My Husband, My Life, My Love, My Family, My Cancer

Ah, thank you gals. Babysitting the bearded dragon and Rockstar, persian cat. It sure helps to keep busy. Minnie is nosey about the kitty, so I had to get creative in as my sister calls it, "rotating the crops". One in bedroom #1, one in bedroom #2, then lock dog door so cat can't get out. Then open so dog can get out. LOL. Took Winkie outside for a little shower from the hose and fed her worms. The crows did not know what to make of her. She could care less. She is a sweet reptile, actually watches me with her one eye (other one never developed) and will come to the sound of my voice. DH use to work 2nd job as security at the theatre in Boone, so we could pay for animal expenses. Rescued many, many dogs and cats thru the years. They do take a part of your heart when they leave.

Today I terminated my relationship with a company suppose to provide cancer centered medical support. They just constantly called, texted or emailed me and the services were redundent. Plus the "goals" section I am to complete once again wants me to control my pain and accept behavioral monitoring . I don't know how many times I can say I have a pallative care nurse who monitors me for pain and other needs, closely. She visits once a month. I have a mental health therapist, I simply adore. I do not have the ability to go to their recommended gym to work out. I'm 70 and have MS. All i really wanted was lympadema treatment, and that did not happen despite repeatedly requesting help. I think some of these programs mean well, but it's nice not to have someone constantly questioning hospital visits. I do not nor ever had drug seeking behavior and I resent that accusation. But I will go to the hospital when I have serious break thru pain of unknown origin. Cancer hurts. MS hurts.

In pockets for scans and life's needs in general.

Laurel

Irish - so very sorry to learn about Pigeon. 💔🐾🐾💔

We are heading to Mackinac Island for a short family vacation. Fulfilling a thimble list - staying at the Grand Hotel. Local daughter and family are joining us. Head back home on Sunday.

Here for pocket duty for all in need.

@goldensrbest I have always wanted to go to Mackinac Island too. Hope you have a very good time.

@irishlove @intolight My current insurance, Humana, used to call me numerous times a day over the course of several months to try to get me to sign up with one of those "cancer management" services. I could see no good coming out of it for me-I prefer to have my cancer treatment managed by an expert oncologist so I refused to answer the phone. I must have gotten hundreds of calls but they seem to have died down now.

@goldensrbest Enjoy your trip out with family.

@cookie54 I was going to cancel as I have to be there an hour a half and I thought I could not find something to do but decided to go ahead anyway. Will budget boost with some games to add more and see if there is any inexpensive stuff to have. There is also a dollar store there and a Mcdonalds nearby so we will see how far I get. I could also use some tostitos queso and fresh yogurt.

It is pretty muggy here, still have window open as I like the fresh air. Window AC still coming in clutch for me. Still using a small but strong blower to make sure inside is not full of dust. Use another fan to blow cooler air out here. The split duct AC is OK but prefer the window AC and use split AC as another fan.

Debating meals today. All will include canned lentils and possible cheese and different toppings. I am thinking of preparing the mexican rice by old El Paso first, putting into containers but decided to toast up couple english muffins, regular butter and shredded cheese on top, added lentils, 1/4 cup as well. I will likely. I added queso to the toasted muffins and lentils and added some sour cream crema stuff. It was pretty good. Not sure about later.

Hope all have a good rest of the day and in pockets for all.

@shanagirl Glad to hear there is no treatment change for you, that is really good.

We are currently very muggy though not overly hot. I have to say bedroom AC comes in clutch to remove that. House is cooler than when heat heat was still on. Bedroom AC boosted by a bedroom fan. I do find the fan cold but downloaded instructions since it is manual and found out how to set it to maintain a warmer temp instead, pinned it to my firefox tab as when it is less humid can run it as a fan and be very comfortable. In daytime, can run as AC and bring out

May wash a couple blankets though the one blanket should be washed by itself as it left bit of fluff on other stuff, I will see. Nothing to wash yet. Nothing on the agenda, was just finding out which entrance of the hospital I can use for a late MRI I am having. I do think another entrance will work for me and that is fine. No need to change appointment.

Using canned lentils for the most part, they did work well with toasted english muffins and cheese yesterday, I am thinking I might finally do up the old elpaso mexican rice first, put in other containers and add to other meals. Will post meals if they are good of course.

EDIT Meal 1. I did start making mexican rice but I added 1/4 cup of dry lentils, another couple of leftover taco seasoning packs, a bit of Kraft dinner cheese and few noodles and some Knorr noodles chicken flavour. Stirred every 2 min 30 seconds. No burns, plopped into a bowl, Really was a vehicle to use up some seasoning and different pasta and noodles and get to mix different flavours. No chicken hotdog used and out of ham. Oh well, it really was very good anyway, I think the core of the mexican rice was still there with just a boost in flavours.

I hope all have a good day, in pockets for everyone.

