My Husband, My Life, My Love, My Family, My Cancer
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So Sorry Frisky about the progression.
Rest In Peace ABS.
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Frisky, I am really sorry I missed your post on your progression. I am so sorry about that. Hope Navelbine gets you to stable and lasts a long while.
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Frisky~What the heck!!!! Grrrrrr. I know someday I will be getting thy dreaded phone call like that. I am not naive to think this remission could last decades or anything. Csncer isn’t that generous. But damn!!! I hate it when it messes and continues to mess with my friends. I’m Sorry Sweetheart. Sending hugs.....
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Mel, Mara, Candy, thank you for your kindness, but it's no big deal...progression is what happens to a lot of us...I hope to remain pain free, and independent...those are my priorities...
I'm taking conventional and non conventional approaches and that's all I can do...the rest is che sarà, sarà...
Mel, Mara, and everyone else, I hope that whatever treatment you're undergoing works for you for many years to come..
Letrazole eradicated the tumor in my breast in less than two months!...
so sorry to read about Beautiful Sunset...I was wondering how she was doing...she had an indomitable spirit...May she Rest In Peace
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I have just learned that our sweet sister ABeautifulsunset has passed away in mid November. I just caught that it was posted earlier. I feel so sad. She certainly was our sister here. Geeze. I hate loss so much. I feel For her family, it just never stops. Enough is enough. 💔😢
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Micmel, thank you for telling me who ABS was. I have read many of her posts myself. My thoughts are going out to her family and friends and of course our friends and family here who knew her best. Hugs going out to you.
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A sad day to have learned of the loss of ABS. I never interacted with her but I read a Lot of her posts and could see how thoughtful and generous she was with her words.
Frisky, progression happened to me in the first three months of treatment and then again two months later. This fucker is just relentless. And I had a very low grade cancer that took 24 years to rear it's ugly head again. I thought it was going to be a lazy cancer but so far no. I'm sad you have to go through a treatment change but it's what we do. I'm feeling that way now after getting the big ibrance disappointment. I don't know how I'll feel when A/A quits on me but i doubt anything will be as upsetting as being an Ibrance flunky after my doc hyped it so much. I know I know...it flunked me. I hope Navelbine is good to you.
According to yesterday's labs my platelets are low. My potassium is low. I'm feeling tired. That root canal and amoxicillin really did a number on me. If I didn't have three piano students this afternoon I'd put myself to bed.
I did make it to the grocery and bought coconut water and low-sodium V8 juice and a big bunch of bananas which should help with some of this potassium being off. It's not bad enough for them to call me in for treatment but she did mention it and say "hey eat some bananas would you?"
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Moomala, you are very good to take the suggestions of dietary things to help your potassium.
I am slightly anemic and it was suggested I take an iron supplement. I took a hard no on the iron due to trying to manage one set of digestive SE for the first week post infusion. Not interested in swinging the pendulum to constipation. I did try an iron liquid that wasn't supposed to do that but it was awful tasting so I said forget it. I eat plenty of meat and try to get iron that way. I also don't like the taste of spinach cooked. Love baby spinach and will supplement that way. I know i will get at least some and don't have any anemia related symptoms. My numbers have been going up anyway, though still slightly low.
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Moomala~I want ibrance to be everyone’s drug. Forever!! I think you’re amazing tsking your students even though you’re not feeling well. It just proves that we roll With what we have to do. Somehow we pull it out our ourselves. I don’t know how but we do... I honestly hope You feel better and this treatment will kick some Major ass, seems like You’re about due for that! Sending you hugs my friend !
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Mara~ ABS was a beautiful person. She really was strong and kind. It’s just another waste of a great woman. It’s just not fair at all . It worries me that cancer takes so many I care for. It’s a constant hard pill To swallow. At least she no longer has cancer. She can fly into a real sunset.
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That is a touching statement Mel. It is a bitter pill and a risk we all share. So many I have cried for too, Zarovka and Rosevalley as well as Longtermsurvivor stand out for me. Although it was only an online connection, it feels no less real than losing friends and family in real life.
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Moomala, Thank you!
I'm so sorry to hear about the quick progression at the beginning...Ibrance flunked on me as well..within a three months time with the faslodex shot I was getting...i truly believe, the only drug that has ever worked for me was the letrozole....everything else has been smoke and mirrors...How do I know? because I had progression in the liver while being under treatment...if xeloda and everything that proceeded it had worked there would have been no progression...
Yet, there's plenty of people that get and stay NED for a long time, so I hope your luck changes and you get to experience a long respite from all of this stress.
There's a liquid chlorophyll that was recommended to me, a supplement to get the hemoglobin levels up..but looks as if Mel's adderall solution, might be our best bet into getting ourselves out of bed...
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Frisky I’m glad you’ll be trying a new treatment and that you’re cool about it. Ibrance is strange that way. I pray your new treatment works fabulously for you with little or no side effects.
Have a good weekend all
Tanya
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thank you Tanya , you’re so gracious! Loved it when you went on the ABC morning show
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Tanya,she is one of our stars!!!! speaking of stars, where has Grannax Been. Thinking of you!
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Good Morning Ladies~ sun is shining, adderall in my Stomach, hoping for a nice day with my sweet DH. I think it’s tree time. I’ve been spending like crazy. I’m a woman with a large cart and a small wallet..... we actually Lost one Week since thanksgiving was late this year. That week means a lot when you have everything to do . Is anyone else’s trees up?
