My Husband, My Life, My Love, My Family, My Cancer

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  • chicagoan
    chicagoan Posts: 1,383

    @eleanora I don't know what "limited progression" means but I'm sorry it happened. Keep us posted on your new treatment decisions. Hope you have a peaceful weekend despite this crappy news.

  • tanya_djamila
    tanya_djamila Posts: 1,612

    Mara sending hugs. Getting news like that is tough. I’m happy that other patients saw you crying and comforted you. So touching. At the end of the day your family has your back. You have a good plan at the hospital and it sounds reasssuring. In your pocket with a pastrami sandwich.

    Eleanora I don’t know what your true diagnosis but I know it sounds concerning for sure. Sending his hope you find out soon for your peace of mind.

    Take care all

    Tanya

  • cookie54
    cookie54 Posts: 1,220

    @mara51506 So very sorry you have to go through this again! As usual I admire the way you buckle up a get ready for whatever is on the way. Your positive attitude has gotten you this far and will carry you through this too. We are all with you every step of the way. Glad your sil will go to appointment with you and I hope her issue is something that has an easy fix. Sending hugs and strength your way.

    @eleanora Ugh! Sorry your scan showed progression. Cancer just plain stinks! Sending you hugs and strength also.

  • seeq
    seeq Posts: 1,262

    @mara51506 I don't have any profound advice, just hugs. It sounds like you have a good handle on your emotions after the initial shock. I'm glad you cleared the air a bit with your SIL. I'll be hanging out in your pocket for awhile.

    @eleanora - sorry about your progression/recurrence. I don't know anything adit bone mets. Have you discussed the results with your MO, yet?

    @cookie54 - a May wedding sounds lovely. You have lots of time - I'm sure you'll find the perfect dress.

    Not too much going on here. Busy with physical therapy. I got my seasonal vaccines today. I tried to schedule it when I have a few days with nothing going on, since they usually make me feel run down for a day, or maybe two.

    Sending happy thoughts out to Mel's Living Room.

  • eleanora - I must have missed your post about progression. So very sorry to hear that news. Hopefully your new treatment will keep you progression free for a very long time and with minimal SEs.

    Here for pocket duty for all in need.

  • irishlove
    irishlove Posts: 697

    Hello to all the sweet folks here. Mara, In your pocket for the brain treatment. May it be a benign cyst and the treatment is easy for you. In your pocket for you homekeeping plans, too. May all get into order so you do not have to fuss or worry. Kitties will be just fine, though I know they'll miss you.

    Eleanora, in your pocket for what I pray is minimal progression and your next plan will halt this with no side effects.

    Just finished heavy duty antibiotics for pneumonia. Suspect is aspiration type. I wish I could say I'm doing .good, but I just want to lay in bed, exhausted. Pet scan Oct. 30th and see MO Nov. 10. Off Ibrance since Oct. 6 until??? His nurse said decision will be made at that appt. I believe they'll find problems in the hip and right leg long bone. Guess we will see. The epidural injection to the back area has kicked it. This is like whack-a-mole. I can't go any lower on Ibrance since I am at 75 mg. and still suffering side effects. Maybe he'll change to another treatment.

    In pockets for all your needs.

  • mara51506
    mara51506 Posts: 7,161

    @irishlove In your pocket, I am sorry about the pneumonia but glad you finished the antibiotics. I am sorry for the whackamole sort of treatment for you and empathize with the unease of a low doses of a drug that still give SE for you to deal with. In pocket as well for the PET scan, hope the epdural is at least dealing with any pain for now.

  • mara51506
    mara51506 Posts: 7,161

    Well, slept pretty well, went to bed late as usual but did manage to shave a couple hours off the bedtime, aiming for more civilized hours today. I did some bed exercise, ankles with rotations and holding feet away from me and toward me, 10 of each. Some hip rotations to the outside as well and some crazy good leg and hip stretches and arm stretches as well, felt good. Later may pull up mr Paul Eugene and do his 10 min version of senior gold.

    I do not have any plans as of yet today, I do want to get off my butt, organize the recycle area in front of the closet, get everything in one location, I do keep garbage in another big container, when it gets full, goes outside. The big 3 containers are good because there are tight lids on them. I also have laundry and the regular stuff to do.

    Was unsure about what I wanted to eat, decided on Mcdonalds delivery. Got the deluxe cheese burger and added extra lettuce, tomato, onion and mayo. I like those so you don't pay extra for tomatoes and such. I also got a junior chicken extra lettuce and mayo, will eat the sandwiches together, happy with extra veggies added to both. Got fruitopia to drink instead of coke this time. Later today, will probably have an a frozen stirfry with an egg and pre heated peppers to make sure not too moist and possible cheese, I will see. It could not be too much cheese. Heat up in the stir fry package and add a few minutes, normally add 2 for a low wattage microwave but with extra stuff, bump up to about 6 min 30 seconds, will be yummy. I do like whisking an egg and add those right to the stirfry or pasta. I could also take the elbow noodles from KD and add queso after boiled, add grilled frozen peppers, garlic and whatever else I may want to add, I will see.

