My Husband, My Life, My Love, My Family, My Cancer
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@gailmary - So nice to hear from you. I'd been wondering how you were doing. Sounds like as with the rest of us, you are moving along with ups and downs. Glad to know that you are still walking. Those walks are what I really rely on for both physical and mental health, and as one of the best gauges of how I'm doing overall. I think that as long as we can take walks, we're doing pretty well. Hope you have enjoyed the summer, and are now looking forward to the nice things that fall brings us too.
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this is the bay on a good morning and walking my pugs here is Sri great for my physical and mental health. I can’t wait till the weather cools down a little. I just cant walk in this brutal heat and humidity with my lung issues.
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@shanagirl - I'd enjoy the bay on a bad day too - just in a different way from the sunny summer days. I always find something really enticing and interesting about these natural places, no matter what the season or weather conditions.
Your sounding much better - here's to even more!
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@shanagirl and @threetree I miss living next to Sail Bay by our house in San Diego. On days like today I would be walking the boardwalk or even take my scooter out since my leg isn't quite healed yet. Our condo was the one on the left of the trees in the center. We lived on the fourth floor so we had an unobstructive view. The second picture is looking out from our balcony. The first water is Sail Bay, the strip of houses is along Mission Blvd, and the far body of water is the Pacific Ocean. I loved living there even though we were surrounded by people and had to endure tourist season. We still own the condo…it rents out well!
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@threetree . Yes you are so right. Even on the bad days I can see the bay and weather from my bedroom aand bathroom windows, even when I take a shower. It’s very calming on rainy windy days to watch the weather here.
@intolight I’m loving these pictures. We should all keep our self soothing pictures coming here even if we no longer live there.
🥰
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Here is a winter picture I took on my balcony in my bedroom on a snowy day, I can see the bay from there too.
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@tanya_djamila Yes I did turn it over since would be harder to press button, made it shorter too and being careful while opening stuff too which were the causes. DB is fine, SIL told DB when I let her know.
Well, belong to a few facebook groups about cheap meal ideas or similar, amazing to me not many singles who don't mind Kraft Dinner have never thought of only eating 1/2 cup at a time, getting two to three servings instead of one and using more than one inexpensive seasoning to add flavour. Walmart has the chicken dogs that are 2 bucks for 12 or 5 bucks for 39. No need to limit oneself to straight up hot dogs, can chop up meat and use like beef. GetManwch and inexpensive seasonings. Frozen veggies are less than fresh. Oh well, no need to tell myself this stuff, I have discovered for myself. Less expensive seasonings are also good to have..
Not sure about meals today, almost done the freezer stuff that had to live in the fridge for a few days. Need to work on the stuff in the freezer, looking at possible egg, rice and lentils for meal one and I will figure out the other. Nice thing with the rice cooker, I do love my rice being so fluffy and easy to add lentils and eggs, heat up for at least an hour if adding more too it, even put a mini pot pie in with other ingredients. I usually give a good microwave of may 2 mins and make sure everything done. If I want them, can also use the air fryer at same time to add hashbrowns.
MEAL 1 Was lazy about it. Took the rest of a pkg of Knorr fettucine alfredo, 1/2 cup put 1/2 cup water and took a bunch of dried red lentils, our walmarts seem to be out of canned lentils. I get those at another store. Also added white cheddar seasoning in as well, is taking a long time but think will be good but do not believe the lentils are too visible. I know they can get mushy with longer cooks. I will post if it is good.
Other than that, laundry, floors and dust are on the go.
I hope all have a good day, in pockets for all.
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Threetree, thank you. That is sweet of you. Yes very glad to still be walking. I hope to never fall again. HA! I clearly learned how important it is to keep exercising, hard as it can be.
I am a weather watcher too. Love the sky. Sun and clouds, rain and snow.
Otherwise I make quilts to kill time.
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@intolight - Your condo looks lovely. I can see why you kept it and why you have no trouble renting it! Very nice pictures. I think I mentioned that I spent a summer in San Diego way back when I was going into the 9th grade. This brings back some nice memories for sure. I remember Mission Blvd., but I honestly don't think I ever heard of Sail Bay. It's very apparent from your photos, why you liked it there so much. Thanks for sharing them!
@shanagirl - How nice that you have that view - even if you can't get out. That would still be a good dose of positive for your mental health whether it's a good or bad day - just seeing the natural beauty of it all would give boost no matter what. You are very lucky, indeed!
