My Husband, My Life, My Love, My Family, My Cancer
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@threetree I had an infusion of Taxol today and my labs came back with everythings stable, my liver labs are improved, and my tumor markers have lowered, so it is working well for me. My SE concerns are that it is affecting my eyes especially my left one, and increased fatigue and SOB. I want to stay on it for as long as I can. The nurse indicated I could probably lower the dosage as she has several patients on lower dosage and are doing well. I see my oncology PA next week to discuss all this anyways. This is the first IV chemo I have been on. Thank you for the encouragement.
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@intolight Happy to hear your labs are looking better on Taxol. Ugh the side effects are always the most challenging part! I hope your MO agrees with a dose reduction so you get relief . Happy belated Anniversary 💕
@threetree I’m so glad Xeloda is doing her job and I wish you a very long run with it!
@irishlove Sorry to hear about Pigeon, I hope she is doing a bit better today.🤞🏻Sheesh now your tooth.. ugh, hope it calms down soon. Oh yea dental procedures are so expensive, insurance only pays so much. I was there yesterday and my dry mouth from chemo/ rads is taking a toll on my teeth. So I need to go back and get some preventative things done .. always something!
@shanagirl So sorry to hear you didn’t make it to your appointments. Sending healing vibes and prayers your way for better days ahead🙏🏻❤️
@mara51506 Hey there sounds like your keeping yourself busy as usual our energizer bunny😊Glad things are going ok.
@micmel Hope your stomach bug has subsided and you’re feeling better.
All is ok here, just been enjoying the beautiful weather and getting out as much as possible. We know the summer will fly by so I’m trying to enjoy every moment. Been stalking the seedlings I planted , they’re getting big just waiting for the blooms!
Hi to all here, hope it’s a better week for many❌⭕️2 -
So sleepy but heartache interferes. PIGEON passed yesterday morning. She had been ill 4 days. We do not have any idea from what. SHe had been very healthy the week before. Her Mom, Minnie is looking for her constantly. We let her say goodbye but I think the scent of her be may be drawing Minnie's attention. We plan on replacing her bedding. Sheets and blankets need washing, too. It's what I do when a heartache comes along, I clean and clean some more. sigh
In pockets for all your needs with love.
Irish aka Laurel
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@irishlove I am very sorry to hear about Pigeon passing away. I can definitely see the need to be busy and take the scent off so Minnow will not keep looking.
Slept well, just doing up some laundry, booked trip on Saturday to get a couple things but not at Walmart. Only sucky thing is that I found out cannot book less than a 90 min trip which kind of sucks, was going to cancel but decided not to, just need some queso. My thought is to just traverse the grocery store and then pick up stuff in the last half hour. There is a Dollarama store, suppose can poke around there a bit too. Not getting a whole lot of stuff, need queso and probably some caesar dressing. Enjoy that with a meat pie. I also have 10.00 credit since I buy stuff that gives points.
Not sure what I am eating today, I want to cook up an egg, hashbrown and english muffin in my mini griddle, can use the two I have if I wish. Take maybe 3 mins for egg, 5 mins for the hasbrown etc. I will see. Post as usual too once I have eaten.
EDIT 1 Meal is a bit different will cook up hashbrowns in breville oven preheated to 400 for 7mins, don't like them to well done. Egg will be done in the mini griddle, english muffin will be toasted on the toast function in breville and probably microwave lentils.
I hope all have a good day, in pockets for everyone as well.
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@irishlove Condolences at the passing or your dear Pigeon. It hurts to lose a beloved pet especially so quickly as you were robbed with not being able to say goodbye.
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@irishlove - Irish, I am so very sorry to learn about Pigeon. Sending my condolences and a hug. Take care.
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@irishlove So sorry about Pigeon. Losing a pet is so hard.
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Ah, thank you gals. Babysitting the bearded dragon and Rockstar, persian cat. It sure helps to keep busy. Minnie is nosey about the kitty, so I had to get creative in as my sister calls it, "rotating the crops". One in bedroom #1, one in bedroom #2, then lock dog door so cat can't get out. Then open so dog can get out. LOL. Took Winkie outside for a little shower from the hose and fed her worms. The crows did not know what to make of her. She could care less. She is a sweet reptile, actually watches me with her one eye (other one never developed) and will come to the sound of my voice. DH use to work 2nd job as security at the theatre in Boone, so we could pay for animal expenses. Rescued many, many dogs and cats thru the years. They do take a part of your heart when they leave.
Today I terminated my relationship with a company suppose to provide cancer centered medical support. They just constantly called, texted or emailed me and the services were redundent. Plus the "goals" section I am to complete once again wants me to control my pain and accept behavioral monitoring . I don't know how many times I can say I have a pallative care nurse who monitors me for pain and other needs, closely. She visits once a month. I have a mental health therapist, I simply adore. I do not have the ability to go to their recommended gym to work out. I'm 70 and have MS. All i really wanted was lympadema treatment, and that did not happen despite repeatedly requesting help. I think some of these programs mean well, but it's nice not to have someone constantly questioning hospital visits. I do not nor ever had drug seeking behavior and I resent that accusation. But I will go to the hospital when I have serious break thru pain of unknown origin. Cancer hurts. MS hurts.
In pockets for scans and life's needs in general.
Laurel
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Irishlove, I had a company call me like that. Wanted to know all my appointments, symptoms, and stats. I finally talked to the girl and asked her why they did all that when I never received anything out of it. She admitted it was something that was started with Covid and they don't stop until requested. Of course I stopped it immediately. I don't remember the name or anything…all that is gone with chemo brain.