    Well, I do hope everyone will have a good day. In pockets for all who may be dealing with pain meds cut in have, SE or progression, I am hugging all of you.

  • intolight
    intolight Posts: 2,832

    @shanagirl Thank you for taking the time to update us on your situation. I have been wondering how you were doing knowing you would be going through some tough procedures lately. I am so sorry you are struggling so much and pray the doctors can find a strategy to provide some relief. You are loved and thought about here. Bathing you in hugs and prayers.

  • mkestrel
    mkestrel Posts: 216

    @shanagirl hug to you, sorry you had to cancel your trip. I hope you improve enough to go soon.

    Doc wants a PET scan to see if the new liver lesion lights up before deciding to change treatment. Also since the other two were smaller and nothing new on bone scan, might not change. Maybe consider ablation procedure or radiation target option too depending on location etc. yippee yahoo sigh

  • mara51506
    mara51506 Posts: 7,161

    In case anyone was interested, the cereal and peanut butter were good but not filling over a long time. Heating up a meat pie to have next. It has chicken and carrots with peas in there so good enough. Will definitely add some caesar dressing, possible other type of topping and I am sure it will be quite good.

  • cookie54
    cookie54 Posts: 1,220

    @eleanora In your pocket, fingers crossed on Thursday.

    @mkestrel What a beautiful serene picture, I can only imagine how nice the hot springs were. Glad you're able to breathe a little sigh of relief. May your plan be successful, fingers crossed for PET

    @mara51506 Well glad you were able to test using the walker and get home safely. With your determination I know you will find the best safe method to get around. I always loved Honey-Nut Cheerios, haven't had it in years.Seems like it would be a good combo but maybe more of a snack.

    @shanagirl Ugh that darn cough!! I'm sorry to hear you have to postpone your trip, cancer stinks! I like your Ortho/Onc's positive thinking we all wish the same for you.

    @chicagoan Wow so happy you're making great progress!

    @irishlove Oh Irish I'm sure you are exhausted! Anyone would be tired after all you have been going through. Wishing for better days soon, sending hugs and healing.

    Hi to all you lovely ladies here, wishing you all a good week . Hope all appt and treatments go smoothly this week

  • irishlove
    irishlove Posts: 697

    Good early morning all you night owls. Reading the posts to catch up it appears we need a good prayer group and lots of pockets filled with support. @shanagirl Glad to hear from you. I'm concerned about that unresolved pneumonia as it's a worry for me, too. I'm so sorry you couldn't go say those babies. I think snuggling with the wee ones is just what the doctor ordered. Please get back to being able to travel and enjoy your family.

    @mara51506 Hi sweet gal. You're always organized and figuring out your plan of attack. I just know the procedure will be a success, as it was in the past. So happy that folks still know how to comfort even strangers as we are all in this together. I believe your SIL and DB will come shining thru for you. @chicagoan That is amazing how quickly you are healing and enjoying your walking. I see you said you restarted Ibrance. How long were you off Ibrance?? I'm a bit nervous since I've been off since Oct.6 and nurse said i need to stay off till I see MO on Nov. 10th. @eleanora Diverticulitis is a difficult SE to deal with. Been thru it 3 to 4 times while on Ibrance. Now the pneumonia, which is another SE is taking it's toll. I hope they sort this out and get you off antibiotics. @mkestrel I love your beautiful photography. It makes me smile. In your pockets and hoping the new plan will take good care of you for the future.

    I apologize for missing so many that are struggling right now. We need stable time and I'm not talking about horses. Although I loved to ride in my younger days. Ok, I rattled on too long, but in every pocket with Halloween candy and lots of love.

    Irishlove

  • mara51506
    mara51506 Posts: 7,161

    @cookie54 I have found safest transport for a gal that overheats and trips over wheels of walker is cane and not much walking. Mostly take bus or Paratransit somewhere if want some movement outdoors. I did appreciate the 9000 steps, sitting as needed as well. Walker is to bulky to get up the stairs even folded. I got it put out back behind my bin. Unsure what is happening yet.

    When I turned on my phone in bed, my social worker called and we discussed what needs to happen next and how I feel at this point. I told I am not sure on services yet because I think I need to wait til I see the surgeon and plans of treatment and post any surgery to see if was cancerous or if I need radiation. I let her know that I am not freaked out anymore and that is just because I have had brain issues before. Best scenario sees a benign cycst and see what comes of that, if cancerous, that can also be removed and radiated. Not going to mention anything to SIL until I have more info.