@gailmary - Oh, you're very welcome! Yes, walking and enjoying whatever's outside on a given day just seems so essential to me. I would hate to be housebound with no windows, or nothing outside to look at. That fresh air and nature just can't be beat.
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@shanagirl @intolight Thanks for sharing your beautiful pictures! To me there’s nothing like a water view to soothe your soul 😊
@gailmary Nice to see ya 👋 Agree with continuing to keep walking as long as possible. I try to push myself on my tired days yo keep going.
@mara51506 We will never consider you “ lazy” you’re the energizer bunny here😊Glad you’re enjoying the FB group for mire recipe ideas.
Nature is beautiful 🤩 ! These pictures are from our summer rental in Maryland.
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The pictures are lovely for sure. Thanks to those who do not think I am lazy, still consider myself somewhat lazy. Learning to get stuff done earlier in the evening since I know that post supper, it is hard to finish stuff up.
I did sleep pretty well, do have a quick CT scan today, it was rescheduled from Friday when their machine had broken down. Pickup is at 1200 and will probably windup calling for a ride from the hospital since gave 2 hours but really only takes a few minutes. The woman said I could eat freely before as it was apparently a different kind of scan. I will likely still give a few hours anyway, just having 1/3 cup rice and handful of lentils, just on a quick cook in rice cooker. Take 30 mins. Will add some mayo and already added white cheddar and canadian cheddar popcorn seasoning, my favourites. I also did not add so much water, keep it from being too soupy.
Other than that, not sure about other stuff I want to do, won't be gone too long. If it stops raining and if done more than an hour early, might cross street and pick up a prescription and come back for the ride home, I will see and weather plays a factor. Summer is giving a last gasp of hot and humid then starts going down.
I do hope all have a good day and in pockets for all and that chicken dish sounds really good.
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Good Monday morning. I’m getting ready to drive up to North Jersey to the John Theurer Cancer center for my monthly Labs, oncologist followup and injections of Fasoldex and Xgeva., I want to talk to him about the Verenio and if it is impacting my Pneumonia relapses and if it’s safe to come off it. I’m hoping for some answers today. I’ll check in later. Have a good day all.
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Shanagirl, I would argue that yes you could drop the verzenio. I have been on only fadlodex for years with no progression. We are both Grade 1 which typically is not an aggressive cancer. As long as you have not progressed you could always go back to it. Good luck
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I love the photos! Here's one of the three talavera-style bunnies I have on my little deck - the black railings make it look like they're in jail, but they are not. 😁
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@sf-cakes I’m Loving that beautiful colorful picture of the bunnies and planter framed against the black balcony and gorgeous background beyond. It’s very cheerful to look at. Thank you for posting this.
So Everyone I want to update you on my visit with my oncologist today. I spent the day at Hackensack hospital John Theurer Cancer Center for monthly follow up blood tests, oncologist visit and my 3 treatment injections. It was a really good visit. They are taking me off the twice daily chemo pill because it causes me to relapse with the Pneumonia, it’s still is infected in my lower left lung. They feel this chemo pill has kept me stable the last 3 years with no progression. They call it NEAD (No Evidence of Active disease.) which means I’m in remission and don’t need the chemo pill for another month. They don’t want the cancer to come back & progress so will keep me on 1/2 the dose once a day starting next month and scan me every 3 months to make sure i’m still clear. He has several other patients on this protocol and doing wonderful on the lowered doses and keeping the cancer from returning. One woman is 88 and has been doing great for years….So all good news, and I can start walking again with the weather cooling and my oxygen levels so good. I feel very good with this plan to resume the Verzenio at 1/2 dose once a day. I trust him and he is known for thinking outside the box when it comes to treating all his patients🩵🌷
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Shanagirl. 1/2 the dose. That sounds like a good compromise.
I really think many drugs out there are prescribed at to high a dose. But I know nothing.
My scans are every 6 months.
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@shanagirl Horray! Happy news! Celebrating NEAD here! Great doc!
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@sf-cakes - Love the bunnies! What a really nice view from your deck. I have the same type of railing on my apartment balcony, and I know what you mean about the "jail" effect it can have sometimes. Your area just looks lovely, thanks for posting.
@shanagirl - What great news! I am so very happy for you - you sure deserved some good news. I'm no doctor of course, but what you've said your dr's new plan is sounds reasonable to me. Maybe you'll be the next 88 year old (years from now), who's done real well with this new regimen. Congratulations on moving forward.