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Irish - so very sorry to learn about Pigeon. 💔🐾🐾💔
We are heading to Mackinac Island for a short family vacation. Fulfilling a thimble list - staying at the Grand Hotel. Local daughter and family are joining us. Head back home on Sunday.
Here for pocket duty for all in need.
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@irishlove Oh I'm so sorry to hear of Pigeon's passing and so suddenly makes it even tougher….big hugs! Glad you have the other animals to keep you busy and it sounds like you really enjoy it. Ugh well you certainly did the right thing terminating them. Obviously they mean well but not for your situation.
@mara51506 It's nice to have something to look forward to even if it's a short shopping trip.We all need other types of outing other than dr's appointments.
@goldensrbest Lol I never heard the term thimble list.. that's great. Enjoy!
Hi to all here, in your pockets for a peaceful week .❤️
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@goldensrbest I have always wanted to go to Mackinac Island too. Hope you have a very good time.
@irishlove @intolight My current insurance, Humana, used to call me numerous times a day over the course of several months to try to get me to sign up with one of those "cancer management" services. I could see no good coming out of it for me-I prefer to have my cancer treatment managed by an expert oncologist so I refused to answer the phone. I must have gotten hundreds of calls but they seem to have died down now.
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Reading along, although, not totally absorbing all the information, but I Just want to say I’m happy to read the god news. @threetree Yay for stable and I’m glad to read your positive news🥰
@mara51506 I’m glad you had a good night’s sleep. that’s so importaant. I tto have been sleeping well.
@irishlove Sending you all my love and condolences for your sad loss of Pigeon. It’s such a hard pain to endure,Iknow.🙁🩵🌷.
So I saw my Oncologist and Pulmonologist and they were happily shocked to see how good I iwas lookin and recovering. after that horrible Bacterial Pneumonia one week hospitalization. My “baby Pulmonologist howed me how bad my lung xRay looked . there was so much fluid I was literlly drowning in it. No wonder they couldn’t get a pulse on me and I flatlitned twice in the ambulance. So my Pulmonologist is doinga another chest exray in two weeks and he wantsme to stay on the Semphicort inhaler, and it’s making a difference for my breathing and sleeping without coughing. I think it’s a strong steroid inhaler because after 2 puffs I have to rinse and spit out the water, and the after spiting out I have to drink and swallow the water after the second puff.. My Oncologist wants me to stay off the Verzenio until my next followup visit and he also put m back on my Fasoldex and Xgeva injections this week. So I’m relieved there will be no treatment changes. He scheduled me for my scans next month. So Im happy I’m on track with my normal treatment plan.
@chicagoan I am glad your hip is feeling better and you are no in that terrible pain. Also saying a quick hi to some of you other lady friends posting here @cookie54 @intolight @goldensrbest and @mkestrel you are always on my mind ..Wising you all a good day today.♥️‼️🌷
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@goldensrbest Enjoy your trip out with family.
@cookie54 I was going to cancel as I have to be there an hour a half and I thought I could not find something to do but decided to go ahead anyway. Will budget boost with some games to add more and see if there is any inexpensive stuff to have. There is also a dollar store there and a Mcdonalds nearby so we will see how far I get. I could also use some tostitos queso and fresh yogurt.
It is pretty muggy here, still have window open as I like the fresh air. Window AC still coming in clutch for me. Still using a small but strong blower to make sure inside is not full of dust. Use another fan to blow cooler air out here. The split duct AC is OK but prefer the window AC and use split AC as another fan.
Debating meals today. All will include canned lentils and possible cheese and different toppings. I am thinking of preparing the mexican rice by old El Paso first, putting into containers but decided to toast up couple english muffins, regular butter and shredded cheese on top, added lentils, 1/4 cup as well. I will likely. I added queso to the toasted muffins and lentils and added some sour cream crema stuff. It was pretty good. Not sure about later.
Hope all have a good rest of the day and in pockets for all.
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@shanagirl Glad to hear your MO is happy with your recovery and no treatment change! Continued prayers and strength your way💕
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@shanagirl Glad to hear there is no treatment change for you, that is really good.
We are currently very muggy though not overly hot. I have to say bedroom AC comes in clutch to remove that. House is cooler than when heat heat was still on. Bedroom AC boosted by a bedroom fan. I do find the fan cold but downloaded instructions since it is manual and found out how to set it to maintain a warmer temp instead, pinned it to my firefox tab as when it is less humid can run it as a fan and be very comfortable. In daytime, can run as AC and bring out
May wash a couple blankets though the one blanket should be washed by itself as it left bit of fluff on other stuff, I will see. Nothing to wash yet. Nothing on the agenda, was just finding out which entrance of the hospital I can use for a late MRI I am having. I do think another entrance will work for me and that is fine. No need to change appointment.
Using canned lentils for the most part, they did work well with toasted english muffins and cheese yesterday, I am thinking I might finally do up the old elpaso mexican rice first, put in other containers and add to other meals. Will post meals if they are good of course.
EDIT Meal 1. I did start making mexican rice but I added 1/4 cup of dry lentils, another couple of leftover taco seasoning packs, a bit of Kraft dinner cheese and few noodles and some Knorr noodles chicken flavour. Stirred every 2 min 30 seconds. No burns, plopped into a bowl, Really was a vehicle to use up some seasoning and different pasta and noodles and get to mix different flavours. No chicken hotdog used and out of ham. Oh well, it really was very good anyway, I think the core of the mexican rice was still there with just a boost in flavours.
I hope all have a good day, in pockets for everyone.
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