    Today, am not sure what I want to do. I will be moving stuff around, got several large containers, the air tight ones will hold pantry staples, the ones that assemble and collapse as needed will house my wet dry vac as it is not often needed anymore. It can go in one of the boxes that assemble together and live in the living room. Still have not been in the front closet to see if boxes will fit in there. I really do like how clean and organized everything looks. Most of the day looks like organization.

    I have laundry to get done, gone back to the sock on end of drain hose, nothing goes down the drain but the dirty water, I attach sock to the hose via elastic and am now changing it every every 3 to 4 days washing it up on its own with a couple lint filters and send to the dryer. Last time, I kept a sock on the drain for a long time.

    Not sure about meals, should have some eggs today, thinking of heating up frozen stirfry in microwave, one done, take a frypan, add cooking spray, bit of butter and garlic spread, put the pan on high for a couple of minutes, stir in an egg or two and just add them in, turn off heat. Might also add cheese into it. Once it has all been heated together, add whatever condiment I have. Still have a lot to get through.

    EDIT have not made anything as of yet to eat, will eat soon. Put together a Walmart order. Not too much but was around 45.00. Couple regular chips to snack on cheese and sour cream and sour cream and bacon, another couple sour cream and lime which is yummy, old elpaso cheesy dry seasoning. I have the KD packs of cheese powder but would not mind trying out the old el paso seasonings. Got onion powder and the queso pasta bowl which I absolutely love. Only one this time. No meat except in the two chicken pot pies I bought. I still have the burgers and chicken dogs for protein as well.

    Since order is coming soon, less than an hour from the walmart I shop at to put in the order and delivery is great. I will have the queso bowl, microwave it and add some sour cream and lime. Tonight I can make a proper egg sandwich with english muffin and an egg from mini griddle and cheese toasted on the english muffin with a mayo.

    Sounds good to me, wish everyone a good day, pocket duty for us all whether just life in general, SE related stuff or me to maintain calm. I will admit, leg muscles are sore and arms sore from the walking yesterday. Just stretching all affected muscles as needed, no advil as of yet.

  • mara51506
    mara51506 Posts: 7,161

    Must be feeling better, looking at wigs on Amazon, the funny thing is, they are different colours from mine, not going to get one now, let the impulse buy thing go away. I still have 4 wigs two of which have never been opened and I am able to poke some of my own hair at sides of head near ears. My own natural brown colour matches the roots of the wig. They are 30 bucks so can decide to save or budget boost for a different one, try out all the different hair styling paste and stuff like that. I will see.

  • threetree
    threetree Posts: 2,408

    Good luck with your appointment and transportation today, @mara51506 . I'm in your pocket.

  • threetree
    threetree Posts: 2,408
  • mara51506
    mara51506 Posts: 7,161
    edited October 29

    @shanagirl Yeah, I was upset about my brain throwing a growing cyst with bloodflow. I was scared at first but taking things a step at a time. I am sure surgery will be on the table as they need to remove it. If benign that is that. If metastatic, surgery and spot treatment radiation. I can handle it. Yes it sucks but not having any tears and reminding myself that I have done this almost 11 years.

    Had a LONG wait for chemo but the weirdest coincidence was that there was 3 of us sitting next to each chatting with the same dx Her2+ cancer, two of us spread to the brain and one spread to some bones. They both had hair, I said I jealous of their lovely hair, they liked my hair too. I did not bother to correct the fact I wear a wig. We waited together at least 90 minutes and one of them had to go and I was taken upstairs to a quieter floor. I did phone Paratransit and moved the trip up half an hour because I would have missed it before. I will say both ladies were sweet and thought I was in my early 40s, I thought that was nice as well. I told them closer to mid 50s. I will say my face shows my age between my brows, frown lines there but the rest of my face really does not have much wrinkling. My mom and DB are the same way. When DB shaves and is clean shaven, he does not look his age.

    @threetree Thank you, the appointment was just fine, rides went well too. I am in your pocket as well as you navigate treatment going forward as well.

    I've decided to order Mcdonalds a bit later, though the cheese slices gave me some protein, I am always a starving Marvin post Herceptin.

  • cookie54
    cookie54 Posts: 1,220

    @mara51506 Happy to hear today went smoothly and you had lovely company too! It’s always nice to chat with others at chemo. Glad you are remaining calm and taking it one step at a time. It’s not easy but I think we’ve all become very good at it.

    @shanagirl We all have our moments for a variety of reasons living with illness that keeps us off of here sometimes. We are all in the same boat and when we don’t see a sister here we worry. It’s like having a good friend that you don’t talk to daily but just pick up where you left off.

    Had a Dexa yesterday and dentist today , grateful no mouth issues. Will wait to see if bone density has improved or will need to change osteoporosis meds next month. It’s the least of my worries so no worries waiting. Tomorrow looks pretty rainy so will get some house work done . Ugh poor Jamaica , so devastating! Can’t even imagine dealing with that, God Bless Jamaica💔🙏🏻