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@shanagirl I am so happy you are NED, I love dancing with my own NED from the neck down too. I too hope a 1/2 dose helps avoid the pneumonia you keep getting.
Just stopping in to say my second meal today was delicious. Fairly simple too. I took some of the frozen diced potatoes I have, was not going for the crunch so dumped in the rice cooker, just a handful, took 1/3 cup of lentils, crunched up some spicy taco shells in and dumped it in. Took the canadian cheese popcorn seasoning and some of the white cheddar kind, dash or so of each. I keep meaning to take one of the kraft dinner packs and mix up with the cheese seasoning. It was delicious. Potatoes just became softer. When put it in a bowl, I added just a bit of sour cream and lime and a bit of mayo.
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@mara51506 speaking of 🍿 popcorn, I was craving some buttered popcorn last night while watching TV movie “Clear & present Danger” One of my favorites to watch once in awhile😉. I have a whole list of movies I always love to watch once in awhile Free on Demand. We should boh compae our favorite movies @mara51506 🩵🌷
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I slept really well last night, even forgot to turn on bedtime music, the rain sound with subliminal hypnosis to reduce any pain. Seems to work I think.
I have nothing on agenda. Already spent money on cats on Amazon, more food for sensitive tummies, not perfect but more reasonable. I stopped using cloths to pick up the stuff and finally broke down to paper towel, I just had to keep disinfecting the washer and that was a big pain. Now just spray some paper towel and toss the rest until a mop later.
Need to fill a prescription for my anti convulsant. Been on it since 2004. I was not found to be epileptic though Have not had modern seizures since the 10cm met that swelled my brain up but docs kept me on a low controlled release dose.
Laundry, floors, box breakdowns will happen, next week our collection day for garbage moves up a day due to labour day, that is fine.
With meals for today, thinking of digging through freezer to find my pizza, debating an egg from the mini griddle with some rice from rice cooker. Will likely season the rice with cheese and the egg with some mayo and seasoning. lentils go in air with rice as well. I am debating 2 mini griddles. All devices together would not go beyond 1200 W. I will post meals later.
MEAL 1 Decided to keep it easy on myself by putting all ingredients in at same time, handful of rice. Took the cheese and sour cream and onion seasonings and stirred in with hot water first, put a bit of sour cream and lime, added lentils 1/3 cup and one egg, the egg will functionally disappear in there and that is just fine. Put on long grain setting so have time to relax. When it comes out, I will see what I have and add if it is delicious.
SNACK 1 Ordered a happy meal, apple juice, yogurt comes with, mini fry and cheeseburger with extra mao on it no pickles, not too filling and the interest on one of my bank accounts paid for it.
One thing I have noticed online are pinto bean milk recipes, been thinking I could try those out with the beans, bit of water and boost powder to make a super high protein shake.
I do hope all have good day, in pockets for all as well, it can be good news or not the best news. In my own pocket to get more done than yesterday.
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I do enjoy that movie too. @shanagirl . I have one of my favourites 1992 Candyman. Say his name five times and he will be behind you. Other movie is Strange Brew. Canadian so a lot of take off you hoser. Character from second City. Stupid but funny. I even watch the trailer on the youtube app.
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@shanagirl Glad you had a good visit and have a plan that you are comfortable with. It seems like the perfect compromise to treat but keep you out of the hospital!
@sf-cakes I love those bunnies they are very cool looking! Plus a beautiful view☺️
@mara51506 Hope all is stable on your CT
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good evening ladies. Love the picks @shanagirl . I hope that your little nags clear up and you get to walk by the sea soon. That was a really good doctor appointment. I’m happy for you.
All the pictures are encouraging parts of your lives that you see daily that keep you going. Thanks for sharing the bunnies sunsets and seasons.
I was down yesterday stomach issues in bed all day. Couldn’t eat felt weak and lousy. I think it was beginning stage of diverticulitis. Today quite a bit better. I turned 69 but really didn’t want to go anywhere. Or eat anything fancy.
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@tanya_djamila Happy Birthday inspite of the miserable day. At this point we note the milestones and embrace the small joys no matter what form they arrive. We are pulling for you—you matter.
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@tanya_djamila Happy Birthday! I hope to turn 69 in December. Sorry you didn't feel well on your birthday but hope you can start eating some treats to make up for it. Every birthday feels like a victory with MBC.
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Tanya - Happy Birthday 🎉🎈🎂🎊. Glad you feel a bit better….there's always time later for a little celebration🥳🥳
Waving to all and here for pocket duty for those in need.
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