekends ago since my ears still feel plugged. During rads I feel a vertigo episode come on when I'm lying on the table and they move me up & down to get me in place, or when the rads machines are moving around me. So I just fix my eyes on something on the machine or the ceiling and it goes away.

    I had rads #4 yesterday and I feel like the techs are still figuring out my position. I wonder if this is normal. They keep adjusting the table, scooting me up, down, left or right, marking the spots on my body even though I already have the tattoos marked. After each adjustment they say, Perfect! Then after looking at the monitor someone comes back and makes another adjustment. "Right there... That's perfect!" This happens at least 3 times before they start the treatment. Man, 24 more days of this...

    I am 5 weeks PFC and my hair growth is just like tpralph. My hair is naturally black so I hope the gray grows out also. Pre-chemo I had some grays but definitely not this much!

    I like seeing the posts about all your exercise efforts. It is really inspiring! I had to discontinue the LiveStrong program since my rads time coincided with the workout times. I still can use the temporary YMCA membership until the program officially ends so I need to motivate myself to get out there. Since I didn't have issues with appetite during treatment, I put on extra pounds (I'm blaming all the steroids I had to take - Haha) and need to get rid of them.



  • pink_is_my_colour
    pink_is_my_colour Member Posts: 265

    SunnyJay I think that's fairly typical with the adjustments. They come in ask me to hold my breath then take a measurement, adjust the table then leave. Then back in they come to take more measurements. I have the same thing each time. My other issue seems to be the breathing apparatus they put on my stomach. For some reason it doesn't always read. Then they have to come back in a adjust that. Today the machine wasn't working up to speed. As the tech said; "Sorry but the machine is having issues." Comforting, not!

  • lojo100
    lojo100 Member Posts: 92

    Hi All!

    Nice to see so many of you moving to the next phase! Rads are do-able, I think easier than chemo, at least this was my experience.

    Just had to pop my head in because I got my appointment set for taking the port OUT!! w00t! December 5th, it will be taken out and I'll have my follow-up with my Oncologist. This is also when I will start Tamoxifen.

    Feeling good. Definitely see why they say it can take some time to get back to 100% after chemo. I'm not getting some stiff joints and muscles, which I think is the longer term affect of chemo. It loosens up as I walk, but I definitely notice it when I'm been sitting for a bit, or first thing in the morning. I'm still walking more and more, and plan to get a hike in over Thanksgiving weekend... even if I need to take it slowly! :-)

    I'm almost one week post final radiation (PFR??) and my skin is peeling a bit like after a bad sunburn, and is still a bit itchy, but it's getting better every day! Still applying lots of lotion every day.

    Hope everyone is doing well and is having minimal SE's from whatever treatment (or post treatment) phase you're in.

    -LoJo