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Good Morning everyone! Micmel, we have the tree up and decorated. I need to work on my Christmas cards and wrap a couple of presents today but I'm having a hard time getting going this morning. I think I need to ask my MO for some adderall.
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Simone ~Hello darlin! You’re ahead of me...... lol. I need to wrap as well. I would gladly share if there was possibly enough for us all. But I highly recommend talking to your doctors about it. It’s changed my days, some days i don’t even feel sick. (Some days, not by any means all days) but I’ll take it. Enjoy your wrapping. I enjoy wrapping actually That’s why I don’t mind Christmas. My obsession with laundry and folding changes into shopping and wrapping. Temporarily lo
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Trouble sleeping. Been up since 2 am. I kept quietly checking your livingroom but all quiet, lol. I have no idea when I fell asleep. My adult dauggter says I fall asleep early. She said one day it took less than 20 minutes before I fell asleep after arriving home after work. I was sitting on the loveseat.
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Chiris~I am so sorry that you were having trouble sleeping. I know the feeling but last night wasn’t one of them. The faithful companions.....had me up at 720 which isn’t bad. They must have known it was Saturday.
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I slept not too badly. Got up early to hit the grocery store before my video chat with the volunteer. She said she would be available today so I got up early for that reason. Came home, went to call her, no answer. Tried a few times, no message from her. This is the second volunteer that let me down. Has me feeling depressed and upset today. Just tired which makes sense. At least I got some sun this morning. I suppose that is something.
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Hello all.
Mara- So sorry about your volunteer letting you down. Remember you are not alone- we are here for you.
Dutchiris- Sorry for your trouble sleeping last night. Hope tonight is better for you.
Not much going on here today. 1 load laundry and ran the vacuum (small house so not much to do). I have still been doing the church secretary volunteer thing during the week. And then yesterday I helped a friend decorate for her Christmas Party which was last night. (She invited me to stay for the festivities, but I bowed out.) When I got home from decorating, I was so exhausted I felt like puking. Didn't, but felt horrid. I hate the fatigue. Slept well last night and today better.
Hugs to all.
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I did sleep pretty well last night but today's piano recital - which was wonderful and all the students did a lovely job - has done me in. I am in my jammies with a cup of tea in my chair by the window with my little doggie LuLu sleeping behind my head. When DH gets home, he will figure out what kind of take-out we are getting for supper tonight. Watch a little television and then bedtime. Woohoo Saturday nights used to be pretty different. I really much prefer this kind. It's so quiet and peaceful in my living room.
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Thank you Candy. Supposed to go to a party today in the evening. Almost thinking of bowing out as I am tired from allowing myself to be upset but feel like I would be letting people down, so will go, even if for an hour. DB wants me to bus it over but I will UBER as not familiar with getting to his house. Used to having rides over.
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Moomala,
You sound so much like me. Used to love to go out and kick up my heals every now and then. But my best evenings now are at home with my dogs, DH, and relaxing by the Christmas tree. My sister did do that for me while she was here (decorated the tree), so at least that’s one good thing that came out of her visit.
Mara, I am also sorry about the volunteer not being there for you. If you ever need to talk, I would certainly give you a call. Just reach out and leave your number in the private area. It really sucks when people disappoint us. I am very sensitive, so I take things like that personally. I hope she has a good excuse.
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Thanks Booboo, I feel better. I am at a surprise party for SIL. Feeling better now. Will PM you later.
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Hi all, checking in....
Frisky, sorry about the progression but happy you’re not in pain and are dealing with the news so well.
Nothing interesting today, just TV and errands.
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Ladies, guess who took a shower for the first time in over a month?
THIS GAL.
Even managed to break out the sugar scrub in order to exfoliate AND moisturize AND smell pretty. Had Other Half waiting with the crutches/hand me stuff/safety, and we did a dry run first so I could figure out the physics and trouble spots, but I made it. (note: we have an acrylic roll top tub with an overhead showerhead and no tiling on the walls so there is no place to fit a shower chair, bathboard, or suction cup handle, and I have to hurdle a leg over the top when I am only just now able to lift it as normal. Its about the worst possible set up with limited mobility, hence why we are moving in a few months!).
Will probably be a few more weeks until I feel stable enough to try this on my own, but major win today that will help speed up wash days.
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Sondra, Congratulations! What an amazing feeling to be able to take a shower unaided! Good for you! I've been there, therefore know exactly how you feel....
Illimae, I spoke too quickly, after a morning out, gallivanting with friends around Ikea yesterday, I got home sooooo tttiiiirrreeedddddd, and then by the time I was getting ready to go to bed, I started feeling these atrocious pains all over!
From my ankles and legs to my upper arms, neck, and shoulder....and lower back atrocious, lactic acid type horror...I was on fire!
so, maybe all that wellbeing was due to lack of major exertion...It’s been very cold here and had not ventured outdoors much....apparently, my body can handle the indoor activities better because I rest constantly....
I had to take a Tylenol to put and end to my misery....but it will affect my poor liver that's already under attack... I had a quick jolt of ugly reality, otherwise I had been relatively happy physically in the land of denial till then..
Progression is an unfortunate reality, I feel better to prepare for it psychologically, while fighting it all the way...
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Oh wow, Sondra, how wonderful a shower feels especially after a while without one. It's good to see that things are improving enough for you to be able to do these things.
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