@shanagirl Good news that you can stay on the same treatment. What a battle! You are in my prayers.

@micmel I identify with your daily battle of pain and fatigue. And I am happy your baby girl is doing well.

@irishlove I am battling a UTI also—ughh! This time I used a virtual appointment to get an appointment quickly then I had the meds delivered. I will deal with any oncologist fallout tomorrow when I see her for not calling her office first. I didn't feel well enough, nor did I feel I had enough time inbetween bathroom needs to sit in a car for a trip to travel to a lab and wait for results, etc. Besides, it was a Saturday. I hope it won't affect my infusion but I don't see why not. Anyone here have a chemo refused because of being on antibiotics for a UTI? My virtual doc said it was fine, but she was a very young PA. If I called the nurse it would have majorly delayed things. Anyways, I am feeling a lot better today and feel I can tolerate a chemo day tomorrow better too. The worst it can do is delay the chemo and since I have a MO appointment before the chemo, it won't be a wasted trip.

@mara51506 I added a humidifier to my living area and now I have a fine white dust on everything even with extra filters. It is very dry in Colorado and I was coughing a lot. I will just have to dust and clean my dark wood floors more often.

My DD and DGD are still on their Caribbean cruise and we have the responsibility of the dog. My DD wanted to take my DGD to Universal Studios and Harry Potter World for her eleventh birthday, and then they went on a cruise with her brother, my son. My DH doesn't want the dog to have to stay in her crate for the six hours we will be gone for my appointments tomorrow so he has decided to bring her and sit with her in the car, take her for walks, etc., while I deal with my appointments alone. I think she will be ok but it his extra work. We can't leave her loose as she has a tendency to run outside and bark if not crated. Our usual friends and family who love to watch her are all away. My problem is I will have my purse, my oxygen tank and the cooler with my feet and hand ice mitts so I will need a wheelchair or something to get around and carry things as they are heavy. Fortunately it is all at the hospital so hopefully I can get enough help. Should be an interesting day!

@intolight @irishlove Ugh, hope you both starting feel better from these darn UTI’s.. hugs 🤗

Hi all my dear friends. @micmel I am so very sorry for the loss of your friend. So terribly young. My heart breaks for you and family. Sure is good though to hear how well your Gabby is doing.

@mara51506 @intolight @cookie54 Thanks for the wishes to clear up this UTI. The antibiotic is helping with the infected tooth, also. Dentist said is needs either to be pulled or another root canal. He won't touch it due to the meds I am on. I left a message at MO's office for that Ibrance break. Here's a hint on antibiotics. I get alot of UTI's. Blame it on MS or cancer. I can not empty my bladder properly. I use a manual technique, but it's not always successful. So years ago my Uro left me fill antibiotic and keep for emergency. I talked my Primary Dr. into letting me do this also. I use Azo test strip and wait till second day of symptoms and repeat the test. Then I start Cephalexin 500 mg 4 times daily for 7 days. I stop Ibrance. I noticed the one time I kept taking Ibrance with UTI and it was no cleared in 7 days. Just my observation. I then call Primary for refill and keep it stored in cool place.

@intolight That's sweet that you care for your families pup. We just adopted a mixed St. Bernard and ? He is 7 yrs. old and came from death row at the humane society. He is cheering Minnie and our whole family up. What a mug and sweet boy. We just wanted to give an old dog a place to lay his head. Buddy is doing a good job at that.

Full labs from primary tomorrow. Gotta go early and I am tired. Two infections at one time is two to much. In your pockets for scans and stability and all concerns.

Irishlove

@irishlove @mara51506 @cookie54 @threetree @intolight and all of your kind words.

Yesterday was my last day with the home visiting Physical Therapist. I told him how frustrated I was with my slow recovery. He had me walk for 3 1/2 minutes around the house and I was so weak and winded and felt like passing out. He told me not to get frustrated. He expects me to take several more weeks if not another month or so after that. He reminded me that what weakened me so much was the hemorrhaging blood vessels in my lungs, calling it hemorrhagic Pneumonia.. they tested me for everything in the hospital SARS Covid -Negative another Covid. Test, Negative, Streptococcal Pneumonia-Negative H1 N1 Flu Virus- Negative, Pulmonary Embolism -.NegativeLegionaires disease negative.they said the Airborne bacterial infection from all the red tie bacteria from all thr dead manatees and fishe from there red tide algae bloom in South west fluorida got into my lungs and inflamed all the blood vessels to bleed out into my lungs, and causing sepsis in all the fluid it’s no wonder I feel so week with the pre existing bone Mets . Then he had me doing leg ankle and calf strengthening excersises.. I had big plans to clean out my closet after that but never got to it I was so exhausted. tomorrow the Respiratory therapist to check is coming to check my oxygen levels do breathing excersies and check my vitals🙄… Have a good day everyone.

Oh I just wanted to share picture of my Grandaughter and my 2nd great grand son baby Layne.